Rejoining after a long absence.........

December 28, 2006

Hey Honey I'm home!!!!!!!

It's been several system crashes since I last spoke with any of you...

My subscription to MSersLife got lost in goodness knows where, but today

I was thinking about you all again, and this time decided that I had

time to search through ALL the yahoo groups until I found the right one!

So I'm back....

Let me reintroduce myself, to those who may remember me, to those who

have never heard of me and such...

My name is Donna. I am 48 years old, and was diagnosed with MS in August

of 2000. Never had a possible or probable added to the diagnoses, it was

from the get-go definite. I guess I passed (or failed, depending on how

you look at it) all the tests with flying colors. Seven lesions on the

original MRI, as well as Optic Neuritis, then the Visual Evoked and

maybe a few more along with the Lumbar Puncture... And then with a

medical history, my neurologist said that it was pretty clear that I'd

had the MonSter with me for at least 10 years before my diagnosis.

I started Avonex therapy in September of 2000, and continued on it for 4

years... having the flu-like symptoms every week for those 4 years

(Ughhh, but it was working, MRI's showed resolved lesions)..

I stopped taking Avonex 3 years ago this coming April... also stopped

seeing my neurologist about that time. I asked him to add Copaxone to my

Avonex, and he refused, suggested Novantrone, and I told him that

Novantrone was out of the question, and that I'd wait for the Antegren

(Tysabi or however it's spelled) to be released.... that was a quick

release and withdrawal from the market, and I didn't get started

there... so I did without until this October.

Doc refused to prescribe ANY meds for me until I came in to see him, as

he hadn't seen me in like 2 years... He ordered a new baseline MRI,

which came back with wonderful new lesions bi-laterally... Needless to

say he was adamant about me getting on some type of therapy, and I

agreed that I needed something, but was just as adamant about it NOT

being Novantrone, Avonex, Rebif, Betaseron and even the Tysabi that was

to be re-released... the only thing left, and he gave in on, was Copaxone...

So now I'm back on therapy, and I think I'll stay on this stuff for

quite awhile....

And that's what's been happening.. well not all of it... since my last

encounter with the group..

Thanks for having me... looking forward to hearing for ya'll again..

|)onna

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