Re: Trigeminal Neuralgia and LDN...

February 9, 2007

Good morning Sharon and all my MSer Friends! I am actually having a horrible morning...has to do with family junk, and trying to decide if I should go to PA for my folks' 61st Anniversary. My younger sis took my 2 younger kids this am, but was concerned about taking my 12 yr old son, as he told her, he wasn't 100% after a stomach bug he had 4 days ago...so, after dropping all 3 of them off at her place, which is 20 min. 20 min back. She called me and said she didn't think he should go...So...had to drive there again and home again...Had double vision both trips, on and off. I'm having a pseudo flare my neuro said in response to the UTI which hasn't completely resolved, so having bad eye pain/ON...So, maybe not a good idea to drive 3 hrs to PA, and 3 hrs. home tomorrow;hubby can't come, he's working. I just feel mad at my sis. I know we need to keep my parents germ-free--I just don't think my son is contagious...i dunno...

Listen Sharon, a question I asked on LDN group was, but wasn't answered (yet): does the LDN help with the TN pain and does LDN help with either fatigue or depression? I would be spitting nails myself if they ducked my question too, Sharon...They are just dancin around the LDN these days, and it is gettin me real mad too! It is a fairly recent thing for me to have twinges on the L side, my TN has only been on the R for the last 10 yrs now. Ok, sorry to let loose and vent like this...I'm just SO mixed up..dunno if its meds...but i just have a heck of a time making decisions these days~esp. when it involves family vs health...dunno, thanks for listening..hugs, kate Trigeminal Neuralgia and LDN...To: MSersLife > Hi Kate:> > My trigeminal neuralgia is acting up too. My left jaw is > hurting and the right side of my head, too. I think this is the > first time I've had both sides hurt at the same time. I have a > broken tooth and and infection from it (dragging my feel on > going to the oral surgeon) so that may have something to do with > it. One of my neuros told me something like 40% of MSers have > TN, too. I do know that if a person has bilateral TN it is > recommended that the doctor suspect MS, according to some > writings aimed at physicians. I take Neurontin for it. I've > never tried Tegretol. Isn't Trileptal also recommended for TN? > > I went to a MS Seminar last Saturday put on by the National MS > Society and Biogen Idec (makers of Avonex and Tysabri). I went > to hear the speakers--three local neuros and a research doc from > NY. I wouldn't have normally gone to something put on by a drug > company when I have no interest in their drugs but since the > NMSS was also involved I thought it would be worthwhile. I > enjoyed hearing the docs speak and gained some info from it. > There was to be a question and answer session at the end and > people were encouraged to write down questions on a piece of > paper and the Biogen guys came around and gathered them. I > asked "what is your opinion of LDN?". Guess what? My question > was filtered out by the Biogen guys. I am angry about that and > plan to write letters of complaint to the NMSS as well as the 4 > doctors. If they aren't aware of it then they should be made > aware of it.> > Anyway, I asked my neuro for LDN and he gave it to me. If you > really want to try it then try your primary care or try a > Naturopath. They can prescribe, right? I get mine from a > compounding pharmacy in Florida and I only pay $20 a month > including shipping. There are also lists of doctors who may > prescribe LDN. Ask on the LDN group or check with Crystal to > see who has that list. > > I do feel better on LDN although there was more of a marked > improvement in the beginning on LDN and not so much now. If > that makes any sense. I think it's definitely worth a try > for anyone to try LDN. The researcher who just recently got the > grant from the NMSS to do pre-clinicals on LDN told me his > advice was to try it for 2 months and if it didn't work then to > get off it and get on an approved therapy. > > hugs)))> > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

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February 9, 2007

Kate,

Sorry to hear you ren't feeling good. Prayers coming your way.

Hugs

nne

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Trigeminal Neuralgia and LDN...To: MSersLife > Hi Kate:> > My trigeminal neuralgia is acting up to My left jaw is > hurting and the right side of my head, too. I think this is the > first time I've had both sides hurt at the same time. I have a > broken tooth and and infection from it (dragging my feel on > going to the oral surgeon) so that may have something to do with > it. One of my neuros told me something like 40% of MSers have > TN, too. I do know that if a person has bilateral TN it is > recommended that the doctor suspect MS, according to some > writings aimed at physicians. I take Neurontin for it. I've > never tried Tegretol. Isn't Trileptal also recommended for TN? > > I went to a MS Seminar last Saturday put on by the National MS > Society and Biogen Idec (makers of Avonex and Tysabri). I went > to hear the speakers--three local neuros and a research doc from > NY. I wouldn't have normally gone to something put on by a drug > company when I have no interest in their drugs but since the B>> NMSS was also involved I thought it would be worthwhile. I > enjoyed hearing the docs speak and gained some info from it. > There was to be a question and answer session at the end and > people were encouraged to write down questions on a piece of > paper and the Biogen guys came around and gathered them. I > asked "what is your opinion of LDN?". Guess what? My question > was filtered out by the Biogen guys. I am angry about that and > plan to write letters of complaint to the NMSS as well as the 4 > doctors. If they aren't aware of it then they should be made > aware of it.> > Anyway, I asked my neuro for LDN and he gave it to me. If you > really want to try it then try your primary care or try a > Naturopath. They can prescribe, right? I get mine from a > compounding pharmacy in Florida and I only pay $20 a month > including shipping. There are also lists of doctors who may > prescribe LN.Ask on the LDN group or check with Crystal to > see who has that list. > > I do feel better on LDN although there was more of a marked > improvement in the beginning on LDN and not so much now. If > that makes any sense. I think it's definitely worth a try > for anyone to try LDN. The researcher who just recently got the > grant from the NMSS to do pre-clinicals on LDN told me his > advice was to try it for 2 months and if it didn't work then to > get off it and get on an approved therapy. > > hugs)))> > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our sarces. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

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February 9, 2007

Kate,

I am so sorry you're having such a horrid day, I hope it gets better...My input on the Pa trip is this...stay home and sometime during the day, call them. I'd Hate for something to happen to you during such a long trip, and I know your parents sure would not want the guilt from you hurting yourself just to please them.

Why can't your sister take you as well?

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com

-- Re: Trigeminal Neuralgia and LDN...

Good morning Sharon and all my MSer Friends! I am actually having a horrible morning...has to do with family junk, and trying to decide if I should go to PA for my folks' 61st Anniversary. My younger sis took my 2 younger kids this am, but was concerned about taking my 12 yr old son, as he told her, he wasn't 100% after a stomach bug he had 4 days ago...so, after dropping all 3 of them off at her place, which is 20 min. 20 min back. She called me and said she didn't think he should go...So...had to drive there again and home again...Had double vision both trips, on and off. I'm having a pseudo flare my neuro said in response to the UTI which hasn't completely resolved, so having bad eye pain/ON...So, maybe not a good idea to drive 3 hrs to PA, and 3 hrs. home tomorrow;hubby can't come, he's working. I just feel mad at my sis. I know we need to keep my parents germ-free--I just don't think my son is contagious...i dunno...

Listen Sharon, a question I asked on LDN group was, but wasn't answered (yet): does the LDN help with the TN pain and does LDN help with either fatigue or depression? I would be spitting nails myself if they ducked my question too, Sharon...They are just dancin around the LDN these days, and it is gettin me real mad too! It is a fairly recent thing for me to have twinges on the L side, my TN has only been on the R for the last 10 yrs now. Ok, sorry to let loose and vent like this...I'm just SO mixed up..dunno if its meds...but i just have a heck of a time making decisions these days~esp. when it involves family vs health...dunno, thanks for listening..hugs, kate Trigeminal Neuralgia and LDN...To: MSersLife > Hi Kate:> > My trigeminal neuralgia is acting up too. My left jaw is > hurting and the right side of my head, too. I think this is the > first time I've had both sides hurt at the same time. I have a > broken tooth and and infection from it (dragging my feel on > going to the oral surgeon) so that may have something to do with > it. One of my neuros told me something like 40% of MSers have > TN, too. I do know that if a person has bilateral TN it is > recommended that the doctor suspect MS, according to some > writings aimed at physicians. I take Neurontin for it. I've > never tried Tegretol. Isn't Trileptal also recommended for TN? > > I went to a MS Seminar last Saturday put on by the National MS > Society and Biogen Idec (makers of Avonex and Tysabri). I went > to hear the speakers--three local neuros and a research doc from > NY. I wouldn't have normally gone to something put on by a drug > company when I have no interest in their drugs but since the > NMSS was also involved I thought it would be worthwhile. I > enjoyed hearing the docs speak and gained some info from it. > There was to be a question and answer session at the end and > people were encouraged to write down questions on a piece of > paper and the Biogen guys came around and gathered them. I > asked "what is your opinion of LDN?". Guess what? My question > was filtered out by the Biogen guys. I am angry about that and > plan to write letters of complaint to the NMSS as well as the 4 > doctors. If they aren't aware of it then they should be made > aware of it.> > Anyway, I asked my neuro for LDN and he gave it to me. If you > really want to try it then try your primary care or try a > Naturopath. They can prescribe, right? I get mine from a > compounding pharmacy in Florida and I only pay $20 a month > including shipping. There are also lists of doctors who may > prescribe LDN. Ask on the LDN group or check with Crystal to > see who has that list. > > I do feel better on LDN although there was more of a marked > improvement in the beginning on LDN and not so much now. If > that makes any sense. I think it's definitely worth a try > for anyone to try LDN. The researcher who just recently got the > grant from the NMSS to do pre-clinicals on LDN told me his > advice was to try it for 2 months and if it didn't work then to > get off it and get on an approved therapy. > > hugs)))> > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

February 9, 2007

Oh, I forgot to answer this part...

