Re: Re: Fw: [SpectrumSupport] Fw: 's Little Miracles: Life with Three Autistic Kids

[Guest guest]

Reading that, again I am overwhelmingly thankful. That sounds TERRIFYING.

never lost skills. He never developed normally and then backpedalled.

How he is is how he always was. We never got a glimpse of an NT child and

then lost 'that' child. He was autistic from the day he was born.

I've always been thankful for that. I think the parents of children who

developed alongside their peers until 18mths+ and then lost it all have a

much harder burden of grief to bear than I do. All I lost was my

expectations. They lost what they believed they already had. (or did

already have). When I look back at photos of at 2, all I see is how

far he's come. I can't imagine looking back now, 3 years later, and seeing

something lost.

My heart breaks for them.

Jacquie

[Guest guest]

> While I perpared breakfast, I listened for the familiar call

> of " Mummy " from 's room. This constituted a summons and a

> request for me to open his cot so that he might begin his day. I

> decided to wake . He was sitting in his cot, eyes opened and

> yet motionless. When I entered, he appeared not to hear me, as if in

> a trance. Clicking my fingers only centimeters from his nose evoked

> no response. What strange spell had been cast on my child? "

Raena:

Very, very creepy. Much creepier than having a child like Putter who has

consistently been Putter since birth. To see your child transform into

someone else suddenly must be awful

Salli

[Guest guest]

My girls didn't change like 's daughter. Not that rapid.

But it was a change. And I don't even claim it was vaccines. I don't claim

anything because I don't have a clue. It could be fate, for all I know.

But the pictures say everything. Up to about a year, Madison is always

looking at the camera. Smiling, or giggling... or sometimes, just peering

into the lens. Pictures after a year don't show that. Most of the pictures

are of me catching her doing something.... or her looking lovely while

gazing elsewhere.... or on the rare shot, I have one of her looking straight

at me, but rarely smiling AT me.

Same with Syd... only hers happened later on. I don't even know when it

happened with her. I was so consumed with Madison's oddities, I wasn't

paying attention to Syd's changes as I should have been. All I know is that

by 20 months... she was also obviously autistic.

The children I had at about 20 months of age were not the same infants, the

same 6 month old babies, or the same 9 month old crawling monkeys. It's not

that they had " grown up " . It's that they were no longer the same children.

The most accurate way I can describe what happened in my house is that as

time went on, first madison, then Sydney, both lost interest in me... in my

husband... in their surroundings. I just lost them. But not completely,

and I am thankful for that.

There is a local couple here who had a sudden transformation like

describes. (Well, maybe not quite as sudden as her daughter's, but in one

afternoon, nonetheless). Only their child was a son... The father recalls

that he came home, expecting the typical " daddddyyyyyyyyyyyyyy " and hug

around the knees from his 2 year old. When he walked in and called out, it

was silent. His wife peeked out from the kitchen and greeted him. He asked

where the boy was, his wife said that he should be in such and such room.

They called out to him - - - no response.

The found him in the room, alright.

Rocking back and forth, back and forth, back and forth - - - - - facing a

white wall. Totally GONE.

This was in the SF Chronicle.....

Grace

Re: Fw: [spectrumSupport] Fw: 's Little

Miracles: Life with Three Autistic Kids

>

> >

> > How many of you here on this list had children turn autistic almost

> from one minute to the next? I do know some who felt it happened

> that way, usually because of a vaccination, but this article

> describes it as just incredibly sudden.>>

>

>

> > lost all of her words -- Mama, Papa, An-do (for ) -- on

> the day she became autistic. But listen closely. In the constant

> stream of chirps and coos, sighs and squeals, you might hear a word.

> Or think you do. They come in breathy whispers. Standing in front of

> the sliding glass door, musters a body-trembling " Ohh. " For

> open? On the trampoline, someone hears " Jump! " points to a hole

> in 's pants. " , you have a hole! " looks up, wide-

> eyed: " I do? " >>

>

> Salli,

>

> I have pictures of when he was little...he looks like any

> other kid. As he gets older, the pictures change...you can see

> him " becoming autistic " if you will...but it was not quick; altho his

> second period of regression was like falling off a cliff...

