Re: New and looking for answers

[Guest guest]

Hi,

Honestly, this sounds more like a psychiatric disturbance to me. I would look

into such things as schizophrenia, schizoid/schizotypal personality disorders,

bipolar disorder, psychotic depression...things like that. There are so many

symptoms that are not present that I would personally doubt it would be LBD,

especially at his age, regardless of familial history.

You only mention that Lyrica has been tried, but did not mention if he was on

other meds...if he is, I would also investigate possible side effects of these.

Best of luck...regardless of the final diagnosis, it's stressful for you!

Lori , M.S.

New and looking for answers

Hi,

I'm new here and am looking for some guidance. My husband hasn't been

diagnosed or even seen regarding this matter as of yet. Here's some

history...he's very young at least in terms of dementia, he's only 35. His

grandfather had alzheimers. He is under a neurologist's care for what they term

restless leg but I think is a small fiber neuropathy...he has burning in his

feet/legs but no voluntary movements and moving them doesn't relieve any

sensations. His toes used to move involuntarily and he used to twitch in his

sleep but gabapentin is helping that. He was on Lyrica for a short time but he

had horrible nightmares if killing himself so they switched him. He's had

constipation problems from childhood but coffee and magnesium seem to keep him

regular. They've diagnosed him with Irritable Bowel Syndrome....dairy seems to

be a trigger.

Here's my concern. When he was in his 20's he had two instances of

hallucinations...he doesn't think they were hallucinations. He believes it was a

real instance but that it was a spirit (not an actual living person). He could

describe the man in detail and said the man shook his leg (it was at night but

he was awake...hadn't gone to sleep yet....he found out afterwards that the

person he described sounded like the previous owner before my husband was even

born). The other instance was when he saw a bottle cap fly off the counter and

noone else was around. Those were the two he's told me about from yrs ago. In

the last year he's told me about a few more that happened now where he can

describe the people. He's also always seen things for many years since his

20's....like a feeling someone there, seeing a motion out if the corner of his

eye etc. He swears someone us there at work...the lights go off and on, etc. He

truly believes in ghosts, spirits and paranormal activity. Anyway, in the last

year he was sleeping and swears he woke up and saw an image of a little boy

(mind u this was at my parents house where my father swears there's a boy ghost

based on old articles). He also saw at our house a guy in a trench coat on the

side if our house when mowing the lawn...again only happened once. He also saw a

while ago a man in khakis and polo shirt hauling a** as my husband puts it

through his bldg at work. He thought at first it was his dad (they own the

business together) but realized it wasnt....I believe he may have initially

tried to say something to him but not sure. When he realized it wasn't his dad

he assumed it was another spirit. About a month or so ago he saw this person

again (same exact thing) and then again just about a week or so ago. This was

the first exp of an image recurring. A few months ago he saw a little boy at

work (doesnt know if ssme boy from before as faces arent Always cleaTheseus says

the boy (spirit to him) was messing with him like paranormal activity....things

were moved and he was the only one there and knows he didn't move them. He said

he thinks his grandfathers spirit is there cause the lights go off and when he

says gramps turn the lights on they go back on....again hd believes paranormal

activity. These episodes are sporadic and more often it's just a feeling of

someone there or shadows or motions he sees out of the corner of his eye. I was

getting concerned, especially of the one that rebutted 3 times and looked up

hallucinations and found all info on LBD. He never hears voices and he said the

" spirits " never try to contact/speak to him. I'm scared this is the start of the

dementia. He does have some autonomic issues....constipation, irritable bowel

syndrome, burning feet/legs that I think are misdiagnosed, sometimes his

fingers/toes are cold and I don't know why (not all the time), his ears get

really red after a shower, his feet would twitch when sleeping, his body shook

really bad once and his hand another time last year while sleeping. He had a

sleep study and all was fine but he had Lyrica in him at the time (and in his

system for about a week) so that could have skewed it and his twitches/shaking

weren't all the time. Dr said his brain MRI looked good last year and his EEG

had very mild bursts of beta that he wasn't concerned about....they were testing

him because of the burning and twitching at night. Does this sound like the very

start of LBD, even at 35?

Thank you in advance for your help.

[Guest guest]

(I'm not an MD or any sort of healthcare professional.)

It's very unusual for LBD to begin with hallucinations. And I've never heard of

anyone in their 30s being diagnosed with LBD. If your husband has dementia and

behavioral problems AS WELL AS the hallucinations, then I think there would be

slightly more reason to be concerned. But with hallucinations only and age 35,

I think it's very unlikely your husband has LBD.

There are other explanations for hallucinations. Has your husband discussed

these with a neurologist or psychiatrist?

>

> Hi,

>

> I'm new here and am looking for some guidance. My husband hasn't been

diagnosed or even seen regarding this matter as of yet. Here's some

history...he's very young at least in terms of dementia, he's only 35. His

grandfather had alzheimers. ... Does this sound like the very start of LBD,

even at 35?

>

> Thank you in advance for your help.

>

[Guest guest]

Thank you. My husband was on Lyrica and then switched to Gabapentin when he had

the bad reaction to Lyrica. No other meds and he's only on the Gabapentin for

burning pain. He hasn't mentioned these images he sees to a dr because he

believes it's paranormal activity, they dont bother him/never communicate, and

are gone in a flash if he blinks or looks away, and while he believes they are

real things he sees he knows/believes they are dead spirits (maybe stuck here

and haven't gone over yet). I wasn't concerned until the one became recurring

(saw the same thing 3 times). Last night I brought him a cookie and he said he

had what was like Deja vu....he knew I was going to do that, he saw it before

like Deja vu. Made me scared he was getting confused. The night before we were

on the couch and he started looking around....said he thought he saw a fly. I

looked it up and found LBD....and figured with his IBS, burning feet,

constipation etc that are autonomic issues. I saw hallucinations as being the

first sign before any cognitive issues showing up.

>

> Hi,

>

> Honestly, this sounds more like a psychiatric disturbance to me. I would look

into such things as schizophrenia, schizoid/schizotypal personality disorders,

bipolar disorder, psychotic depression...things like that. There are so many

symptoms that are not present that I would personally doubt it would be LBD,

especially at his age, regardless of familial history.

>

> You only mention that Lyrica has been tried, but did not mention if he was on

other meds...if he is, I would also investigate possible side effects of these.

>

> Best of luck...regardless of the final diagnosis, it's stressful for you!

>

> Lori , M.S.