I am one of the lucky ones that does not have TN, but I Can tell you that LDN helps me with both depression *and* fatigue. I was unable to Get a prescription so I got my Naltrexone online and had it shipped from overseas, then I take the pill and dissolve it in water, and dose myself that way (I take a baby syringe and measure it out at night then swallow it, a whole heckova lot better then shots I'll tellya!!!!!!)

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com

-- Re: Trigeminal Neuralgia and LDN...

Good morning Sharon and all my MSer Friends! I am actually having a horrible morning...has to do with family junk, and trying to decide if I should go to PA for my folks' 61st Anniversary. My younger sis took my 2 younger kids this am, but was concerned about taking my 12 yr old son, as he told her, he wasn't 100% after a stomach bug he had 4 days ago...so, after dropping all 3 of them off at her place, which is 20 min. 20 min back. She called me and said she didn't think he should go...So...had to drive there again and home again...Had double vision both trips, on and off. I'm having a pseudo flare my neuro said in response to the UTI which hasn't completely resolved, so having bad eye pain/ON...So, maybe not a good idea to drive 3 hrs to PA, and 3 hrs. home tomorrow;hubby can't come, he's working. I just feel mad at my sis. I know we need to keep my parents germ-free--I just don't think my son is contagious...i dunno...

Listen Sharon, a question I asked on LDN group was, but wasn't answered (yet): does the LDN help with the TN pain and does LDN help with either fatigue or depression? I would be spitting nails myself if they ducked my question too, Sharon...They are just dancin around the LDN these days, and it is gettin me real mad too! It is a fairly recent thing for me to have twinges on the L side, my TN has only been on the R for the last 10 yrs now. Ok, sorry to let loose and vent like this...I'm just SO mixed up..dunno if its meds...but i just have a heck of a time making decisions these days~esp. when it involves family vs health...dunno, thanks for listening..hugs, kate Trigeminal Neuralgia and LDN...To: MSersLife > Hi Kate:> > My trigeminal neuralgia is acting up too. My left jaw is > hurting and the right side of my head, too. I think this is the > first time I've had both sides hurt at the same time. I have a > broken tooth and and infection from it (dragging my feel on > going to the oral surgeon) so that may have something to do with > it. One of my neuros told me something like 40% of MSers have > TN, too. I do know that if a person has bilateral TN it is > recommended that the doctor suspect MS, according to some > writings aimed at physicians. I take Neurontin for it. I've > never tried Tegretol. Isn't Trileptal also recommended for TN? > > I went to a MS Seminar last Saturday put on by the National MS > Society and Biogen Idec (makers of Avonex and Tysabri). I went > to hear the speakers--three local neuros and a research doc from > NY. I wouldn't have normally gone to something put on by a drug > company when I have no interest in their drugs but since the > NMSS was also involved I thought it would be worthwhile. I > enjoyed hearing the docs speak and gained some info from it. > There was to be a question and answer session at the end and > people were encouraged to write down questions on a piece of > paper and the Biogen guys came around and gathered them. I > asked "what is your opinion of LDN?". Guess what? My question > was filtered out by the Biogen guys. I am angry about that and > plan to write letters of complaint to the NMSS as well as the 4 > doctors. If they aren't aware of it then they should be made > aware of it.> > Anyway, I asked my neuro for LDN and he gave it to me. If you > really want to try it then try your primary care or try a > Naturopath. They can prescribe, right? I get mine from a > compounding pharmacy in Florida and I only pay $20 a month > including shipping. There are also lists of doctors who may > prescribe LDN. Ask on the LDN group or check with Crystal to > see who has that list. > > I do feel better on LDN although there was more of a marked > improvement in the beginning on LDN and not so much now. If > that makes any sense. I think it's definitely worth a try > for anyone to try LDN. The researcher who just recently got the > grant from the NMSS to do pre-clinicals on LDN told me his > advice was to try it for 2 months and if it didn't work then to > get off it and get on an approved therapy. > > hugs)))> > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

February 9, 2007

Thanks for the feedback on this Akiba. As the TN, depression and fatigue are usually the most constant and troubling things to me, it looks like I'll try to go with the LDN. I would like to hear if it addresses the TN however--so tired of taking meds for that, and most of the time they don't work anyway! hugs, kate Re: Trigeminal Neuralgia and LDN...To: MSersLife > Oh, I forgot to answer this part...> I am one of the lucky ones that does not have TN, but I Can tell > you that> LDN helps me with both depression *and* fatigue. I was unable to > Get a> prescription so I got my Naltrexone online and had it shipped > from overseas,> then I take the pill and dissolve it in water, and dose myself > that way (I> take a baby syringe and measure it out at night then swallow it, > a whole> heckova lot better then shots I'll tellya!!!!!!)> Peace and Blessings> ~*~ Akiba ~*~> Pragmatic Visionary> & Eternal Optimist!> http://yodamamma.blogspot.com/> http://www.solay-twinflames.com> -------Original Message-------> NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

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February 9, 2007

My sis has a small Honda Civic, and can only fit 3 in the back and one in the front, so a total of 4 from my family. We have 5 going...my folks don't know i have MS. I took 400mgs of tegretol at one time this am cause the TN pain is so bad. So not sure if that is what is making me so sleepy..or just plain fatigue--I tell you this fatigue just hits ya across the head, don't it? I can barely keep my eyes open! Then when they are open, between the pain from the TN/ON and double vision--it's not a happy combination. My 2 younger ones that are with her might be upset that I am not going, and I was worried about Luke and Lia who were going to go with me, that they would be disappointed, but they are playing their new Wii machine, and seem happy. so...it's the guilt i tell ya! I just feel bad that i'm 'bailing'...but then again, if i crashed and we died, then, ah...guess i'd feel a different sort of guilt then...hmmm...sis is already arrived in PA with youngins--they are 7 and 9--but they'll be real happy when my college age kid, Kara comes to stay with them in the hotel--they haven't seen her much. Her college is just about 1/2 hr away from the assisted living place my folks are at...Thanks for giving me another perspective, Akiba! kate Trigeminal Neuralgia and LDN...> To: MSersLife > > > Hi Kate:> > > > My trigeminal neuralgia is acting up too. My left jaw is > > hurting and the right side of my head, too. I think this is > the > > first time I've had both sides hurt at the same time. I have a > > broken tooth and and infection from it (dragging my feel on > > going to the oral surgeon) so that may have something to do > with > > it. One of my neuros told me something like 40% of MSers have > > TN, too. I do know that if a person has bilateral TN it is > > recommended that the doctor suspect MS, according to some > > writings aimed at physicians. I take Neurontin for it. I've > > never tried Tegretol. Isn't Trileptal also recommended for TN? > > > > I went to a MS Seminar last Saturday put on by the National MS > > Society and Biogen Idec (makers of Avonex and Tysabri). I went > > to hear the speakers--three local neuros and a research doc > from > > NY. I wouldn't have normally gone to something put on by a > drug > > company when I have no interest in their drugs but since the > > NMSS was also involved I thought it would be worthwhile. I > > enjoyed hearing the docs speak and gained some info from it. > > There was to be a question and answer session at the end and > > people were encouraged to write down questions on a piece of > > paper and the Biogen guys came around and gathered them. I > > asked "what is your opinion of LDN?". Guess what? My question > > was filtered out by the Biogen guys. I am angry about that and > > plan to write letters of complaint to the NMSS as well as the > 4 > > doctors. If they aren't aware of it then they should be made > > aware of it.> > > > Anyway, I asked my neuro for LDN and he gave it to me. If you > > really want to try it then try your primary care or try a > > Naturopath. They can prescribe, right? I get mine from a > > compounding pharmacy in Florida and I only pay $20 a month > > including shipping. There are also lists of doctors who may > > prescribe LDN. Ask on the LDN group or check with Crystal to > > see who has that list. > > > > I do feel better on LDN although there was more of a marked > > improvement in the beginning on LDN and not so much now. If > > that makes any sense. I think it's definitely worth a try > > for anyone to try LDN. The researcher who just recently got > the > > grant from the NMSS to do pre-clinicals on LDN told me his > > advice was to try it for 2 months and if it didn't work then > to > > get off it and get on an approved therapy. > > > > hugs)))> > > > Sharon> > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is> an account set up for Grace Fellowship and all searches using > Goodsearch(which uses Yahoo's search engine) will result in > about one cent being> donated to Grace Fellowship. Not much, but it can become > significant if we> and others we tell consistently use Goodsearch for all our > searches. For> example, 100 people using Goodsearch for two searches a day will > net us $730> 00 a year. When you go to the site just type in Grace Fellowship > OrthodoxPresbyterian Church as the benefactor. This is right > below the search bar.> You can also change the benefactor with each search and help other> non-profits of your choice (if they have an account). Thanks for your> consideration and God bless. > > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

Attachment: vcard [not shown]

February 9, 2007

Even worse, what if you crashed and they died but you didn't? Can you even imagine anything worse that that? I can't. SO stay home, yet!

Why haven't you told your parents? And why couldn't your sister have driven your car? With ALL y'all in it?

