Re: Just needing to vent to those who know...

January 22, 2007

hey kim.you will come threw this because you are strong.everything seems crazy

right now but eventually it will get better..I dont know if your disease will

slow down,i know its awful im in the same boat.but no matter how bad we get,we

have to keep the faith,and hope.hope can get us threw very far.and sometimes its

the only thing we can hold on to,but I have learned threw my struggles and

sickness that my hope and faith,and love for my family is keepn me hangn on.so

most days suck,but I still have my love for my family and all of you..some days

I think its the only thing keepn me here.not cuz im sorry for myself but because

im so sick and dont have a clue were ill be in a week or a day.pray pray pray

kim.ill tell u 1 thing im the closest ive ever been to god,and hes holdn mine

and my familys hand walking us threw this dredful mess.you are in my thoughts

and prayers and remember there is always a light at the end,sometimes we just

have to search for it...keep us

posted.hugs,cassy

[klatour1@...] wrote:

I am feeling a little down today. It feels like YEARS (although I

know its been more like weeks...9 to be exact) since I have been my

capable self. I am relying on others for most things...including

care of my children to a certain extent, my house work, laundry,

shopping etc and I HATE it. I worry about burning them out...and

ending up alone in this terrible struggle.

None of the doctors in this area know anything about tumefactive MS,

they are totallly freaked out and will not even conduct an

assessment. I have an appointment at a MS clinic at the end of the

week..but it seems so long away. I am struggling with many

symptoms, and I am scared. I don't know weather to hope for

treatment or not..they all have such potentially scary side

effects! I am worried about when I will be able to return to

work...if I will.

I can not feel my hands or feet, my balance is awful, EVERY act

makes me feel exhausted, i get zappy feelings through out my whole

body and my legs feel like they are full of lead. I think my head

is full of lead too...can't remember peoples names (that I should

know) and feel like I am in a fog. It is difficult to hold a

conversation and pay attention through out it.

I'm sorry for whining, I know many of you have been there on and off

for years. Please just reassure me that I will come through this.

Kim

January 22, 2007

Cassy-

You will get through this. It's very tough right now. Especially if you are of an independent nature. When you're used to doing everything, it's hard to have to sit back and watch others do it for you. But, when you think about it, it makes you feel very humble. You realize that what you're used to having can be gone in a flash. The simple things that we take for granted. The use of our hands, our vision, walking, dressing, bathing, combing our hair, brushing our teeth, Just the act of lifting our fork and putting it in our mouths without poking an eye out. These things we normally do without giving it a thought. When we lose it, that's when we miss it.

Remember, you are blessed and you are still a blessing to others. Through God, anything is possible. I'm keeping you in my prayers. You will see the light again.

God bless...Val

-- Re: Just needing to vent to those who know...

hey kim.you will come threw this because you are strong.everything seems crazy right now but eventually it will get better..I dont know if your disease will slow down,i know its awful im in the same boat.but no matter how bad we get,we have to keep the faith,and hope.hope can get us threw very far.and sometimes its the only thing we can hold on to,but I have learned threw my struggles and sickness that my hope and faith,and love for my family is keepn me hangn on.so most days suck,but I still have my love for my family and all of you..some days I think its the only thing keepn me here.not cuz im sorry for myself but because im so sick and dont have a clue were ill be in a week or a day.pray pray pray kim.ill tell u 1 thing im the closest ive ever been to god,and hes holdn mine and my familys hand walking us threw this dredful mess.you are in my thoughts and prayers and remember there is always a light at the end,sometimes we just have to search for it...keep usposted.hugs,cassy[klatour1cogeco (DOT) ca] wrote:I am feeling a little down today. It feels like YEARS (although I know its been more like weeks...9 to be exact) since I have been my capable self. I am relying on others for most things...including care of my children to a certain extent, my house work, laundry, shopping etc and I HATE it. I worry about burning them out...and ending up alone in this terrible struggle.None of the doctors in this area know anything about tumefactive MS, they are totallly freaked out and will not even conduct an assessment. I have an appointment at a MS clinic at the end of the week..but it seems so long away. I am struggling with many symptoms, and I am scared. I don't know weather to hope for treatment or not..they all have such potentially scary side effects! I am worried about when I will be able to return to work...if I will. I can not feel my hands or feet, my balance is awful, EVERY act makes me feel exhausted, i get zappy feelings through out my whole body and my legs feel like they are full of lead. I think my head is full of lead too...can't remember peoples names (that I should know) and feel like I am in a fog. It is difficult to hold a conversation and pay attention through out it.I'm sorry for whining, I know many of you have been there on and off for years. Please just reassure me that I will come through this.Kim

January 22, 2007

Kim I am so sorry you are going through all of this. I don't have MS but hubby is in the process of getting diagnosed with MS or possibly Lupus. We go to the neuro on Mon.