>

> This paragraph describing reminds me so much of . He

> does the very same thing; talking in whispers, words and sentences

> out of the blue.

>

> I do think this could happen...there are people who think that

> extreme stressors can cause a child to snap into autistic traits. I

> remember reading a book called, " No Place to Be a Child " , by

> Garbarino, about kids who grow up in war zones. He cites a study

> that shows that an inordinate number of the people who witnessed

> the " killing fields " in Laos eventually went blind with no apparent

> physical cause...the brain knows when it has had enough.

>

> There is a theory on CDD that says that these are kids who had

> borderline coping skills, serious sensory disturbances, who could for

> whatever reason hold it together for a while and appear " normal " , but

> when the world becomes overwhelming (usually around 3 or 4), they

> can't do it anymore and fall apart...

>

> Raena

>

>

_________________________________________________________

[Guest guest]

> Again, creepy. How can this happen? What makes such a rapid change?

In their case - it was several days after a vaccination. Coincidence? WHO

KNOWS???

Whatever anyone claims is just speculation still, so you just don't

know.....

>

> I do have an explanation for loss of eye contact because Putter's baby

> pictures do not look particularly autistic; he does not have that off

center

> look

Well, it was more than just eye contact. Eye contact was good BUT - - it

was the interaction. The kind of reaction you get from the child when you

do this, that, call her name, tickle, sing, talk. Heck, frankly - - it was

getting a reaction, PERIOD. She was just a typical baby..... cute, all

smiles, excited at everything, curious, etc. She and Sydney would be on

their stomachs, bouncing up and down, kicking up a storm, totally giggling

at one another.... happy to look at each other. Loved black and white as an

infant, grew to love colors, and played with infant toys appropriately. One

day, she just stopped turning around to her name. One day, she just started

to take the same toy and hold it up to light, look at the damn reflection of

the light instead of playing with it the way she knew how.... Of course, at

the time, I just figured she was a more insightful " deeper " kid, but looking

back, I slap myself on the head thinking, 'Why didn't you think something

was wrong with that???? " I mean, she stopped PLAYING!!! She didn't know

but 10 words or so, and one day - - <and I still do not know WHEN> - - she

just stopped knowing them. It's like DUH. I just figured her to be fickle

like her mommy, or teasing me by acting like she doesn't know them... and

figured she'd say it again. Until she didn't. And she still hasn't.

Neither have.

And then she stopped looking at me. And then she stopped reacting to me.

And then she started climbing to the top of the world and could not hear me

screaming behind her... until the day she started plugging her ears. She

seemed, to me at the time, to become the most disobedient or profoundly deaf

kid. I mean, the same thing that used to tickle her to no end was NOT

TICKLISH anymore. It's like EVERYTHING changed. My child wasn't rocking or

staring at a blank wall, but she was just as unreachable sometimes... and

just as changed.

> Putter looks fairly normal in picture until two, but I can recall many

many

> odd things about him when he was under two and so that is the explanation

> that I came up with that seemed to fit what I recall of Putter.

Like what?

Even with all that I know now - - when I look back, I can only fit about 2

things into the " autistic from birth " scenario.

1. She gagged at some chunky baby food since 7 months, which could be a

sensory texture issue.

2. She preferred the cheap Gerber or J & J Healthflow nipple to the millions

of Avent nipples I had bought. I used the nipples they gave me at the

hospital until it was nearly life-threatening to feed her from them LOL.

Other than these, I draw a blank. I suppose there could be more... which is

why I ask, " Like what? "

Grace

_________________________________________________________

[Guest guest]

> Rocking back and forth, back and forth, back and forth - - - - - facing a

> white wall. Totally GONE.

> This was in the SF Chronicle.....

>

Again, creepy. How can this happen? What makes such a rapid change?

I do have an explanation for loss of eye contact because Putter's baby

pictures do not look particularly autistic; he does not have that off center

look although I know his eye contact was poor fairly early on as I recall

remarking to Lou that Putter does not like to fall asleep gazing into my

eyes the way many babies do. But if you made him giggle he would always

look at you (still true today) and so any picture of him giggling would be

likely to look more normal.

What I think happens is that autistic from birth babies do not yet know how

to look away. They know perhaps that they are overwhelmed by the world but

they haven't learned the coping skill (which is what it probably is) of

looking away.