Nosy, I know...

Are you getting any of the snow?

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com

-- Re: Trigeminal Neuralgia and LDN...

My sis has a small Honda Civic, and can only fit 3 in the back and one in the front, so a total of 4 from my family. We have 5 going...my folks don't know i have MS. I took 400mgs of tegretol at one time this am cause the TN pain is so bad. So not sure if that is what is making me so sleepy..or just plain fatigue--I tell you this fatigue just hits ya across the head, don't it? I can barely keep my eyes open! Then when they are open, between the pain from the TN/ON and double vision--it's not a happy combination. My 2 younger ones that are with her might be upset that I am not going, and I was worried about Luke and Lia who were going to go with me, that they would be disappointed, but they are playing their new Wii machine, and seem happy. so...it's the guilt i tell ya! I just feel bad that i'm 'bailing'...but then again, if i crashed and we died, then, ah...guess i'd feel a different sort of guilt then...hmmm...sis is already arrived in PA with youngins--they are 7 and 9--but they'll be real happy when my college age kid, Kara comes to stay with them in the hotel--they haven't seen her much. Her college is just about 1/2 hr away from the assisted living place my folks are at...Thanks for giving me another perspective, Akiba! kate Trigeminal Neuralgia and LDN...> To: MSersLife > > > Hi Kate:> > > > My trigeminal neuralgia is acting up too. My left jaw is > > hurting and the right side of my head, too. I think this is > the > > first time I've had both sides hurt at the same time. I have a > > broken tooth and and infection from it (dragging my feel on > > going to the oral surgeon) so that may have something to do > with > > it. One of my neuros told me something like 40% of MSers have > > TN, too. I do know that if a person has bilateral TN it is > > recommended that the doctor suspect MS, according to some > > writings aimed at physicians. I take Neurontin for it. I've > > never tried Tegretol. Isn't Trileptal also recommended for TN? > > > > I went to a MS Seminar last Saturday put on by the National MS > > Society and Biogen Idec (makers of Avonex and Tysabri). I went > > to hear the speakers--three local neuros and a research doc > from > > NY. I wouldn't have normally gone to something put on by a > drug > > company when I have no interest in their drugs but since the > > NMSS was also involved I thought it would be worthwhile. I > > enjoyed hearing the docs speak and gained some info from it. > > There was to be a question and answer session at the end and > > people were encouraged to write down questions on a piece of > > paper and the Biogen guys came around and gathered them. I > > asked "what is your opinion of LDN?". Guess what? My question > > was filtered out by the Biogen guys. I am angry about that and > > plan to write letters of complaint to the NMSS as well as the > 4 > > doctors. If they aren't aware of it then they should be made > > aware of it.> > > > Anyway, I asked my neuro for LDN and he gave it to me. If you > > really want to try it then try your primary care or try a > > Naturopath. They can prescribe, right? I get mine from a > > compounding pharmacy in Florida and I only pay $20 a month > > including shipping. There are also lists of doctors who may > > prescribe LDN. Ask on the LDN group or check with Crystal to > > see who has that list. > > > > I do feel better on LDN although there was more of a marked > > improvement in the beginning on LDN and not so much now. If > > that makes any sense. I think it's definitely worth a try > > for anyone to try LDN. The researcher who just recently got > the > > grant from the NMSS to do pre-clinicals on LDN told me his > > advice was to try it for 2 months and if it didn't work then > to > > get off it and get on an approved therapy. > > > > hugs)))> > > > Sharon> > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is> an account set up for Grace Fellowship and all searches using > Goodsearch(which uses Yahoo's search engine) will result in > about one cent being> donated to Grace Fellowship. Not much, but it can become > significant if we> and others we tell consistently use Goodsearch for all our > searches. For> example, 100 people using Goodsearch for two searches a day will > net us $730> 00 a year. When you go to the site just type in Grace Fellowship > OrthodoxPresbyterian Church as the benefactor. This is right > below the search bar.> You can also change the benefactor with each search and help other> non-profits of your choice (if they have an account). Thanks for your> consideration and God bless. > > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

February 9, 2007

nne, you are an awesome prayer warrior! Many, many thanks to you! Did I tell you and Chuck that I went to your various websites....? I was so moved and touched~moved to tears with that lovely story Chuck wrote, and all the wonderful ways you touch people's lives, nne. God surely uses you in a powerful way! hugs, kate Trigeminal Neuralgia and LDN...> To: MSersLife > > > Hi Kate:> > > > My trigeminal neuralgia is acting up to My left jaw is > > hurting and the right side of my head, too. I think this is > the > > first time I've had both sides hurt at the same time. I have > a > > broken tooth and and infection from it (dragging my feel on > > going to the oral surgeon) so that may have something to do > with > > it. One of my neuros told me something like 40% of MSers > have > > TN, too. I do know that if a person has bilateral TN it is > > recommended that the doctor suspect MS, according to some > > writings aimed at physicians. I take Neurontin for it. I've > > never tried Tegretol. Isn't Trileptal also recommended for > TN? > > > > I went to a MS Seminar last Saturday put on by the National > MS > > Society and Biogen Idec (makers of Avonex and Tysabri). I > went > > to hear the speakers--three local neuros and a research doc > from > > NY. I wouldn't have normally gone to something put on by a > drug > > company when I have no interest in their drugs but since the > B>> NMSS was also involved I thought it would be worthwhile. I > > enjoyed hearing the docs speak and gained some info from it. > > There was to be a question and answer session at the end and > > people were encouraged to write down questions on a piece of > > paper and the Biogen guys came around and gathered them. I > > asked "what is your opinion of LDN?". Guess what? My > question > > was filtered out by the Biogen guys. I am angry about that > and > > plan to write letters of complaint to the NMSS as well as > the 4 > > doctors. If they aren't aware of it then they should be made > > aware of it.> > > > Anyway, I asked my neuro for LDN and he gave it to me. If > you > > really want to try it then try your primary care or try a > > Naturopath. They can prescribe, right? I get mine from a > > compounding pharmacy in Florida and I only pay $20 a month > > including shipping. There are also lists of doctors who may > > prescribe LN.Ask on the LDN group or check with Crystal to > > see who has that list. > > > > I do feel better on LDN although there was more of a marked > > improvement in the beginning on LDN and not so much now. If > > that makes any sense. I think it's definitely worth a try > > for anyone to try LDN. The researcher who just recently got > the > > grant from the NMSS to do pre-clinicals on LDN told me his > > advice was to try it for 2 months and if it didn't work then > to > > get off it and get on an approved therapy. > > > > hugs)))> > > > Sharon> > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is an account set up for Grace Fellowship > and all searches using Goodsearch (which uses Yahoo's search > engine) will result in about one cent being donated to Grace > Fellowship. Not much, but it can become significant if we and > others we tell consistently use Goodsearch for all our sarces. > For example, 100 people using Goodsearch for two searches a day > will net us $730.00 a year. When you go to the site just type in > Grace Fellowship Orthodox Presbyterian Church as the benefactor. > This is right below the search bar. You can also change the > benefactor with each search and help other non-profits of your > choice (if they have an account). Thanks for your consideration > and God bless. > > > > > > > > > -----------------------------------------------------------------> -------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.411 / Virus Database: 268.17.32/677 - Release > Date: 2/8/2007> NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

Attachment: vcard [not shown]

February 9, 2007

She sure is! She made me the most awesome Prayer shawl...it is with me all the time, either ON me, on an ailing family member, of on the back of my chair...but never far away....(I hope I don't use up all the prayers!)

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com

-- Re: Trigeminal Neuralgia and LDN...

nne, you are an awesome prayer warrior! Many, many thanks to you! Did I tell you and Chuck that I went to your various websites....? I was so moved and touched~moved to tears with that lovely story Chuck wrote, and all the wonderful ways you touch people's lives, nne. God surely uses you in a powerful way! hugs, kate Trigeminal Neuralgia and LDN...> To: MSersLife > > > Hi Kate:> > > > My trigeminal neuralgia is acting up to My left jaw is > > hurting and the right side of my head, too. I think this is > the > > first time I've had both sides hurt at the same time. I have > a > > broken tooth and and infection from it (dragging my feel on > > going to the oral surgeon) so that may have something to do > with > > it. One of my neuros told me something like 40% of MSers > have > > TN, too. I do know that if a person has bilateral TN it is > > recommended that the doctor suspect MS, according to some > > writings aimed at physicians. I take Neurontin for it. I've > > never tried Tegretol. Isn't Trileptal also recommended for > TN? > > > > I went to a MS Seminar last Saturday put on by the National > MS > > Society and Biogen Idec (makers of Avonex and Tysabri). I > went > > to hear the speakers--three local neuros and a research doc > from > > NY. I wouldn't have normally gone to something put on by a > drug > > company when I have no interest in their drugs but since the > B>> NMSS was also involved I thought it would be worthwhile. I > > enjoyed hearing the docs speak and gained some info from it. > > There was to be a question and answer session at the end and > > people were encouraged to write down questions on a piece of > > paper and the Biogen guys came around and gathered them. I > > asked "what is your opinion of LDN?". Guess what? My > question > > was filtered out by the Biogen guys. I am angry about that > and > > plan to write letters of complaint to the NMSS as well as > the 4 > > doctors. If they aren't aware of it then they should be made > > aware of it.> > > > Anyway, I asked my neuro for LDN and he gave it to me. If > you > > really want to try it then try your primary care or try a > > Naturopath. They can prescribe, right? I get mine from a > > compounding pharmacy in Florida and I only pay $20 a month > > including shipping. There are also lists of doctors who may > > prescribe LN.Ask on the LDN group or check with Crystal to > > see who has that list. > > > > I do feel better on LDN although there was more of a marked > > improvement in the beginning on LDN and not so much now. If > > that makes any sense. I think it's definitely worth a try > > for anyone to try LDN. The researcher who just recently got > the > > grant from the NMSS to do pre-clinicals on LDN told me his > > advice was to try it for 2 months and if it didn't work then > to > > get off it and get on an approved therapy. > > > > hugs)))> > > > Sharon> > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is an account set up for Grace Fellowship > and all searches using Goodsearch (which uses Yahoo's search > engine) will result in about one cent being donated to Grace > Fellowship. Not much, but it can become significant if we and > others we tell consistently use Goodsearch for all our sarces. > For example, 100 people using Goodsearch for two searches a day > will net us $730.00 a year. When you go to the site just type in > Grace Fellowship Orthodox Presbyterian Church as the benefactor. > This is right below the search bar. You can also change the > benefactor with each search and help other non-profits of your > choice (if they have an account). Thanks for your consideration > and God bless. > > > > > > > > > -----------------------------------------------------------------> -------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.411 / Virus Database: 268.17.32/677 - Release > Date: 2/8/2007> NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

