RE: Entocort

[Guest guest]

My boys are patients of Dr. K too - they did great on Entocort and Pentasa,

we started LDN to time it's ramp up to be full dose when the Entocort was

faded out. Our DAN! was the one to prescribe the LDN, not Krigsman though

he wasn't opposed to it he's not convinced about it either I might have

talked him into a script but I didn't feel like it since I knew one call

back to our DAN! would get it done. It's been a few weeks w 3.5mg cream LDN

and no entocort (they've continued on Pentasa) and so far so good, both boys

are stable and doing well... I suggest logging on to the Autism_LDN yahoo

group and getting more information about it... LDN doesn't bring any

disease into remission, it prevents it's progression, so you use the other

drugs to get the remission happening and then the LDN keeps it there...

Dr. K said if we had any regression we'd have to go back on the Entocort,

I'm hoping that doesn't have to happen but you never know, it's been 3 weeks

for us so far. I have another friend who's kid isn't on LDN and as soon as

they stopped the Entocort GI symptoms came flooding back.

near LAX

> I have heard that many kiddos do great while on Entocort but once it is

> removed all of the

> symptoms and problems come back (sometimes worse than before). Has anyone

> had success

> with Entocort without regressing when it is eventually removed? We have

> been on Pentasa for

> a year and still have unformed stools (great color and odor and texture but

> not formed). Dr. K

> has suggested Entocort and I am not a big fan of steroids so I am sitting

> on the script. I

> would love to hear from parents who saw great results even after Entocort

> was removed. Are

> any of you out there?

>

[Guest guest]

We have been on Colazal for years with some pretty good reduction in

inflammation symptoms, but the inflammation is still there. So, we will be

switching to Pentasa. I believe they are both in the same 5-ASA family of

anti-inflammatory drugs. Can anyone explain the primary differences in how

Colazal, Pentasa, and Entocort work? We are trying to understand why one

might be better than the others.

L

From: csb-autism-rx [mailto:csb-autism-rx ]

On Behalf Of Dayna Sable

Sent: Tuesday, October 28, 2008 10:04 PM

To: csb-autism-rx

Subject: Entocort

I have heard that many kiddos do great while on Entocort but once it is

removed all of the

symptoms and problems come back (sometimes worse than before). Has anyone

had success

with Entocort without regressing when it is eventually removed? We have been

on Pentasa for

a year and still have unformed stools (great color and odor and texture but

not formed). Dr. K

has suggested Entocort and I am not a big fan of steroids so I am sitting on

the script. I

would love to hear from parents who saw great results even after Entocort

was removed. Are

any of you out there?

Peace,

Dayna