Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 I was using the capsules, which made me feel soooooo good! The tea doesn't seem to have the same effect on me. Ali At 09:05 a.m. 13/12/2002 -0500, you wrote: >Are you using Pau d'Arco tea or a capsule? > >Mic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Hi Ali, I know this has been difficult for you. I know when we took to the specialist we certainly saw babies with way worse deformities than his and for a brief moment thought that we shouldn't be there. I even went through the same thing as you in briefly wishing the deformity was worse so there would be no question about whether or not to treat. Of course I am glad he is not too bad actually and would not really want him to be worse. We went planning to treat him unless the specialist absolutely felt it was not needed. As an aside note, my son's ped (family doc actually) thought that I was the one who needed to see a doctor (actually said that to my wife who was not really on board with pursuing treatment in the beginning) and not (he thought I was nuts and that had no headshape issues). You may not even see other babies at your son's apointment since I'm sure there are not a lot of referrals for this in Atlantic Canada. I would encourage you again to go to the appointment for your own peace of mind. Tell Dr. Walling your concerns with your son's headshape and that you would like to treat him if it will help improve his headshape. He will let you know what he thinks. My wife doesn't know him but is familiar with him and says she has heard that he is very nice. The others who have used him spoke highly of him. Don't worry about what he thinks of you going. He is a doctor and you are hiring his services in seeing your son. He is working for you. I know it may not seem like that in Canada since you don't have to pay anything to see him. If you do not go you will always wonder. Even if you do feel dumb about going (probably several of us here have) you will feel better after the appointment. It is also very cold here in northern Maine, down to -55 with wind chill. They cancelled all schools last night. Good luck with your appointment. All the best, Mark > Sitting here looking at Connor debating on going to the neuro today and making an ass of myself... ugh--- is it awful I wish he was more severe so I wouldn't have so many doubts in my mind? > > If anyone here has personally seen Dr. Simon Walling.. now is the time to tell me he won't laugh in my face. > > I guess I haven't gotten a lot of support in the side of he needs to be seen, so I am still on the fence a lot. > > If this all goes the way I want it to.. then we have to move on to the battle with the insurance company, which I got an email from yestereday... part of it said " for this type of expense, and estimate should be submitted. we would then review the contract and mail a response out regarding the coverage through the plan. " Ummm-- Yeah ok, I will just wait until hes 6 to have him banded... > > > Nobody needs to reply to this.. I'm just freaked out and I need to say it out loud.. lol > > Ali & Connor-- stressed out and freezing at -46! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 A while back I posted that a friend had ordered the "Living with Hepatitis C - A Survivor's Guide" from Amazon for me. It came in today's mail and I am going to start reading it ASAP! Praise God for providing! Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 A while back I posted that a friend had ordered the "Living with Hepatitis C - A Survivor's Guide" from Amazon for me. It came in today's mail and I am going to start reading it ASAP! Praise God for providing! Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Let me know how it is ok? I haven't ever read anything like that, if it is good, I will have to go out and get a copy! Di <godsowndi@...> wrote: A while back I posted that a friend had ordered the "Living with Hepatitis C - A Survivor's Guide" from Amazon for me. It came in today's mail and I am going to start reading it ASAP! Praise God for providing! Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Let me know how it is ok? I haven't ever read anything like that, if it is good, I will have to go out and get a copy! Di <godsowndi@...> wrote: A while back I posted that a friend had ordered the "Living with Hepatitis C - A Survivor's Guide" from Amazon for me. It came in today's mail and I am going to start reading it ASAP! Praise God for providing! Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 If you have Hep, You need a copy... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Bought it today, will wait for it to get here!Pat McBride <pmcbride1@...> wrote: If you have Hep, You need a copy... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Start your day with - make it your home page Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34 for Mobile Take with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 I have trouble concentrating well enough to reply to email lately. I cant begin to think of reading. Today was a very foggy day.. dJen <diegowench@...> wrote: Bought it today, will wait for it to get here!Pat McBride <pmcbride1@...