Putter looks fairly normal in picture until two, but I can recall many many

odd things about him when he was under two and so that is the explanation

that I came up with that seemed to fit what I recall of Putter.

Salli

[Guest guest]

>

> Like what?

Putter could not start solids until ten months because he gagged on

everything. Even after he began eating he still gagged far far more than

any other child I have had.

The falling asleep without looking at mething I mentioned in the previous

post.

He loved fans. They soothed him.

He needed less holding than any baby I had ever had although he didn't mind

holding.

By one he was so obsessive about balls that when we went to a store, I would

send a big brother ahead to check out our path and make sure we did not pass

any balls. I never had to do this with any other child because it IS NOT

NORMAL.

After Robbie was born, I noticed that, although he loved balls too, he would

pick one up and look for someone to play with. Putter picked one up and

threw it and chased it. He didn't need anyone else.

He said no words.

The director of the church nursery said that he never looked at anyone but

me; she knew something funny was going on fairly early.

My next door babysitter refused to babysit Putter.

He was desperately, frantically attached to me.

He never pointed until at four we taught him how by shaping his hands into a

point. Even now his point is odd, but it is a point.

That's all I can think of right now.

Salli

[Guest guest]

Ahh yes, that is the third one. I said 'about two things' in my other post

because last time i checked, I counted three but could only remember two.

You just reminded me.

Neither child ever pointed as babies. Not once, to my recollection. They

imitated actions, but neither voluntarily pointed to indicate something.

That was number 3. Syd does it now, but not to indicate something afar, but

rather right in front of her. She points at the book, at the picture, at

her nose, etc.... not at the kitchen, or at the hallway..... at something

specific. madison still doesn't.

Madison gagged often, but only on two things. One was the Gerber Stage 3

Spaghetti <go figure>, and the other was " Pasta Primavera " from Tender

Harvest. She didn't mind the spinach and all the other nasty stuff - - -

just hated those two things.

Re: Re: Fw: [spectrumSupport] Fw: 's Little

Miracles: Life with Three Autistic Kids

> >

> > Like what?

>

>

> Putter could not start solids until ten months because he gagged on

> everything. Even after he began eating he still gagged far far more than

> any other child I have had.

>

> The falling asleep without looking at mething I mentioned in the previous

> post.

>

> He loved fans. They soothed him.

>

> He needed less holding than any baby I had ever had although he didn't

mind

> holding.

>

> By one he was so obsessive about balls that when we went to a store, I

would

> send a big brother ahead to check out our path and make sure we did not

pass

> any balls. I never had to do this with any other child because it IS NOT

> NORMAL.

>

> After Robbie was born, I noticed that, although he loved balls too, he

would

> pick one up and look for someone to play with. Putter picked one up and

> threw it and chased it. He didn't need anyone else.

>

> He said no words.

>

> The director of the church nursery said that he never looked at anyone but

> me; she knew something funny was going on fairly early.

>

> My next door babysitter refused to babysit Putter.

>

> He was desperately, frantically attached to me.

>

> He never pointed until at four we taught him how by shaping his hands into

a

> point. Even now his point is odd, but it is a point.

>

> That's all I can think of right now.

>

> Salli

>

>

>

>

_________________________________________________________

[Guest guest]

> Like what?

I'm going to answer this one, too, because is so much like Putter in that

regard.

-he refused to swaddled; if you wrapped him he would kick and kick until he was

naked again -- even in the hospital nursery

-he needed to be rocked to sleep until he was 3.

-he didn't make eye contact unless he was laughing, just like Putter

-he NEVER engaged in back-and-forth babble with anyone. He didn't even babble

until he was 2. Before that, he either cried or was silent, at the time the

baby books said he should answer a coo with a coo, he was completely

un-engageable.

-he did NOT want to be babbled at or cuddled; he would be awake and content in a

baby swing for HOURS.

-if you tried to hold him he'd just wriggle and squirm and yell until you nearly

flung him away from you in frustration.

-his bond to me was no different than to any other person. there was none of

that 'mother's touch' kind of comfort to be had.

-he was a very low-needs baby

-he was a choker. gagged on EVERYTHING. I've given that kid the heimlich so

many times...