February 9, 2007

I wish we were getting snow for Pete's sake! Way upstate, by the lakes, they are getting like 10 to 20 feet with lake effect...

I had NEVER thought of that Akiba...gee whiz...I'd just simply jump off a bridge if that would happen. My folks are 82 and 83, my dad has progressing Alzheimers--he's not totally gone yet, but slowly heading that way. My mother gets waaay to stressed out hearing anything bad. She has lung CA, and AAA--an abdominal aortic aneurysm...my sister is big time control freak! She would NEVER drive my van...I like that you are nosy...that was kinda another reason i didn't wanna go--as i'm progressing with the MS, it gets a bit trickier to hide things, ya know? i WANT SNOW!!!!!!!!

Sharon, by the way, I feel like I totally ignored that you are in pain with your TN...I'm sorry, I get into my own head, my own stuff...and neglect others...I'm sorry...I surely do feel for you...Just called the hosp. Jeff is in--I asked if he was in a reg. room or ICU--he's in that awful 'holding' place...wanna send him some flowers and balloons--butcha can't if someones' in ICU...later gators...kate Trigeminal Neuralgia and LDN...> > To: MSersLife > > > > > Hi Kate:> > > > > > My trigeminal neuralgia is acting up too. My left jaw is > > > hurting and the right side of my head, too. I think this is > > the > > > first time I've had both sides hurt at the same time. I have > a > > > broken tooth and and infection from it (dragging my feel on > > > going to the oral surgeon) so that may have something to do > > with > > > it. One of my neuros told me something like 40% of MSers > have > > > TN, too. I do know that if a person has bilateral TN it is > > > recommended that the doctor suspect MS, according to some > > > writings aimed at physicians. I take Neurontin for it. I've > > > never tried Tegretol. Isn't Trileptal also recommended for > TN? > > > > > > I went to a MS Seminar last Saturday put on by the National > MS > > > Society and Biogen Idec (makers of Avonex and Tysabri). I > went > > > to hear the speakers--three local neuros and a research doc > > from > > > NY. I wouldn't have normally gone to something put on by a > > drug > > > company when I have no interest in their drugs but since the > > > NMSS was also involved I thought it would be worthwhile. I > > > enjoyed hearing the docs speak and gained some info from it. > > > There was to be a question and answer session at the end and > > > people were encouraged to write down questions on a piece of > > > paper and the Biogen guys came around and gathered them. I > > > asked "what is your opinion of LDN?". Guess what? My > question > > > was filtered out by the Biogen guys. I am angry about that > and > > > plan to write letters of complaint to the NMSS as well as > the > > 4 > > > doctors. If they aren't aware of it then they should be made > > > aware of it.> > > > > > Anyway, I asked my neuro for LDN and he gave it to me. If > you > > > really want to try it then try your primary care or try a > > > Naturopath. They can prescribe, right? I get mine from a > > > compounding pharmacy in Florida and I only pay $20 a month > > > including shipping. There are also lists of doctors who may > > > prescribe LDN. Ask on the LDN group or check with Crystal to > > > see who has that list. > > > > > > I do feel better on LDN although there was more of a marked > > > improvement in the beginning on LDN and not so much now. If > > > that makes any sense. I think it's definitely worth a try > > > for anyone to try LDN. The researcher who just recently got > > the > > > grant from the NMSS to do pre-clinicals on LDN told me his > > > advice was to try it for 2 months and if it didn't work then > > to > > > get off it and get on an approved therapy. > > > > > > hugs)))> > > > > > Sharon> > > > > > > > > > > > > > > > > > > > NOTE: Next time you want to google something, use: > > Goodsearch.com. There is> > an account set up for Grace Fellowship and all searches using > > Goodsearch(which uses Yahoo's search engine) will result in > > about one cent being> > donated to Grace Fellowship. Not much, but it can become > > significant if we> > and others we tell consistently use Goodsearch for all our > > searches. For> > example, 100 people using Goodsearch for two searches a day > will > > net us $730> > 00 a year. When you go to the site just type in Grace > Fellowship > > OrthodoxPresbyterian Church as the benefactor. This is right > > below the search bar.> > You can also change the benefactor with each search and help other> > non-profits of your choice (if they have an account). Thanks > for your> > consideration and God bless. > > > > > > > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is> an account set up for Grace Fellowship and all searches using > Goodsearch(which uses Yahoo's search engine) will result in > about one cent being> donated to Grace Fellowship. Not much, but it can become > significant if we> and others we tell consistently use Goodsearch for all our > searches. For> example, 100 people using Goodsearch for two searches a day will > net us $730> 00 a year. When you go to the site just type in Grace Fellowship > OrthodoxPresbyterian Church as the benefactor. This is right > below the search bar.> You can also change the benefactor with each search and help other> non-profits of your choice (if they have an account). Thanks for your> consideration and God bless. > > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

Attachment: vcard [not shown]

February 9, 2007

Hi Kate,

Glad you visited the sites. Chuck's letter has been published in a few magazines and also read at Cancer Survivor's Day :-)

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Trigeminal Neuralgia and LDN...> To: MSersLife > > > Hi Kate:> > > > My trigeminal neuralgia is acting up to My left jaw is > > hurting and the right side of my head, too. I think this is > the > > first time I've had both sides hurt at the same time. I have > a > > broken tooth and and infection from it (dragging my feel on > > going to the oral surgeon) so that may have something to do > with > > it. One of my nuro told me something like 40% of MSers > have > > TN, too. I do know that if a person has bilateral TN it is > > recommended that the doctor suspect MS, according to some > > writings aimed at physicians. I take Neurontin for it. I've > > never tried Tegretol. Isn't Trileptal also recommended for > TN? > > > > I went to a MS Seminar last Saturday put on by the National > MS > > Society and Biogen Idec (makers of Avonex and Tysabri). I > went > > to hear the speakers--three local neuros and a research doc > from > > NY. I wouldn't have normally gone to something put on by a > drug > > company when I have no interest in their drugs but since the > B>> NMSS was also involved I thought it would be worthwhile. I > > enjoyed hearing the docs speak and gained some info from it. > > There was to be a question and answer session at the end an > > paper and the Biogen guys came around and gathered them. I > > asked "what is your opinion of LDN?". Guess what? My > question > > was filtered out by the Biogen guys. I am angry about that > and > > plan to write letters of complaint to the NMSS as well as > the 4 > > doctors. If they aren't aware of it then they should be made > > aware of it.> > > > Anyway, I asked my neuro for LDN and he gave it to me. If > you > > really want to try it then try your primary care or try a > > Naturopath. They can prescribe, right? I get mine from a > > compounding pharmacy in Florida and I only pay $20 a month > > including shipping. There are also lists of doctors who may > > prescribe LN.Ask on the LDN group or check with Crystal to > > see who has that list. > > > > I do feel better on LDN although there was more of a marked > > improvement in the beginning on LDN and not so much now. If > > that makes any sense. I think it's definitely worth a try > > for anyone to try LDN. The researcher who just recently got > the > > grant from the NMSS to do pre-clinicals on LDN told me his > > advice was to try it for 2 months and if it didn't work then > to > > get off it and get on an approved therapy. > > > > hugs)))> > > > Sharon> > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is an account set up for Grace Fellowship > and all searches using Goodsearch (which uses Yahoo's search > engine) will result in about one cent being donated to Grace > Fellowship. Not much, but it can become significant if we and >others we tell consistently use Goodsearch for all our sarces. > For example, 100 people using Goodsearch for two searches a day > will net us $730.00 a year. When you go to the site just type in > Grace Fellowship Orthodox Presbyterian Church as the benefactor. > This is right below the search bar. You can also change the > benefactor with each search and help other non-profits of your > choice (if they have an account). Thanks for your consideration > and God bless. > > > > > > > > > -----------------------------------------------------------------> -------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.411 / Virus Database: 268.17.32/677 - Release > Date: 2/8/2007> NOTE: Next time you want to google something, use: Goodsearch.com. Thereis an acount set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.411 / Virus Database: 268.17.32/677 - Release Date: 2/8/2007