> wrote: If you have Hep, You need a copy... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Start your day with - make it your home page Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34 for MobileTake with you! Check email on your mobile phone. dannella __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 I have trouble concentrating well enough to reply to email lately. I cant begin to think of reading. Today was a very foggy day.. dJen <diegowench@...> wrote: Bought it today, will wait for it to get here!Pat McBride <pmcbride1@...> wrote: If you have Hep, You need a copy... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Start your day with - make it your home page Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34 for MobileTake with you! Check email on your mobile phone. dannella __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 When I first got my copy I never sat down and tried to read from cover to back. I leafed though and where ever I landed I read..Ya know like a reference book..Kathy B..PS I was in a major fog too at time Boo -- Re: Ali I have trouble concentrating well enough to reply to email lately. I cant begin to think of reading. Today was a very foggy day.. dJen <diegowench@...> wrote: Bought it today, will wait for it to get here!Pat McBride <pmcbride1@...> wrote: If you have Hep, You need a copy... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 When I first got my copy I never sat down and tried to read from cover to back. I leafed though and where ever I landed I read..Ya know like a reference book..Kathy B..PS I was in a major fog too at time Boo -- Re: Ali I have trouble concentrating well enough to reply to email lately. I cant begin to think of reading. Today was a very foggy day.. dJen <diegowench@...> wrote: Bought it today, will wait for it to get here!Pat McBride <pmcbride1@...> wrote: If you have Hep, You need a copy... Re: Intro I got phone numbers for the CDC and several liver institutes. I will be calling all of them tomorrow to see if they can help me to find competent care in this area. Once I find out where I can go I will be calling the Medicaid office to find out about signing up for rides. As I said I am NOT going to let this thing walk on me. Love,Di I'm not where I want to be,but I'm well on my way!godsowndi@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Hello Ali,      Welcome to the group. My name is . I live in Virginia and was diagnosed (dx'd) with JRA with adult persistence in 1999 when I was 22. My current meds are Remicade, Ibuprofen, Folic Acid and Methotrexate for my RA. I also take Flexerill for a pinched nerve and Skelaxin for injuries sustained in a car accident. I have always tested negative for the rheumatoid factor and ANA. My Sed rate (aka ESR) was very high during my path to diagnosis, which is why 12 doctors couldn't dx me. My CRP was also high. I didn't show any signs visible inflammation until a week before I was dx'd. Prior to my RA symptoms developing, I had a bout of uvitis so my initial dx by my 1st rheumy was Reactive Arthritis/sero-negative inflammatory arthritis. Bloodwork every 4 weeks for methotrexate is standard only for the 1st six months or so, then it is usually every 3-6 months. I get my blood drawn every quarter. Take care, Steph in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Ali: I don't know if this was addressed to me or Toni, but... I am still working... I can't quit. I have both a wonderful partner, both on the job and off, named Rod, who is very supportive, and a great employer who is awesome. I work one week as a medic, one week as a firefighter and one week as a park ranger, although I might have to give that up... If I am too ill to do that, I work in the dispatch center. If you ever want to talk about paramedicine or anything else, give me a shout. That goes for everyone else, too. If you want to chat, about anything or nothing at all, need to vent, or just need someone to listen, you are all free to email me or find me on messenger at medic_dodge. -- Dodge A skeptic is a person who, when he sees the handwriting on the wall, claims it's a forgery. Read my blog at: http://jumpthis.wordpress.com ---- Ali on <ali3787@...> wrote: ============= Hey there. I am a former paramedic too. Are you former because of the RA? I fear I won't be able to go back to work, I think I would be more of a risk than a help and I definitely don't have the strength or dexterity to lift, carry or do any of our specialized skills. My wrists hurt too bad and so little strength that tubing a pt would be near impossible and I am pretty sure advancing a catheter would prove difficult too. I am having a hard time with the fact that I was a care provider for so long in such an awesome ems system and now I have to let others take care of me. I am not a good pt. Compliant with treatment but I have a really hard time taking it easy on myself. I miss my job, partners, and helping others. I truly loved what I did, even the frequent fliers. I hope this finds your medic hearts well. Love, Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 It was to you and Toni. Just a comfort to have other paramedics out there. We had to move away from the company I worked for my entire career and I miss it so much. But I know I am physically not able to do it now. Just missing it. Ali --- Dodge <medicdodge@...