Just needing to vent to those who know...

[Guest guest]

I am feeling a little down today. It feels like YEARS (although I

know its been more like weeks...9 to be exact) since I have been my

capable self. I am relying on others for most things...including

care of my children to a certain extent, my house work, laundry,

shopping etc and I HATE it. I worry about burning them out...and

ending up alone in this terrible struggle.

None of the doctors in this area know anything about tumefactive MS,

they are totallly freaked out and will not even conduct an

assessment. I have an appointment at a MS clinic at the end of the

week..but it seems so long away. I am struggling with many

symptoms, and I am scared. I don't know weather to hope for

treatment or not..they all have such potentially scary side

effects! I am worried about when I will be able to return to

work...if I will.

I can not feel my hands or feet, my balance is awful, EVERY act

makes me feel exhausted, i get zappy feelings through out my whole

body and my legs feel like they are full of lead. I think my head

is full of lead too...can't remember peoples names (that I should

know) and feel like I am in a fog. It is difficult to hold a

conversation and pay attention through out it.

I'm sorry for whining, I know many of you have been there on and off

for years. Please just reassure me that I will come through this.

Kim