-fascinated by letters; at 9 months old would STARE at a lettered shirt you wore

and hit each letter in turn with his fist.

-stared at his own hands and fingers for hours at a time.

-could not sleep if he could hear ANY noise in the house whatsoever

-even as an infant, FREAKED OUT when surrounded by too many people

That's all I can think of right now, and they're all things that were glaringly

apparent before his first birthday, in some cases as soon as he was born.

Jacquie

[Guest guest]

>

> How many of you here on this list had children turn autistic almost

from one minute to the next? I do know some who felt it happened

that way, usually because of a vaccination, but this article

describes it as just incredibly sudden.>>

I've been thinking about this Salli, and while I haven't read the whole

article, I have to say that for me all the symptoms were always there. It

really was a developmental thing, and we just didn't know what to call it.

We had no moments where she was wonder child then non-verbal. She was just

our child, always, and we finally were given a name for all of the things

that we had questions about.

Penny

[Guest guest]

>>>

Raena, I totally see what you're saying -- but do you think those reports

support a child walking across the room and suddenly switching from NT to

autistic like that? I'm not challenging, by the way -- I really want to

know! I've never heard of such an ABRUPT 'transformation' like described in

that article.

Jacquie

<<<<

I'm not passing any judgement on the mother at all. I feel that the article

was somewhat dramatic, and did state some falacies (is that the right word,

lol)..... like.... " Most autistics will not marry or live on their own " .

So, who knows, maybe it was the wording that was turned around for shock

value.

Who knows.

Penny

[Guest guest]

>>>>There are several interesting stories where a child suddenly slips

into a " trance " , usually it comes and goes for a bit, but it does

come on suddenly...I honestly don't know, but at this point in my

life, I am willing to believe almost anything...the more I learn

about the brain, the more I believe anything is possible.

Raena<<<<

This actually happened to Jacqui, to Raena...now that I think of it.

I remember one day (and I will remember this forever), I was changing her

diaper...she was MAYBE a year old, and she went off into this staring thing

for about 15 seconds or so. I couldn't snap her out of it. My heart was

racing and the adrenaline started to flow... Then all of a sudden it was

over.

We talked about it, but didn't do anything about it. It did happen after

that, but rarely.

This is documented in her evaluation.

Interesting.......

Penny

[Guest guest]

>> Like what?

Anyone mind if I do Monster Man?

On the night my son was born, after a labor the Dr's were sure would result in

emergency c-section for fetal distress, my perfectly healthy, APGAR 10 son laid

awake ALL NIGHT, completely quiet. He diddn't cry when they took his temp,

changed his diaper, or gave him a PKU test. He went 12 HOURS from birth to first

feeding. I'm told the only time he made a sound was to whimper anytime I was

messed with.

's first non-crying sounds I have on video. He was 4 months old. He didn't

makes sounds again other thn crying until he was almost a year. He didn't say

his first word until almost 2.

was the most easygoing, laidback kid I have ever met. He didn't mind

cuddling, lie Putter and , but was just as happy to be left alone with a

blank TV and his Fisher-Price gym.

ONLY made eye contact for any signifigant (more than 10 seconds) eye

contact when he was breastfeeding. He weaned himself (no help from me,, I tried

to force him to nurse longer) at 8 months. I haven't made good eye contact with

my Monster Man since.

never minded new people, as long as it was in small doses. He was very good

with transitions, no need for a schedule, at least not till about 18n months.

would ONLY go to sleep nursing or in one of those bouncing chairs that

vibrated. He used that little chair till he was 30 lbs. Then it broke. I thought

the world was gonna end.

He HATED the baby swing. Scared the bejesus out of him. But he'd WATCH it swing

from the floor for HOURS, literally. He would squirm till he was directly under

it, and watch it till he couldn't keep his little eyes open anymore.

did not interact with other kids. Not even parallel play. As far as he was

concerened, they didn't even exist.

-Beth never was competition. She was something to be protected, even from

Mommy. used to sit on the floor before she was mobile, and if anyone or

thing came within 10 feet of her, he'd shriek like someone was stabbing him.

Once she was crawling, he'd walk backward in front of her yelling " MOVE, DIT-TY

GO " , meaning that if we were, or anything was in his sister's way, that it was

to move or be moved IMMEDITELY.

plays fetch with a ball by himself for hours, happily, like Putter.