February 9, 2007

Awww Akiba I am so glad you keep your prayer shawl close to you. You could never use up all the prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Trigeminal Neuralgia and LDN...> To: MSersLife > > > Hi Kate:> > > > My trigeminal neuralgia is acting up to My left jaw is > > hurting and the right side of my head, too. I think this is > the > > first time I've had both sides hurt at the same time. I have > a > > broken tooth and and infection from it (dragging my feel on > > going to the oral surgeon) so that may have something to do > with > > it. One of my neuros told me something like 40% of MSers > have > > TN, too. I do know that if a person has bilateral TN it is > > recommended that the doctor suspect MS, according to some > > writings aimed at physicians. I take Neurontin for it. I've > > never tried Tegretol. Isn't Trileptal also recommended for > TN? > > > > I went to a MS Seminar last Saturday put on by the National > MS > > Society and Biogen Idec (makers of Avonex and Tysabri). I > went > > to hear the speakers--three local neuros and a research doc > from > > NY. I wouldn't have normally gone to something put on by a > drug > > company when I have no interest in their drugs but since the > B>> NMSS was also involved I thought it would be worthwhile. I > > enjoyed hearing the docs speak and gained some info from it. > > There was to be a question and answer session at the end and > > people were encouraged to write down questions on a piece of > > paper and the Biogen guys came around and gathered them. I > > asked "what is your opinion of LDN?". Guess what? My > question > > was filtered out by the Biogen guys. I am angry about that > and > > plan to write letters of complaint to the NMSS as well as > the 4 > > doctors. If they aren't aware of it then they should be made > > aware of it.> > > > Anyway, I asked my neuro for LDN and he gave it to me. If > you > > really want to try it then try your primary care or try a > > Naturopath. They can prescribe, right? I get mine from a > > compounding pharmacy in Florida and I only pay $20 a month > > including shipping. There are also lists of doctors who may > > prescribe LN.Ask on the LDN group or check with Crystal to > > see who has that list. > > > > I do feel better on LDN although there was more of a marked > > improvement in the beginning on LDN and not so much now. If > > that makes any sense. I think it's definitely worth a try > > for anyone to try LDN. The researcher who just recently got > the > > grant from the NMSS to do pre-clinicals on LDN told me his > > advice was to try it for 2 months and if it didn't work then > to > > get off it and get on an approved therapy. > > > > hugs)))> > > > Sharon> > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is an account set up for Grace Fellowship > and all searches using Goodsearch (which uses Yahoo's search > engine) will result in about one cent being donated to Grace > Fellowship. Not much, but it can become significant if we and > others we tell consistently use Goodsearch for all our sarces. > For example, 100 people using Goodsearch for two searches a day > will net us $730.00 a year. When you go to the site just type in > Grace Fellowship Orthodox Presbyterian Church as the benefactor. > This is right below the search bar. You can also change the > benefactor with each search and help other non-profits of your > choice (if they have an account). Thanks for your consideration > and God bless. > > > > > > > > > -----------------------------------------------------------------> -------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.411 / Virus Database: 268.17.32/677 - Release > Date: 2/8/2007> NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.411 / Virus Database: 268.17.32/677 - Release Date: 2/8/2007

February 9, 2007

I know she made you one Akiba~I have been very envious of that fact for some time now!

But a good Christian is not supposed to envy..so I have to work on that lol! Anyways...more prayers needed--my father in law, , due to his end stage renal disease--and very poor circulation, had to have his long toe--the one next to the big toe, amputated today...do you believe they send you right home after that? Just local anethesia, then he went for dialysis at his center, then home! His poor wife, Rose, has yet another contraption to deal with--he already has a colostomy she cares for, he can't walk anymore, and now this bloody tubing--they have left the toe completely uncovered and draining ...and yuck! She is a strong woman...but I pray for her perseverance and peace.... Trigeminal Neuralgia and LDN...> > To: MSersLife > > > > > Hi Kate:> > > > > > My trigeminal neuralgia is acting up to My left jaw is > > > hurting and the right side of my head, too. I think this is > > the > > > first time I've had both sides hurt at the same time. I have > > a > > > broken tooth and and infection from it (dragging my feel on > > > going to the oral surgeon) so that may have something to do > > with > > > it. One of my neuros told me something like 40% of MSers > > have > > > TN, too. I do know that if a person has bilateral TN it is > > > recommended that the doctor suspect MS, according to some > > > writings aimed at physicians. I take Neurontin for it. I've > > > never tried Tegretol. Isn't Trileptal also recommended for > > TN? > > > > > > I went to a MS Seminar last Saturday put on by the National > > MS > > > Society and Biogen Idec (makers of Avonex and Tysabri). I > > went > > > to hear the speakers--three local neuros and a research doc > > from > > > NY. I wouldn't have normally gone to something put on by a > > drug > > > company when I have no interest in their drugs but since the > > B>> NMSS was also involved I thought it would be worthwhile. I > > > enjoyed hearing the docs speak and gained some info from it. > > > There was to be a question and answer session at the end and > > > people were encouraged to write down questions on a piece of > > > paper and the Biogen guys came around and gathered them. I > > > asked "what is your opinion of LDN?". Guess what? My > > question > > > was filtered out by the Biogen guys. I am angry about that > > and > > > plan to write letters of complaint to the NMSS as well as > > the 4 > > > doctors. If they aren't aware of it then they should be made > > > aware of it.> > > > > > Anyway, I asked my neuro for LDN and he gave it to me. If > > you > > > really want to try it then try your primary care or try a > > > Naturopath. They can prescribe, right? I get mine from a > > > compounding pharmacy in Florida and I only pay $20 a month > > > including shipping. There are also lists of doctors who may > > > prescribe LN.Ask on the LDN group or check with Crystal to > > > see who has that list. > > > > > > I do feel better on LDN although there was more of a marked > > > improvement in the beginning on LDN and not so much now. If > > > that makes any sense. I think it's definitely worth a try > > > for anyone to try LDN. The researcher who just recently got > > the > > > grant from the NMSS to do pre-clinicals on LDN told me his > > > advice was to try it for 2 months and if it didn't work then > > to > > > get off it and get on an approved therapy. > > > > > > hugs)))> > > > > > Sharon> > > > > > > > > > > > > > > > > > > > NOTE: Next time you want to google something, use: > > Goodsearch.com. There is an account set up for Grace > Fellowship > > and all searches using Goodsearch (which uses Yahoo's search > > engine) will result in about one cent being donated to Grace > > Fellowship. Not much, but it can become significant if we and > > others we tell consistently use Goodsearch for all our sarces. > > For example, 100 people using Goodsearch for two searches a > day > > will net us $730.00 a year. When you go to the site just type > in > > Grace Fellowship Orthodox Presbyterian Church as the > benefactor. > > This is right below the search bar. You can also change the > > benefactor with each search and help other non-profits of your > > choice (if they have an account). Thanks for your > consideration > > and God bless. > > > > > > > > > > > > > > > > > > ---------------------------------------------------------------> --> > -------------> > > > > > No virus found in this incoming message.> > Checked by AVG Free Edition.> > Version: 7.1.411 / Virus Database: 268.17.32/677 - Release > > Date: 2/8/2007> > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is> an account set up for Grace Fellowship and all searches using > Goodsearch(which uses Yahoo's search engine) will result in > about one cent being> donated to Grace Fellowship. Not much, but it can become > significant if we> and others we tell consistently use Goodsearch for all our > searches. For> example, 100 people using Goodsearch for two searches a day will > net us $730> 00 a year. When you go to the site just type in Grace Fellowship > OrthodoxPresbyterian Church as the benefactor. This is right > below the search bar.> You can also change the benefactor with each search and help other> non-profits of your choice (if they have an account). Thanks for your> consideration and God bless. > > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

Attachment: vcard [not shown]

February 9, 2007

Can you make one for Kate? Or rather, Would you? I know she says as a good Christian sha can't ask...well maybe I', not a good Christian, or maybe I am but she needs one and if you can't make her one for some reason I'll send her mine.

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com

-- Re: Trigeminal Neuralgia and LDN...

