Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 ok well we saw the crainal faical dr and he wrote a script for corbyns doc band, due to the fact is mild were sure the insurance company will not pay for it, iw ish they would but i am sure they wont and have no hope that they will thought i w ill have them be billed anyhow just for fun. to see what stupid things they come up with, but when i had called them they told me they consider them experimental soo i knew then for a mild case they wouldnt bring me to my question, anyone know what they tend to run in the midwest i understand west coast is outragous do you think it matters if he will be in one shorter time that it would cost less? anyione have any idea if they allow you to break of the first payment of 600 in to two payments it would really hurt to have to come up with extra 600 bucks at xmas time and not sure if shoudl wait till after, could we miss a growth spurt and lose the window correction? anyone have any ideas, suggestions or info? thanks hillary kcmo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 Hillary, I'm a little confused here. Why did this dr give you a script for a DOCband when CT said your son wouldn't benefit from one? I thought they told you that your son wouldn't receive any correction from being banded b/c he's too mild. A baby's head HAS to have a certain degree of plagio/brachy/scaphy for these bands to work. The head HAS to be able to provide " holding points " for the band. If there aren't any holding points the band won't/can't work. I'd hate to see you persue this, spend $3000.00 and receive no correction! I'm not too sure if they'll break up the $600.00. Everyone I know of has had to pay $600.00 at casting. --- In Plagiocephaly , " Steve Barlow " <sbarlow@m...> wrote: > ok well we saw the crainal faical dr and he wrote a script for corbyns doc band, due to the fact is mild were sure the insurance company will not pay for it, iw ish they would but i am sure they wont and have no hope that they will thought i w ill have them be billed anyhow just for fun. to see what stupid things they come up with, but when i had called them they told me they consider them experimental soo i knew then for a mild case they wouldnt > bring me to my question, anyone know what they tend to run in the midwest i understand west coast is outragous > do you think it matters if he will be in one shorter time that it would cost less? > anyione have any idea if they allow you to break of the first payment of 600 in to two payments it would really hurt to have to come up with extra 600 bucks at xmas time and not sure if shoudl wait till after, could we miss a growth spurt and lose the window correction? > anyone have any ideas, suggestions or info? > thanks > hillary kcmo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 i dont know i guess he doesnt agree with him not sure he said he has forhead assymetry and that it could be corrected with a doc band he said all of its is subjective we went to see him to rule out craino, yet again and about his eye which he said could be made worse by the mild plagio he isnt sure until he is older he might require surgery for his eye , its unclear right now , i told him what they said and he said that yes it is mild but he is more apt to treat mild than some, like he said its subjective it depends on who is doing it, i havent decided yet if we are , or arent, i am still unsure what we will do just trying to figure it out Re: doc bands midwest Hillary,I'm a little confused here. Why did this dr give you a script for a DOCband when CT said your son wouldn't benefit from one? I thought they told you that your son wouldn't receive any correction from being banded b/c he's too mild. A baby's head HAS to have a certain degree of plagio/brachy/scaphy for these bands to work. The head HAS to be able to provide "holding points" for the band. If there aren't any holding points the band won't/can't work.I'd hate to see you persue this, spend $3000.00 and receive no correction!I'm not too sure if they'll break up the $600.00. Everyone I know of has had to pay $600.00 at casting.> ok well we saw the crainal faical dr and he wrote a script for corbyns doc band, due to the fact is mild were sure the insurance company will not pay for it, iw ish they would but i am sure they wont and have no hope that they will thought i w ill have them be billed anyhow just for fun. to see what stupid things they come up with, but when i had called them they told me they consider them experimental soo i knew then for a mild case they wouldnt > bring me to my question, anyone know what they tend to run in the midwest i understand west coast is outragous> do you think it matters if he will be in one shorter time that it would cost less?> anyione have any idea if they allow you to break of the first payment of 600 in to two payments it would really hurt to have to come up with extra 600 bucks at xmas time and not sure if shoudl wait till after, could we miss a growth spurt and lose the window correction? > anyone have any ideas, suggestions or info?> thanks > hillary kcmoFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 oh he did say that he wouldnt benifit that his correction wouldnt be huge like soem babys , he said his correction will be mild but his plagio is mild he said it was totally up to us what we wanted to do at this point i am undecided Re: doc bands midwest Hillary,I'm a little confused here. Why did this dr give you a script for a DOCband when CT said your son wouldn't benefit from one? I thought they told you that your son wouldn't receive any correction from being banded b/c he's too mild. A baby's head HAS to have a certain degree of plagio/brachy/scaphy for these bands to work. The head HAS to be able to provide "holding points" for the band. If there aren't any holding points the band won't/can't work.I'd hate to see you persue this, spend $3000.00 and receive no correction!I'm not too sure if they'll break up the $600.00. Everyone I know of has had to pay $600.00 at casting.