Re: Rejoining after a long absence.........

[Guest guest]

Maybe make us hold our tails up a little higher???? lolSharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford Re: Rejoining after a long absence.........

Well I know that a little ginger brandy is good for warming a person up

when they are human Popsicles!!! .. And I know they use ginger on a horse

to get it to hold it's tail in air during shows... (but it's illegal to

do that).. lol.. so what can or does it do for us with MS?

|)onna

Akiba Michels wrote:

>

> I cannot even Imagine losing a child! There are no

> words for the pain that must be!

> I was also tested for carpal BTW, and came back pos.

> Dr's of course wanted to go right in, TG Challis told

> me about bromelian, I take it daily (ok, except for

> yesterday, I didn't even brave LDN yesterday!) and it

> has almost totally cured it. Now I also hear about

> ginger root, I haven't tried it yet, that's next :-)

> HUGS

> Akiba

__________________________________________________

[Guest guest]

Owwwwww Sharon....

No please don't make me hold my tail up higher!!!... lol.... got enough

trouble with that end as it is.. LOL... it's either feast or famine

(ewww bad choice of words I think)...

Sharon Marsden wrote:

>

> Maybe make us hold our tails up a little higher???? lol

>

> Sharon

>

> If the government is big enough to give you everything you want, it is

> big enough to take away everything you have. - Gerald Ford

>

>

> Well I know that a little ginger brandy is good for warming a person up

> when they are human Popsicles!!! .. And I know they use ginger on a horse

> to get it to hold it's tail in air during shows... (but it's illegal to

> do that).. lol.. so what can or does it do for us with MS?

>

> |)onna

[Guest guest]

{{{{{{{{Donna}}}}}}}} I am so sorry you lost your son. How incredibly painful this must be for you. HUGS, Challis Sharon Marsden wrote: I'm so sorry to hear about your son. My brother lost his son some years back and I know how hard that was on him and the boy's siblings. I am really, truly sad for you.

hugs))))))Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford<!--[endif]--> Re: Rejoining after a long absence......... Sure Can AkibaI am 48 years old, way-more-than- significant- other to , 56. I had two sons until May 30th of this year, when my oldest, or better known to all as "Bud", was killed in a head on collison. He would have been 32 in October. My youngest Earl will be 25 on February 18th.I live just north of that Manson-Nixon line here in Penciltucky, just southeast of Pittsburgh. So you and I are neighbors of sorts. and I will have been together for 7 years on February 1st, and it still seems like yesterday.. Guess that's a good thing. I've never actually know a man like before. He takes such very good care of me.. cooks,

cleans, does laundry AND goes to work 40 plus hours a week.. And he still finds time to give me all the love and attention that I need. LOLI'm seven years now, in the area where we live, three in this home, 4 two blocks down the street. This is the little coal mining "patch" town where grew up. It's quiet... 'cept for the quad next door when I'm still trying to sleep.. LOL. and I have 3, no 4 other children, sort of... We have 3 parrots and 1 boxer. You can see our parrots at an old very outdated webpage that I created here: http://donnaisalway s.home.comcast. net/ Though our little green goober has taken to plucking and no longer has any chest feathers, and very few shoulder feathers.. He got to be breeding age, and turned hormonal.. or possibly the move to a new home along with adding the boxer to the family... not sure what

exactly, or what combination of events, caused him to start plucking.. but he's still doing it though we try hard to "ignore" it.. it's what you're supposed to do, otherwise they figure they have permission to keep doing it.. We're also not allowed to clip his flight feathers because that also tells him it's okay for him to pluck his own feathers... Oh but he is still the little chatterbox.. .and quiet funny.. He and Roxie have taken to trying to visit with the dog.. Joe flies out.. Roxie just walks out of the bird room..We don't have any partridges either, but we do have a pear tree, and we cut down the apple tree to get this house into the ONLY spot they could put it in.. Some kind of ordinances about being so many feet off property lines and away from the road.. and then we got this wonderful main electric line of some sort running across the property that you can't build anything under according the electric

company standards... and oh.. well they'll move it off our property.. but we'd have to pay for it... and get permission to move it on the neighbors properties as well.... and pay for that too... Guess that's why would like to move to Alaska... LOL.. and I showed him the pictures of the grizzly bear paw print AND the wolf print.... told him NO WAY JOSE... his little pea shooter won't handle something like that.. LOL.. AND he doesn't hunt anymore.. he said we could still move there... but he'd get a BIGGER GUN.. He seems to think there's a town or village or something up there where they will pipe in cable to us.. LOL...Okay, now for the rest of the stuff...I was diagnosed in August of 2000. I was pretty sure that I had it a few years before that, when a friend of mine, who does have the MonSter, and I discussed symptoms that I'd had over the years.. He suspected it long before I even brought up the

