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Re: practicalities of getting important promises kept (formerly Introductions)

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Sometimes I think this country is too obsessed with optimism. Sometimes

things are just not going good, and people have a right to complain!

Sometimes complaining is just venting, it isn't meant to solve anything.

-- Re: practicalities of getting important

promises kept (formerly " Introductions " )

----- Original Message -----

From: Cristina Lara

Exactly. There is no difference. I may be going off on a tangent from the

original topic here, but I personally have always had trouble understanding

this whole Political Correctness thing. In fact, I don't even know why they

call it *political* correctness--what does it have to do with politics? Lol

**Well, I think the root word for 'politics' comes from something to do with

the people? Yeah, I guess it is a fitting term. I could see, in the

beginning, when they made some changes, to reword terrible-sounding things

to more polite-sounding ones, but it got out of hand.

Just like blacks and other minorities here in the US have no trouble with

the phrase " people of color " but can't abide the phrase " colored people " .

(I am considered a " person of color " myself--Hispanic--so I can assure you I

mean no disrespect to anyone.) But I really see no difference in the two

phrases; it's like saying " blue skies " or " skies of blue " . While " skies of

blue " may sound more poetic, it doesn't change the meaning at all.

**True.

The same goes for the terms " glass half full " or " half empty " as metaphors

for optimism/pessimism. To me, there is half a glass of _______(water, wine

whatever); if it is an 8-ounce glass, it contains 4 ounces of______. It

connotes neither optimism nor pessimism to me, it just is what it is. I

have been told that makes me a " realist " as opposed to an " optimist " or

pessimist " . I don't actually relate to any of those labels, I'm just a

person! (uh, a " person with autism " ...)

**Whenever someone calls me a pessimist, I tell them I'm actually a realist.

As a German I can't abide the American hyper optimism anyway.

D.

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If a pessimist looks at a glass and says:

" Half empty, "

and an optimist looks at the same glass and says

" Half full, "

is there any name at all for

the one who looks at the glass and says:

" Let me refill that "

?

Kate Gladstone

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> " To me, there's no difference between 'autistic people' and 'people with

> autism'. "

>

> Exactly. There is no difference.

The difficulty, IMO, comes when NTs want to say " person with autism "

to show that autism is separate form one's personhood, as though you

could take the autism away and still have the same person. It also

makes out in that context that autism is an inferior state to NT-ness.

If you can find it, I think it may be on autistics.org, read Jim

Sinclair's " Don't Mourn For Us " . Xe talks about NT parents wanting to

gte rid of the autistic person so a nice normal person can move in

behind their face.

Ruth

--

" Environmental problems are difficult to solve because Earth is a

" public good " .  Even though we would all be better off if everyone

reduced their environmental impact, it is not in anyone's individual

interest to do so.  This leads to the famous " tragedy of the commons " ,

in which public resources are overexploited and everyone suffers. "

New Scientist opinion article

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----- Original Message -----

From: Autiste Ruth

The difficulty, IMO, comes when NTs want to say " person with autism "

to show that autism is separate form one's personhood, as though you

could take the autism away and still have the same person. It also

makes out in that context that autism is an inferior state to NT-ness.

**That's just semantics, isn't it? Person with curly hair, curly-haired

person. Six of one, half a dozen of the other.

If you can find it, I think it may be on autistics.org, read Jim

Sinclair's " Don't Mourn For Us " . Xe talks about NT parents wanting to

gte rid of the autistic person so a nice normal person can move in

behind their face.

**Well, they're misguided, of course. Autism is as much a permanent part of

a person, as skin color, eye color, hair type or anything else that can't be

changed. Yes, I'm aware of colored contact lenses and perms, but the

original feature is still present.

D.

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> ----- Original Message -----

> From: Autiste Ruth

>

> The difficulty, IMO, comes when NTs want to say " person with autism "

> to show that autism is separate form one's personhood, as though you

> could take the autism away and still have the same person. It also

> makes out in that context that autism is an inferior state to NT-ness.