>

> New and looking for answers

>

>

>

> Hi,

>

> I'm new here and am looking for some guidance. My husband hasn't been

diagnosed or even seen regarding this matter as of yet. Here's some

history...he's very young at least in terms of dementia, he's only 35. His

grandfather had alzheimers. He is under a neurologist's care for what they term

restless leg but I think is a small fiber neuropathy...he has burning in his

feet/legs but no voluntary movements and moving them doesn't relieve any

sensations. His toes used to move involuntarily and he used to twitch in his

sleep but gabapentin is helping that. He was on Lyrica for a short time but he

had horrible nightmares if killing himself so they switched him. He's had

constipation problems from childhood but coffee and magnesium seem to keep him

regular. They've diagnosed him with Irritable Bowel Syndrome....dairy seems to

be a trigger.

>

> Here's my concern. When he was in his 20's he had two instances of

hallucinations...he doesn't think they were hallucinations. He believes it was a

real instance but that it was a spirit (not an actual living person). He could

describe the man in detail and said the man shook his leg (it was at night but

he was awake...hadn't gone to sleep yet....he found out afterwards that the

person he described sounded like the previous owner before my husband was even

born). The other instance was when he saw a bottle cap fly off the counter and

noone else was around. Those were the two he's told me about from yrs ago. In

the last year he's told me about a few more that happened now where he can

describe the people. He's also always seen things for many years since his

20's....like a feeling someone there, seeing a motion out if the corner of his

eye etc. He swears someone us there at work...the lights go off and on, etc. He

truly believes in ghosts, spirits and paranormal activity. Anyway, in the last

year he was sleeping and swears he woke up and saw an image of a little boy

(mind u this was at my parents house where my father swears there's a boy ghost

based on old articles). He also saw at our house a guy in a trench coat on the

side if our house when mowing the lawn...again only happened once. He also saw a

while ago a man in khakis and polo shirt hauling a** as my husband puts it

through his bldg at work. He thought at first it was his dad (they own the

business together) but realized it wasnt....I believe he may have initially

tried to say something to him but not sure. When he realized it wasn't his dad

he assumed it was another spirit. About a month or so ago he saw this person

again (same exact thing) and then again just about a week or so ago. This was

the first exp of an image recurring. A few months ago he saw a little boy at

work (doesnt know if ssme boy from before as faces arent Always cleaTheseus says

the boy (spirit to him) was messing with him like paranormal activity....things

were moved and he was the only one there and knows he didn't move them. He said

he thinks his grandfathers spirit is there cause the lights go off and when he

says gramps turn the lights on they go back on....again hd believes paranormal

activity. These episodes are sporadic and more often it's just a feeling of

someone there or shadows or motions he sees out of the corner of his eye. I was

getting concerned, especially of the one that rebutted 3 times and looked up

hallucinations and found all info on LBD. He never hears voices and he said the

" spirits " never try to contact/speak to him. I'm scared this is the start of the

dementia. He does have some autonomic issues....constipation, irritable bowel

syndrome, burning feet/legs that I think are misdiagnosed, sometimes his

fingers/toes are cold and I don't know why (not all the time), his ears get

really red after a shower, his feet would twitch when sleeping, his body shook

really bad once and his hand another time last year while sleeping. He had a

sleep study and all was fine but he had Lyrica in him at the time (and in his

system for about a week) so that could have skewed it and his twitches/shaking

weren't all the time. Dr said his brain MRI looked good last year and his EEG

had very mild bursts of beta that he wasn't concerned about....they were testing

him because of the burning and twitching at night. Does this sound like the very

start of LBD, even at 35?

>

> Thank you in advance for your help.

>

>

>

>

>

>

[Guest guest]

Hi -

Firstly, I am so sad for what your going through and although I am not a

psychiatrist so this is no way a medical diagnosis- I wanted to add that :

I agree with the other members of our group that this sounds more like a

psychiatric issue than LBD which in all likelihood can be kept under control

with the right , like atypical anti-psychotics and other drugs !

I'm surprised noone has steered U to a good psychiatrist - the onset of as

schizophrenia has an onset at approximately 30-35 yrs!

Please keep us informed - I bet once u find a good psychiatrist and get the

right Meds along with talk therapy your husband could be stabilized and live a

good life especially since your catching it early on

So- hang in there - and by all means find a good psychotherapist FOR YOURSELF!

You need support too!

Your husband is lucky to have such a thoughtful and a supportive spouse !

Sending strength to you from NYC !

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> Thank you. My husband was on Lyrica and then switched to Gabapentin when he

had the bad reaction to Lyrica. No other meds and he's only on the Gabapentin

for burning pain. He hasn't mentioned these images he sees to a dr because he

believes it's paranormal activity, they dont bother him/never communicate, and

are gone in a flash if he blinks or looks away, and while he believes they are

real things he sees he knows/believes they are dead spirits (maybe stuck here

and haven't gone over yet). I wasn't concerned until the one became recurring

(saw the same thing 3 times). Last night I brought him a cookie and he said he

had what was like Deja vu....he knew I was going to do that, he saw it before

like Deja vu. Made me scared he was getting confused. The night before we were

on the couch and he started looking around....said he thought he saw a fly. I

looked it up and found LBD....and figured with his IBS, burning feet,

constipation etc that are autonomic issues. I saw hallucinations as being the

first sign before any cognitive issues showing up.

>

>

> >

> > Hi,

> >

> > Honestly, this sounds more like a psychiatric disturbance to me. I would

look into such things as schizophrenia, schizoid/schizotypal personality

disorders, bipolar disorder, psychotic depression...things like that. There are

so many symptoms that are not present that I would personally doubt it would be

LBD, especially at his age, regardless of familial history.

> >

> > You only mention that Lyrica has been tried, but did not mention if he was

on other meds...if he is, I would also investigate possible side effects of

these.

> >

> > Best of luck...regardless of the final diagnosis, it's stressful for you!

> >

> > Lori , M.S.

> >

> > New and looking for answers

> >

> >

> >

> > Hi,

> >

> > I'm new here and am looking for some guidance. My husband hasn't been

diagnosed or even seen regarding this matter as of yet. Here's some

history...he's very young at least in terms of dementia, he's only 35. His

grandfather had alzheimers. He is under a neurologist's care for what they term

restless leg but I think is a small fiber neuropathy...he has burning in his

feet/legs but no voluntary movements and moving them doesn't relieve any

sensations. His toes used to move involuntarily and he used to twitch in his

sleep but gabapentin is helping that. He was on Lyrica for a short time but he

had horrible nightmares if killing himself so they switched him. He's had

constipation problems from childhood but coffee and magnesium seem to keep him

regular. They've diagnosed him with Irritable Bowel Syndrome....dairy seems to

be a trigger.

