Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Hi Fuller, I don't think you need to apologize. I don't see any of those who are promoting the Da Vinci procedure apologizing. There are several other lists that many of you may not be aware of. I learn a bit from all of them. Peress publishes a list every Friday of some of the other lists. Here is part of her weekly list: Most recent update: 9/12/2007Please note: These are simply pointers to Internet-based PCa resources, and should not be regarded as any sort of recommendation or endorsement. It's up to you to carefully weigh the information you find, and discuss it with your own physician.====================MAILING LISTS AND FORUMSPhysician To PatientThe purpose of the p2p mailing list is to provide the prostate cancer patient or other interested parties with information from physicians about the treatment of prostate cancer. This is a moderated list without the high volume normally associated with mailing lists or the frequent off-topic questions. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/p2pIMPORTANT: Every message sent to p2p must contain a Prostate Cancer Digest. Instructions for preparing your digest are in the first issue of PCRI Insights, which you can get in .pdf format here:http://www.prostate-cancer.org/resource/insights.htmlThe same instructions are also available as a webpage:http://www.prostatepointers.org/p2p/pcd.html====================NewDxNewDx offers information and support to those newly diagnosed with prostate cancer. Experienced PCa patients who want to help the newly diagnosed are encouraged to join! To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/newdx====================The CircleSupport for wives, families, friends, and significant others of men with prostate cancer -- and, of course, the men themselves. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/circle====================SeedPodsA mailing list for those interested in brachytherapy (radioactive seed implants) as a treatment for prostate cancer. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/seedpods====================RPA mailing list dedicated to the needs and concerns of radical prostatectomy patients. The sole purpose of this list is to narrowly focus on the concerns of those who have already had an RP or have selected RP as their treatment. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/rp====================IceBallsA mailing list offering information and support to those interested in cryosurgery for prostate cancer. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/iceballs====================CHBCHB offers discussion and support for patients interested in any form of hormonal blockade. This includes: orchidectomy, medical hormonal blockade [lupron, flutamide, proscar, etc.] as well as food supplements such as PC-SPES. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/chb====================EBRTEBRT offers discussion and support for patients interested in any form of radiation therapy for prostate cancer. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/ebrt====================WWWW offers discussion and support for patients interested in Watchful Waiting as a strategy for the management of prostate cancer. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/ww====================Prostate Cancer and IntimacyPCAI is a mailing list for frank and open discussion of the sexual issues surrounding PCa. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/pcai========================================Prostate Problems Mailing List (PPML)An unmoderated forum which discusses problems and treatments related to men's prostate gland. This is a broad-based, comprehensive forum with extremely knowledgeable participants. To subscribe, go to:http://ppml-info.org====================C2P -- Coach-to-PlayerPC-REF's mailing list where patients and family can ask PCa questionsof Israel Barken and other doctors. To subscribe, go tohttp://www.pcref.org/c2p.php====================Advanced Prostate CancerA group for men and their families with apc at: http://health.groups.yahoo.com/group/advancedprostatecancer/join ====================PCa_WomenA group for the spouses and partners of men with pc at: http://health.groups.yahoo.com/group/PCa_Women/join ?====================Prostate-Help Ladies OnlyTo register, go to:http://prostate-help.org/forum/====================Prostate Cancer Action NetworkA forum for discussing important issues affecting the care and treatment of prostate cancer survivors, and ways to bring about needed change. To subscribe, go to:http://www.prostatepointers.org/mailman/listinfo/pcan====================Prostate Cancer and Gay MenTo subscribe, go to:http://health.groups.yahoo.com/group/prostatecancerandgaymen/====================Humor And HealingHAH is a humor list for the online PCa community, more intimate and friendly than the big Internet joke lists. To subscribe, go tohttp://www.prostatepointers.org/mailman/listinfo/hah My favorites are the Circle, SeedPods, RP, HAH and PPML Aubrey To All:Once again I have started another series of non-helpful posts on this very helpful forum. I apologise, and will not post here again unless I am asked a question by a member.Fuller I wish you all the bestAubrey Pilgrim, DC (Ret.) Author ofA Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revisionSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Hey Aubrey, Hope you are doing ok in your new location. Looks like you are already having some cold; still 88+ here. I wasn't apologizing for my chosen treatment (avoiding the P word here); rather for " stirring up " what was obviously becoming a non- useful back-and-forth diatribe. Some here seem to denigrate anything that they have never heard of from their doctors or the ACS. Of course all doctors are truthful and tell you everything you need to know???? Best, Fuller > > > > Hi Fuller, > > I don't think you need to apologize. I don't see any of those > who are promoting the Da Vinci procedure apologizing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 HI Fuller, Rub it in- 88 degrees- I sure do miss southern California. As for the lists, seems that there are some on every list who just love to stir it up. But this is a great list- a lot better than some of the others. I think is doing a good job. Your statement about doctors being truthful and telling you every thing you want to know has got to be an understatement, right??? Aubrey Hey Aubrey,Hope you are doing ok in your new location. Looks like you are already having some cold; still 88+ here.I wasn't apologizing for my chosen treatment (avoiding the P word here); rather for "stirring up" what was obviously becoming a non-useful back-and-forth diatribe. Some here seem to denigrate anything that they have never heard of from their doctors or the ACS. Of course all doctors are truthful and tell you everything you need to know????Best,Fuller I wish you all the bestAubrey Pilgrim, DC (Ret.) Author ofA Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revisionSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Aubrey, I am now at home in Florida, near the space center. We just had a good thunderstorm, and I believe the weather break is finally here, it is about 70, and hopefully cooler in the daytime tomorrow, we have NOT had a noontime temp of less than 85 deg for months, and the humidity is stifling. I'll bet that Loma weather is great now, as a matter of fact, I just checked, it is high 81, low 56. Boy how good that would feel! I really miss the enriching experience that I had during my proton treatment at LLUMC, it was a true " Radiation Vacation! " As for the mainstream urologists, I would be willing to bet that just about every regular on this list actually knows more about the various treatments for PCa than they do! They are each so " stuck " in whatever specialty that they practice, they just rattle off the other options as " less desirable " alternatives, and conveniently leave out protons. That is what happened to me six times! As for that " word " that I can now say, I think that within the next five years or so, when a doc does NOT tell a patient about protons, the patient will probably take him or her to task about it! Time will tell-- Best, Fuller > > > > HI Fuller, > > Rub it in- 88 degrees- I sure do miss southern California. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2007 Report Share Posted December 29, 2007 To Moderators and all, I sent a long answer to a post from Laurel to the list. It was supposed to be personal. I hit the send button in error. I apologize for sending the personal message that had nothing to do with our disease. I promise to be more careful in the future. Aubrey See AOL's top rated recipes and easy ways to stay in shape for winter. Quote Link to comment Share on other sites More sharing options...
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