Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Too many quotes in the reply. I never asked about brachytherapy. --- ManleyAlbuquerque, New Mexicohttp://web.mac.com/jamespmanley/iWeb/Photoshop_Elements On Oct 20, 2007, at Oct 20, 2007 2:06 PM, Fuller wrote:, these threads are getting confusing! The reply of mine was addressed to Ed. S. who was trying to decide between HDR and LDR brachytherapy. Sorry for the mix-up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 That comes on the 30th. --- ManleyAlbuquerque, New Mexicohttp://web.mac.com/jamespmanley/iWeb/Photoshop_Elements On Oct 19, 2007, at Oct 19, 2007 3:22 AM, Metcalf wrote: What discussions have you had with the urologists about this? It seems to need a different tack entirely Re: Removing prostateI can't urinate most of the time & if I take 3 flowmax a day I am up every 30 minutes urinating which means no sleep. I have major pain in my rectum area & I think when it swells-up it is pushing against a nerve.. Besides too many causes dizziness & I already have that problem.--- ManleyOn Oct 18, 2007, at Oct 18, 2007 11:52 AM, Ed wrote:Why did you chose Surgery if you do not mind me asking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 I never asked either. Just some Advise.Fuller wrote: , these threads are getting confusing! The reply of mine was addressed to Ed. S. who was trying to decide between HDR and LDR brachytherapy. Sorry for the mix-up.Fuller> > > As says. we cannot decide this thing for you.> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Find out that you would be chemically removed from interest in sex. Rick > > > May I ask at what point in your treatment did you find out? I really > > hope that it was before the treatment began. I am curious because > > some doctors do not communicate as well as they should, so the effects > > of various options are not fully explained. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 And, Rick, if someone were to be advised prior to androgen deprivation that, as you choose to remark, " find out that you would be chemically removed from interest in sex, " = so what? If a patient learns that he has high grade Gleason advanced prostate cancer and known metastases to other organs with which other treatment options may have little if any effect, so what if he is given such advice? Androgen deprivation therapy can extend " life. " Opting to ignore that fact because of one's concern regarding " interest in sex " would result in the short route to demise. > > > > > May I ask at what point in your treatment did you find out? I really > > > hope that it was before the treatment began. I am curious because > > > some doctors do not communicate as well as they should, so the effects > > > of various options are not fully explained. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 , I am afraid that you are missing the point of my question entirely. I am not concerned about losing sexual functions. I only wanted to know when you were told that this would happen, since it seemed in your initial post about it that you were not told before the treatment began, but with the wording, I couldn't be sure. I am concerned about when patients learn the important information about their treatment, not the effects of any specific treatment. Too often patients do not learn the information that they need before a treatment begins. One of the reasons that I chose my hospital, Cancer Treatment Centers of America was because of the commitment to open and upfront information sharing. I know that some doctors explain everything up front, but many still do not, and that is a problem, in my and others do not. That is what I was asking about, not taking a treatment to save your life as opposed to not taking it. Sincerely, Rick > > > > > > > May I ask at what point in your treatment did you find out? I > really > > > > hope that it was before the treatment began. I am curious > because > > > > some doctors do not communicate as well as they should, so the > effects > > > > of various options are not fully explained. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 It seems to me that I will loose sexual functions & other than that all will be normal. I don't care about loosing sexual functions But it seems that urination will be much better without the prostate getting in the way correct? --- ManleyAlbuquerque, New Mexico Manleyhttp://web.mac.com/jamespmanley/iWeb/Photoshop_Elementsl On Oct 22, 2007, at Oct 22, 2007 1:48 PM, Rick wrote:, I am afraid that you are missing the point of my questionentirely. I am not concerned about losing sexual functions. I onlywanted to know when you were told that this would happen, since itseemed in your initial post about it that you were not told before thetreatment began, but with the wording, I couldn't be sure. I amconcerned about when patients learn the important information abouttheir treatment, not the effects of any specific treatment.Too often patients do not learn the information that they need beforea treatment begins. One of the reasons that I chose my hospital,Cancer Treatment Centers of America was because of the commitment toopen and upfront information sharing.I know that some doctors explain everything up front, but many stilldo not, and that is a problem, in my and others do not. That is whatI was asking about, not taking a treatment to save your life asopposed to not taking it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Hi Jim, It is possible that your urination will be uncontrollable. Impotence will be as nothing compared to the incontinence if you are one of the unlucky ones. Many men are able to regain control by doing Kegel exercises, but some will never be able to regain control. Some resort to surgery to install an Artificial Urinary Sphincter (AUS). Even after 15 years, I am still wearing a large pad. At the end of the day, the large pad is soaking wet and often so is my pants. I wish you all the bestAubrey Pilgrim, DC (Ret.) Author ofA Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revision