> >

> > Here's my concern. When he was in his 20's he had two instances of

hallucinations...he doesn't think they were hallucinations. He believes it was a

real instance but that it was a spirit (not an actual living person). He could

describe the man in detail and said the man shook his leg (it was at night but

he was awake...hadn't gone to sleep yet....he found out afterwards that the

person he described sounded like the previous owner before my husband was even

born). The other instance was when he saw a bottle cap fly off the counter and

noone else was around. Those were the two he's told me about from yrs ago. In

the last year he's told me about a few more that happened now where he can

describe the people. He's also always seen things for many years since his

20's....like a feeling someone there, seeing a motion out if the corner of his

eye etc. He swears someone us there at work...the lights go off and on, etc. He

truly believes in ghosts, spirits and paranormal activit y. Anyway, in the last

year he was sleeping and swears he woke up and saw an image of a little boy

(mind u this was at my parents house where my father swears there's a boy ghost

based on old articles). He also saw at our house a guy in a trench coat on the

side if our house when mowing the lawn...again only happened once. He also saw a

while ago a man in khakis and polo shirt hauling a** as my husband puts it

through his bldg at work. He thought at first it was his dad (they own the

business together) but realized it wasnt....I believe he may have initially

tried to say something to him but not sure. When he realized it wasn't his dad

he assumed it was another spirit. About a month or so ago he saw this person

again (same exact thing) and then again just about a week or so ago. This was

the first exp of an image recurring. A few months ago he saw a little boy at

work (doesnt know if ssme boy from before as faces arent Always cleaTheseus says

the boy (spirit to him) was mess ing with him like paranormal activity....things

were moved and he was the only one there and knows he didn't move them. He said

he thinks his grandfathers spirit is there cause the lights go off and when he

says gramps turn the lights on they go back on....again hd believes paranormal

activity. These episodes are sporadic and more often it's just a feeling of

someone there or shadows or motions he sees out of the corner of his eye. I was

getting concerned, especially of the one that rebutted 3 times and looked up

hallucinations and found all info on LBD. He never hears voices and he said the

" spirits " never try to contact/speak to him. I'm scared this is the start of the

dementia. He does have some autonomic issues....constipation, irritable bowel

syndrome, burning feet/legs that I think are misdiagnosed, sometimes his

fingers/toes are cold and I don't know why (not all the time), his ears get

really red after a shower, his feet would twitch when sleeping, his body shook

really bad once and his hand another time last year while sleeping. He had a

sleep study and all was fine but he had Lyrica in him at the time (and in his

system for about a week) so that could have skewed it and his twitches/shaking

weren't all the time. Dr said his brain MRI looked good last year and his EEG

had very mild bursts of beta that he wasn't concerned about....they were testing

him because of the burning and twitching at night. Does this sound like the very

start of LBD, even at 35?

> >

> > Thank you in advance for your help.

> >

> >

> >

> >

> >

> >

[Guest guest]

I really appreciate everyones opinions. I dont believe he's showing any dementia

or behavioral signs other than what I pointed out. Not really sure what they

would be. He sometimes withdraws when we are with a group of people but that's

just him I think. It isn't like he doesn't respond, he just gets quiet but he'll

respond if u talk to him. He definitely gets irritable at times but I feel like

he's always been that way (like a woman PMSing -lol). Maybe a little more so

lately but he's also stressed at work. He used to have bouts of insomnia but the

gabapentin helped that. He did have twitches/movement while sleeping (and two

episodes of his body shaking while sleeping-almost like a convulsion) but the

sleep study was normal (again he was on lyrica so that could be why or because

it didn't happen every night) but again that had pretty much stopped with the

gabapentin...only a few twitches/movements of his feet sometimes. Not sure if

these are things u are referring to.

He hasn't seen a dr regarding this or mentioned it to them because he doesn't

feel it's an hallucination but paranormal activity and he knows they are

dead....there's no communication. Just brief flashes of them and then they are

gone when he turns his head or blinks.

The info on the Internet...mayo clinic, webmd, studies, etc noted that

hallucinations could be the first sign and not show any cognitive problems.

> >

> > Hi,

> >

> > I'm new here and am looking for some guidance. My husband hasn't been

diagnosed or even seen regarding this matter as of yet. Here's some

history...he's very young at least in terms of dementia, he's only 35. His

grandfather had alzheimers. ... Does this sound like the very start of LBD,

even at 35?

> >

> > Thank you in advance for your help.

> >

>

[Guest guest]

I also forgot to mention about a year ago he took what his brother told him was

a prescribed sleeping or anxiety pill (another bout if insomnia). He had a bad

reaction, said hid heart raced really bad, thought he was going to have a heart

attack and then he got very very tired. I dont remember which one he said it was

but when my husband looked it up it was for the other reason. I know I read

about sensitivity to meds and wasn't sure if this fit as it was a sleeping or

depression pill.

> > >

> > > Hi,

> > >

> > > Honestly, this sounds more like a psychiatric disturbance to me. I would

look into such things as schizophrenia, schizoid/schizotypal personality

disorders, bipolar disorder, psychotic depression...things like that. There are

so many symptoms that are not present that I would personally doubt it would be

LBD, especially at his age, regardless of familial history.

> > >

> > > You only mention that Lyrica has been tried, but did not mention if he was

on other meds...if he is, I would also investigate possible side effects of

these.

> > >

> > > Best of luck...regardless of the final diagnosis, it's stressful for you!

> > >

> > > Lori , M.S.

> > >

> > > New and looking for answers

> > >

> > >

> > >

> > > Hi,

> > >

> > > I'm new here and am looking for some guidance. My husband hasn't been

diagnosed or even seen regarding this matter as of yet. Here's some

history...he's very young at least in terms of dementia, he's only 35. His

grandfather had alzheimers. He is under a neurologist's care for what they term

restless leg but I think is a small fiber neuropathy...he has burning in his

feet/legs but no voluntary movements and moving them doesn't relieve any

sensations. His toes used to move involuntarily and he used to twitch in his

sleep but gabapentin is helping that. He was on Lyrica for a short time but he

had horrible nightmares if killing himself so they switched him. He's had

constipation problems from childhood but coffee and magnesium seem to keep him

regular. They've diagnosed him with Irritable Bowel Syndrome....dairy seems to

be a trigger.