subject.. go figure...I started on Avonex in September of 2000, and immediately starting telling everyone how great it was, and how if this was all there was to it.. sticking myself with a needle once a week.. it would be a piece of cake... In October the side-effects HIT and they hit hard.. I'd have the flu symptoms for five or six days.. just start feeling better when it was time for the next injection.. my neuro, and she was a fantastic neurologist, said to give it time, and work with it, that they should go away in a few months.. Didn't happen... I did managed to figure out how to get them down to the normal 24 to 36 hours though.. but continued to take the Avonex for 4 years...I was also on an Lexapro, Baclofen, Provigil, Ditropan & Xanax (Only for stressful situations). .. Once I lost my job, I could see no reason to stay on the Ditropan, when there was a bathroom right around the corner, so I

stopped that.. didn't think that it was necessary to take the Baclofen on a daily basis because I didn't need it every day.. so I stopped that unless needed, and the Lexapro I stopped as well, I think I just forgot to take that... lolI stopped seeing my neurologist at the same time I stopped taking the Avonex.. He wouldn't add Copaxone to the Avonex to take up the slack where I knew the Avonex wasn't working anymore, and all that good stuff..Well, when I called his office the morning after my son was killed to ask for a refill on the Xanax, explaining why.. the receptionist talked to the doc right away.. She came back and told me that he would call in the Xanax for me, but that he would NOT call in any other prescriptions for me from that point on, because I hadn't seen him in over 2 years.. So I had to make an appointment and go see him... The new MRI shows that I have new lesions bilaterally and so it was quite

apparent that I needed to be taking something, and he broke down and gave me the script for Copaxone.. I wouldn't take any of his other suggestions. . He didn't suggest LDN or BVT.. he wanted Novantrone or on of the other interferons. .So here I am.. my life finally settled down.. well maybe it didn't, but at least I managed to find the group again, and am back to stir things up from time to time...Hope that helps you get to know me a little better... Some people think I'm nuts because of the way I handle having MS.. but the truth is.. I can either laugh at it.. or sit down and cry.. I think I'd rather laugh at it...|)onnawebpageshttp://donnaisalway s.home.comcast. net - old pages about me, & birdshttp://mybuddymyfri end.home. comcast.net

- memorial page to my sonAkiba Michels wrote:> > Wow! Allow me to introduce myself then since your last> post was the month before I was diagnosed...> *ahem*> My name is Akiba. I am 52, married to Rob, 41, Mother> to Robbin, 9.> I live in West-by-Gawds- Virginia, for no particular> reason. Knowing us, that will probably change soon, my> hubby and I seem to have an annual migration, and> we've been in this wonderful home for almost a year. I> don't want to move, but our lease will be up next> month and he's (the landlord)going to want to put us> on month-to-month and I don't like the insecurity of> that. He told us at the beginning that he puts> everyone on that after the first year, so I don't> think we'll be an exception.> We have chickens and rabbits and 3 cats, 2 guinea hens> and 1 guinea pig. No partridges. No pear trees,>

either.> I was diagnosed on April Fool's day, 2004. I found out> I was pregnant at 42 on...April Fool's day, 1996. One> really good, and the other? Also good as it brought me> to this group.> I do not take any of the C.R.A.B drugs, but manage my> MS with supplements, LDN and BVT.> *phew* I guess that's it for now...can you post a bit> of an intro for those of us that post-date your last> entry?> Blessings> Akiba__________________________________________________

[Guest guest]

Donna is an awesome woman, I also cannot imagine coping with the loss of a child...

Challis, it is SO good to see you back! Just delete the rest, you've got the best...as they say the best is yet to come!!! And now that you're back, it can!

(can you tell you've been missed?)

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com

-- Re: Rejoining after a long absence.........

{{{{{{{{Donna}}}}}}}} I am so sorry you lost your son. How incredibly painful this must be for you.

HUGS,

Challis

Sharon Marsden <wobbletowalk> wrote:

I'm so sorry to hear about your son. My brother lost his son some years back and I know how hard that was on him and the boy's siblings. I am really, truly sad for you. hugs))))))Sharon

If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford<!--[endif]-->

Re: Rejoining after a long absence.........