> ok well we saw the crainal faical dr and he wrote a script for corbyns doc band, due to the fact is mild were sure the insurance company will not pay for it, iw ish they would but i am sure they wont and have no hope that they will thought i w ill have them be billed anyhow just for fun. to see what stupid things they come up with, but when i had called them they told me they consider them experimental soo i knew then for a mild case they wouldnt > bring me to my question, anyone know what they tend to run in the midwest i understand west coast is outragous> do you think it matters if he will be in one shorter time that it would cost less?> anyione have any idea if they allow you to break of the first payment of 600 in to two payments it would really hurt to have to come up with extra 600 bucks at xmas time and not sure if shoudl wait till after, could we miss a growth spurt and lose the window correction? > anyone have any ideas, suggestions or info?> thanks > hillary kcmoFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 epicanthic eye fold is what is wrong with his left eye, said the way the lid attaches is not normal and that it could require surgery later on after the bridge of his nose has moved from myunderstanding its moves down as the child grows , maybe its up not sure anyhow it moves and after is moves it depends on the serverity of it if it requires surgery i guess the concern is the forehead over it protruding and could it be causeing it to apear to be worse, if we correct his mild forhead assymmerty it could bring his eyeup just enough for it not to need surgery, however that is the line of thinking on it, not rounding his head out which he said he didnt think we would receive much if any correction on that and the indention at the temples proably wouldnt be corrected either but it could possibly help him avoid surgery later , maybe maybe not, hard to say but since we wont know that until he is older and he would be too old to band its up to us if we want to or not he said it couldnt hurt him and it could help him, granted i suppose we can wing it and hope that as he grows he doesnt need surgery for his eye and if he does try not to wonder if it could have been prevented,he could be banded have his forehead fixed and still need surgery there is no way to knw for sure if his eye was on the other side it would be much eaiser to know, but since it has become more prounced as his head changed he is thinking he has something to do with it i will talk with tim littlefield tomorrow hopefully and find out his opinion as well as consult with the ct people and see waht they think before making a final desision but i amnot sure i can just do nothing and not feel guilty if later he does need surgery and i didnt at least look in to this, i am not sure i can live with that thinking that pain could have been avoided but the dr recommended i talk with the the ct people that actually make the bands too before i made my deciosn and if i do decide to make another apointmet with him in a month he wants to keep him monitored as well to be sure he isnt getting worse hillary kcmo Re: doc bands midwest Hillary,I'm a little confused here. Why did this dr give you a script for a DOCband when CT said your son wouldn't benefit from one? I thought they told you that your son wouldn't receive any correction from being banded b/c he's too mild. A baby's head HAS to have a certain degree of plagio/brachy/scaphy for these bands to work. The head HAS to be able to provide "holding points" for the band. If there aren't any holding points the band won't/can't work.I'd hate to see you persue this, spend $3000.00 and receive no correction!I'm not too sure if they'll break up the $600.00. Everyone I know of has had to pay $600.00 at casting.> ok well we saw the crainal faical dr and he wrote a script for corbyns doc band, due to the fact is mild were sure the insurance company will not pay for it, iw ish they would but i am sure they wont and have no hope that they will thought i w ill have them be billed anyhow just for fun. to see what stupid things they come up with, but when i had called them they told me they consider them experimental soo i knew then for a mild case they wouldnt > bring me to my question, anyone know what they tend to run in the midwest i understand west coast is outragous> do you think it matters if he will be in one shorter time that it would cost less?> anyione have any idea if they allow you to break of the first payment of 600 in to two payments it would really hurt to have to come up with extra 600 bucks at xmas time and not sure if shoudl wait till after, could we miss a growth spurt and lose the window correction? > anyone have any ideas, suggestions or info?> thanks > hillary kcmoFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 I am sure that has to be a hard decision. I am glad the doctor wants to monitor him. So many doctors don't take the time these days. Keep us posted. Angie and Jenna(Missouri) Re: doc bands midwest Hillary,I'm a little confused here. Why did this dr give you a script for a DOCband when CT said your son wouldn't benefit from one? I thought they told you that your son wouldn't receive any correction from being banded b/c he's too mild. A baby's head HAS to have a certain degree of plagio/brachy/scaphy for these bands to work. The head HAS to be able to provide "holding points" for the band. If there aren't any holding points the band won't/can't work.I'd hate to see you persue this, spend $3000.00 and receive no correction!I'm not too sure if they'll break up the $600.00. Everyone I know of has had to pay $600.00 at casting.