Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 My friend Diane wanted me to forward this email to the group to see if anyone had any info on this problem she is having. She has Primary Progressive MS. love..Sharon sharon, I need to call you cuz it's too long to type here but if you would post this to your ms group and see if they have any info i'd appreciate it. My ENT dr stuck a tube down my nose and looked at my vocal chords. He said based on the sound (raspy sounding) of my voice, and the peek, I guess, lol, he said I have Muscle Tension Dysphonia. Now, I've googled it and found Spasmodic Dysphonia as well. I have the adduction sound, not the abduction. NO where in my searching so far, have I found anything on choking/air blocking etc. in association with the dysphonia things. ENT dr said it's most likely a neurologica thing (MS) and will get worse. I"ll pass out and then when the muscle releases, I'll breathe again. (Whew, isn't that good news?!) BUT, as time goes on, and muscles stay spasmodic and stiffer and stiffer, I"ll eventually have to have a trach!!!!!!!!!!!!!!!!!!!! So post this info and see if anyone has any info. NOT looking for "oh, sorry, etc...." bullshit, sharon, I need FACTS at this point so I can become knowledgable and make choices and understand. I also need to call you and fill you in more details. This is only bottom line stuff. xoox me love ya. will call soon. marking you in daytime..... thanks sharon. thx Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
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