Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Welcome, Kim, and I would not worry much about keeping future posts to a minimum; we talk a lot on this group, and seem to be dog-lovers as well! Love to you; just remember that we need you, too! n, diagnosed with MS at age 19, in 1956, and still here! Thanks to the Group! Hi there,I am having some difficulty replying to specific posts but I will sort that out. Thank you to all who have sent me warm welcomes!Val I will be thinking of you as you wait for news on next steps and treatment. I hope you have the love and support of family and friends and that you never feel alone through uncertain times.A little about me...I am a single mom to two wonderful children and a border colie. My kids are Jenna 14 ( and sooo 14) and who is 10 (and has Tourettes Syndrome). I work for an out patient mental health clinic and love my work. I am missing normal life a great deal and yern to return to the hussle and busstle. This MS flare took me down hard and fast.My initial symptoms occured in Oct 2005 when I had numbness in the last three fingers of both hands. The doctor ruled out carpal tunnel and tendonitis. I just adapted and went about the business of life. Then the last week of August 2006 I woke in the night with a terrible tingling in my left leg and foot. In the morning I noticed that the sensation was reduced ( altered?). Gradually my right foot also went numb and remained so. My doctor thought perhaps this was due to a back problem and referred me to a Neuro who also dismissed my concerns.On November 19, 2006 I started having difficulty with my left hand (dominant). I couldn't maintain my grasp and dropped everything I picked up. Again I went to my doctor who said perhaps a pinched nerve in my neck was the cause. My left leg remained numb, both feet and now my left hand. I was frightened and over the next two days I lost more and more mobility. I could not will my left hand to move at all. I called the Neuroligist and was admitted to hospital. Three tumours were identified. After a biopsy I was diagnosed with Tumefactive MS. Apparently this is a very rare presentation. They are unsure how to proceed with treatment or if the presence of these dense tumours has any implications in terms of prognosis.I am waiting for assessment at a specialty clinic where I am hopeful that they will be able to make treatment recommendations.I am trying to take one day at a time and I am most greatful for family and friends.I promise to keep future posts to a minimum!Best wished to all in 2007!Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 I love my dog - except when she hogs the bed or takes my blankets !! DH & I woke up around 3:30 this morning freezing ! My first thought was that we ran out of fuel oil. Once I was a bit more awake, I/we realized that Louise had taken our quilt and was all wrapped up nice and snug and sound asleep and had left us with just a light blanket and a sheet !! LOL a .......... in Michigancoming in January - Farm Fresh Soaps and Candles.com !!! Welcome, Kim, and I would not worry much about keeping future posts to a minimum; we talk a lot on this group, and seem to be dog-lovers as well! Love to you; just remember that we need you, too! n, diagnosed with MS at age 19, in 1956, and still here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 how cute is that.I want a dog sooooo bad.lucky lucky. hugs, cassy [paulacoon@...] wrote: I love my dog - except when she hogs the bed or takes my blankets !! DH & I woke up around 3:30 this morning freezing ! My first thought was that we ran out of fuel oil. Once I was a bit more awake, I/we realized that Louise had taken our quilt and was all wrapped up nice and snug and sound asleep and had left us with just a light blanket and a sheet !! LOL a .......... in Michigan coming in January - Farm Fresh Soaps and Candles.com !!! Welcome, Kim, and I would not worry much about keeping future posts to a minimum; we talk a lot on this group, and seem to be dog-lovers as well! Love to you; just remember that we need you, too! n, diagnosed with MS at age 19, in 1956, and still here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 {{{Kim}}} Have a Happy, happy new year!! I do know what you are going through and I am lifting you in prayer! This is no picnic, I know. But, a positive attitude goes a long way. I don't know much about the MS that you are describing to me, but I'm going to look into it. Never hurts to learn new things. You may not know this, but I have a very, very short term memory. I come off a little crazy at times. But, please forgive me if I have already answered this email. X's and O's... http://360.yahoo.com/vallee45 -- Thanks to the Group! Hi there,I am having some difficulty replying to specific posts but I will sort that out. Thank you to all who have sent me warm welcomes!Val I will be thinking of you as you wait for news on next steps and treatment. I hope you have the love and support of family and friends and that you never feel alone through uncertain times.A little about me...I am a single mom to two wonderful children and a border colie. My kids are Jenna 14 ( and sooo 14) and who is 10 (and has Tourettes Syndrome). I work for an out patient mental health clinic and love my work. I am missing normal life a great deal and yern to return to the hussle and busstle. This MS flare took me down hard and fast.My initial symptoms occured in Oct 2005 when I had numbness in the last three fingers of both hands. The doctor ruled out carpal tunnel and tendonitis. I just adapted and went about the business of life. Then the last week of August 2006 I woke in the night with a terrible tingling in my left leg and foot. In the morning I noticed that the sensation was reduced ( altered?). Gradually my right foot also went numb and remained so. My doctor thought perhaps this was due to a back problem and referred me to a Neuro who also dismissed my concerns.On November 19, 2006 I started having difficulty with my left hand (dominant). I couldn't maintain my grasp and dropped everything I picked up. Again I went to my doctor who said perhaps a pinched nerve in my neck was the cause. My left leg remained numb, both feet and now my left hand. I was frightened and over the next two days I lost more and more mobility. I could not will my left hand to move at all. I called the Neuroligist and was admitted to hospital. Three tumours were identified. After a biopsy I was diagnosed with Tumefactive MS. Apparently this is a very rare presentation. They are unsure how to proceed with treatment or if the presence of these dense tumours has any implications in terms of prognosis.I am waiting for assessment at a specialty clinic where I am hopeful that they will be able to make treatment recommendations.I am trying to take one day at a time and I am most greatful for family and friends.I promise to keep future posts to a minimum!Best wished to all in 2007!Kim Quote Link to comment Share on other sites More sharing options...
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