> wrote: > Ali: > > I don't know if this was addressed to me or Toni, > but... > > I am still working... I can't quit. I have both a > wonderful partner, both on the job and off, named > Rod, who is very supportive, and a great employer > who is awesome. I work one week as a medic, one > week as a firefighter and one week as a park ranger, > although I might have to give that up... If I am > too ill to do that, I work in the dispatch center. > > If you ever want to talk about paramedicine or > anything else, give me a shout. That goes for > everyone else, too. If you want to chat, about > anything or nothing at all, need to vent, or just > need someone to listen, you are all free to email me > or find me on messenger at medic_dodge. > > -- > Dodge > > A skeptic is a person who, when he sees the > handwriting on the wall, > claims it's a forgery. > > Read my blog at: > http://jumpthis.wordpress.com > > ---- Ali on <ali3787@...> wrote: > > ============= > Hey there. I am a former paramedic too. Are you > former because of the RA? I fear I won't be able to > go back to work, I think I would be more of a risk > than a help and I definitely don't have the strength > or dexterity to lift, carry or do any of our > specialized skills. My wrists hurt too bad and so > little strength that tubing a pt would be near > impossible and I am pretty sure advancing a catheter > would prove difficult too. I am having a hard time > with the fact that I was a care provider for so long > in such an awesome ems system and now I have to let > others take care of me. I am not a good pt. > Compliant with treatment but I have a really hard > time > taking it easy on myself. I miss my job, partners, > and helping others. I truly loved what I did, even > the frequent fliers. I hope this finds your medic > hearts well. > > Love, > Ali > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Ali, To answer your question. In a way my RA did make me leave medicine completely. But we are a former military family being a paramedic was awsome. I went to nursing school but chose being a medic over being a nurse. When we move here to Texas the pay was soo low I went to working in hospitals and clinics. It was the only way I could get half decent pay. I had no desire to be a firefighter...even though as a female in my community I was seriously enticed. I fit the whole bill for the affirmative hiring policy...which I will not explain any more...but I think you can figure that one out. It was reaching the point where I was commuting almost 100 miles per day...working 12 hr shifts in ICU as a tech and monitor tech. Also working in the cath lab and was so exhausted at the end of the day all I could do was sleep the next day before going back. so I changed careers and went high tech. I lasted about 3 yrs before I finally figured out what was wrong and it was just " getting old " that was bothering me. I have lost a lot of the fine motor skills that made me an excellent at my job. At first I was upset about the change....but it was really a blessing. I got to spend all my daughters middle and high school time with them. They are now both off and college and we are still very close. So the timing for me could not have been better. I am still working full-time...but so far its basically temp jobs..and I run my own financial planning/analyst business which I do very well at. Toni ______________________________________________________________________ _Re: Ali _ ( /message/117334;_ylc=X3oDMTJyZmhvbjllBF\ 9TAzk3MzU5NzE1BGdycElkAzEwMTQ3OARncnBzcElkAzE3MDUwNjE0OTgEbXNnSWQ DMTE3MzM0BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyMTk0MDkwNzk-) Posted by: " Dodge " _medicdodge@... _ (mailto:medicdodge@...?Subject= Re:%20Ali) _medic_dodge _ (medic_dodge) Thu Aug 21, 2008 5:39 pm (PDT) Ali: I don't know if this was addressed to me or Toni, but... I am still working... I can't quit. I have both a wonderful partner, both on the job and off, named Rod, who is very supportive, and a great employer who is awesome. I work one week as a medic, one week as a firefighter and one week as a park ranger, although I might have to give that up... If I am too ill to do that, I work in the dispatch center. If you ever want to talk about paramedicine or anything else, give me a shout. That goes for everyone else, too. If you want to chat, about anything or nothing at all, need to vent, or just need someone to listen, you are all free to email me or find me on messenger at medic_dodge. -- Dodge A skeptic is a person who, when he sees the handwriting on the wall, claims it's a forgery. Read my blog at: _http://jumpthis.http://jumhtt_ (http://jumpthis.wordpress.com/) ---- Ali on <_ali3787@..._ (mailto:ali3787@...) > wrote: ============= Hey there. I am a former paramedic too. Are you former because of the RA? I fear I won't be able to go back to work, I think I would be more of a risk than a help and I definitely don't