He will stand a few inches from the TV and move his lips, but no sound comes

out. He will stand motionless like that for HOURS. It makes my legs hurt to

watch him.

Any toy that talked or made noise would have one word or sound repeated.

Constantly. And only one word/sound. New words/sounds caused fits you wouldn't

believe.

--

...

Mom to:

, 3, Pro-Wrestler in hiding

, 1, Opera Soprano in-the-making

Missing those beautifully wonderful babies. Without them, the Sun has left my

universe.

__________________________________________________________________

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[Guest guest]

>

> Any toy that talked or made noise would have one word or sound repeated.

Constantly. And only one word/sound. New words/sounds caused fits you

wouldn't believe.

:

I do hope you don't mind my saying so but you know sounds, well,

AUTISTIC!

Salli

[Guest guest]

Ya know, I was wondering about that....you thonk I should talk to hid

pediatrician??? :)

" bunnytiner " wrote:

>>

>> Any toy that talked or made noise would have one word or sound repeated.

>Constantly. And only one word/sound. New words/sounds caused fits you

>wouldn't believe.

>

>

>:

>

>I do hope you don't mind my saying so but you know sounds, well,

>

>AUTISTIC!

>

>Salli

>

>

--

...

Mom to:

, 3, Pro-Wrestler in hiding

, 1, Opera Soprano in-the-making

Missing those beautifully wonderful babies. Without them, the Sun has left my

universe.

__________________________________________________________________

Your favorite stores, helpful shopping tools and great gift ideas. Experience

the convenience of buying online with Shop@Netscape!

http://shopnow.netscape.com/

Get your own FREE, personal Netscape Mail account today at

http://webmail.netscape.com/

[Guest guest]

> > Like what?

>

>

> I'm going to answer this one, too, because is so much like

> Putter in that regard.

Ditto.

You already know he had to be held and nursed constantly. Until he could

sit alone, I sat on the couch all day with a book in one hand and a baby in

my lap. There were days he would nurse 30 mins on one side, I'd take him

off and put him on the other side for 30 mins, then back to the first side,

for HOURS. I called these growth spurts.

Despite having to be held constantly, he was not interactive. I was not

holding him playing with him. I was just holding him. I would try to

interact with him and get nothing back. I remember posting to email lists,

" What should I be DOING with him? We're very bored. " (I have the opposite

problem with Gabe. He is always wanting picked up and I don't have a clue

what I should DO with him. He is bored and wants to play WITH me and I

don't know how.)

He would only sleep in our bed with his face against my breast and his body

against my stomach. My arm had to be over him and the covers could not be

over his upper arm. When Gabe was born I slept with him like this. He

would fuss and stir and I would pull him closer; he would fuss and squirm

harder. Finally when he was about 2 weeks old I tried moving him a few

inches away. Viola. Mikey needed that very high level of sensory input,

but it kept Gabe awake.

He did not like black & white or bright colors. He could see and he would

track you across the room very early, but the things babies are supposed to

like looking at did not interest him. When Gabe was born he showed a clear

preference for high-contrast things at first, and it was fascinating to

watch his vision evolve to the point that he would look at pastels.

He did not look at faces. Gabe studied my face. He would look at my eyes,

then down to my mouth, then follow my hair line all the way around. He

still falls asleep in my arms looking at me.

You could not put him down for a nap. If you put him down, he woke up

within 10 minutes.

Once he could sit alone (4 1/2 mos) he didn't need me anymore. I'd put him

on the floor with toys and watch him play. He did not play with me. He did

not want to be held anymore unless he was nursing. Up to this point, we

swaddled him. We swaddled Gabe for maybe a week.

Early solids with lots of texture. At 5 mos anything I was eating, I could

mash with a fork and give to him. At 5 1/2 mos he refused to be fed & was

on diced table foods. We never had to buy baby food.

Although he sat quite early, he didn't crawl till he was 9 mos old. One day

he could not crawl and the next day he could. After this he needed me even

less; he could crawl to the toys he wanted.

He cood and babbled but not responsively.