>

> **That's just semantics, isn't it? Person with curly hair, curly-haired

> person. Six of one, half a dozen of the other.

To me, maybe not to you, saying " person with " implies you could have

the same person without. Interesting too that the politically correct

people who insist that disabilities have to be withs rather than

" inherent " parts have no objection to the useages in contexts you

mention like curly-haired person. That makes it disability/illness

specific, and that makes it out as undesirable by logical extention.

It is all semantics, but unfortuntately semantics affect how people

view things (and other people).

Back to the vagaries of language and culture; hopefully not back to

the headache-inducing discussions!

Ruth

--

" Environmental problems are difficult to solve because Earth is a

" public good " .  Even though we would all be better off if everyone

reduced their environmental impact, it is not in anyone's individual

interest to do so.  This leads to the famous " tragedy of the commons " ,

in which public resources are overexploited and everyone suffers. "

New Scientist opinion article

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Oh, I SO hate it when people use 'politically correct " language!>.<

I AM autistic, I AM blind, I AM disabled. The " with " makes it sound like I'm

dateing a disabiltiy!

Gail

-- Re: practicalities of getting important

promises kept (formerly " Introductions " )

----- Original Message -----

From: Autiste Ruth

The difficulty, IMO, comes when NTs want to say " person with autism "

to show that autism is separate form one's personhood, as though you

could take the autism away and still have the same person. It also

makes out in that context that autism is an inferior state to NT-ness.

**That's just semantics, isn't it? Person with curly hair, curly-haired

person. Six of one, half a dozen of the other.

If you can find it, I think it may be on autistics.org, read Jim

Sinclair's " Don't Mourn For Us " . Xe talks about NT parents wanting to

gte rid of the autistic person so a nice normal person can move in

behind their face.

**Well, they're misguided, of course. Autism is as much a permanent part of

a person, as skin color, eye color, hair type or anything else that can't be

changed. Yes, I'm aware of colored contact lenses and perms, but the

original feature is still present.

D.

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> To me, maybe not to you, saying " person with " implies you could have

> the same person without.

That's pretty much the logic. The groups that tend to support

adjective or noun-adjective descriptors, e.g., Deaf, Blind,

Autistic, are those who identify a culture.

" People first " is a way of saying that the condition does not define

the person, which is the point of " people first " descriptors. So,

to use Gail's analogy, it is like dating the condition rather than

the condition being part of one's identity.

- s0

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> That's pretty much the logic. The groups that tend to support

> adjective or noun-adjective descriptors, e.g., Deaf, Blind,

> Autistic, are those who identify a culture.

>

I'm not so sure about autistics idenitifying with a culture - those

who do are IME a small minority of the autistic population. Since

they're the ones those of us who are online are naturally dialoguing

with we can get the impression " autistic culture " is more inclusive

and embracing of the autistic population than it really is. Lots of

autistics aren't online and of those that are too many fear autistic

culture because they've benn told we're all aspie supremacists -

people who believe autistics are superior to NTs.

Ruth

--

" Wanting to be someone else is a waste of the person you are. "

Kurt Cobain

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I have to say that my husband would not be the same person if he were

sighted. There are so many little bits to his personality and the way he

interacts with the world that I think would not have developed the way they

did if he had been able to see better. If you took the blindness away now,

he'd still be the same (and oh how I wish I could), but if you had taken it

away as a baby, he would not have become the same adult.

And blind people hate " visually impaired " and " people with blindness " and

all the other PC crap, too. Why don't these people try asking US what WE

want, instead of making all these decisions for us?

Elayne

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>

> And blind people hate " visually impaired " and " people with blindness " and

> all the other PC crap, too.

I wonder if people who lose their sight or hearing later in life feel

the same way?

