Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 > Mikey has not wanted to wear his shoes for the last 2 days. This is not > unusual. He went barefoot to speech Thursday, which is also not unusual, > but boy do I get sick of the comments. Putter went shoe-less for over two weeks while the school, the Autism Center and me tried to figure out what on earth to do about him. The Autism Center finally won that little battle. > This morning I find a huge yellow-green bruise that covers the top of his > foot. Poor baby! No idea what he did. He must bruise like me -- a sore > spot for a couple of days and then the bruise comes up. I feel really > bad. (( I wish he could have told me! I know he tried and that makes it > even worse. (((( But he never likes putting his shoes on... > Yes, it is SO hard to know when they have a real problem or when it is just an autism thing, not, I hasten to add, that the autism stuff is not a real problem (what a stupid thing to say!), but, well, you probably know what I mean. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 Oh...it makes you feel bad, doesn't it. I remember one night I put Ebony down for bed at like 9 or so (this was when she was only 6 months or so) and she woke up about an hour later just screaming. Well, I tried to feed her, I cuddled her, etc, etc, etc. I was really getting frustrated!! It did not occurr to me to check her diaper cause I could tell it wasn't full by feel. I finally let her cry for awhile and then went back and tried everything again. About midnight, I though what the hell is wrong with this kid. I decided to give her a bath, thinking this might get her sleepy. When I took off her diaper, she had huge red welts...open sores...bleeding almost...all over her tush. I felt like the worst mother in the world. But who would have thought that a kid could go from clear to that in such a short time. She did not even have a little rash when she went to bed. So...my point is....I know exactly how you feel. It is so hard when kids are non-verbal to figure out what is wrong. It's a guessing game. Don't feel bad cause you didn't know. I hope it feels better real soon. You might want to try an epsom salt bath for it if he doesn't already do that. Tamara ----Original Message Follows---- Reply-To: parenting_autism To: " parenting autism " <parenting_autism > Subject: Poor baby! Date: Sat, 12 Jan 2002 12:55:37 -0500 Mikey has not wanted to wear his shoes for the last 2 days. This is not unusual. He went barefoot to speech Thursday, which is also not unusual, but boy do I get sick of the comments. Yesterday he cried and lay on the floor for his whole hour of school. That IS unusual. When we got in the car he insisted I take his shoes off, and he went barefoot to OT. This morning I find a huge yellow-green bruise that covers the top of his foot. Poor baby! No idea what he did. He must bruise like me -- a sore spot for a couple of days and then the bruise comes up. I feel really bad. (( I wish he could have told me! I know he tried and that makes it even worse. (((( But he never likes putting his shoes on... -Sara. wife to Matt SAHM to nurslings Mikey, 9/14/99, Autism, and Gabe, born at home 5/17/01, GERD http://home.earthlink.net/~thebyks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 I got so many " well meaning " comments from people when they saw him with his slippers in public that I wanted to scream. I told a lady once " If you think you can get something other than his slippers on his feet you are welcome to try! " . Yes, yes, yes! People who have only had NT children do not understand that there are things you cannot make our kids do, at least, for I am not a defeatist, not without incredible amounts of work and methods that are....different. Some of these battles are not worth fighting either, though the shoe one was. So I fought it and the side of good won over the side of evil. At least I think I was on the side of good. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 When Sully was 2 he refused to wear anything on his feet except his Dalmatian slippers. In the dead of a Maine winter I was hauling the kid out in the cold with his Dalmatians. He would not under any circumstances wear boots. Obviously when outside I had to carry him everywhere. I bought him a pair of Dalmatian boots figuring it would interest him but no way. I got so many " well meaning " comments from people when they saw him with his slippers in public that I wanted to scream. I told a lady once " If you think you can get something other than his slippers on his feet you are welcome to try! " . CHRIS Re: Poor baby! > Mikey has not wanted to wear his shoes for the last 2 days. This is not > unusual. He went barefoot to speech Thursday, which is also not unusual, > but boy do I get sick of the comments. Putter went shoe-less for over two weeks while the school, the Autism Center and me tried to figure out what on earth to do about him. The Autism Center finally won that little battle. > This morning I find a huge yellow-green bruise that covers the top of his > foot. Poor baby! No idea what he did. He must bruise like me -- a sore > spot for a couple of days and then the bruise comes up. I feel really > bad. (( I wish he could have told me! I know he tried and that makes it > even worse. (((( But he never likes putting his shoes on... > Yes, it is SO hard to know when they have a real problem or when it is just an autism thing, not, I hasten to add, that the autism stuff is not a real problem (what a stupid thing to say!), but, well, you probably know what I mean. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 > Putter went shoe-less for over two weeks while the school, the > Autism Center > and me tried to figure out what on earth to do about him. The > Autism Center > finally won that little battle. This is an ongoing thing. Fortunately he can't yet take them back off once I get them on. But sometimes, I really canNOT get them on him without one of us being hurt. He is just too strong, and has no inhibitions whatsoever, and does not feel much pain. Well, I don't have to explain this to YOU guys. You know. (Thank God! They know!) > Yes, it is SO hard to know when they have a real problem or when > it is just > an autism thing, not, I hasten to add, that the autism stuff is not a real > problem (what a stupid thing to say!), but, well, you probably know what I > mean. Yes, I know what you mean, though I can't word it either. A non-autism-related problem? Even that's not quite it, because if it wasn't for the autism in the first place, you would know about the second problem. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 > " well meaning " comments from people when they saw him with his > slippers in public that I wanted to scream. I told a lady once > " If you think you can get something other than his slippers on > his feet you are welcome to try! " . See? You DO know. I'm getting there, Chris. Some poor grandmother who thinks his fat little bare feet are adorable is going to get her head bitten off. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 > When I took > off her diaper, she had huge red welts...open sores...bleeding > almost...all > over her tush. I felt like the worst mother in the world. But who would > have thought that a kid could go from clear to that in such a > short time. Oh geez! Youch!!! (( Mikey reacts that way to some paper diapers. I think it was Luvs he had not been in for 4 hours and he had blisters, and one had broken and was bleeding. We use 100% cotton cloth diapers and special laundry soap from the health food store...*sigh* He can't even wear the Gerber diapers you can buy at the store because they have polyester in them. Gotta be 100% cotton...just like all his clothes... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 > Yes, yes, yes! People who have only had NT children do not > understand that > there are things you cannot make our kids do, at least, for I am not a > defeatist, not without incredible amounts of work and methods that Yes! Exactly!!! Except a lot of them are people who work with special needs kids all day. But I suppose a speech therapist isn't likely to have to dress one... > are....different. Some of these battles are not worth fighting either, > though the shoe one was. So I fought it and the side of good won over the > side of evil. At least I think I was on the side of good. I'm not entirely sure on this one. I carry him into the building and let him walk barefoot inside. At the very least I know it's not worth him giving me a kick in the face, or me smacking him out of frustration. So if we get to that point I give up. What worked for Putter? Maybe I can bribe him with bacon...He's been on a bacon kick...I wonder if there is health food store bacon without all the chemicals in it? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 > > What worked for Putter? > Well, as is my wont, I posted the whole saga; the first one is, naturally, the one that Jacquie posted but there are several. I'll send them to you so as not to clog up the list. It also includes things that did not work for us but might work for someone. Salli Quote Link to comment Share on other sites More sharing options...
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