Awww Akiba I am so glad you keep your prayer shawl close to you. You could never use up all the prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Trigeminal Neuralgia and LDN...> To: MSersLife > > > Hi Kate:> > > > My trigeminal neuralgia is acting up to My left jaw is > > hurting and the right side of my head, too. I think this is > the > > first time I've had both sides hurt at the same time. I have > a > > broken tooth and and infection from it (dragging my feel on > > going to the oral surgeon) so that may have something to do > with > > it. One of my neuros told me something like 40% of MSers > have > > TN, too. I do know that if a person has bilateral TN it is > > recommended that the doctor suspect MS, according to some > > writings aimed at physicians. I take Neurontin for it. I've > > never tried Tegretol. Isn't Trileptal also recommended for > TN? > > > > I went to a MS Seminar last Saturday put on by the National > MS > > Society and Biogen Idec (makers of Avonex and Tysabri). I > went > > to hear the speakers--three local neuros and a research doc > from > > NY. I wouldn't have normally gone to something put on by a > drug > > company when I have no interest in their drugs but since the > B>> NMSS was also involved I thought it would be worthwhile. I > > enjoyed hearing the docs speak and gained some info from it. > > There was to be a question and answer session at the end and > > people were encouraged to write down questions on a piece of > > paper and the Biogen guys came around and gathered them. I > > asked "what is your opinion of LDN?". Guess what? My > question > > was filtered out by the Biogen guys. I am angry about that > and > > plan to write letters of complaint to the NMSS as well as > the 4 > > doctors. If they aren't aware of it then they should be made > > aware of it.> > > > Anyway, I asked my neuro for LDN and he gave it to me. If > you > > really want to try it then try your primary care or try a > > Naturopath. They can prescribe, right? I get mine from a > > compounding pharmacy in Florida and I only pay $20 a month > > including shipping. There are also lists of doctors who may > > prescribe LN.Ask on the LDN group or check with Crystal to > > see who has that list. > > > > I do feel better on LDN although there was more of a marked > > improvement in the beginning on LDN and not so much now. If > > that makes any sense. I think it's definitely worth a try > > for anyone to try LDN. The researcher who just recently got > the > > grant from the NMSS to do pre-clinicals on LDN told me his > > advice was to try it for 2 months and if it didn't work then > to > > get off it and get on an approved therapy. > > > > hugs)))> > > > Sharon> > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is an account set up for Grace Fellowship > and all searches using Goodsearch (which uses Yahoo's search > engine) will result in about one cent being donated to Grace > Fellowship. Not much, but it can become significant if we and > others we tell consistently use Goodsearch for all our sarces. > For example, 100 people using Goodsearch for two searches a day > will net us $730.00 a year. When you go to the site just type in > Grace Fellowship Orthodox Presbyterian Church as the benefactor. > This is right below the search bar. You can also change the > benefactor with each search and help other non-profits of your > choice (if they have an account). Thanks for your consideration > and God bless. > > > > > > > > > -----------------------------------------------------------------> -------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.411 / Virus Database: 268.17.32/677 - Release > Date: 2/8/2007> NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.411 / Virus Database: 268.17.32/677 - Release Date: 2/8/2007

February 9, 2007

I believe Prayers are meant to be answered. Send me your address (privately) ( to akyba@...)

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com

-- Re: Trigeminal Neuralgia and LDN...

I know she made you one Akiba~I have been very envious of that fact for some time now!

But a good Christian is not supposed to envy..so I have to work on that lol! Anyways...more prayers needed--my father in law, , due to his end stage renal disease--and very poor circulation, had to have his long toe--the one next to the big toe, amputated today...do you believe they send you right home after that? Just local anethesia, then he went for dialysis at his center, then home! His poor wife, Rose, has yet another contraption to deal with--he already has a colostomy she cares for, he can't walk anymore, and now this bloody tubing--they have left the toe completely uncovered and draining ...and yuck! She is a strong woman...but I pray for her perseverance and peace.... Trigeminal Neuralgia and LDN...> > To: MSersLife > > > > > Hi Kate:> > > > > > My trigeminal neuralgia is acting up to My left jaw is > > > hurting and the right side of my head, too. I think this is > > the > > > first time I've had both sides hurt at the same time. I have > > a > > > broken tooth and and infection from it (dragging my feel on > > > going to the oral surgeon) so that may have something to do > > with > > > it. One of my neuros told me something like 40% of MSers > > have > > > TN, too. I do know that if a person has bilateral TN it is > > > recommended that the doctor suspect MS, according to some > > > writings aimed at physicians. I take Neurontin for it. I've > > > never tried Tegretol. Isn't Trileptal also recommended for > > TN? > > > > > > I went to a MS Seminar last Saturday put on by the National > > MS > > > Society and Biogen Idec (makers of Avonex and Tysabri). I > > went > > > to hear the speakers--three local neuros and a research doc > > from > > > NY. I wouldn't have normally gone to something put on by a > > drug > > > company when I have no interest in their drugs but since the > > B>> NMSS was also involved I thought it would be worthwhile. I > > > enjoyed hearing the docs speak and gained some info from it. > > > There was to be a question and answer session at the end and > > > people were encouraged to write down questions on a piece of > > > paper and the Biogen guys came around and gathered them. I > > > asked "what is your opinion of LDN?". Guess what? My > > question > > > was filtered out by the Biogen guys. I am angry about that > > and > > > plan to write letters of complaint to the NMSS as well as > > the 4 > > > doctors. If they aren't aware of it then they should be made > > > aware of it.> > > > > > Anyway, I asked my neuro for LDN and he gave it to me. If > > you > > > really want to try it then try your primary care or try a > > > Naturopath. They can prescribe, right? I get mine from a > > > compounding pharmacy in Florida and I only pay $20 a month > > > including shipping. There are also lists of doctors who may > > > prescribe LN.Ask on the LDN group or check with Crystal to > > > see who has that list. > > > > > > I do feel better on LDN although there was more of a marked > > > improvement in the beginning on LDN and not so much now. If > > > that makes any sense. I think it's definitely worth a try > > > for anyone to try LDN. The researcher who just recently got > > the > > > grant from the NMSS to do pre-clinicals on LDN told me his > > > advice was to try it for 2 months and if it didn't work then > > to > > > get off it and get on an approved therapy. > > > > > > hugs)))> > > > > > Sharon> > > > > > > > > > > > > > > > > > > > NOTE: Next time you want to google something, use: > > Goodsearch.com. There is an account set up for Grace > Fellowship > > and all searches using Goodsearch (which uses Yahoo's search > > engine) will result in about one cent being donated to Grace > > Fellowship. Not much, but it can become significant if we and > > others we tell consistently use Goodsearch for all our sarces. > > For example, 100 people using Goodsearch for two searches a > day > > will net us $730.00 a year. When you go to the site just type > in > > Grace Fellowship Orthodox Presbyterian Church as the > benefactor. > > This is right below the search bar. You can also change the > > benefactor with each search and help other non-profits of your > > choice (if they have an account). Thanks for your > consideration > > and God bless. > > > > > > > > > > > > > > > > > > ---------------------------------------------------------------> --> > -------------> > > > > > No virus found in this incoming message.> > Checked by AVG Free Edition.> > Version: 7.1.411 / Virus Database: 268.17.32/677 - Release > > Date: 2/8/2007> > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is> an account set up for Grace Fellowship and all searches using > Goodsearch(which uses Yahoo's search engine) will result in > about one cent being> donated to Grace Fellowship. Not much, but it can become > significant if we> and others we tell consistently use Goodsearch for all our > searches. For> example, 100 people using Goodsearch for two searches a day will > net us $730> 00 a year. When you go to the site just type in Grace Fellowship > OrthodoxPresbyterian Church as the benefactor. This is right > below the search bar.> You can also change the benefactor with each search and help other> non-profits of your choice (if they have an account). Thanks for your> consideration and God bless. > > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

February 9, 2007

Kate,

If you send me your name and address I will send you a prayer shawl. I have 3 made. One is pink its crocheted, one is rose pink its loomed and one is sage green and its crocheted. Just let me know and when we get out to get a box I will send it to you. We normally shop on Thurs. I can have Chuck look in the basement to see if we have a box down there. My email address is moochie1@... please put shawl in the subject line.

I will continue to keep you in my prayers and add .

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Trigeminal Neuralgia and LDN...> > To: MSersLife > > > > > Hi Kate:> > > > > > My trigeminal neuralgia is acting up to My left jaw is > > > hurting and the right side of my head, too. I think this is > > the > > > first time I've had both sides hurt at the same time. I have > > a > > > broken tooth and and infection from it (dragging my feel on > > > going to the oral surgeon) so that may have somehing o do > > with > > > it. One of my neuros told me something like 40% of MSers > > have > > > TN, too. I do know that if a person has bilateral TN it is > > > recommended that the doctor suspect MS, according to some > > > writings aimed at physicians. I take Neurontin for it. I've > > > never tried Tegretol. Isn't Trileptal also recommended for > > TN? > > > > > > I went to a MS Seminar last Saturday put on by the National > > MS > > > Society and Biogen Idec (makers of Avonex and Tysabri). I > > went > > > to hear the speakers--three local neuros and a research doc > > from > > > NY. I wouldn't have normally gone to something put on by a > > drug > > > company when I have no interest in their drugs but since the > > B>> NMSS was also involved I thought it would be worthwhile. & t; > > enjoyed hearing the docs speak and gained some info from it. > > > There was to be a question and answer session at the end and > > > people were encouraged to write down questions on a piece of > > > paper and the Biogen guys came around and gathered them. I > > > asked "what is your opinion of LDN?". Guess what? My > > question > > > was filtered out by the Biogen guys. I am angry about that > > and > > > plan to write letters of complaint to the NMSS as well as > > the 4 > > > doctors. If they aren't aware of it then they should be made > > > aware of it.> > > > > > Anyway, I asked my neuro for LDN and he gave it to me. If > > you > > > really want to try it then try your primary care or try a > > > Naturopath. They can prescribe, right? I get mine from a > > > compounding pharmay in Flrida and I only pay $20 a month > > > including shipping. There are also lists of doctors who may > > > prescribe LN.Ask on the LDN group or check with Crystal to > > > see who has that list. > > > > > > I do feel better on LDN although there was more of a marked > > > improvement in the beginning on LDN and not so much now. If > > > that makes any sense. I think it's definitely worth a try > > > for anyone to try LDN. The researcher who just recently got > > the > > > grant from the NMSS to do pre-clinicals on LDN told me his > > > advice was to try it for 2 months and if it didn't work then > > to > > > get off it and get on an approved therapy. > > > > > > hugs)))> > > > > > Sharon> > > > > > > > > > > > > > > >>> > > NOTE: Next time you want to google something, use: > > Goodsearch.com. There is an account set up for Grace > Fellowship > > and all searches using Goodsearch (which uses Yahoo's search > > engine) will result in about one cent being donated to Grace > > Fellowship. Not much, but it can become significant if we and > > others we tell consistently use Goodsearch for all our sarces. > > For example, 100 people using Goodsearch for two searches a > day > > will net us $730.00 a year. When you go to the site just type > in > > Grace Fellowship Orthodox Presbyterian Church as the > benefactor. > > This is right below the search bar. You can also change the > > benefactor with each search and help other non-profits of your > > choice (if they have an account). Thanks for your > consideration > > and God bless. > > > gt; & t; > > > > > > > > > > > > > ---------------------------------------------------------------> --> > -------------> > > > > > No virus found in this incoming message.> > Checked by AVG Free Edition.> > Version: 7.1.411 / Virus Database: 268.17.32/677 - Release > > Date: 2/8/2007> > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is> an account set up for Grace Fellowship and all searches using > Goodsearch(which uses Yahoo's search engine) will result in > about one cent being> donated to Grace Fellowship. Not much, but it can become > significant if we> and others we tell consistently use Goodsearch for all our > searches. For> example, 100 people using Goodsearch for two searches a day will > et us $730BR>> 00 a year. When you go to the site just type in Grace Fellowship > OrthodoxPresbyterian Church as the benefactor. This is right > below the search bar.> You can also change the benefactor with each search and help other> non-profits of your choice (if they have an account). Thanks for your> consideration and God bless. > > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This isright belowthe search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.411 / Virus Database: 268.17.32/677 - Release Date: 2/8/2007

