Re: Vulva Reconstruction - Spare a Thought

[Guest guest]

Hi Kathleen,

My thoughts are with the woman, I hope she'll recover!

I'm not sure what I could do outside of my own world, but I do know that I will

not let my future children in the dark when it comes to their bodies and their

sexuality. I was as a child, and I think that has something to do with my

ignorance which eventually brought on fear.

Chantal

__________________________________________________________

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[Guest guest]

I will keep this poor suffering woman in my prayers.

It is sad when some physicians get so clinical that they forget we are human

beings with feelings.

Please let this woman know that our hearts are with her and that she is

welcome in our group if she needs the additional online support.

Bunny /| |\

. .

( ! )

Reply-To: VulvarDisorders

To: <VulvarDisorders >

Subject: Vulva Reconstruction - Spare a Thought

Date: Wed, 22 Aug 2001 08:00:53 +0800

I am asking of the girls on this line to spare a thought for one of our GAIN

members who had a reconstruction on her vulva yesterday.

Apparently it is nothing to worry about the fact that it is " pre cancer " and

that she has had bits cut out of her vulva every year for 7 years. That she

has to have it all patched back up again but as she is told " it is only pre

cancer " like as if it doesnt matter.

She suffers so badly and finds very very little support. In fact she says

she feels like she it treated like a leper in her own words.

I do worry that I speak in these terms but where and when is somebody going

to address vulval issues UPFRONT. It seems we can talk and talk and talk yet

no one seems to hear. Or is it just me.

I am somewhat concerned about the next generation of women if we dont bring

this out into the open.

I am willing to speak with ANYONE professionally who is interested in trying

to help.

I am writing off the the World Health Organisation to see what can be done.

Kathleen Mazzella

GAIN

Gynaecological Awareness Information Network

www.gynsupport.com

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[Guest guest]

I am right behind you! How can anyone " minimize " even

the thought of cancer!!! I can't believe the

stupidity, insensitivity, and insecurity in this world

that doctors seem to carry with them every day. If

there is anything we/I can do, just holler.

~Mindy~

I will definitely be thinking of this women

__________________________________________________

[Guest guest]

Please give my warmest thoughts to this woman. I cannot imagine the

horror she is going through and to have no support through all of

this is horrible. I am thinking of her and wishing her the very

best.

> I am asking of the girls on this line to spare a thought for one of

our GAIN

> members who had a reconstruction on her vulva yesterday.

>

> Apparently it is nothing to worry about the fact that it is " pre

cancer " and

> that she has had bits cut out of her vulva every year for 7 years.

That she

> has to have it all patched back up again but as she is told " it is

only pre

> cancer " like as if it doesnt matter.

>

> She suffers so badly and finds very very little support. In fact

she says

> she feels like she it treated like a leper in her own words.

>

> I do worry that I speak in these terms but where and when is

somebody going

> to address vulval issues UPFRONT. It seems we can talk and talk and

talk yet

> no one seems to hear. Or is it just me.

>

> I am somewhat concerned about the next generation of women if we

dont bring

> this out into the open.

>

> I am willing to speak with ANYONE professionally who is interested

in trying

> to help.

>

> I am writing off the the World Health Organisation to see what can

be done.

>

> Kathleen Mazzella

> GAIN

> Gynaecological Awareness Information Network

> www.gynsupport.com

[Guest guest]

Hi Kathleen

I really do admire your persistance in fighting this ignorance that society

has towards vulval issues.

I also want to send my best wishes to the lady who has had surgery not long

ago. She is in my thoughts.

If I can be of any help please contact me. I have been busy lately(I got

married and I am pregnant and constantly going to different appointments),

and it might take a few days to get back but I will give my best.

We must get a word out. That is an imperative!!!!

Anja

Vulva Reconstruction - Spare a Thought

> I am asking of the girls on this line to spare a thought for one of our

GAIN

> members who had a reconstruction on her vulva yesterday.

>

> Apparently it is nothing to worry about the fact that it is " pre cancer "

and

> that she has had bits cut out of her vulva every year for 7 years. That

she

> has to have it all patched back up again but as she is told " it is only

pre

> cancer " like as if it doesnt matter.

>

> She suffers so badly and finds very very little support. In fact she says

> she feels like she it treated like a leper in her own words.

>

> I do worry that I speak in these terms but where and when is somebody

going

> to address vulval issues UPFRONT. It seems we can talk and talk and talk

yet

> no one seems to hear. Or is it just me.

>

> I am somewhat concerned about the next generation of women if we dont

bring

> this out into the open.

>

> I am willing to speak with ANYONE professionally who is interested in

trying

> to help.

>

> I am writing off the the World Health Organisation to see what can be

done.

>

> Kathleen Mazzella

> GAIN

> Gynaecological Awareness Information Network

> www.gynsupport.com

>

>

>

>

>

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