> ok well we saw the crainal faical dr and he wrote a script for corbyns doc band, due to the fact is mild were sure the insurance company will not pay for it, iw ish they would but i am sure they wont and have no hope that they will thought i w ill have them be billed anyhow just for fun. to see what stupid things they come up with, but when i had called them they told me they consider them experimental soo i knew then for a mild case they wouldnt > bring me to my question, anyone know what they tend to run in the midwest i understand west coast is outragous> do you think it matters if he will be in one shorter time that it would cost less?> anyione have any idea if they allow you to break of the first payment of 600 in to two payments it would really hurt to have to come up with extra 600 bucks at xmas time and not sure if shoudl wait till after, could we miss a growth spurt and lose the window correction? > anyone have any ideas, suggestions or info?> thanks > hillary kcmoFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hillary, why would you want to band if you have been told that Corbyn's plagio is too mild to benefit? I have another question as well, why are you trying to repo him when there really isn't anything to repo? I'm so confused. I prayed that someone would have said that to me about my daughter when she was dx. Dustie --- In Plagiocephaly , " Steve Barlow " <sbarlow@m...> wrote: > ok well we saw the crainal faical dr and he wrote a script for corbyns doc band, due to the fact is mild were sure the insurance company will not pay for it, iw ish they would but i am sure they wont and have no hope that they will thought i w ill have them be billed anyhow just for fun. to see what stupid things they come up with, but when i had called them they told me they consider them experimental soo i knew then for a mild case they wouldnt > bring me to my question, anyone know what they tend to run in the midwest i understand west coast is outragous > do you think it matters if he will be in one shorter time that it would cost less? > anyione have any idea if they allow you to break of the first payment of 600 in to two payments it would really hurt to have to come up with extra 600 bucks at xmas time and not sure if shoudl wait till after, could we miss a growth spurt and lose the window correction? > anyone have any ideas, suggestions or info? > thanks > hillary kcmo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 we werent treating the plagio we were trying to keep it from getting worse he is laying on the left back side of his head which is what is pushing his forhead and his ear outof postion its mild but if he continues to lay that way i was told it would get worse i was told by the ct people to keep him off that spot the band IF we decide to go that way could prevent surgery on his eye they cant tell i f his eye is formed as severe on its own or if because of his forhead is pushing his eye it looks worse if that makes any sense, i am sorry i am a bit confused too. he has a funky eye, which they think is worse because of the plagio, hence if we fix his forhead then they can better assese the serverity of the eye alone, as it stands right now he thinks he may require surgery later beause the fold will proably look worse and hinder his vision, as his nose moves down i think, is what he said, anyhow he said it was up to me and i havent offically decided what i am going to do yet i still awnt to talk to ct people and a few others to see what they think about that, he was seen by the crianal faical people and no his plagio alone isnt enough to band but combined with the abnormal eye he could recieve soem befinift IE prevent surgery later sorry for the confusion hillary Re: doc bands midwest Hillary, why would you want to band if you have been told that Corbyn's plagio is too mild to benefit? I have another question as well, why are you trying to repo him when there really isn't anything to repo? I'm so confused. I prayed that someone would have said that to me about my daughter when she was dx.Dustie> ok well we saw the crainal faical dr and he wrote a script for corbyns doc band, due to the fact is mild were sure the insurance company will not pay for it, iw ish they would but i am sure they wont and have no hope that they will thought i w ill have them be billed anyhow just for fun. to see what stupid things they come up with, but when i had called them they told me they consider them experimental soo i knew then for a mild case they wouldnt > bring me to my question, anyone know what they tend to run in the midwest i understand west coast is outragous> do you think it matters if he will be in one shorter time that it would cost less?> anyione have any idea if they allow you to break of the first payment of 600 in to two payments it would really hurt to have to come up with extra 600 bucks at xmas time and not sure if shoudl wait till after, could we miss a growth spurt and lose the window correction? > anyone have any ideas, suggestions or info?> thanks > hillary kcmoFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 that is what they said yes he doesnt have a flat spot he lays on the back left spot and his left forhead protrudes over his left eye, he has no flat spots , they told me to keep him from laying like that or he would have one and would make is forhead worse, he wouldnt be banded for mild scaphy the dr said he didnt think that it would help that, that is would make his forhead on the left side normal making that eye more normal and easier to deteremine if he would actually need surgery later or not he wouldnt be banded for the s he had forhead asstymetry it would only correct that Re: doc bands midwest Ok, now I'm really, really confused. I thought CT told you he had mild scaphy??? Banding him and keeping him off that spot are totally different. Have you checked out the repositioning folder in the files section? I spoke with someone at CT and even if you were to flatten out the back of his head it wouldn't correct the mild scaphy that he has. All it would do is, cause him to bave brachy. Could you post pics of the flat spot he has on the left side? I've looked at Corbyn's web site and for the life of me I can't see it.I'm just trying to understand.