February 9, 2007

I haven't found that LDN helped the TN. In fact I've had more of the stabbing TN pain since being on LDN. I think it's a coincidence. In the beginning LDN did help with my fatigue but now I don't think it is. I just want to feel good, you know? Of course you know... LOLSharon Trigeminal Neuralgia and LDN...To: MSersLife@yahoogrou ps.com> Hi Kate:> > My trigeminal neuralgia

is acting up too. My left jaw is > hurting and the right side of my head, too. I think this is the > first time I've had both sides hurt at the same time. I have a > broken tooth and and infection from it (dragging my feel on > going to the oral surgeon) so that may have something to do with > it. One of my neuros told me something like 40% of MSers have > TN, too. I do know that if a person has bilateral TN it is > recommended that the doctor suspect MS, according to some > writings aimed at physicians. I take Neurontin for it. I've > never tried Tegretol. Isn't Trileptal also recommended for TN? > > I went to a MS Seminar last Saturday put on by the National MS > Society and Biogen Idec (makers of Avonex and Tysabri). I went > to hear the speakers--three local neuros and a research doc from > NY. I wouldn't have normally gone to something put on by a drug > company

when I have no interest in their drugs but since the > NMSS was also involved I thought it would be worthwhile. I > enjoyed hearing the docs speak and gained some info from it. > There was to be a question and answer session at the end and > people were encouraged to write down questions on a piece of > paper and the Biogen guys came around and gathered them. I > asked "what is your opinion of LDN?". Guess what? My question > was filtered out by the Biogen guys. I am angry about that and > plan to write letters of complaint to the NMSS as well as the 4 > doctors. If they aren't aware of it then they should be made > aware of it.> > Anyway, I asked my neuro for LDN and he gave it to me. If you > really want to try it then try your primary care or try a > Naturopath. They can prescribe, right? I get mine from a > compounding pharmacy in Florida and I only pay $20 a month

> including shipping. There are also lists of doctors who may > prescribe LDN. Ask on the LDN group or check with Crystal to > see who has that list. > > I do feel better on LDN although there was more of a marked > improvement in the beginning on LDN and not so much now. If > that makes any sense. I think it's definitely worth a try > for anyone to try LDN. The researcher who just recently got the > grant from the NMSS to do pre-clinicals on LDN told me his > advice was to try it for 2 months and if it didn't work then to > get off it and get on an approved therapy. > > hugs)))> > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to

Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

begin:vcardn:Rothschild;katefn:Kate Rothschildtel;cell:tel;home:914 762-8734tel;work:914 332-1943url:http://www.phil413.isagenix.com/org:http://www.allinonebusiness.net;Recharge Your Chiurl:http://www.phil413.isagenix.com/adr:;;6 Spaulding Place;Ossining;NY;10562;USAemail;home;internet:katelloydkidz@...title:Associate and moving UP!version:2.1end:vcard

Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends.

February 9, 2007

Oh Kate... don't apologize for not saying anything about my TN pain. You aren't getting snow???? I thought you were in Northern New York. Clearly I've never looked up your town on a map. I can't believe the snow levels I'm hearing of for Northern NY. Wow! That even beats what we had in Alaska. We had 4 to 5 feet of snow on the ground all winter long. But never 8 feet at once! Sharon Trigeminal

Neuralgia and LDN...> > To: MSersLife@yahoogrou ps.com> > > > > Hi Kate:> > > > > > My trigeminal neuralgia is acting up too. My left jaw is > > > hurting and the right side of my head, too. I think this is > > the > > > first time I've had both sides hurt at the same time. I have > a > > > broken tooth and and infection from it (dragging my feel on > > > going to the oral surgeon) so that may have something to do > > with > > > it. One of my neuros told me something like 40% of MSers > have > > > TN, too. I do know that if a person has bilateral TN it is > > > recommended that the doctor suspect MS, according to some > > > writings aimed at physicians. I take Neurontin for it. I've > > > never tried Tegretol. Isn't Trileptal also recommended for > TN?

> > > > > > I went to a MS Seminar last Saturday put on by the National > MS > > > Society and Biogen Idec (makers of Avonex and Tysabri). I > went > > > to hear the speakers--three local neuros and a research doc > > from > > > NY. I wouldn't have normally gone to something put on by a > > drug > > > company when I have no interest in their drugs but since the > > > NMSS was also involved I thought it would be worthwhile. I > > > enjoyed hearing the docs speak and gained some info from it. > > > There was to be a question and answer session at the end and > > > people were encouraged to write down questions on a piece of > > > paper and the Biogen guys came around and gathered them. I > > > asked "what is your opinion of LDN?". Guess what? My > question > > > was

filtered out by the Biogen guys. I am angry about that > and > > > plan to write letters of complaint to the NMSS as well as > the > > 4 > > > doctors. If they aren't aware of it then they should be made > > > aware of it.> > > > > > Anyway, I asked my neuro for LDN and he gave it to me. If > you > > > really want to try it then try your primary care or try a > > > Naturopath. They can prescribe, right? I get mine from a > > > compounding pharmacy in Florida and I only pay $20 a month > > > including shipping. There are also lists of doctors who may > > > prescribe LDN. Ask on the LDN group or check with Crystal to > > > see who has that list. > > > > > > I do feel better on LDN although there was more of a marked > > > improvement in the beginning on LDN and not

so much now. If > > > that makes any sense. I think it's definitely worth a try > > > for anyone to try LDN. The researcher who just recently got > > the > > > grant from the NMSS to do pre-clinicals on LDN told me his > > > advice was to try it for 2 months and if it didn't work then > > to > > > get off it and get on an approved therapy. > > > > > > hugs)))> > > > > > Sharon> > > > > > > > > > > > > > > > > > > > NOTE: Next time you want to google something, use: > > Goodsearch.com. There is> > an account set up for Grace Fellowship and all searches using > > Goodsearch(which uses Yahoo's search engine) will result in > > about one cent being> > donated to Grace Fellowship. Not much, but it can

become > > significant if we> > and others we tell consistently use Goodsearch for all our > > searches. For> > example, 100 people using Goodsearch for two searches a day > will > > net us $730> > 00 a year. When you go to the site just type in Grace > Fellowship > > OrthodoxPresbyteria n Church as the benefactor. This is right > > below the search bar.> > You can also change the benefactor with each search and help other> > non-profits of your choice (if they have an account). Thanks > for your> > consideration and God bless. > > > > > > > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is> an account set up for Grace Fellowship and all searches using > Goodsearch(which uses Yahoo's

search engine) will result in > about one cent being> donated to Grace Fellowship. Not much, but it can become > significant if we> and others we tell consistently use Goodsearch for all our > searches. For> example, 100 people using Goodsearch for two searches a day will > net us $730> 00 a year. When you go to the site just type in Grace Fellowship > OrthodoxPresbyteria n Church as the benefactor. This is right > below the search bar.> You can also change the benefactor with each search and help other> non-profits of your choice (if they have an account). Thanks for your> consideration and God bless. > > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one

cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

begin:vcardn:Rothschild;katefn:Kate Rothschildtel;cell:tel;home:914 762-8734tel;work:914 332-1943url:http://www.phil413.isagenix.com/org:http://www.allinonebusiness.net;Recharge Your Chiurl:http://www.phil413.isagenix.com/adr:;;6 Spaulding Place;Ossining;NY;10562;USAemail;home;internet:katelloydkidz@...title:Associate and moving UP!version:2.1end:vcard

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February 9, 2007

Good post! Akiba, thank you, love in heaps,

n RojasRojas5915@...