Sure Can AkibaI am 48 years old, way-more-than- significant- other to , 56. I had two sons until May 30th of this year, when my oldest, or better known to all as "Bud", was killed in a head on collison. He would have been 32 in October. My youngest Earl will be 25 on February 18th.I live just north of that Manson-Nixon line here in Penciltucky, just southeast of Pittsburgh. So you and I are neighbors of sorts. and I will have been together for 7 years on February 1st, and it still seems like yesterday.. Guess that's a good thing. I've never actually know a man like before. He takes such very good care of me.. cooks, cleans, does laundry AND goes to work 40 plus hours a week.. And he still finds time to give me all the love and attention that I need. LOLI'm seven years now, in the area where we live, three in this home, 4 two blocks down the street. This is the little coal mining "patch" town where grew up. It's quiet... 'cept for the quad next door when I'm still trying to sleep.. LOL. and I have 3, no 4 other children, sort of... We have 3 parrots and 1 boxer. You can see our parrots at an old very outdated webpage that I created here: http://donnaisalway s.home.comcast. net/ Though our little green goober has taken to plucking and no longer has any chest feathers, and very few shoulder feathers.. He got to be breeding age, and turned hormonal.. or possibly the move to a new home along with adding the boxer to the family... not sure what exactly, or what combination of events, caused him to start plucking.. but he's still doing it though we try hard to "ignore" it.. it's what you're supposed to do, otherwise they figure they have permission to keep doing it.. We're also not allowed to clip his flight feathers because that also tells him it's okay for him to pluck his own feathers... Oh but he is still the little chatterbox.. .and quiet funny.. He and Roxie have taken to trying to visit with the dog.. Joe flies out.. Roxie just walks out of the bird room..We don't have any partridges either, but we do have a pear tree, and we cut down the apple tree to get this house into the ONLY spot they could put it in.. Some kind of ordinances about being so many feet off property lines and away from the road.. and then we got this wonderful main electric line of some sort running across the property that you can't build anything under according the electric company standards... and oh.. well they'll move it off our property.. but we'd have to pay for it... and get permission to move it on the neighbors properties as well.... and pay for that too... Guess that's why would like to move to Alaska... LOL.. and I showed him the pictures of the grizzly bear paw print AND the wolf print.... told him NO WAY JOSE... his little pea shooter won't handle something like that.. LOL.. AND he doesn't hunt anymore.. he said we could still move there... but he'd get a BIGGER GUN.. He seems to think there's a town or village or something up there where they will pipe in cable to us.. LOL...Okay, now for the rest of the stuff...I was diagnosed in August of 2000. I was pretty sure that I had it a few years before that, when a friend of mine, who does have the MonSter, and I discussed symptoms that I'd had over the years.. He suspected it long before I even brought up the subject.. go figure...I started on Avonex in September of 2000, and immediately starting telling everyone how great it was, and how if this was all there was to it.. sticking myself with a needle once a week.. it would be a piece of cake... In October the side-effects HIT and they hit hard.. I'd have the flu symptoms for five or six days.. just start feeling better when it was time for the next injection.. my neuro, and she was a fantastic neurologist, said to give it time, and work with it, that they should go away in a few months.. Didn't happen... I did managed to figure out how to get them down to the normal 24 to 36 hours though.. but continued to take the Avonex for 4 years...I was also on an Lexapro, Baclofen, Provigil, Ditropan & Xanax (Only for stressful situations). .. Once I lost my job, I could see no reason to stay on the Ditropan, when there was a bathroom right around the corner, so I stopped that.. didn't think that it was necessary to take the Baclofen on a daily basis because I didn't need it every day.. so I stopped that unless needed, and the Lexapro I stopped as well, I think I just forgot to take that... lolI stopped seeing my neurologist at the same time I stopped taking the Avonex.. He wouldn't add Copaxone to the Avonex to take up the slack where I knew the Avonex wasn't working anymore, and all that good stuff..Well, when I called his office the morning after my son was killed to ask for a refill on the Xanax, explaining why.. the receptionist talked to the doc right away.. She came back and told me that he would call in the Xanax for me, but that he would NOT call in any other prescriptions for me from that point on, because I hadn't seen him in over 2 years.. So I had to make an appointment and go see him... The new MRI shows that I have new lesions bilaterally and so it was quite apparent that I needed to be taking something, and he broke down and gave me the script for Copaxone.. I wouldn't take any of his other suggestions. . He didn't suggest LDN or BVT.. he wanted Novantrone or on of the other interferons. .So here I am.. my life finally settled down.. well maybe it didn't, but at least I managed to find the group again, and am back to stir things up from time to time...Hope that helps you get to know me a little better... Some people think I'm nuts because of the way I handle having MS.. but the truth is.. I can either laugh at it.. or sit down and cry.. I think I'd rather laugh at it...|)onnawebpageshttp://donnaisalway s.home.comcast. net - old pages about me, & birdshttp://mybuddymyfri end.home. comcast.net - memorial page to my sonAkiba Michels wrote:> > Wow! Allow me to introduce myself then since your last> post was the month before I was diagnosed...> *ahem*> My name is Akiba. I am 52, married to Rob, 41, Mother> to Robbin, 9.> I live in West-by-Gawds- Virginia, for no particular> reason. Knowing us, that will probably change soon, my> hubby and I seem to have an annual migration, and> we've been in this wonderful home for almost a year. I> don't want to move, but our lease will be up next> month and he's (the landlord)going to want to put us> on month-to-month and I don't like the insecurity of> that. He told us at the beginning that he puts> everyone on that after the first year, so I don't> think we'll be an exception.> We have chickens and rabbits and 3 cats, 2 guinea hens> and 1 guinea pig. No partridges. No pear trees,> either.> I was diagnosed on April Fool's day, 2004. I found out> I was pregnant at 42 on...April Fool's day, 1996. One> really good, and the other? Also good as it brought me> to this group.> I do not take any of the C.R.A.B drugs, but manage my> MS with supplements, LDN and BVT.> *phew* I guess that's it for now...can you post a bit> of an intro for those of us that post-date your last> entry?> Blessings> Akiba__________________________________________________