At a recent disability conference in Manchester there was a wonderful

presentation by a man who became blind at about the age of 12 or 14,

due to a car accident I think. He talked about dusting, that he

enjoys it because it is his only way of experiencing the souvenirs and

nic-nacs he's collected. I guess as sighted people we don't think

about that, how memories are triggered dozens of times a day by things

our eyes happen to pass over, and how without sight those things cease

to exist unless we're touching them or thinking about them.

I've noticed a division in the disability community between those with

obvious physical impairments who want people to see the person beyond

the disfigurement/wheechair/etc and those of us with invisible

disabilities who have to fight to be recognised and understood as

genuinely disabled.

I like to recall a trip I took on a busy Manchester metro tram once, a

few years ago. There was a woman, about 50 - 60 yo sitting quietly

and calmly, seemingly able to ignore all the bustle round her. I sat

next to her, and gradually noticed that the little dog she had with

her had a working dog harness on, and that it was a hearing dog for

the deaf, and some time later she communcated to me where she needed

to get off and could I tell her if we were there yet - she was deaf

and had been for some time, not just the deafness of older age. And

her experience of that tram was so superior to mine :-)

Ruth

--

" Wanting to be someone else is a waste of the person you are. "

Kurt Cobain

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----- Original Message -----

From: Autiste Ruth

I've noticed a division in the disability community between those with

obvious physical impairments who want people to see the person beyond

the disfigurement/wheechair/etc and those of us with invisible

disabilities who have to fight to be recognised and understood as

genuinely disabled.

***I find this frustrating, too. An obvious, visible disablity is always

there for others to see, so people will make allowances and accomodate the

person, but invisible disabilities don't get the same compassion. We always

have to keep reminding people.

I like to recall a trip I took on a busy Manchester metro tram once, a

few years ago. There was a woman, about 50 - 60 yo sitting quietly

and calmly, seemingly able to ignore all the bustle round her. I sat

next to her, and gradually noticed that the little dog she had with

her had a working dog harness on, and that it was a hearing dog for

the deaf, and some time later she communcated to me where she needed

to get off and could I tell her if we were there yet - she was deaf

and had been for some time, not just the deafness of older age. And

her experience of that tram was so superior to mine :-)

***On one hand it would be wonderful to not hear a lot of the noise

pollution that goes on in the world today, but a deaf person also cannot

enjoy music, so I'd rather keep my hearing and put up with the other

annoying sounds as best as possible.

D.

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That's outrageous! That amounts to a diagnosis by a non-professional!

> She replied that my feelings of disappointment (and my " failure to

> understand why our decision was necessary to benefit our group as a whole " )

> " need to be understood as symptoms of your being a person with Asperger's,

> because a non-Asperger person would have made sense of the reasons for our

> decision and would have shared our feeling that it was necessary to override

> the vice-president's recommendation " that I should speak. (The

> vice-president -- who does not have Asperger's, as far as I know -- was

> nevertheless disappointed, too. She let me know that she felt very

> embarrassed, to the point that she would have to stop communicating with me

> because the group had made her feel bad about this whole incident and she

> couldn't take the painful feelings it was leaving her with. She didn't blame

> me -- but she, too, hadn't expected to have to see this kind of treatment

> given to anyone.)

>

>

> Kate Gladstone

>

>

>

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Wow! I thought the top priority for an organization of helping professionals

would be, duh, helping the clients! Silly me!

>

> >

> >

> >

> > > made sense of the reasons for our decision and would

> > > have shared our feeling that it was necessary to

> > > override the vice-president's recommendation " that

> > > I should speak.

> >

> > Of note, she did not really explain why one would be expected to

> > share their interest in intentional deception.

> >

>

> Actually, she did -- a little. (My previous message summarized a longer

> interchange.)

> I didn't, though, find the explanation convincing -- which annoyed her.

> As she explained it (if you can call it an " explanation " ) --

>

> /1/ " Helping professionals " do a better job of helping when they

> are happy.

> /2/ Therefore, top priorities for an organization of such

> professionals need to include making them happy and keeping them happy, so

> that their work will not be affected and they will not wish to leave the

> profession.