Trigeminal Neuralgia and LDN...> To: MSersLife > > > Hi Kate:> > > > My trigeminal neuralgia is acting up too. My left jaw is > > hurting and the right side of my head, too. I think this is > the > > first time I've had both sides hurt at the same time. I have a > > broken tooth and and infection from it (dragging my feel on > > going to the oral surgeon) so that may have something to do > with > > it. One of my neuros told me something like 40% of MSers have > > TN, too. I do know that if a person has bilateral TN it is > > recommended that the doctor suspect MS, according to some > > writings aimed at physicians. I take Neurontin for it. I've > > never tried Tegretol. Isn't Trileptal also recommended for TN? > > > > I went to a MS Seminar last Saturday put on by the National MS > > Society and Biogen Idec (makers of Avonex and Tysabri). I went > > to hear the speakers--three local neuros and a research doc > from > > NY. I wouldn't have normally gone to something put on by a > drug > > company when I have no interest in their drugs but since the > > NMSS was also involved I thought it would be worthwhile. I > > enjoyed hearing the docs speak and gained some info from it. > > There was to be a question and answer session at the end and > > people were encouraged to write down questions on a piece of > > paper and the Biogen guys came around and gathered them. I > > asked "what is your opinion of LDN?". Guess what? My question > > was filtered out by the Biogen guys. I am angry about that and > > plan to write letters of complaint to the NMSS as well as the > 4 > > doctors. If they aren't aware of it then they should be made > > aware of it.> > > > Anyway, I asked my neuro for LDN and he gave it to me. If you > > really want to try it then try your primary care or try a > > Naturopath. They can prescribe, right? I get mine from a > > compounding pharmacy in Florida and I only pay $20 a month > > including shipping. There are also lists of doctors who may > > prescribe LDN. Ask on the LDN group or check with Crystal to > > see who has that list. > > > > I do feel better on LDN although there was more of a marked > > improvement in the beginning on LDN and not so much now. If > > that makes any sense. I think it's definitely worth a try > > for anyone to try LDN. The researcher who just recently got > the > > grant from the NMSS to do pre-clinicals on LDN told me his > > advice was to try it for 2 months and if it didn't work then > to > > get off it and get on an approved therapy. > > > > hugs)))> > > > Sharon> > > > > > > > > > > > NOTE: Next time you want to google something, use: > Goodsearch.com. There is> an account set up for Grace Fellowship and all searches using > Goodsearch(which uses Yahoo's search engine) will result in > about one cent being> donated to Grace Fellowship. Not much, but it can become > significant if we> and others we tell consistently use Goodsearch for all our > searches. For> example, 100 people using Goodsearch for two searches a day will > net us $730> 00 a year. When you go to the site just type in Grace Fellowship > OrthodoxPresbyterian Church as the benefactor. This is right > below the search bar.> You can also change the benefactor with each search and help other> non-profits of your choice (if they have an account). Thanks for your> consideration and God bless. > > > > > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

February 10, 2007

Sharon~We are only about 21 miles north of Manhattan, in Ossining, NY-called the lower Hudson Valley. All we have had all winter so far, is say, maybe 2 inches? Which is gone now, except a bit left on the grass....Ya remember in the old gangster movies--gonna send ya up the river--to Sing-Sing?---well that is the town/village we are in. The River they refer to is the Hudson, and this town used to be called Sing-Sing, now Ossining. The prison used to be called Sing-Sing, but now is something more politically correct, like Ossining Correctional Facility or something like that. It was the prison that they put that couple in the electric chair...the Sternberg's? oh i forget, my brain is bad--but it was a famous and controversial case...hugs, kate Re: Trigeminal Neuralgia and LDN...To: MSersLife > Oh Kate... don't apologize for not saying anything about my TN > pain. > > You aren't getting snow???? I thought you were in Northern New > York. Clearly I've never looked up your town on a map. I can't > believe the snow levels I'm hearing of for Northern NY. Wow! > That even beats what we had in Alaska. We had 4 to 5 feet of > snow on the ground all winter long. But never 8 feet at once! > > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

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February 10, 2007

Thank you for lettin me know bout that Sharon! Cause that is probably one of the worst parts of my MS--I mean I'm not thrilled using a cane...and now having a handicapped 'hangar' for my car! But the TN pain and the fatigue and depression are my worst things I think. I do notice if I have: caffiene, chocolate, or any processed foods, it intesifies the pain of the TN, so I'm trying to stay away from that all. The reason that happens is that all those things are acidic=inflammation; so it triggers a response in the TN. blessings...hope all are having a peaceful day...kate Re: Trigeminal Neuralgia and LDN...To: MSersLife > I haven't found that LDN helped the TN. In fact I've had more > of the stabbing TN pain since being on LDN. I think it's a > coincidence. In the beginning LDN did help with my fatigue but > now I don't think it is. I just want to feel good, you know? > Of course you know... LOL> > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

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February 10, 2007

How is it pronounced? I can't figure it out. Yes I remember Sing-Sing. I loved all those old gangster movies! Sharon Re: Trigeminal Neuralgia and

LDN...To: MSersLife@yahoogrou ps.com> Oh Kate... don't apologize for not saying anything about my TN > pain. > > You aren't getting snow???? I thought you were in Northern New > York. Clearly I've never looked up your town on a map. I can't > believe the snow levels I'm hearing of for Northern NY. Wow! > That even beats what we had in Alaska. We had 4 to 5 feet of > snow on the ground all winter long. But never 8 feet at once! > > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two

searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

begin:vcardn:Rothschild;katefn:Kate Rothschildtel;cell:tel;home:914 762-8734tel;work:914 332-1943url:http://www.phil413.isagenix.com/org:http://www.allinonebusiness.net;Recharge Your Chiurl:http://www.phil413.isagenix.com/adr:;;6 Spaulding Place;Ossining;NY;10562;USAemail;home;internet:katelloydkidz@...title:Associate and moving UP!version:2.1end:vcard

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February 10, 2007

I think that famous LDN doctor is in Manhattan. Dr. Bihari? Sharon Re: Trigeminal Neuralgia and

LDN...To: MSersLife@yahoogrou ps.com> Oh Kate... don't apologize for not saying anything about my TN > pain. > > You aren't getting snow???? I thought you were in Northern New > York. Clearly I've never looked up your town on a map. I can't > believe the snow levels I'm hearing of for Northern NY. Wow! > That even beats what we had in Alaska. We had 4 to 5 feet of > snow on the ground all winter long. But never 8 feet at once! > > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two

searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

begin:vcardn:Rothschild;katefn:Kate Rothschildtel;cell:tel;home:914 762-8734tel;work:914 332-1943url:http://www.phil413.isagenix.com/org:http://www.allinonebusiness.net;Recharge Your Chiurl:http://www.phil413.isagenix.com/adr:;;6 Spaulding Place;Ossining;NY;10562;USAemail;home;internet:katelloydkidz@...title:Associate and moving UP!version:2.1end:vcard

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February 10, 2007

Maybe LDN would help you. Many people say it helps their pain levels. I haven't ever noticed an increase of LDN activity when I eat those things. And I refuse to consider it because I am hooked on coffee. LOL(and chocolate is medicine...didn't you know that????)Sharon Re: Trigeminal Neuralgia and LDN...To: MSersLife@yahoogrou ps.com> I haven't found that LDN helped the TN. In fact I've had more > of the stabbing TN pain since being on LDN. I

think it's a > coincidence. In the beginning LDN did help with my fatigue but > now I don't think it is. I just want to feel good, you know? > Of course you know... LOL> > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account).

Thanks for your consideration and God bless.

begin:vcardn:Rothschild;katefn:Kate Rothschildtel;cell:tel;home:914 762-8734tel;work:914 332-1943url:http://www.phil413.isagenix.com/org:http://www.allinonebusiness.net;Recharge Your Chiurl:http://www.phil413.isagenix.com/adr:;;6 Spaulding Place;Ossining;NY;10562;USAemail;home;internet:katelloydkidz@...title:Associate and moving UP!version:2.1end:vcard

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February 10, 2007

It was the Rosenberg's that got the chair at SingSing. I was about ten yrs old and remember. Sen. ph McCarthy era.

Regards,

Tom

Re: Trigeminal Neuralgia and LDN...To: MSersLife@yahoogrou ps.com> Oh Kate... don't apologize for not saying anything about my TN > pain. > > You aren't getting snow???? I thought you were in Northern New > York. Clearly I've never looked up your town on a map. I can't > believe the snow levels I'm hearing of for Northern NY. Wow! > That even beats what we had in Alaska. We had 4 to 5 feet of > snow on the ground all winter long. But never 8 feet at once! > > Sharon> > > > NOTE: Next time you want to google something, use: Goodsearch.com. There is an account set up for Grace Fellowship and all searches using Goodsearch (which uses Yahoo's search engine) will result in about one cent being donated to Grace Fellowship. Not much, but it can become significant if we and others we tell consistently use Goodsearch for all our searches. For example, 100 people using Goodsearch for two searches a day will net us $730.00 a year. When you go to the site just type in Grace Fellowship Orthodox Presbyterian Church as the benefactor. This is right below the search bar. You can also change the benefactor with each search and help other non-profits of your choice (if they have an account). Thanks for your consideration and God bless.

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