Re: Need help with questions/comments for dr appt. re. first time saliva test result

November 10, 2006

I will need your lab ranges as well as results to help you with these.

Thanks!

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November 10, 2006

I'm so sorry you've had such an uphill battle. Seems you have fought it with a

good attitude though and that's HUGE in my circle! Hats off to you!!!

I'm pretty new at this, but I was wondering...after watching those extreme

makeover shows on TV, why couldn't they take fat from one area of your body and

inject it into your foot to replace the fat pad that your surgeon removed???

Would that be a possibility? Just ignore this if it's nonsense, okay? You have

limited energy and shouldn't have to answer dumb questions like this!

Also, if you could post the ranges for each of your saliva test results, that

would be very helpful. Each lab uses different ranges. You'd think they would

all be universal, but I guess not.

The Canary Club uses a four times a day cortisol test...and Diangostechs uses

one that even more intense than that. Your higher heart rate could be related!

I'm not sure and I know the gurus that be will come to your aid soon. It's just

a thought.

If anything, you're going to get good, solid information here to use to feel

much, much better. Take heart in this. It's a huge discovery you've made in

coming here!

I'm praying for you and thank you for sharing your story. Good luck with those

triplets and buying the house!

coke2038 wrote: Hello,

I know that it's asking a lot. If you can find it in your heart(s) to

perhaps give me some input, I will be very appreciative. I've been

trying to keep up, but due to chronic pain and fatigue, it's not been

as good as it could be. THANK YOU to all of you who have recently

taken the time to post information from Dr Cheney, and also the

Laymen's Guide to CFS. I have printed these out and think that they

will be very helpful.

I am a nearly 55 woman who has been in chronic pain for most of my

life. I had pain in both feet in late elementary school and jr. high.

Then, it was something that I learned to deal with and just wore the

most comfortable shoes that I could find. I might should mention that

I have had a rapid heart rate since we learned to take it in 6th grade.

When I got pregnant at 23, I noticed that my feet were causing a

change in my everyday life. Long story short, I've had surgery on my

feet twice for Morton's neuromas (non-malignant tumors on the nerves

between the toes. Unfortunately, by the time the pain was identified,

in desperation and ignorance (way back then), I let a podiatrist do

surgery to remove them. The end result was that he did a butcher job

on me, it seems...no proof other than my life; he removed the fat pad

in an attempt to remove all of the tumors which had grown roots. When

I had a second surgery in Houston by a qualified dr. (why couldn't I

have learned about him to begin with??), I found out the extent of the

damage...no fat pad, and extreme damage to the nerves in both feet.

So, now I am on strong pain meds that take the edge off enough that I

can walk around the house and do light housework, if I'm not too

exhausted. Must use a wheelchair outside the home unless it is only a

few steps and will not require standing any length of time).

I also have very high cholesterol, triglicerides, etc. even though

I've read tons of books and understand diet and think that our diet is

pretty darn good.

I still have the rapid heart rate (used to be resting rate of 120, now

because of meds, if I go off of it, it is higher). I did have a heart

catheritization this spring because the dr. saw something unusual on

some tests that he did, but it turns out that it must have been the

calcium deposits! (if he'd asked me for any info on that, i would have

been glad to share! sigh)

I also have fibrocystic breasts (always have) and so many calcium

deposits that the last surgeon that I've seen told me that there isn't

a dr. in Houston (or Texas, or anywhere...I forget the exact wording)

who wouldn't give anything for a piece of that tissue (HOORAY!). I'm

waiting to hear what he thinks of the comparison of my last two

films...

Well, those are the highlights. I'm leaving out stuff but I know this

is way too long already. Please email me individually if this is too

much info.

My first and only saliva tests from ZRT read as:

Estriadiol 2.1

Progerterone 58 Low

Ratio Pg/E2 28 Low

Testosterone 14 Low

DHEA 8.3 (HOORAY, i think!)

Cortisol Morning 2.2 Low

Cortisol Night 0.6

A week or two prior to this testing, I was taking .625mg. oral

Biestrogen, compounded, and well as 75mg oral Progesterone, compounded.

I had some Thyroid left from about 8-12 mo. ago, and tried that for a

few days, but my blood pressure and heart rate went nuts, so I quit

that about 2 weeks prior to taking this test.

My daughter (God willing) is being blessed with triplets (as far as

one can tell this early...dr. says 3 definite heartbeats) and she is

going to need my help as she will probably require bedrest. We are

trying to buy a house, so there is that fun project ahead of us also.

So, perhaps you can see why I am begging for your mercy and help! I

am just so very tired!

Thank you for reading this.

November 10, 2006

Thanks for the words of encouragement! I will post the ranges in a

minute. Yeah, it seems that I really missed a total disaster

because the dr that i was going to did try to implant fat from

another part of the body and it was a huge disaster...poor person.

