Re: Stress (sister w/Pick's; mother with AD)

[Guest guest]

Donna,

Those of us with parents with autopsy-confirmed Alzheimer's Disease have a 5%

greater risk than the normal population in developing AD ourselves.

If there are other first-order relatives of your mother's or first-order

relatives of you and your sister with dementia, I'd suggest your family seek the

services of a genetics counselor. A higher percentage of Pick's Disease is

inherited or familial than is seen in (regular onset) Alzheimer's Disease.

Pick's Disease is a type of FTD (frontotemporal dementia). You can view a

presentation on genetics and FTD here:

http://www.theaftd.org/wp-content/uploads/2011/06/Genetics-for-Boston.pdf

I highly encourage you to make arrangements to have your mother's brain donated

for medical research. That's the only way to get a confirmed diagnosis -- have

the brain autopsied upon death. I help people throughout the US make these

arrangements, regardless of the diagnosis. Email me privately if this is of

interest.

Similarly, I encourage you to discuss brain donation with your sister's family.

The absolute knowledge of her final diagnosis will be of benefit to you as well

(and any children she may have).

Good luck,

Robin

>

> I have not posted much but now am beginning to see some things I may need some

guidance on. My sister has Picks and is now in her 2nd year of dx, but probably

had it for years before.

> My mom also is losing her decade long bartle with alzhiemers. Does anyone know

if there is any connection or is this a fluke?

>

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> Sent from my NOOK

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