It seems to me that I will loose sexual functions & other than that all will be normal. I don't care about loosing sexual functions But it seems that urination will be much better without the prostate getting in the way correct? --- Manley Albuquerque, New Mexico See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 > > It seems to me that I will loose sexual functions & other than that > all will be normal. I don't care about loosing sexual functions But > it seems that urination will be much better without the prostate > getting in the way correct? Normally, yes. The usual problem is the opposite, leaking urine and needing to wear diapers or pads. That happens to some percentage of surgery patients. The better and more experienced surgeons are more successful at preventing that than the guys who only do occasional prostatectomies. But the risk is there with any surgeon. Sometimes a patient will develop scar tissue that blocks the urethra and makes urination more difficult. That's fixable if it happens, but it requires a relatively minor surgical procedure. I don't think that problem is very common, but it can happen. Radiation patients on the other hand may have more problems urinating after radiation. The radiation causes the prostate to swell, clamping around the urethra. I had to take Flomax for about five months after my radiation treatment in order to be able to urinate successfully. Radiation patients too can suffer impotence as a result of treatment. Unfortunately, impotence appears to be a risk with all treatment modalities. Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 > > It seems to me that I will loose sexual functions & other than that > all will be normal. I don't care about loosing sexual functions But > it seems that urination will be much better without the prostate > getting in the way correct? > --- > Manley > Albuquerque, New Mexico > Hi , Just to start off with a caveat: Every person is different, and every surgery will not turn out the same. That being said... I suffered for over ten years with severe BPH symptoms. It wasn't until my doctor put me on a regime of FlowMax and Ditropan, that I got some relief. In anticipation of my prostatectomy for PCa, I received a CAT scan which showed I had a large median lobe in my prostate which was pressing into my bladder, thus causing my BPH. Soon after my surgery, and after the catheter was removed, I found a remarkable improvement in my urine flow. The BPH symptoms were understandably gone. I even had to readjust my aim to keep from hitting the back of the toilet seat :-) I have now passed the 4-month marker since my surgery. I am totally contenient. That being said... I still consider myself in the recovery phase of the operation. My body is doing its best, but it still doesn't know what hit it. Every morning I wake up and never quite know what to expect. Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 It was in my bladder & it was removed surgically. The tumors resolved themselves due to treatment. My main reason was my inability to urinate. --- Manleyhttp://web.mac.com/jamespmanley/iWeb/Photoshop_ElementsI am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't goneinto the bone, has spread to my lungs & bladder. Which has been resolved. Taking Nilandron pills & Zoledex shots. PSA is 0.3 On Oct 24, 2007, at Oct 24, 2007 2:31 PM, Mick Northrop wrote: - I agree with Fuller and am surprised that surgery would have even been given to you as an option when you already know the PCa has spread. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 The bladder resolved itself through surgery. The lungs resolved themselves through treatment. --- Manleyhttp://web.mac.com/jamespmanley/iWeb/Photoshop_ElementsI am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't goneinto the bone, has spread to my lungs & bladder. Which has been resolved. Taking Nilandron pills & Zoledex shots. PSA is 0.3 On Oct 24, 2007, at Oct 24, 2007 2:06 PM, Fuller wrote:, certainly even if you had surgery, radiation of some sort isgoing to enter the picture, unless you are going to fight the PCa withADT as long as you can. So right, why subject your body to thattrauma?? How were the bladder and lungs cancer resolved? Good luckwith the battle and hang in there.Fuller> > > Aubrey has a good point, not all men recover quickly or completely.> > The decision we make can affect our lives forever, so make it wisely.> > Remember though that even if the odds are with you, nothing is a sure> > bet. I have not regained (urinary) control after 3 years. Better yes> > but not even close to acceptable. It is difficult when a doctor looks> > at you and askes you what treatment you want - like we went to Medical> > School. It is maddening and it happens when you are under stress about> > the cancer and then having to make the choice of treatment. Good luck> > and God bless! > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Aubrey has a good point, not all men recover quickly or completely. The decision we make can affect our lives forever, so make it wisely. Remember though that even if the odds are with you, nothing is a sure bet. I have not regained (urinary) control after 3 years. Better yes but not even close to acceptable. It is difficult when a doctor looks at you and askes you what treatment you want - like we went to Medical School. It is maddening and it happens when you are under stress about the cancer and then having to make the choice of treatment. Good luck and God bless! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Hi JIm, Incontinence does not happen to all men, but to those who do have problems it can be very bad. I wish you all the bestAubrey Pilgrim, DC (Ret.) Author ofA Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revision That sucks. I am considering having it removed to help with urination. So you are saying it will be worse? --- Manley See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
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