>

> >

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> ***I find this frustrating, too. An obvious, visible disablity is always

> there for others to see, so people will make allowances and accomodate the

> person, but invisible disabilities don't get the same compassion. We always

> have to keep reminding people.

Yes, but it does give us the advantage that many of us can " pass " if

we need to. If you're in a wheelchair, or worse have speech

impediments or other communication issues people are likely to treat

you as disabled first. I certainly don't wish for a more visible

disability in terms of ASD, and for my pain issues I find walking with

a stick helps in a lot of ways, visability being one. Have to say I

was surprised by the taxi driver who assumed I was blind because I was

wearing blue colourimeter specs and walking with a stick though, lol.

>

> ***On one hand it would be wonderful to not hear a lot of the noise

> pollution that goes on in the world today, but a deaf person also cannot

> enjoy music, so I'd rather keep my hearing and put up with the other

> annoying sounds as best as possible.

>

I'd miss music from a practical point of view - my only evening social

activity is my local choral group. From the pov of listening to music

I could manage without, I think. I have a small pile of classical CDs

but I've listened to maybe three in the eight months I've lived alone.

I like natural background noise, but could do wihout machinery noise

like strimmers and mowers. I'm not sure how I;d weigh deafness

against my current hypersensitive hearing. It would certainly have

some major advantages - like a letting agents sign has just gone up on

the house next door and if I get a neighbour who listens to radio or

music with a beat chances are I'll have to move, and I'll go through a

lot of distress in the process. But I just don't know what life as a

deaf person is like.

Ruth

--

" Wanting to be someone else is a waste of the person you are. "

Kurt Cobain

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>

> On 20 July 2010 14:02, Elayne Glantzberg

> <solinox@...

> <mailto:solinox%40solinoxenterprises.com>> wrote:

> >

> > And blind people hate " visually impaired " and " people with

> blindness " and

> > all the other PC crap, too.

>

> I wonder if people who lose their sight or hearing later in life feel

> the same way?

>

From my cousin, I know she'd rather be called blind rather than

visually impaired. She started losing her eye-sight slowly from the age

of 13, but didn't lose the majority of functioning until around 21. Now

at 30, she's nearly completely blind. I feel bad for her in one respect.

She still had enough eye-sight when she had her kids, to know how they

looked. While they haven't changed that much in the past 6 yrs, she will

never be able to see them as they are.

What really was terrible was when she was in Iowa, the commission for

the blind there drug their heels because they didn't understand her

condition. Because of that, then the mix up with paperwork coming back

to TX, she's went without training with a seeing eye dog or Braille

lessons for a large part of her adult life. She'll be training for her

dog next month, but up until now, she's had to rely on her 10 yr old son

as her guide.

Melody

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> at 30, she's nearly completely blind. I feel bad for her in one respect.

> She still had enough eye-sight when she had her kids, to know how they

> looked. While they haven't changed that much in the past 6 yrs, she will

> never be able to see them as they are.

>

That makes you think people blind from birth might have the advantage

- because they've never seen they're less likely to be worrying that

they don't know what their kids look like. Their experience of the

child is through their other senses, as is all the rest of their

experience.

Face blindness causes probs for people with their own kids sometimes,

one reason I'm glad I've never spawned :-) Imagine having perfect

sight and still not being able to reliably pick out your own children

in a crowd.

Ruth

--

" Wanting to be someone else is a waste of the person you are. "

Kurt Cobain

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Having a bunch of blondes helps. J So does having blind kids. And triplets.

Lots of distinguishing features on my kids. J

Elayne

From: Autiste Ruth

Face blindness causes probs for people with their own kids sometimes,

one reason I'm glad I've never spawned :-) Imagine having perfect

sight and still not being able to reliably pick out your own children

in a crowd.

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Re:

That's outrageous! That amounts to a diagnosis by a non-professional!