I was just too hesitant...i've been a guienna pig too many times,

and i put the decision off too long, so they found a willing subject

and ruined her life more instead.

You do have to be your own best advocate in this medical world,

though...and i'm just so tired of trying to find all the angles and

how it all works together. My mind isn't working all that great and

well, i'm just TIRED!!! As if the pain isn't enough! lol. WEll,

there is always someone else much worse off, so it is hard to

complain too loudly. I just need to be the best that i can be to

get all that needs to be done over the next year and a half (figure

that will be the most demanding with the triplets!...I'm going to

assume that they are all going to be born in good health due to the

grace of God!).

Thanks,

1952@...

Hello,

>

> I know that it's asking a lot. If you can find it in your heart

(s) to

> perhaps give me some input, I will be very appreciative. I've

been

> trying to keep up, but due to chronic pain and fatigue, it's not

been

> as good as it could be. THANK YOU to all of you who have recently

> taken the time to post information from Dr Cheney, and also

the

> Laymen's Guide to CFS. I have printed these out and think that

they

> will be very helpful.

>

> I am a nearly 55 woman who has been in chronic pain for most of my

> life. I had pain in both feet in late elementary school and jr.

high.

> Then, it was something that I learned to deal with and just wore

the

> most comfortable shoes that I could find. I might should mention

that

> I have had a rapid heart rate since we learned to take it in 6th

grade.

>

> When I got pregnant at 23, I noticed that my feet were causing a

> change in my everyday life. Long story short, I've had surgery on

my

> feet twice for Morton's neuromas (non-malignant tumors on the

nerves

> between the toes. Unfortunately, by the time the pain was

identified,

> in desperation and ignorance (way back then), I let a podiatrist

do

> surgery to remove them. The end result was that he did a butcher

job

> on me, it seems...no proof other than my life; he removed the fat

pad

> in an attempt to remove all of the tumors which had grown roots.

When

> I had a second surgery in Houston by a qualified dr. (why couldn't

I

> have learned about him to begin with??), I found out the extent of

the

> damage...no fat pad, and extreme damage to the nerves in both feet.

>

> So, now I am on strong pain meds that take the edge off enough

that I

> can walk around the house and do light housework, if I'm not too

> exhausted. Must use a wheelchair outside the home unless it is

only a

> few steps and will not require standing any length of time).

>

> I also have very high cholesterol, triglicerides, etc. even though

> I've read tons of books and understand diet and think that our

diet is

> pretty darn good.

>

> I still have the rapid heart rate (used to be resting rate of 120,

now

> because of meds, if I go off of it, it is higher). I did have a

heart

> catheritization this spring because the dr. saw something unusual

on

> some tests that he did, but it turns out that it must have been

the

> calcium deposits! (if he'd asked me for any info on that, i would

have

> been glad to share! sigh)

>

> I also have fibrocystic breasts (always have) and so many calcium

> deposits that the last surgeon that I've seen told me that there

isn't

> a dr. in Houston (or Texas, or anywhere...I forget the exact

wording)

> who wouldn't give anything for a piece of that tissue (HOORAY!).

I'm

> waiting to hear what he thinks of the comparison of my last two

> films...

>

> Well, those are the highlights. I'm leaving out stuff but I know

this

> is way too long already. Please email me individually if this is

too

> much info.

>

> My first and only saliva tests from ZRT read as:

>

> Estriadiol 2.1

>

> Progerterone 58 Low

>

> Ratio Pg/E2 28 Low

>

> Testosterone 14 Low

>

> DHEA 8.3 (HOORAY, i think!)

>

> Cortisol Morning 2.2 Low

>

> Cortisol Night 0.6

>

> A week or two prior to this testing, I was taking .625mg. oral

> Biestrogen, compounded, and well as 75mg oral Progesterone,

compounded.

>

> I had some Thyroid left from about 8-12 mo. ago, and tried that

for a

> few days, but my blood pressure and heart rate went nuts, so I

quit

> that about 2 weeks prior to taking this test.

>

> My daughter (God willing) is being blessed with triplets (as far

as

> one can tell this early...dr. says 3 definite heartbeats) and she

is

> going to need my help as she will probably require bedrest. We

are

> trying to buy a house, so there is that fun project ahead of us

also.

> So, perhaps you can see why I am begging for your mercy and help!

I

> am just so very tired!

>

> Thank you for reading this.

>

November 10, 2006

First, THANK YOU to all who read my epistle! sorry again that it's so

long. I did forget to mention that I had a total hysterectomy, leaving

the cervix in place on Sept. 7 this year, due to tumors about the size

of a baseball on each ovary.

Sorry, I've never picked up that the diff. labs use diff. ranges...they

just want to make sure our lives are interesting, right?

I've inserted the ranges next to the test results further down in your

night time reading ...zzzzzzzzzz, right? This has got to get old for

you who are gracious enough to keep answering us " newbies " . And again,

I thank you from the bottom of my heart!

