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When I was in college, my grandpa died, and I asked for his glasses,

because they smelled like his cigars. I wrapped them in plastic to

keep the smell in.

Raena:

This brought back memories of when my Grandpa died, all I wanted was his pipe

lighter (they are different than regular lighters), because as a child I was

fascinated by watching him use it. My so-called adoptive mother made sure I

didnt get it, because I was stupid enough to ask. It was really the only

thing I wanted, and I didnt know at the time but there was a small amount of

money left to me in his will, set aside for a rocking chair for my first

child. I would have gladly given up the money just for that lighter, but

when she took that away I took the money and got the chair, then let her know

I would have PAID HER the $200.00 he left me, just to have that lighter.

It is amazing what happens to people when someone dies.

, Columbus, OH

Mom to

, 15, possible bipolar

Annie, 12, so far so good

JD, 8, severe ADHD, Autism, and my reason for getting out of bed each morning

!

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That is really crappy!! I don't know why people have to be like that!! I

just don't get it!

Tamara

----Original Message Follows----

From: MsMurfield@...

Reply-To: parenting_autism

To: parenting_autism

Subject: Raena

Date: Mon, 7 Jan 2002 14:56:56 EST

When I was in college, my grandpa died, and I asked for his glasses,

because they smelled like his cigars. I wrapped them in plastic to

keep the smell in.

Raena:

This brought back memories of when my Grandpa died, all I wanted was his

pipe

lighter (they are different than regular lighters), because as a child I was

fascinated by watching him use it. My so-called adoptive mother made sure I

didnt get it, because I was stupid enough to ask. It was really the only

thing I wanted, and I didnt know at the time but there was a small amount of

money left to me in his will, set aside for a rocking chair for my first

child. I would have gladly given up the money just for that lighter, but

when she took that away I took the money and got the chair, then let her

know

I would have PAID HER the $200.00 he left me, just to have that lighter.

It is amazing what happens to people when someone dies.

, Columbus, OH

Mom to

, 15, possible bipolar

Annie, 12, so far so good

JD, 8, severe ADHD, Autism, and my reason for getting out of bed each

morning

!

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Well Raena I should feel right at home then huh?! LOL.

What part of AR are you from? We are in Hot Springs,

since May 01, and it is pretty nice. We have been

told it is one of the best areas in the state to live

in. We love having Magic Springs 10 minutes from our

back door and have season passes again for this year.

The one thing I don't like about AR is the fact that I

am 9 hours from my parents and that is not really AR's

fault! I am not fond of Illinois either for the same

reason and we spent 3 lovely winters there. Bwahahaha

Ginger

--- rgr4us wrote:

>

> > I was raised in Alabama and that is one of our

> > favorite phrases! Now that I am trapped in

> Arkansas,

> > it will become famous here as well.>>

>

> Sorry, Ginger...

>

> I was raised in Arkansas, and they've been " fixin

> ta " do stuff there

> for years and years...

>

> Raena

>

__________________________________________________

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> > This brought back memories of when my Grandpa died, all I wanted

was his pipe

> lighter (they are different than regular lighters), because as a

child I was

> fascinated by watching him use it. My so-called adoptive mother

made sure I

> didnt get it, because I was stupid enough to ask.>>

I don't understand why people fight over STUFF...little stuff that is

only important because it reminds you of someone you love. Or why a

period of grief becomes an opportunity in some minds to show how much

power they have over someone else. One thing, at least...she can't

take the memories of your Grandpa using the lighter from you...and

the incident didn't lessen you---it lessened her.

I was talking to my sister last night, and all this came up; we got

to talking about an old nightgown my grandma made each of us when we

were kids...I found that I still have mine when we moved last year.

I told her I'd been thinking of cutting it up and making pillows out

of it for anyone who would want one (it's pretty tattered and way too

small to wear)...she cried out, " ME!!! First dibs! "

Cool. Better get out the machine...

Raena

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> Well Raena I should feel right at home then huh?! LOL.

> What part of AR are you from? We are in Hot Springs,

> since May 01, and it is pretty nice. We have been

> told it is one of the best areas in the state to live

> in. We love having Magic Springs 10 minutes from our

> back door and have season passes again for this year.>>

I was raised in southwest LR; my parents retired to Mt. Vernon

several years ago. Hot Springs is nice...did a six week internship

at the rehab center there when I was in PT school. I used to take my

niece and nephew to Magic Springs all the time so they could barf all

over me after the rides. Ah, fond memories...

Raena

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----- Original Message ----- > I was talking to my sister last night, and

all this came up; we got

> to talking about an old nightgown my grandma made each of us when we

> were kids...I found that I still have mine when we moved last year.

> I told her I'd been thinking of cutting it up and making pillows out

> of it for anyone who would want one (it's pretty tattered and way too

> small to wear)...she cried out, " ME!!! First dibs! "

>

> Cool. Better get out the machine...

>

> Raena

Raena,

I was thinking about doing this with my mom's old tunic tops that she always

wore. Dad still hasn't cleared out her closet and they have certain

patterns that I think we'd all remember were her things!

Sue

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Raena,

I enjoyed reading this post. I have not had any

personal experiences with these types of problems.

You explained it beautifully.

=====

Ginger, wife to Jeff

14 ADD

9 Autistic

7 NT

__________________________________________________

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  • 2 weeks later...

> Tell me more about - how many children do you have? I'm

> still fairly new so I think I've missed something along the way.

> Thats really great that your daughter will help you out like that.

> My stepdaughter lived with us for awhile when was younger and

> was really great with her.>

,

doesn't have " typical " autism (whatever THAT is...). He has

Childhood Disintgrative Disorder...the rarest and most severe of the

PDDs. Some people call it " Late Onset Autism " , some think it

shouldn't even be in with the autistic spectrum listings as a

separate disorder...mostly they don't know what the heck it is, nor

do they know the best way to deal with it.

Basically, a child has 2 to 4 years of " normal " development, followed

by periods of regression lasting from months to years. The end

result is a person who looks severely autistic. Once the regressions

stop, the child starts to progress in a fashion similar to kids with

autism, but it is very slow, and they don't make nearly as much

progress. Most of them eventually end up institutionalized because

they remain unable to care for themselves.

just turned 8 in December. We have been aware

that " something " was wrong since he was 3, but did not know what was

actually going on until he was diagnosed with CDD at 6. It's been

quite a ride. :-(

I have three other kids, all older than , and they are great

kids. They do their best to help with , and have become adept

at dealing with things like keeping him dressed and helping him when

he needs something to eat or drink. They watch him when I need to

take a shower, they encourage him to interact with them. They have

learned what kinds of things help him calm down, how to comfort him

without overwhelming him (usually), and have each developed both good

and bad ways to cope with the challenges of having a brother that

does incredibly embarrassing things in front of the world and

couldn't care less.

It's so far from perfect around here that I couldn't honestly tell

you if we'll make it or not...we just go from day to day. But so

far, that works...and has settled into a life that seems to

work for him. My other kids certainly struggle, because " our

situation " places so many limitations on things they would love to be

involved in, and there is some resentment there from time to time,

but they are growing in ways they don't understand (or appreciate!)

right now.

And since has awakened earlier than usual today and is pulling

my hands off the keyboard while I am trying to type this, I'll

close...

Raena

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Thanks for sharing your story with me. I'm sure it was hard for you. That's

just so great how your other kids help out! My steps have no idea what

autism is and couldn't care less. they think it's like the flu and

will wake up one day and be fine. I wish you all the best.

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