> > >

> > > Here's my concern. When he was in his 20's he had two instances of

hallucinations...he doesn't think they were hallucinations. He believes it was a

real instance but that it was a spirit (not an actual living person). He could

describe the man in detail and said the man shook his leg (it was at night but

he was awake...hadn't gone to sleep yet....he found out afterwards that the

person he described sounded like the previous owner before my husband was even

born). The other instance was when he saw a bottle cap fly off the counter and

noone else was around. Those were the two he's told me about from yrs ago. In

the last year he's told me about a few more that happened now where he can

describe the people. He's also always seen things for many years since his

20's....like a feeling someone there, seeing a motion out if the corner of his

eye etc. He swears someone us there at work...the lights go off and on, etc. He

truly believes in ghosts, spirits and paranormal activit y. Anyway, in the last

year he was sleeping and swears he woke up and saw an image of a little boy

(mind u this was at my parents house where my father swears there's a boy ghost

based on old articles). He also saw at our house a guy in a trench coat on the

side if our house when mowing the lawn...again only happened once. He also saw a

while ago a man in khakis and polo shirt hauling a** as my husband puts it

through his bldg at work. He thought at first it was his dad (they own the

business together) but realized it wasnt....I believe he may have initially

tried to say something to him but not sure. When he realized it wasn't his dad

he assumed it was another spirit. About a month or so ago he saw this person

again (same exact thing) and then again just about a week or so ago. This was

the first exp of an image recurring. A few months ago he saw a little boy at

work (doesnt know if ssme boy from before as faces arent Always cleaTheseus says

the boy (spirit to him) was mess ing with him like paranormal activity....things

were moved and he was the only one there and knows he didn't move them. He said

he thinks his grandfathers spirit is there cause the lights go off and when he

says gramps turn the lights on they go back on....again hd believes paranormal

activity. These episodes are sporadic and more often it's just a feeling of

someone there or shadows or motions he sees out of the corner of his eye. I was

getting concerned, especially of the one that rebutted 3 times and looked up

hallucinations and found all info on LBD. He never hears voices and he said the

" spirits " never try to contact/speak to him. I'm scared this is the start of the

dementia. He does have some autonomic issues....constipation, irritable bowel

syndrome, burning feet/legs that I think are misdiagnosed, sometimes his

fingers/toes are cold and I don't know why (not all the time), his ears get

really red after a shower, his feet would twitch when sleeping, his body shook

really bad once and his hand another time last year while sleeping. He had a

sleep study and all was fine but he had Lyrica in him at the time (and in his

system for about a week) so that could have skewed it and his twitches/shaking

weren't all the time. Dr said his brain MRI looked good last year and his EEG

had very mild bursts of beta that he wasn't concerned about....they were testing

him because of the burning and twitching at night. Does this sound like the very

start of LBD, even at 35?

> > >

> > > Thank you in advance for your help.

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Sorry but I don't know about info on the Internet. I go by the diagnostic

criteria. If he's showing no dementia signs, then he doesn't have LBD.

>

> I really appreciate everyones opinions. I dont believe he's showing any

dementia or behavioral signs other than what I pointed out. Not really sure

what they would be. ...

>

> He hasn't seen a dr regarding this or mentioned it to them because he doesn't

feel it's an hallucination but paranormal activity and he knows they are

dead....there's no communication. Just brief flashes of them and then they are

gone when he turns his head or blinks.

>

> The info on the Internet...mayo clinic, webmd, studies, etc noted that

hallucinations could be the first sign and not show any cognitive problems.

>

[Guest guest]

Now I'm really scared. Last night, we found a pair of my husbands socks in the

recycling garbage can. He asked if I put them there but I didn't. He must've

done it the night before when he took his socks off. I know I misplace things

sometimes but with this incident, the hallucinations ( saw another yesterday and

said he had a feeling it was my aunt he never met but we spoke about 2 weeks ago

who is sick), he had drifters in his eye yesterday and the night before

(whatever that is....says it's Luke a black dot, almost like a fly), the

incident at work where he thought the boy he hallucinated was playing games on

him and moving things (after last night I wonder if he did it and forgot), a few

weeks back he did laundry and twice forgot to hit the button to start it after

turning the knob. Yet he handles complex issues and manual labor tasks every day

with no problem.

> > > >

> > > > Hi,

> > > >

> > > > Honestly, this sounds more like a psychiatric disturbance to me. I would

look into such things as schizophrenia, schizoid/schizotypal personality

disorders, bipolar disorder, psychotic depression...things like that. There are

so many symptoms that are not present that I would personally doubt it would be

LBD, especially at his age, regardless of familial history.

> > > >

> > > > You only mention that Lyrica has been tried, but did not mention if he

was on other meds...if he is, I would also investigate possible side effects of

these.

> > > >

> > > > Best of luck...regardless of the final diagnosis, it's stressful for

you!

> > > >

> > > > Lori , M.S.

> > > >

> > > > New and looking for answers

> > > >

> > > >

> > > >

> > > > Hi,

> > > >

> > > > I'm new here and am looking for some guidance. My husband hasn't been

diagnosed or even seen regarding this matter as of yet. Here's some

history...he's very young at least in terms of dementia, he's only 35. His

grandfather had alzheimers. He is under a neurologist's care for what they term

restless leg but I think is a small fiber neuropathy...he has burning in his

feet/legs but no voluntary movements and moving them doesn't relieve any

sensations. His toes used to move involuntarily and he used to twitch in his

sleep but gabapentin is helping that. He was on Lyrica for a short time but he

had horrible nightmares if killing himself so they switched him. He's had

constipation problems from childhood but coffee and magnesium seem to keep him

regular. They've diagnosed him with Irritable Bowel Syndrome....dairy seems to

be a trigger.

> > > >

> > > > Here's my concern. When he was in his 20's he had two instances of

hallucinations...he doesn't think they were hallucinations. He believes it was a

real instance but that it was a spirit (not an actual living person). He could

describe the man in detail and said the man shook his leg (it was at night but

he was awake...hadn't gone to sleep yet....he found out afterwards that the

person he described sounded like the previous owner before my husband was even

born). The other instance was when he saw a bottle cap fly off the counter and

noone else was around. Those were the two he's told me about from yrs ago. In

the last year he's told me about a few more that happened now where he can

describe the people. He's also always seen things for many years since his

20's....like a feeling someone there, seeing a motion out if the corner of his

eye etc. He swears someone us there at work...the lights go off and on, etc. He

truly believes in ghosts, spirits and paranormal activit y. Anyway, in the last

year he was sleeping and swears he woke up and saw an image of a little boy

(mind u this was at my parents house where my father swears there's a boy ghost

based on old articles). He also saw at our house a guy in a trench coat on the

side if our house when mowing the lawn...again only happened once. He also saw a

while ago a man in khakis and polo shirt hauling a** as my husband puts it

through his bldg at work. He thought at first it was his dad (they own the

business together) but realized it wasnt....I believe he may have initially

tried to say something to him but not sure. When he realized it wasn't his dad

he assumed it was another spirit. About a month or so ago he saw this person

again (same exact thing) and then again just about a week or so ago. This was

the first exp of an image recurring. A few months ago he saw a little boy at

work (doesnt know if ssme boy from before as faces arent Always cleaTheseus says

the boy (spirit to him) was mess ing with him like paranormal activity....things

were moved and he was the only one there and knows he didn't move them. He said

he thinks his grandfathers spirit is there cause the lights go off and when he

says gramps turn the lights on they go back on....again hd believes paranormal

activity. These episodes are sporadic and more often it's just a feeling of

someone there or shadows or motions he sees out of the corner of his eye. I was

getting concerned, especially of the one that rebutted 3 times and looked up

hallucinations and found all info on LBD. He never hears voices and he said the

" spirits " never try to contact/speak to him. I'm scared this is the start of the