have the strength or dexterity to lift, carry or do any of our specialized skills. My wrists hurt too bad and so little strength that tubing a pt would be near impossible and I am pretty sure advancing a catheter would prove difficult too. I am having a hard time with the fact that I was a care provider for so long in such an awesome ems system and now I have to let others take care of me. I am not a good pt. Compliant with treatment but I have a really hard time taking it easy on myself. I miss my job, partners, and helping others. I truly loved what I did, even the frequent fliers. I hope this finds your medic hearts well. Love, Ali **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Ali, You responded to Carol and wow it soundslike my symptoms. This past year I have a bad armpit smell under my right armpit and not my left. I could not understand why only one armpit and why I smell so bad now when I never did before. I have cut out the dairy but I have not started the diet yet because I just came across this all not even a whole week ago. I am cutting out all gluten next. Then sugar and so forth. I also fibromyalgia and constantly have the pain where you described between the shoulder blades, too. It is amazing how many people have similar problems. I am encouraged this diet will help me as it has helped so many others. > I know there is a problem, because apart from the discomfort - that gets worse as the day wears on and settles a bit overnight, which suggests something to do with my digestion, my left armpit is often smelly when I awake, whilst my right one isn't, and never has been. > > > > Regards, Ali. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Hi 'Fibrofightingmom' - sorry I don't know your name.... As Hippocrates said - all disease begins in the gut. Once the gut is damaged, it can no longer absorb nutrition properly and the body inevitably suffers. It only needs a shortage of one element and all the others can be thrown out of kilter. When you have gut damage and are eating foods that keep that cycle going, then it doean't matter how much nutrition you consume, it can't get through. That's why this has to be a two edged approach with the removal of the damaging foods and the introduction of the beneficial ones. Some people will inherit a poor nutritional status from their parents, some will acquire it during their life - and lifestyle choices, and some will have the misfortune to end up with both, but whatever the cause, it still comes back to a lack of proper nutrition, as Bee is constantly pointing out. Although I have been on the diet for almost 11 months it has been a slow progress for me because of my severe gut damage, but gradually it is improving. I was given a lot of antibiotics as a child, and that coupled with the high-carb Western diet has trashed my digestion big time. Interestingly, my husband has FM. Three years ago when I first dumped gluten, he decided to join me as an experiment (he hates being left out, bless him!). It took a few forays back into the gluten before he finally acceded that he was better off without it. The biggest changes have been the disappearance of his awful brain fog and depression. He does go up and down a bit with the FM discomfort, but he is not on Bee's diet and is not benefiting from the regime - poor man feels deprived enough as it is, and I can't persuade him to give up his gluten-free cookies or his porridge (oats, although usually ok, are sometimes processed through the same machinery as wheat, so can be contaminated from it), So he still has some sugar. He's managed to give it up in his tea, so that is a start. It is possible that the fatigue he gets sometimes could be a low-level detox thing - I do sneak a bit of coconut oil into his diet here and there.... You are doing the right thing. I have tried all sorts of diets and treatments over the years, but I know I am going the right way with this one, the healing signs I am seeing are proof enough of that. I hope you are able to get into the diet ok and wish you all the best on your journey. Ali. > > Ali, > You responded to Carol and wow it soundslike my symptoms. This past year I have a bad armpit smell under my right armpit and not my left. I could not understand why only one armpit and why I smell so bad now when I never did before. I have cut out the dairy but I have not started the diet yet because I just came across this all not even a whole week ago. I am cutting out all gluten next. Then sugar and so forth. > I also fibromyalgia and constantly have the pain where you described between the shoulder blades, too. It is amazing how many people have similar problems. I am encouraged this diet will help me as it has helped so many others. > > > I know there is a problem, because apart from the discomfort - that gets worse as the day wears on and settles a bit overnight, which suggests something to do with my digestion, my left armpit is often smelly when I awake, whilst my right one isn't, and never has been. > > > > > > > > Regards, Ali. > > > Quote Link to comment Share on other sites More sharing options...
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