I have been through breast cancer and the best thing I can tell you is try to take it day by day or even hour by hour. Not knowing is the absolute WORST. You will be in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Just needing to vent to those who know...

I am feeling a little down today. It feels like YEARS (although I know its been more like weeks...9 to be exact) since I have been my capable self. I am relying on others for most things...including care of my children to a certain extent, my house work, laundry, shopping etc and I HATE it. I worry about burning them out...and ending up alone in this terrible struggle.None of the doctors in this area know anything about tumefactive MS, they are totallly freaked out and will not even conduct an assessment. I have an appointment at a MS clinic at the end of the week..but it seems so long away. I am struggling with many symptoms, and I am scared. I don't know weather to hope for treatment or not..they all have such potentially scary side effects! I am worried about when I will be able to return to work...if I will. I can not feel my hands or feet, my balance is awful, EVERY act makes me feel exhausted, i get zappy feelings through out my whole body and my legs feel like they are full of lead. I think my head is full of lead too...can't remember peoples names (that I should know) and feel like I am in a fog. It is difficult to hold a conversation and pay attention through out it.I'm sorry for whining, I know many of you have been there on and off for years. Please just reassure me that I will come through this.Kim

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.410 / Virus Database: 268.17.4/643 - Release Date: 1/21/2007

January 22, 2007

thanks val.your such a sweetie.I have found the light.it is everything I have.my

family,god,the greatness of the world,all of u! I have lost most functions.but

to me as long as im still alive watching my family grow,and enjoying everything

life has to offer,then im at peace...thanks for the lovely words,you are a

blessing...hope your well today val...,hugs,cassy

[tgrl@...] wrote:

Cassy-

You will get through this. It's very tough right now. Especially if you are

of an independent nature. When you're used to doing everything, it's hard to

have to sit back and watch others do it for you. But, when you think about

it, it makes you feel very humble. You realize that what you're used to

having can be gone in a flash. The simple things that we take for granted.

The use of our hands, our vision, walking, dressing, bathing, combing our

hair, brushing our teeth, Just the act of lifting our fork and putting it in

our mouths without poking an eye out. These things we normally do without

giving it a thought. When we lose it, that's when we miss it.

Remember, you are blessed and you are still a blessing to others. Through

God, anything is possible. I'm keeping you in my prayers. You will see the

light again.

God bless...Val

-- Re: Just needing to vent to those who know...

hey kim.you will come threw this because you are strong.everything seems

crazy right now but eventually it will get better..I dont know if your

disease will slow down,i know its awful im in the same boat.but no matter

how bad we get,we have to keep the faith,and hope.hope can get us threw very

far.and sometimes its the only thing we can hold on to,but I have learned

threw my struggles and sickness that my hope and faith,and love for my

family is keepn me hangn on.so most days suck,but I still have my love for

my family and all of you..some days I think its the only thing keepn me here

not cuz im sorry for myself but because im so sick and dont have a clue were

ill be in a week or a day.pray pray pray kim.ill tell u 1 thing im the

closest ive ever been to god,and hes holdn mine and my familys hand walking

us threw this dredful mess.you are in my thoughts and prayers and remember

there is always a light at the end,sometimes we just have to search for it..

keep us

posted.hugs,cassy

[klatour1@...] wrote:

I am feeling a little down today. It feels like YEARS (although I

know its been more like weeks...9 to be exact) since I have been my

capable self. I am relying on others for most things...including

care of my children to a certain extent, my house work, laundry,

shopping etc and I HATE it. I worry about burning them out...and

ending up alone in this terrible struggle.

None of the doctors in this area know anything about tumefactive MS,

they are totallly freaked out and will not even conduct an

assessment. I have an appointment at a MS clinic at the end of the

week..but it seems so long away. I am struggling with many

symptoms, and I am scared. I don't know weather to hope for

treatment or not..they all have such potentially scary side

effects! I am worried about when I will be able to return to

work...if I will.

I can not feel my hands or feet, my balance is awful, EVERY act....

January 22, 2007

{{{Cassy}}}

<wink, wink>

Just got a call from the daughter who just had her baby. She said the baby is in NICU. Even though he was born healthy, he was still born too soon, so they have him hooked up to a machine. His lungs aren't fully developed. He was supposed to be born, March 3rd. He was born last night at 7:51 PM. His name in Landen . She said it may be awhile before he is allowed to go home.

Just wanted to tell you about it. I'm not very EXCITED...(Yeah, right.)