10-11 mos was really a crisis period for us. He stopped crawling. He'd

been saying mama, dada, nana, and cat; that stopped. He'd been pulling up

and cruising; that stopped. He just sat and played with toys again. He

banged them and mouthed them; his play never progressed beyond that stage.

If you hand Gabe an empty cup he will 'drink' from it. If you give him a

toy car he will move it back and forth on the floor. He knows what one does

with these things.

These losses happened so gradually we were barely aware of them, much less

worried about them.

Oh, that was when his sleep problems started in earnest. He was never a

good sleeper but this is when he started to fight going to sleep.

I have no idea what happened at that age. He got shots at 9 mos but nothing

happened for a month after that, so I don't really like those. I'm not

ruling it out but I don't see a direct link like some do -- " He had the MMR

that morning and that afternoon when he woke up from his nap he was

autistic. " He was not sick, he did not fall, he did not have a fever or

bump his head or anything I can think of. And it was a gradual thing that

took 2 months to happen.

When he started walking at 12 mos I assumed all the other things would come

back. They didn't. Also, he literally just stood up and walked one day.

It was 4 days after his birthday; bam, he crawled over to the couch, pulled

himself up, and walked across the room. He had not even stood unsupported

before that.

No pointing, clapping, or waving.

BTW I am not saying Gabe is NT but from all appearances he is at least a

more normal baby than Mikey was. Most of these things I didn't think about

before Gabe was born; now I am realizing how different Mikey was from the

start. Without Gabe I don't think I would realize a lot of these things.

-Sara.

[Guest guest]

> Ya know, I was wondering about that....you thonk I should talk to hid

pediatrician??? :)

>

uh, not if you want any valid answers.

Salli

[Guest guest]

> He HATED the baby swing. Scared the bejesus out of him. But he'd WATCH it

swing from the floor for HOURS, literally. He would squirm till he was

directly under it, and watch it till he couldn't keep his little eyes open

anymore.

>

Well, girl, you obviously did him in by this.

You caused it, LOL.

" Here's your sign. "

) I am kidding, you do know this?

Grace

_________________________________________________________

[Guest guest]

> Once he could sit alone (4 1/2 mos) he didn't need me anymore.

HOLY CANNOLI, that is EARLY!!!!

My girls both sat up at 7 months, on the same day even. Actually, that is

not accurate. I sat them up and they stayed that way is how it happened. I

was reading some baby book <making sure we were doing okay developmentally,

what a joke LOL!> and it said that at 7 months, they should be learning to

sit on their own. I said, 'oh no' and sat them up and ..... well, wow - -

they stayed that way, LOL!! They were crawling around at 6 months, but

neither ever sat up... always on their tummies.

> Early solids with lots of texture. At 5 mos anything I was eating, I

could

> mash with a fork and give to him. At 5 1/2 mos he refused to be fed & was

> on diced table foods. We never had to buy baby food.

WOW WOW WOW again.

At 5 months we were doing cereal only. I didn't even start stage 1 foods

until 6 months. Boy, I was DYING to start baby foods though. I always

pictures those jars to be a huge part of motherhood. It got old - - REAL

FAST, LOL, and expensive too. I was going through 20 jars a day! I can

honestly say I never once tried to feed them MY food, mashed or not. The

picture of the Heimlich maneuver would also flash before my eyes. I should

have tried. Darn. That is very cool, Sara.

> autistic. " He was not sick, he did not fall, he did not have a fever or

> bump his head or anything I can think of. And it was a gradual thing that

> took 2 months to happen.

Sara. Same here. That is why I don't place much water in vaccines, for us

anyhow. We never had any reaction to them. I gave them Tylenol before the

appt only for their first shots - - - and afterwards, I didn't even do that

and still - no negative reaction. Perhaps a low grade fever - but even so,

it wasn't obviously noticeable. They were never even obviously cranky after

shots.

This is all very interesting stuff.

Grace

_________________________________________________________

[Guest guest]

>>>>There is a local couple here who had a sudden transformation like

describes. (Well, maybe not quite as sudden as her daughter's, but in one

afternoon, nonetheless). Only their child was a son... The father recalls

that he came home, expecting the typical " daddddyyyyyyyyyyyyyy " and hug

around the knees from his 2 year old. When he walked in and called out, it

was silent. His wife peeked out from the kitchen and greeted him. He asked

where the boy was, his wife said that he should be in such and such room.