> > ok well we saw the crainal faical dr and he wrote a script for > corbyns doc band, due to the fact is mild were sure the insurance > company will not pay for it, iw ish they would but i am sure they > wont and have no hope that they will thought i w ill have them be > billed anyhow just for fun. to see what stupid things they come up > with, but when i had called them they told me they consider them > experimental soo i knew then for a mild case they wouldnt > > bring me to my question, anyone know what they tend to run in the > midwest i understand west coast is outragous> > do you think it matters if he will be in one shorter time that it > would cost less?> > anyione have any idea if they allow you to break of the first > payment of 600 in to two payments it would really hurt to have to > come up with extra 600 bucks at xmas time and not sure if shoudl wait > till after, could we miss a growth spurt and lose the window > correction? > > anyone have any ideas, suggestions or info?> > thanks > > hillary kcmo> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 i dont know what you mean i havent a clue how they work, humm i dont know how to answer that i am sorry i dont know that we will even try to presue this its just what he said i assumed they would understand at ct, i am gonna go talk to the ct people if they said that he is wrong then i guess he is , i dont know i at this point dont even know if we will even try i am confused sorry hillary Re: doc bands midwest What I don't understand is since these bands NEED holding points to work and Corbyn doesn't have any HOW is it going to correct anything?> > > ok well we saw the crainal faical dr and he wrote a script for > > corbyns doc band, due to the fact is mild were sure the > insurance > > company will not pay for it, iw ish they would but i am sure they > > wont and have no hope that they will thought i w ill have them be > > billed anyhow just for fun. to see what stupid things they come > up > > with, but when i had called them they told me they consider > them > > experimental soo i knew then for a mild case they wouldnt > > > bring me to my question, anyone know what they tend to run in > the > > midwest i understand west coast is outragous> > > do you think it matters if he will be in one shorter time that > it > > would cost less?> > > anyione have any idea if they allow you to break of the first > > payment of 600 in to two payments it would really hurt to have to > > come up with extra 600 bucks at xmas time and not sure if shoudl > wait > > till after, could we miss a growth spurt and lose the window > > correction? > > > anyone have any ideas, suggestions or info?> > > thanks > > > hillary kcmo> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 all i know is what i was told, i looked it up and read that as well about downs, fas, and others not sure that is wht he said he isrecommended on the ct website , as well as he has done prior surgery on my daughter soo i know who he is , he is a good doctor , when i spoke to tim littlefield today he seemed to understand what the dr told me and he didnt seem to think it sounded odd or untrue, as i said before i am not sure what i will i havent done anything, i may not do anything i just trying to get answers and understand i am sorry if i have confused you all i truely didnt mean too i will try not to in the furture hillary Re: doc bands midwest Well, color me confused too. I haven't been able to read messages lately, because Carolina has been in the hospital once a week the last few weeks. But I wanted to check on Corbyn's CT eval since Hillary wrote to me about Lorenzo.Hillary, I would get a 2nd opinion about Corbyn's eye. Lorenzo has epicanthic folds, and surgery has never been mentioned. Epicanthic folds are not uncommon. Asians have them. Downs syndrome, fetal alcohol children, etc. have them. Sometimes they happen for no apparent reason. Lorenzo saw a pediatric ophthalmologist because it appeared that sometimes his right eye turned in. Sometimes the folds, combined with a flat nasal bridge make it appear that the eyes are crossed when they are not, so Lorenzo was fine. I've known Downs children with severe epicanthic folds and none of them have had surgery.I would recommend that you visit an ophthalmologist and get his/her opinion. I don't really understand how a helmet would benefit the epicanthic folds. The best picture of Lorenzo's eyes are in his file in the Before and After section.-God Bless, in KYWife to BertMama to Isabelle (6), Carolina (4), (3) and Lorenzo (1)-- In Plagiocephaly , "dustiejones" <dustiejones@y...> wrote:> Hillary, did you tell the dr that you already had Corbyn evaluated by > CT and what they said?> > Dustie> > > > epicanthic eye fold is what is wrong with his left eye, said the > way the lid attaches is not normal and that it could require surgery > later on after the bridge of his nose has moved from myunderstanding > its moves down as the child grows , maybe its up not sure anyhow it > moves and after is moves it depends on the serverity of it if it > requires surgery For more plagio info Quote Link to comment Share on other sites More sharing options...
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