GBU....Valene

-- Re: Just needing to vent to those who know...

thanks val.your such a sweetie.I have found the light.it is everything I have.my family,god,the greatness of the world,all of u! I have lost most functions.but to me as long as im still alive watching my family grow,and enjoying everything life has to offer,then im at peace...thanks for the lovely words,you are a blessing...hope your well today val...,hugs,cassy[tgrlearthlink (DOT) net] wrote:Cassy-You will get through this. It's very tough right now. Especially if you areof an independent nature. When you're used to doing everything, it's hard tohave to sit back and watch others do it for you. But, when you think aboutit, it makes you feel very humble. You realize that what you're used tohaving can be gone in a flash. The simple things that we take for granted.The use of our hands, our vision, walking, dressing, bathing, combing ourhair, brushing our teeth, Just the act of lifting our fork and putting it inour mouths without poking an eye out. These things we normally do withoutgiving it a thought. When we lose it, that's when we miss it.Remember, you are blessed and you are still a blessing to others. ThroughGod, anything is possible. I'm keeping you in my prayers. You will see thelight again.God bless...Val -------Original Message-------From: cassandra workmnDate: 01/22/2007 10:55:37 AMTo: MSersLife Subject: Re: Just needing to vent to those who know...hey kim.you will come threw this because you are strong.everything seemscrazy right now but eventually it will get better..I dont know if yourdisease will slow down,i know its awful im in the same boat.but no matterhow bad we get,we have to keep the faith,and hope.hope can get us threw veryfar.and sometimes its the only thing we can hold on to,but I have learnedthrew my struggles and sickness that my hope and faith,and love for myfamily is keepn me hangn on.so most days suck,but I still have my love formy family and all of you..some days I think its the only thing keepn me herenot cuz im sorry for myself but because im so sick and dont have a clue wereill be in a week or a day.pray pray pray kim.ill tell u 1 thing im theclosest ive ever been to god,and hes holdn mine and my familys hand walkingus threw this dredful mess.you are in my thoughts and prayers and rememberthere is always a light at the end,sometimes we just have to search for it..keep usposted.hugs,cassy[klatour1cogeco (DOT) ca] wrote:I am feeling a little down today. It feels like YEARS (although I know its been more like weeks...9 to be exact) since I have been my capable self. I am relying on others for most things...including care of my children to a certain extent, my house work, laundry, shopping etc and I HATE it. I worry about burning them out...and ending up alone in this terrible struggle.None of the doctors in this area know anything about tumefactive MS, they are totallly freaked out and will not even conduct an assessment. I have an appointment at a MS clinic at the end of the week..but it seems so long away. I am struggling with many symptoms, and I am scared. I don't know weather to hope for treatment or not..they all have such potentially scary side effects! I am worried about when I will be able to return to work...if I will. I can not feel my hands or feet, my balance is awful, EVERY act....

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January 22, 2007

Are you keeping a journal of your symptoms? Not all doctors will look at it but some will. If the doc won't look at a journal then also have a list of your worst symptoms in order of severity. Most will look at that. I'm so sorry to hear you are having such a bad time. Where do you live again? I can't remember. Have you registered with your local chapter of the National MS Society? If not, please do that. They will send an info packet out to the newly diagnosed. They can also tell you about local MS support groups or programs that they run. What day is your appointment?Sharon Just needing to vent to those who know... I am feeling a little down today. It feels like YEARS (although I know its been more like weeks...9 to be exact) since I have been my

capable self. I am relying on others for most things...including care of my children to a certain extent, my house work, laundry, shopping etc and I HATE it. I worry about burning them out...and ending up alone in this terrible struggle. None of the doctors in this area know anything about tumefactive MS, they are totallly freaked out and will not even conduct an assessment. I have an appointment at a MS clinic at the end of the week..but it seems so long away. I am struggling with many symptoms, and I am scared. I don't know weather to hope for treatment or not..they all have such potentially scary side effects! I am worried about when I will be able to return to work...if I will. I can not feel my hands or feet, my balance is awful, EVERY act makes me feel exhausted, i get zappy feelings through out my whole body and my legs feel like they are full of lead. I think my head is full

of lead too...can't remember peoples names (that I should know) and feel like I am in a fog. It is difficult to hold a conversation and pay attention through out it. I'm sorry for whining, I know many of you have been there on and off for years. Please just reassure me that I will come through this. Kim

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January 22, 2007

ahh how cute..and what a cute name!im sure he will be fine.my neice was just

recenly born 3 mons premature.and it was a rocky road,but now shes almost 3 lbs.

And had numerous problems.but that was at 3 mons preemie.and she wasnt even 2

pds.wow your little 1 is 6 lbs. And was 6 wks. Preemie...thats a good

size...congrats again...will you be able to see him soon?hugs,

cassy

[tgrl@...] wrote:

{{{Cassy}}}

<wink, wink>

Just got a call from the daughter who just had her baby. She said the baby

is in NICU. Even though he was born healthy, he was still born too soon, so

they have him hooked up to a machine. His lungs aren't fully developed. He

was supposed to be born, March 3rd. He was born last night at 7:51 PM. His

name in Landen . She said it may be awhile before he is allowed to go

home.