>

Well, she already had known -- for weeks -- that I had Asperger's (the

person recommending me had -- with my permission -- told the committee

that), so she certainly wasn't diagnosing it.

>

Kate Gladstone

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Re:

> Yes, but it does give us the advantage that many of us can " pass " if

> we need to.

>

And the disadvantage that a lot of people will despise or downgrade you when

they suddenly find that this apparently " normal " person (that they've been

having nice conversations with, or whatever) is -- GASP! HORRORS! " -- " not

normal at all " but has been " insidiously " managing to pass ...

Kate Gladstone

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Re:

> Wow! I thought the top priority for an organization of helping

> professionals would be, duh, helping the clients! Silly me!

>

Well, " helping professionals " can literally mean that the professionals are

getting the help.

Kate Gladstone

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> Re:

> > Yes, but it does give us the advantage that many of us can " pass " if

> > we need to.

> >

>

> And the disadvantage that a lot of people will despise or downgrade you when

> they suddenly find that this apparently " normal " person (that they've been

> having nice conversations with, or whatever) is -- GASP! HORRORS! " -- " not

> normal at all " but has been " insidiously " managing to pass ...

Some, occasionally. Not my usual experience though. Most people make

some kind of misguided remark about how well I cope seeing as I have

this terrible disability and all, I don't think I've ever had worse

than that to my face.

It was funny when I was a nun - most people have no idea an autistic

might be capable of such a thing, and often that was quite clear when

I came out to them, lol. It's fun to challenge stereotypes.

Ruth

--

" Wanting to be someone else is a waste of the person you are. "

Kurt Cobain

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Re:

> > And the disadvantage that a lot of people will despise or downgrade you

> when

> > they suddenly find that this apparently " normal " person (that they've

> been

> > having nice conversations with, or whatever) is -- GASP! HORRORS! " --

> " not

> > normal at all " but has been " insidiously " managing to pass ...

>

> Some, occasionally. Not my usual experience though. Most people make

> some kind of misguided remark about how well I cope seeing as I have

> this terrible disability and all, I don't think I've ever had worse

> than that to my face.

>

Have you ever mentioned your autism to the parents of an autistic child,

halfway through a conversation? Especially if the parents belonged to

" Autism Speaks " or ASA? Try it -- my husband and I have done so. Instantly,

in the other person's eyes you will no longer be *really* ever an adult,

even if you are older and more productively employed than the other person.

I suspect that, if my husband and I were parents too -- and said so -- the

" autism organization parents " would REALLY freak. Has anyone here (who has

kids) tried that?

Kate Gladstone

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Most parents totally disregard anything I have to say, even tho I'm also a

parent. " You don't understand. This is what we want for our kids. You raise

your kids the way you want, and I'll raise mine the way I want. "

Melody

On Thu, Jul 22, 2010 at 4:41 PM, Kate Gladstone <handwritingrepair@...

> wrote:

>

>

> Re:

>

>

> > > And the disadvantage that a lot of people will despise or downgrade you

> > when

> > > they suddenly find that this apparently " normal " person (that they've

> > been

> > > having nice conversations with, or whatever) is -- GASP! HORRORS! " --

> > " not

> > > normal at all " but has been " insidiously " managing to pass ...

> >

> > Some, occasionally. Not my usual experience though. Most people make

> > some kind of misguided remark about how well I cope seeing as I have

> > this terrible disability and all, I don't think I've ever had worse

> > than that to my face.

> >

>

> Have you ever mentioned your autism to the parents of an autistic child,

> halfway through a conversation? Especially if the parents belonged to

> " Autism Speaks " or ASA? Try it -- my husband and I have done so. Instantly,

> in the other person's eyes you will no longer be *really* ever an adult,

> even if you are older and more productively employed than the other person.

>

> I suspect that, if my husband and I were parents too -- and said so -- the

> " autism organization parents " would REALLY freak. Has anyone here (who has

> kids) tried that?

>

>

> Kate Gladstone

>

>

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