They called out to him - - - no response.

The found him in the room, alright.

Rocking back and forth, back and forth, back and forth - - - - - facing a

white wall. Totally GONE.

This was in the SF Chronicle.....

Grace

<<<<

Pardon me, but... Jesus!!

I can't even fathom that....!

horrid.

Penny :-(

[Guest guest]

Aren't the staring trances like seizures? I thought that was what was

happening when the stared fixedly like that.

Tamara

----Original Message Follows----

Reply-To: parenting_autism

To: <parenting_autism >

Subject: RE: Re: Fw: [spectrumSupport] Fw: 's Little

Miracles: Life with Three Autistic Kids

Date: Wed, 9 Jan 2002 18:20:03 -0800

>>>>There are several interesting stories where a child suddenly slips

into a " trance " , usually it comes and goes for a bit, but it does

come on suddenly...I honestly don't know, but at this point in my

life, I am willing to believe almost anything...the more I learn

about the brain, the more I believe anything is possible.

Raena<<<<

This actually happened to Jacqui, to Raena...now that I think of it.

I remember one day (and I will remember this forever), I was changing her

diaper...she was MAYBE a year old, and she went off into this staring thing

for about 15 seconds or so. I couldn't snap her out of it. My heart was

racing and the adrenaline started to flow... Then all of a sudden it was

over.

We talked about it, but didn't do anything about it. It did happen after

that, but rarely.

This is documented in her evaluation.

Interesting.......

Penny

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[Guest guest]

My responses are very similar to Jacquie's and Salli's.

A couple elaborations.

Jacqui COULD NOT get enough in her mouth...was a choker and gagger. When we

would feed her, oh I'm going to say starting at a year old, maybe

younger....we have video of us feeding her. She always has her mouth WIDE

open after each bite, like MORE MORE MORE MORE MORE!!!!!!...very odd.

I also remember a friend of mine came over when she was about 6 months old.

She literally SCREAMED the entire time he was there and there was no

comforting her. I remember thinking...wow, this is weird, she's never done

THIS before.

Also, whenever relatives visited, she would either " pass out " or go in her

room and not come out. She still does this...(goes to a different part of

the house when someone comes over).

Penny

[Guest guest]

>>>>Neither child ever pointed as babies.<<<<

Jacqui didn't point either until she was at least 3. I remember it like it

was yesterday. It was the first time she was able to point to something she

wanted. She was also non-verbal (Gawd, it hurts to write that, because back

then I didn't think that way... <sniff> ). She pointed, albeit with her

middle finger, to a bottle of bubbles hanging in a basket.

She still points with her middle finger sometimes...

*sigh* <sniff>

Penny

[Guest guest]

> wanted. She was also non-verbal (Gawd, it hurts to write that, because

back

> then I didn't think that way... <sniff> ). > *sigh* <sniff>

>

Oh, but it shouldn't!

Look at her NOW!!!

And pointing is pretty much the LEAST of all of Jacqui's accomplishments!

So... so there!

Grace

_________________________________________________________

[Guest guest]

Same with ...I had an easy labor and

delivery..perfect Apgars..he was right on target with

everything, starting to say words..never had any

reaction to any of his shots..then gradually, when he

was around 2..we noticed he stopped saying

words..didn't make eye contact and seemed not to hear

us. He was always very active.

Of course, the pediatrician and everyone else..said

boys take longer to talk..just cause talked at

13 months doesn't mean he will..she talks for

him..you've all heard this too, I know!

Mimi

--- Grace Keh wrote:

>

> > autistic. " He was not sick, he did not fall, he

> did not have a fever or

> > bump his head or anything I can think of. And it

> was a gradual thing that

> > took 2 months to happen.

>

> Sara. Same here. That is why I don't place much

> water in vaccines, for us

> anyhow. We never had any reaction to them. I gave

> them Tylenol before the

> appt only for their first shots - - - and

> afterwards, I didn't even do that

> and still - no negative reaction. Perhaps a low

> grade fever - but even so,

> it wasn't obviously noticeable. They were never

> even obviously cranky after

> shots.

>

> This is all very interesting stuff.

>

> Grace

>

>

>

>

_________________________________________________________

>