dementia. He does have some autonomic issues....constipation, irritable bowel

syndrome, burning feet/legs that I think are misdiagnosed, sometimes his

fingers/toes are cold and I don't know why (not all the time), his ears get

really red after a shower, his feet would twitch when sleeping, his body shook

really bad once and his hand another time last year while sleeping. He had a

sleep study and all was fine but he had Lyrica in him at the time (and in his

system for about a week) so that could have skewed it and his twitches/shaking

weren't all the time. Dr said his brain MRI looked good last year and his EEG

had very mild bursts of beta that he wasn't concerned about....they were testing

him because of the burning and twitching at night. Does this sound like the very

start of LBD, even at 35?

> > > >

> > > > Thank you in advance for your help.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

First, I want to tell you a couple of things about myself. I'm not a

medical professional of any kind, so take what I say with a grain of salt.

I am also someone who believes that there are spirits among us and take

comfort from that. This actually helped when my mom started having

hallucinations because I responded with my own belief that what Mom was

seeing was real. I know it was very real to her. Asking her calm

questions about what she was seeing seemed to make them less frightening to

her.

It sounds to me, though, like your husband is dealing with a number of

issues. The frequent sightings (or hallucinations) sounds like a

psychiatrist should definitely get involved. If not a psychiatrist, then a

neuro-psychiatrist. (Dare I suggest a parapsychologist, as well?) Though

I do believe there are spirits among us, I think the frequency is something

to be concerned about.

But it also sounds like your husband has a number of physical issues. I

think you're right on the money when you suspect that the hands and feet

have something to do with neuropathy. I have peripheral neuropathy and

what you describe sounds very familiar. There might also be some spinal

issues that should be looked at. My doctor explained to me that, when the

pain, numbness, burning is on both sides, it is probably neuropathy. If it

is on one side, there is probably a disc issue that a neurologist and/or

neurosurgeon should check into.

Also, though we all know that we should never use someone else's

prescription, your husband's reaction to this one could be a matter for

concern. You might want his doctor to run an ECG (aka EKG) either to check

for heart issues or as a baseline for what might become a heart issue. He

is not too young for something like that to show up and early detection can

be critical. My aortic aneurysm was found when I was in my early 40s. I

am now 58 and the aneurysm is well controlled. (My dad died at 48 of an

aneurysm he didn't know about because he didn't get his concerns checked

out.)

I'm considerably older than your husband and having a number of separate

health issues is normal at my age. But most of them were there when I was

in my 30s and 40s - just not so noticeable. I think most of us want to

bundle all of the health concerns we have into one treatable diagnosis.

But that can be dangerous. Each issue should be reviewed separately.

Try not to panic. I hope you have someone to talk with about this other

than your husband. You also need a lot of calm reassurance and hugs. This

is also important for your husband's well-being. He needs you to be as

calm as possible when you are around him. Wait until you know that panic

is needed before you panic. I'm willing to bet that all of this is

treatable, whether it is dementia or something else.

Kathy

> **

>

>

> I also forgot to mention about a year ago he took what his brother told

> him was a prescribed sleeping or anxiety pill (another bout if insomnia).

> He had a bad reaction, said hid heart raced really bad, thought he was

> going to have a heart attack and then he got very very tired. I dont

> remember which one he said it was but when my husband looked it up it was

> for the other reason. I know I read about sensitivity to meds and wasn't

> sure if this fit as it was a sleeping or depression pill.

>

>

> > > >

> > > > Hi,

> > > >

> > > > Honestly, this sounds more like a psychiatric disturbance to me. I

> would look into such things as schizophrenia, schizoid/schizotypal

> personality disorders, bipolar disorder, psychotic depression...things like

> that. There are so many symptoms that are not present that I would

> personally doubt it would be LBD, especially at his age, regardless of

> familial history.

> > > >

> > > > You only mention that Lyrica has been tried, but did not mention if

> he was on other meds...if he is, I would also investigate possible side

> effects of these.

> > > >

> > > > Best of luck...regardless of the final diagnosis, it's stressful for

> you!

> > > >

> > > > Lori , M.S.

> > > >

> > > > New and looking for answers

> > > >

> > > >

> > > >

> > > > Hi,

> > > >

> > > > I'm new here and am looking for some guidance. My husband hasn't

> been diagnosed or even seen regarding this matter as of yet. Here's some

> history...he's very young at least in terms of dementia, he's only 35. His

> grandfather had alzheimers. He is under a neurologist's care for what they

> term restless leg but I think is a small fiber neuropathy...he has burning

> in his feet/legs but no voluntary movements and moving them doesn't relieve

> any sensations. His toes used to move involuntarily and he used to twitch

> in his sleep but gabapentin is helping that. He was on Lyrica for a short

> time but he had horrible nightmares if killing himself so they switched

> him. He's had constipation problems from childhood but coffee and magnesium

> seem to keep him regular. They've diagnosed him with Irritable Bowel

> Syndrome....dairy seems to be a trigger.

> > > >

> > > > Here's my concern. When he was in his 20's he had two instances of

> hallucinations...he doesn't think they were hallucinations. He believes it

> was a real instance but that it was a spirit (not an actual living person).

