Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Rhonda wrote: >My primary diagnosis is.... drum roll.... > >Asperger's Disorder (the test says Disorder but I say Syndrome). Congratulations! It's great you were able to see (and be seen by) someone really knowledgeable. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 My understanding from my education policy work is that there is a *lower *percentage of minority children with ASDs and a higher percentage with ADHD. I'm pretty sure the disproportionality issue is focused on the Specific Learning Disability classification, which is more relevant to ADHD and which AS doesn't fall under at all. If you have other statistics though, I'd love to see them. Where do your research? It sounds interesting. Ari > > I must disagree as an educator and researcher. I find > most individuals, parents, and K12 educators offering > diagnoses are quick to suggest that a student has AS > or ADHD, when often the symptoms are from something > more severe. Paradoxically, a much higher number of > minority students are diagnosed with both AS and ADHD > (a fact cited in the IDEA 2004 text). Again, it is as > if a problem child, particularly males, are lumped in > with AS or ADHD. > > Visit Your Group > <http://groups.yahoo.com/group/AutisticSpectrumTreeHouse;_ylc=X3oDMTJkcTRzaGdlBF\ 9TAzk3MzU5NzE0BGdycElkAzM5ODQwMDgEZ3Jwc3BJZAMxNzA1MDYyMjE1BHNlYwNmdHIEc2xrA2hwZg\ RzdGltZQMxMTY1ODg5ODQ3>| > Yahoo! Groups Terms of Use <http://docs.yahoo.com/info/terms/>| Unsubscribe > <AutisticSpectrumTreeHouse-unsubscribe ?subject=> > Recent Activity > > - 2 > New Members<http://groups.yahoo.com/group/AutisticSpectrumTreeHouse/members;_ylc=X3o\ DMTJmbGRzMTRyBF9TAzk3MzU5NzE0BGdycElkAzM5ODQwMDgEZ3Jwc3BJZAMxNzA1MDYyMjE1BHNlYwN\ 2dGwEc2xrA3ZtYnJzBHN0aW1lAzExNjU4ODk4NDc-> > > Visit Your Group > <http://groups.yahoo.com/group/AutisticSpectrumTreeHouse;_ylc=X3oDMTJlZ3E1NHBtBF\ 9TAzk3MzU5NzE0BGdycElkAzM5ODQwMDgEZ3Jwc3BJZAMxNzA1MDYyMjE1BHNlYwN2dGwEc2xrA3ZnaH\ AEc3RpbWUDMTE2NTg4OTg0Nw--> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 On Mon, 11 Dec 2006 18:10:15 -0800 (PST), Wyatt wrote: --- rhndroberts wrote: > 1. I believe that if someone self-diagnoses and > thinks they are > right, they probably are. I know I was... --------------------------------------------------- I must disagree as an educator and researcher. I find most individuals, parents, and K12 educators offering diagnoses are quick to suggest that a student has AS or ADHD, when often the symptoms are from something more severe. --------------------------------------------------- If parents and K-12 educators are making, suggesting, or influencing a " diagnosis " then it isn't a self-diagnosis; the operative word being " self " . June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 ------------------------------------------------------------- Maybe, but middle-aged adults such as myself who have been diagnosed with varying and ever-changing " psych disorders " over the past 30 years, which never fit, HAD to initially self-diagnose. The professionals I was dealing with had no training in Autistic Spectrum Disorders, as they were not considered a part of adult psychiatry. Also, I have been doing extensive research into why I was so different from everyone else since I was 8 years old. And, yes I mean " research " , since at age 8, I was reading medical dictionaries, medical encyclopedias, watching every medical show on television at the time and (my favorite) obsessing over the medical oddities chapter of the Guiness Book of World Records. ------------------------------------------------------------- I remember doing sort of the same thing in high-school only with psychiatric texts and then I (mis)diagnosed myself as being schizophrenic. But, it is understandable since this was ~1973 and I don't remember ever reading anything about autism other than the stereotypical descriptions of it. I am also a middle-aged self-diagnoser. I don't completely trust my own judgements but I also wouldn't completely trust paid professionals either. I am glad you (and Rhonda) got your official confirmation, but as I live in a poverty situation (and even if I had money I would spend it on other things) it is a moot point with me since I can't afford to see anyone so I have little choice (a behaviorist would say I have no choice) but to remain un-diagnosed. June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Janis wrote: >Maybe, but middle-aged adults such as myself who have been diagnosed >with varying and ever-changing " psych disorders " over the past 30 >years, which never fit, HAD to initially self-diagnose. The >professionals I was dealing with had no training in Autistic >Spectrum Disorders, as they were not considered a part of adult >psychiatry. [snip] >I dropped the entire subject for the next 10 years. Then, in 2005, >my 7-year-old niece was diagnosed with AS. I began a new intense >round of research. By the end of the year, I managed to obtain an >evaluation by a professional with experience with diagnosing adults >and children. Yes, that history is very significant. Many undiagnosed autistic adults still live in places where the new professional interest in autism has not yet bestowed on the area anyone knowledgeable about the existence and appearance of autism in anyone past the age of childhood. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Janis wrote: > Only an ADHD clinic was available in my location, though. They > charged me $5,000 and diagnosed me as ADHD, as they did everyone. > They had NO expertise with either children or adults with Autism. Outrageous! I got my Dx in '99, and it took 5 hours of testing, over 3 visits, and only cost me about $120.00. (They used a " sliding scale " to determine how much I would pay, and I was making about 20 G a yr at the time.) And they were correct, I'm AS, allright! Clay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Rhonda wrote: > My primary diagnosis is.... drum roll.... > Asperger's Disorder (the test says Disorder but I say Syndrome). I always knew you were one of us. Congrats on the Dx. Yeah, " syndrome " is better, I don't like " disorder " Not a " disease " either, and certainly not to be cured. Clay > Rhonda, AS Yup. ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 > Yeah, " syndrome " is better, I don't like " disorder " Yes, but sometimes a little bit of disorder is good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 --- June wrote: > I remember doing sort of the same thing in > high-school only with psychiatric texts and then I > (mis)diagnosed myself as being schizophrenic. I think this goes to my point earlier. > (and even if I had money I would spend it on other > things) it is a moot point with me since I can't > afford to see anyone so I have little choice (a > behaviorist would say I have no choice) but to > remain un-diagnosed. Most research universities offer screenings at various times. Often, the person is a Ph.D candidate, but the evaluation is always supervised. I know Texas Tech, for example, has an entire autism research program. Minnesota is exanding ours (I'm not in psychology, but I am working with the new training for faculty members), and at least three UC campuses have screening. If you contact your state university system, regardless of state, they should be able to direct you to when such exams are offered. Understand, however, that this is generally part of a larger study, such as Stanford's Autism Genetics Project. In this case, I know Stanford will screen for free in return for DNA samples. Washington does the same thing, and adds family DNA samples to the list. Personally, I think there is choice -- but it takes a lot of effort and sacrifice to make some choices. I am not arguing anyone can do anything, but what you do each day is a choice. Free will doesn't mean limitless possibilities. - CSW __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Clay wrote: > > Yeah, " syndrome " is better, I don't like " disorder " and Stan responded: >Yes, but sometimes a little bit of disorder is good. as Herrick wrote long ago: Herrick (1591-1674) A sweet disorder in the dress Kindles in clothes a wantonness:- A lawn about the shoulders thrown Into a fine distractión,- An erring lace, which here and there 5 Enthrals the crimson stomacher,- A cuff neglectful, and thereby Ribbands to flow confusedly,- A winning wave, deserving note, In the tempestuous petticoat,- 10 A careless shoe-string, in whose tie I see a wild civility,- Do more bewitch me, than when art Is too precise in every part. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Thank you for writing your experience. I just remembered something. I started reading about mental disorders when I was in 4th grade. I had forgotten all about that. And, I DID self-diagnose, based on a picture I saw in a book. I saw a picture of a woman who was said to be schizophrenic. I thought " I feel like she does... I must be schizophrenic. " In 1969 in 4th grade one did not share this with one's parents, friends, or teachers! My mom would have just said I was a hypochondriac... which I learned yesterday is probably due to extreme proprioceptive " stuff " ... can't think of the name of it, but I told the psychologist that at times I swear I can feel all my internal organs, to which she responded, " Maybe you DO. " Rhonda > > Maybe, but middle-aged adults such as myself who have been diagnosed > with varying and ever-changing " psych disorders " over the past 30 > years, which never fit, HAD to initially self-diagnose. The > professionals I was dealing with had no training in Autistic > Spectrum Disorders, as they were not considered a part of adult > psychiatry. Also, I have been doing extensive research into why I > was so different from everyone else since I was 8 years old. And, > yes I mean " research " , since at age 8, I was reading medical > dictionaries, medical encyclopedias, watching every medical show on > television at the time and (my favorite) obsessing over the medical > oddities chapter of the Guiness Book of World Records. > > I have pursued several different paths of self-diagnosis, with > Autism being only one. However, it was substantially based. In > 1977, I worked with severly Autistic children at a residential > facility in the Santa a Pass. These children were extremely > disabled and I had the keys, but I saw similarities, especially > since they ritually rocked, as I did and still do. Then, in 1996, I read Temple Grandin's and Donna ' books. This time, I > really recognized myself, especially the part about the sensory > overloads. I then tried to obtain an evaluation by a professional. > Only an ADHD clinic was available in my location, though. They > charged me $5,000 and diagnosed me as ADHD, as they did everyone. > They had NO expertise with either children or adults with Autism. > > I dropped the entire subject for the next 10 years. Then, in 2005, > my 7-year-old niece was diagnosed with AS. I began a new intense > round of research. By the end of the year, I managed to obtain an > evaluation by a professional with experience with diagnosing adults > and children. She said that I met the DSM-IV criteria for Autisic > Disorder. So, I had to wait for ASD's to become a " hot " topic in > order to confirm what I had suspected for years. > > > ---Janis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 > Now, is a syndrome like a cyclodrome, except instead of bicycles you... > Oh, wait, never mind. > So... I began to think of " Asperger's Aerodrome " and I got all sidetracked. I remembered I was supposed to be searching for a word in my current work project, so I searched for " aerodrome " ... which has nothing at all to do with the project at hand... Thanks for giving me a laugh! Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 It was 22 Dec 2006, when rhndroberts commented: > > > > Now, is a syndrome like a cyclodrome, except instead of bicycles > you... > > Oh, wait, never mind. > > > > So... I began to think of " Asperger's Aerodrome " and I got all > sidetracked. I remembered I was supposed to be searching for a word in my > current work project, so I searched for " aerodrome " ... which has nothing at > all to do with the project at hand... Thanks for giving me a laugh! Always glad to be of service. Maybe next time, your work project will require aerodrome, and there'll you'll be, all prepared and such. -- <dbsmith at atbbs.dyndns.org> " And that's the news from Lake Wobegon, where all the women are strong, all the men are good-looking, and all the children are above average. " -- Garrison Keilor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 > > Could always compromise and say synorder. > > > > > > > Yeah, " syndrome " is better, I don't like " disorder " > > > > Yes, but sometimes a little bit of disorder is good. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Or even Disdrome > > > > > Could always compromise and say synorder. > > > > > > > > > > > > Yeah, " syndrome " is better, I don't like " disorder " > > > > > > Yes, but sometimes a little bit of disorder is good. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Really, A disorder is a disturbance Police are usually called to. Ky Re: Re: diagnosis > > Could always compromise and say synorder. > > > > > > > Yeah, " syndrome " is better, I don't like " disorder " > > > > Yes, but sometimes a little bit of disorder is good. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Anh anh... sounds too much like schnorter, some air brain would think that you hoover the wrong kind of coke!! There are more of us than the world wants to admit! How about Cyclonic....Lmaobt ky Tangent King Re: Re: diagnosis Or even Disdrome > > > > > Could always compromise and say synorder. > > > > > > > > > > > > Yeah, " syndrome " is better, I don't like " disorder " > > > > > > Yes, but sometimes a little bit of disorder is good. > > > > > > Quote Link to comment Share on other sites More sharing options...
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