Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Zsolt, We are very glad that you joined us and you will get lots of help from all of us. My PLT is in my legs only. I am living in ville, Ga. Jane Anne King Introductory remarks Dear PLS Friends,I've just joined this egroup list, and as suggested, I am writing tointroduce myself.My name is Zsolt and I live sort of in the middle of nowhere in NewMexico.A year ago, after having a barrage of tests done (which eliminatedeverything from Lyme Disease to Syphilis, from tumors to mitochondrialcauses), the neurologist suggested I might have PLS. This was because ofmy pronounced upper motor neurone symptoms: dysarthria, hyper-reflexia,spasticity, weakness in legs and hands, and bulbar involvement affectingmy face, throat and thorax. My EMG's continue to show normal, and thereis minimal lower motor neurone involvement. My symptoms and conditioncontinue to progress, yet the doctors are reluctant to give a definitediagnosis, wanting instead to wait and see how the progression plays out.I now use a walker at home, a wheelchair when out and about. LastFriday I began using a BiPap machine because of a reduced ability tobreathe. This has been very helpful, though I must admit takes a bit ofgetting used to.Overall, however, I feel I'm doing well with the continuing changes andchallenges that this condition has brought to my life. (And I'm verythankful for spell check, as it helps tidy up my ever clumsier typingskills!) I have a great crew of friends who help me. Some of them haverecently initiated the Z Team, in order to help coordinate some of mypersonal caregiving needs, particularly helping me with my water therapyat the pool and getting me to doctor and therapy appointments. Otherfriends help with cleaning and light construction around the house. Since the doctor's first suggestions of Motor Neurone Disease, I've beenkeeping a chronicle of my life, which is a series of essays rather than ajournal. I find this has been helpful in order to sort through things,rigorously observing my life and thoughts as I write about events andemotions connected to what is occurring to me. What I've found mostinteresting as I continually ponder my life, is how beautiful it is. Even with all the challenges, both physical and psychological, brought tome by the constant degeneration of my body, when I write about the peoplewho help me, the kindness of strangers, the caring of a diversecommunity, I find beauty in it. But then, I find life beautiful.Anyway, thanks for letting me be part of your group. I look forward tothe opportunity to learn through your experiences, and to betterunderstand what is happening to me.Best wishes,Zsolt________________________________________________________________YOU'RE PAYING TOO MUCH FOR THE INTERNET!Juno now offers FREE Internet Access!Try it today - there's no risk! For your FREE software, visit:http://dl.www.juno.com/get/tagj.-------------------------- eGroups Sponsor -------------------------~-~>Need health options for a loved one? OneBody's Health Advisor Report saves you time by delivering in-depth information for wellness, connects you with a Health Professional. Intro rate $9.95 till 11/30http://click./1/10054/14/_/532384/_/973123133/--------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
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