> He could describe the man in detail and said the man shook his leg (it was

> at night but he was awake...hadn't gone to sleep yet....he found out

> afterwards that the person he described sounded like the previous owner

> before my husband was even born). The other instance was when he saw a

> bottle cap fly off the counter and noone else was around. Those were the

> two he's told me about from yrs ago. In the last year he's told me about a

> few more that happened now where he can describe the people. He's also

> always seen things for many years since his 20's....like a feeling someone

> there, seeing a motion out if the corner of his eye etc. He swears someone

> us there at work...the lights go off and on, etc. He truly believes in

> ghosts, spirits and paranormal activit y. Anyway, in the last year he was

> sleeping and swears he woke up and saw an image of a little boy (mind u

> this was at my parents house where my father swears there's a boy ghost

> based on old articles). He also saw at our house a guy in a trench coat on

> the side if our house when mowing the lawn...again only happened once. He

> also saw a while ago a man in khakis and polo shirt hauling a** as my

> husband puts it through his bldg at work. He thought at first it was his

> dad (they own the business together) but realized it wasnt....I believe he

> may have initially tried to say something to him but not sure. When he

> realized it wasn't his dad he assumed it was another spirit. About a month

> or so ago he saw this person again (same exact thing) and then again just

> about a week or so ago. This was the first exp of an image recurring. A few

> months ago he saw a little boy at work (doesnt know if ssme boy from before

> as faces arent Always cleaTheseus says the boy (spirit to him) was mess ing

> with him like paranormal activity....things were moved and he was the only

> one there and knows he didn't move them. He said he thinks his grandfathers

> spirit is there cause the lights go off and when he says gramps turn the

> lights on they go back on....again hd believes paranormal activity. These

> episodes are sporadic and more often it's just a feeling of someone there

> or shadows or motions he sees out of the corner of his eye. I was getting

> concerned, especially of the one that rebutted 3 times and looked up

> hallucinations and found all info on LBD. He never hears voices and he said

> the " spirits " never try to contact/speak to him. I'm scared this is the

> start of the dementia. He does have some autonomic issues....constipation,

> irritable bowel syndrome, burning feet/legs that I think are misdiagnosed,

> sometimes his fingers/toes are cold and I don't know why (not all the

> time), his ears get really red after a shower, his feet would twitch when

> sleeping, his body shook really bad once and his hand another time last

> year while sleeping. He had a sleep study and all was fine but he had

> Lyrica in him at the time (and in his system for about a week) so that

> could have skewed it and his twitches/shaking weren't all the time. Dr said

> his brain MRI looked good last year and his EEG had very mild bursts of

> beta that he wasn't concerned about....they were testing him because of the

> burning and twitching at night. Does this sound like the very start of LBD,

> even at 35?

> > > >

> > > > Thank you in advance for your help.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I forgot one thing that is slightly off topic but related. This is

something I tell my nieces and nephews, who are only slightly younger than

your husband.

Check your husband's life insurance and your own. Get it to at least an

adequate level to cover debts and expenses. Also get or check the level of

your long term care insurance. Do this now, before you have a firm medical

diagnosis for these, or any other, issues. Don't wait. Once you have a

diagnosis of just about any physical issue outside of just the normal run

of the mill stuff, getting life insurance or long term care insurance, or

getting them to the right levels, becomes somewhere between difficult and

impossible.

This is really important. People often don't find out how important until

it is too late. You are not too young to worry about this. The time to do

it is when you are young and healthy.

Kathy

> First, I want to tell you a couple of things about myself. I'm not a

> medical professional of any kind, so take what I say with a grain of salt.

> I am also someone who believes that there are spirits among us and take

> comfort from that. This actually helped when my mom started having

> hallucinations because I responded with my own belief that what Mom was

> seeing was real. I know it was very real to her. Asking her calm

> questions about what she was seeing seemed to make them less frightening to

> her.

>

> It sounds to me, though, like your husband is dealing with a number of

> issues. The frequent sightings (or hallucinations) sounds like a

> psychiatrist should definitely get involved. If not a psychiatrist, then a

> neuro-psychiatrist. (Dare I suggest a parapsychologist, as well?) Though

> I do believe there are spirits among us, I think the frequency is something

> to be concerned about.

>

> But it also sounds like your husband has a number of physical issues. I

> think you're right on the money when you suspect that the hands and feet

> have something to do with neuropathy. I have peripheral neuropathy and

> what you describe sounds very familiar. There might also be some spinal

> issues that should be looked at. My doctor explained to me that, when the

> pain, numbness, burning is on both sides, it is probably neuropathy. If it

> is on one side, there is probably a disc issue that a neurologist and/or

> neurosurgeon should check into.

>

> Also, though we all know that we should never use someone else's

> prescription, your husband's reaction to this one could be a matter for

> concern. You might want his doctor to run an ECG (aka EKG) either to check

> for heart issues or as a baseline for what might become a heart issue. He

> is not too young for something like that to show up and early detection can

> be critical. My aortic aneurysm was found when I was in my early 40s. I

> am now 58 and the aneurysm is well controlled. (My dad died at 48 of an

> aneurysm he didn't know about because he didn't get his concerns checked

> out.)

>

> I'm considerably older than your husband and having a number of separate

> health issues is normal at my age. But most of them were there when I was

> in my 30s and 40s - just not so noticeable. I think most of us want to

> bundle all of the health concerns we have into one treatable diagnosis.

> But that can be dangerous. Each issue should be reviewed separately.

>

> Try not to panic. I hope you have someone to talk with about this other

> than your husband. You also need a lot of calm reassurance and hugs. This

> is also important for your husband's well-being. He needs you to be as

> calm as possible when you are around him. Wait until you know that panic

> is needed before you panic. I'm willing to bet that all of this is

> treatable, whether it is dementia or something else.

>

> Kathy

>

>

>

>

> On Tue, Nov 15, 2011 at 5:06 PM, Hopefulmom wrote:

>

>> **

>>

>>

>> I also forgot to mention about a year ago he took what his brother told

>> him was a prescribed sleeping or anxiety pill (another bout if insomnia).

>> He had a bad reaction, said hid heart raced really bad, thought he was

>> going to have a heart attack and then he got very very tired. I dont

>> remember which one he said it was but when my husband looked it up it was

>> for the other reason. I know I read about sensitivity to meds and wasn't

>> sure if this fit as it was a sleeping or depression pill.

>>

>>

>> > > >

>> > > > Hi,

>> > > >

>> > > > Honestly, this sounds more like a psychiatric disturbance to me. I

>> would look into such things as schizophrenia, schizoid/schizotypal

>> personality disorders, bipolar disorder, psychotic depression...things like

>> that. There are so many symptoms that are not present that I would

>> personally doubt it would be LBD, especially at his age, regardless of

>> familial history.

>> > > >

>> > > > You only mention that Lyrica has been tried, but did not mention if

>> he was on other meds...if he is, I would also investigate possible side

>> effects of these.

>> > > >

>> > > > Best of luck...regardless of the final diagnosis, it's stressful

>> for you!

>> > > >

>> > > > Lori , M.S.