Hello,

>

> I know that it's asking a lot. If you can find it in your heart(s) to

> perhaps give me some input, I will be very appreciative. I've been

> trying to keep up, but due to chronic pain and fatigue, it's not been

> as good as it could be. THANK YOU to all of you who have recently

> taken the time to post information from Dr Cheney, and also the

> Laymen's Guide to CFS. I have printed these out and think that they

> will be very helpful.

>

> I am a nearly 55 woman who has been in chronic pain for most of my

> life. I had pain in both feet in late elementary school and jr. high.

> Then, it was something that I learned to deal with and just wore the

> most comfortable shoes that I could find. I might should mention that

> I have had a rapid heart rate since we learned to take it in 6th

grade.

>

> When I got pregnant at 23, I noticed that my feet were causing a

> change in my everyday life. Long story short, I've had surgery on my

> feet twice for Morton's neuromas (non-malignant tumors on the nerves

> between the toes. Unfortunately, by the time the pain was identified,

> in desperation and ignorance (way back then), I let a podiatrist do

> surgery to remove them. The end result was that he did a butcher job

> on me, it seems...no proof other than my life; he removed the fat pad

> in an attempt to remove all of the tumors which had grown roots. When

> I had a second surgery in Houston by a qualified dr. (why couldn't I

> have learned about him to begin with??), I found out the extent of the

> damage...no fat pad, and extreme damage to the nerves in both feet.

>

> So, now I am on strong pain meds that take the edge off enough that I

> can walk around the house and do light housework, if I'm not too

> exhausted. Must use a wheelchair outside the home unless it is only a

> few steps and will not require standing any length of time).

>

> I also have very high cholesterol, triglicerides, etc. even though

> I've read tons of books and understand diet and think that our diet is

> pretty darn good.

>

> I still have the rapid heart rate (used to be resting rate of 120, now

> because of meds, if I go off of it, it is higher). I did have a heart

> catheritization this spring because the dr. saw something unusual on

> some tests that he did, but it turns out that it must have been the

> calcium deposits! (if he'd asked me for any info on that, i would have

> been glad to share! sigh)

>

> I also have fibrocystic breasts (always have) and so many calcium

> deposits that the last surgeon that I've seen told me that there isn't

> a dr. in Houston (or Texas, or anywhere...I forget the exact wording)

> who wouldn't give anything for a piece of that tissue (HOORAY!). I'm

> waiting to hear what he thinks of the comparison of my last two

> films...

>

> Well, those are the highlights. I'm leaving out stuff but I know this

> is way too long already. Please email me individually if this is too

> much info.

>

> My first and only saliva tests from ZRT read as:

>

> Estriadiol 2.1 1.5-10(optimal1.5-3)Estrogen

replacement

>

> Progerterone 58 Low 100-1000 Oral micronized progesterone

>

> Ratio Pg/E2 28 Low 50-200(optical 200-1000progesterone

therapy)

>

> Testosterone 14 Low 5-100 Topical Estiol, Bi-Triest

therapy(5-20 oral)

>

> DHEA 8.3 (YIPEE?) 3-10

>

> Cortisol Morning 2.2 Low 3-8

>

> Cortisol Night 0.6 0.5-1.5

>

> There is some writing that is entirely too small for me to make out,

so I hope to get that info when i see the dr. While he is unique in

that he seems to be very smart, nobody knows everything, and I feel like

a fish out of water, even tho I thought I was well informed...lots of

books, etc. ha! just confused!!!

>

> A week or two prior to this testing, I was taking .625mg. oral

> Biestrogen, compounded, and well as 75mg oral Progesterone,

compounded.

>

> I had some Thyroid left from about 8-12 mo. ago, and tried that for a

> few days, but my blood pressure and heart rate went nuts, so I quit

> that about 2 weeks prior to taking this test.

>

> My daughter (God willing) is being blessed with triplets (as far as

> one can tell this early...dr. says 3 definite heartbeats) and she is

> going to need my help as she will probably require bedrest. We are

> trying to buy a house, so there is that fun project ahead of us also.

> So, perhaps you can see why I am begging for your mercy and help! I

> am just so very tired!

>

> Thank you for reading this.

>

> THANKS!!!!

lisa1952@...

>

November 10, 2006

I hear you about not being able to think. I have problems talking...can't

string my words together very well...you know, to make a coherent sentence. I

have to look away from people while I'm talking to keep the thought in my head

in order to get it out of my mouth! Good thing most of my work is done by

telephone!

I know you're tired and I know you're having trouble thinking. The good news is

that you are here and these people will walk you through this one step at a

time. We can start with the basics, okay? Rest up and breathe a sigh of relief

because you've got help now.

coke2038 wrote: Thanks for the words of encouragement! I

will post the ranges in a