>> > > >

>> > > > New and looking for answers

>> > > >

>> > > >

>> > > >

>> > > > Hi,

>> > > >

>> > > > I'm new here and am looking for some guidance. My husband hasn't

>> been diagnosed or even seen regarding this matter as of yet. Here's some

>> history...he's very young at least in terms of dementia, he's only 35. His

>> grandfather had alzheimers. He is under a neurologist's care for what they

>> term restless leg but I think is a small fiber neuropathy...he has burning

>> in his feet/legs but no voluntary movements and moving them doesn't relieve

>> any sensations. His toes used to move involuntarily and he used to twitch

>> in his sleep but gabapentin is helping that. He was on Lyrica for a short

>> time but he had horrible nightmares if killing himself so they switched

>> him. He's had constipation problems from childhood but coffee and magnesium

>> seem to keep him regular. They've diagnosed him with Irritable Bowel

>> Syndrome....dairy seems to be a trigger.

>> > > >

>> > > > Here's my concern. When he was in his 20's he had two instances of

>> hallucinations...he doesn't think they were hallucinations. He believes it

>> was a real instance but that it was a spirit (not an actual living person).

>> He could describe the man in detail and said the man shook his leg (it was

>> at night but he was awake...hadn't gone to sleep yet....he found out

>> afterwards that the person he described sounded like the previous owner

>> before my husband was even born). The other instance was when he saw a

>> bottle cap fly off the counter and noone else was around. Those were the

>> two he's told me about from yrs ago. In the last year he's told me about a

>> few more that happened now where he can describe the people. He's also

>> always seen things for many years since his 20's....like a feeling someone

>> there, seeing a motion out if the corner of his eye etc. He swears someone

>> us there at work...the lights go off and on, etc. He truly believes in

>> ghosts, spirits and paranormal activit y. Anyway, in the last year he was

>> sleeping and swears he woke up and saw an image of a little boy (mind u

>> this was at my parents house where my father swears there's a boy ghost

>> based on old articles). He also saw at our house a guy in a trench coat on

>> the side if our house when mowing the lawn...again only happened once. He

>> also saw a while ago a man in khakis and polo shirt hauling a** as my

>> husband puts it through his bldg at work. He thought at first it was his

>> dad (they own the business together) but realized it wasnt....I believe he

>> may have initially tried to say something to him but not sure. When he

>> realized it wasn't his dad he assumed it was another spirit. About a month

>> or so ago he saw this person again (same exact thing) and then again just

>> about a week or so ago. This was the first exp of an image recurring. A few

>> months ago he saw a little boy at work (doesnt know if ssme boy from before

>> as faces arent Always cleaTheseus says the boy (spirit to him) was mess ing

>> with him like paranormal activity....things were moved and he was the only

>> one there and knows he didn't move them. He said he thinks his grandfathers

>> spirit is there cause the lights go off and when he says gramps turn the

>> lights on they go back on....again hd believes paranormal activity. These

>> episodes are sporadic and more often it's just a feeling of someone there

>> or shadows or motions he sees out of the corner of his eye. I was getting

>> concerned, especially of the one that rebutted 3 times and looked up

>> hallucinations and found all info on LBD. He never hears voices and he said

>> the " spirits " never try to contact/speak to him. I'm scared this is the

>> start of the dementia. He does have some autonomic issues....constipation,

>> irritable bowel syndrome, burning feet/legs that I think are misdiagnosed,

>> sometimes his fingers/toes are cold and I don't know why (not all the

>> time), his ears get really red after a shower, his feet would twitch when

>> sleeping, his body shook really bad once and his hand another time last

>> year while sleeping. He had a sleep study and all was fine but he had

>> Lyrica in him at the time (and in his system for about a week) so that

>> could have skewed it and his twitches/shaking weren't all the time. Dr said

>> his brain MRI looked good last year and his EEG had very mild bursts of

>> beta that he wasn't concerned about....they were testing him because of the

>> burning and twitching at night. Does this sound like the very start of LBD,

>> even at 35?

>> > > >

>> > > > Thank you in advance for your help.

>> > > >

>> > > >

>> > > >

>> > > >

>> > > >

>> > > >

[Guest guest]

He wont see a psychiatrist. I can try mentioning it to his neurologist, thionyl.

I wasn't concerned until the frequency started and that one that recurred 3

times.....plus putting the socks in the garbage and not realizing and thinking I

did it. We were wondering if maybe the gabapentin is suddenly after 8 months

adding to it....he is working a lot so not getting much sleep and stressed out.

I do remember his MRI from 1 year ago was normal but his EEG showed mild bursts

of beta (whatever that means)...the neurologist wasn't concerned. In his report,

he put good cognitive skills...just from an initial first exam...but put slight

word searching. Neither my husband or I understand this because he doesn't

search for words...he answers questions or talks like a normal person. He

sometimes takes a minute to think about a question before answering it but we

all do that.

Can't get long term care since he's already under a neurologist for the burning

feet/legs. We tried and they said we had to wait 2 yrs to see if his symptoms

progress.

> > > > >

> > > > > Hi,

> > > > >

> > > > > Honestly, this sounds more like a psychiatric disturbance to me. I

> > would look into such things as schizophrenia, schizoid/schizotypal

> > personality disorders, bipolar disorder, psychotic depression...things like

> > that. There are so many symptoms that are not present that I would

> > personally doubt it would be LBD, especially at his age, regardless of

> > familial history.

> > > > >

> > > > > You only mention that Lyrica has been tried, but did not mention if

> > he was on other meds...if he is, I would also investigate possible side

> > effects of these.

> > > > >

> > > > > Best of luck...regardless of the final diagnosis, it's stressful for

> > you!

> > > > >

> > > > > Lori , M.S.

> > > > >

> > > > > New and looking for answers

> > > > >

> > > > >

> > > > >

> > > > > Hi,

> > > > >

> > > > > I'm new here and am looking for some guidance. My husband hasn't

> > been diagnosed or even seen regarding this matter as of yet. Here's some

> > history...he's very young at least in terms of dementia, he's only 35. His

> > grandfather had alzheimers. He is under a neurologist's care for what they

> > term restless leg but I think is a small fiber neuropathy...he has burning

> > in his feet/legs but no voluntary movements and moving them doesn't relieve

> > any sensations. His toes used to move involuntarily and he used to twitch

> > in his sleep but gabapentin is helping that. He was on Lyrica for a short

> > time but he had horrible nightmares if killing himself so they switched

> > him. He's had constipation problems from childhood but coffee and magnesium

> > seem to keep him regular. They've diagnosed him with Irritable Bowel

> > Syndrome....dairy seems to be a trigger.

> > > > >

> > > > > Here's my concern. When he was in his 20's he had two instances of

> > hallucinations...he doesn't think they were hallucinations. He believes it

> > was a real instance but that it was a spirit (not an actual living person).

> > He could describe the man in detail and said the man shook his leg (it was

> > at night but he was awake...hadn't gone to sleep yet....he found out

> > afterwards that the person he described sounded like the previous owner

> > before my husband was even born). The other instance was when he saw a

> > bottle cap fly off the counter and noone else was around. Those were the

> > two he's told me about from yrs ago. In the last year he's told me about a

> > few more that happened now where he can describe the people. He's also

> > always seen things for many years since his 20's....like a feeling someone

> > there, seeing a motion out if the corner of his eye etc. He swears someone

> > us there at work...the lights go off and on, etc. He truly believes in

> > ghosts, spirits and paranormal activit y. Anyway, in the last year he was

> > sleeping and swears he woke up and saw an image of a little boy (mind u

> > this was at my parents house where my father swears there's a boy ghost

> > based on old articles). He also saw at our house a guy in a trench coat on

> > the side if our house when mowing the lawn...again only happened once. He

> > also saw a while ago a man in khakis and polo shirt hauling a** as my

> > husband puts it through his bldg at work. He thought at first it was his

> > dad (they own the business together) but realized it wasnt....I believe he

> > may have initially tried to say something to him but not sure. When he

> > realized it wasn't his dad he assumed it was another spirit. About a month

> > or so ago he saw this person again (same exact thing) and then again just

> > about a week or so ago. This was the first exp of an image recurring. A few

> > months ago he saw a little boy at work (doesnt know if ssme boy from before

> > as faces arent Always cleaTheseus says the boy (spirit to him) was mess ing

> > with him like paranormal activity....things were moved and he was the only

> > one there and knows he didn't move them. He said he thinks his grandfathers

> > spirit is there cause the lights go off and when he says gramps turn the

> > lights on they go back on....again hd believes paranormal activity. These

> > episodes are sporadic and more often it's just a feeling of someone there

> > or shadows or motions he sees out of the corner of his eye. I was getting

> > concerned, especially of the one that rebutted 3 times and looked up

> > hallucinations and found all info on LBD. He never hears voices and he said

> > the " spirits " never try to contact/speak to him. I'm scared this is the

> > start of the dementia. He does have some autonomic issues....constipation,

> > irritable bowel syndrome, burning feet/legs that I think are misdiagnosed,

> > sometimes his fingers/toes are cold and I don't know why (not all the

> > time), his ears get really red after a shower, his feet would twitch when

> > sleeping, his body shook really bad once and his hand another time last

> > year while sleeping. He had a sleep study and all was fine but he had

> > Lyrica in him at the time (and in his system for about a week) so that

> > could have skewed it and his twitches/shaking weren't all the time. Dr said

> > his brain MRI looked good last year and his EEG had very mild bursts of

> > beta that he wasn't concerned about....they were testing him because of the

> > burning and twitching at night. Does this sound like the very start of LBD,

> > even at 35?

> > > > >

> > > > > Thank you in advance for your help.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

This may sound pretty out there, but try assuming that what he sees is real

(it is to him). Then suggest parapsychology. I honestly don't know who or

what you will find as a resource for this, but it was a fairly widespread

profession 20 years ago. Suggest that what he is seeing is too frequent to

be totally normal and that seeing a parapsychologist might be a way of

dealing with his sightings.

Try also enlisting his primary doctor in the quest for LTC. Explain that

you have been turned down unless he can get through that 2 years. Ask if

there is a treatment or something else that can alleviate the issue so that

he can eventually qualify for the insurance and then stay on top of it. My

mother is on Medical Assistance and right now it is pretty good and a real

blessing. But politics being what they are, I have a feeling that you

won't be able to count on it for your lifetime. I think you need the help

of the medical profession to get your husband to the point at which he can

qualify - or their advice as to whether he will eventually qualify. And

get your own. If you do end up being his caregiver, it takes a toll. You

are likely to need your own care.

Give these things a try. What have you got to lose?

Kathy

On Wed, Nov 16, 2011 at 11:28 AM, Hopefulmom wrote:

> **

>

>

> He wont see a psychiatrist. I can try mentioning it to his neurologist,

> thionyl. I wasn't concerned until the frequency started and that one that

> recurred 3 times.....plus putting the socks in the garbage and not

> realizing and thinking I did it. We were wondering if maybe the gabapentin

> is suddenly after 8 months adding to it....he is working a lot so not

> getting much sleep and stressed out. I do remember his MRI from 1 year ago

> was normal but his EEG showed mild bursts of beta (whatever that

> means)...the neurologist wasn't concerned. In his report, he put good

> cognitive skills...just from an initial first exam...but put slight word

> searching. Neither my husband or I understand this because he doesn't

> search for words...he answers questions or talks like a normal person. He

> sometimes takes a minute to think about a question before answering it but

> we all do that.

>

> Can't get long term care since he's already under a neurologist for the

> burning feet/legs. We tried and they said we had to wait 2 yrs to see if

> his symptoms progress.

>

>

> > > > > >

> > > > > > Hi,

> > > > > >

> > > > > > Honestly, this sounds more like a psychiatric disturbance to me.

> I

> > > would look into such things as schizophrenia, schizoid/schizotypal

> > > personality disorders, bipolar disorder, psychotic depression...things

> like

> > > that. There are so many symptoms that are not present that I would

> > > personally doubt it would be LBD, especially at his age, regardless of

> > > familial history.

> > > > > >

> > > > > > You only mention that Lyrica has been tried, but did not mention

> if

> > > he was on other meds...if he is, I would also investigate possible side

> > > effects of these.

> > > > > >

> > > > > > Best of luck...regardless of the final diagnosis, it's stressful

> for

> > > you!

> > > > > >

> > > > > > Lori , M.S.

> > > > > >

> > > > > > New and looking for answers

> > > > > >

> > > > > >

> > > > > >

> > > > > > Hi,

> > > > > >

> > > > > > I'm new here and am looking for some guidance. My husband hasn't

> > > been diagnosed or even seen regarding this matter as of yet. Here's

> some

> > > history...he's very young at least in terms of dementia, he's only 35.

> His

> > > grandfather had alzheimers. He is under a neurologist's care for what

> they

> > > term restless leg but I think is a small fiber neuropathy...he has

> burning

> > > in his feet/legs but no voluntary movements and moving them doesn't

> relieve

> > > any sensations. His toes used to move involuntarily and he used to

> twitch

> > > in his sleep but gabapentin is helping that. He was on Lyrica for a

> short

> > > time but he had horrible nightmares if killing himself so they switched

> > > him. He's had constipation problems from childhood but coffee and

> magnesium

> > > seem to keep him regular. They've diagnosed him with Irritable Bowel

> > > Syndrome....dairy seems to be a trigger.

> > > > > >

> > > > > > Here's my concern. When he was in his 20's he had two instances

> of

> > > hallucinations...he doesn't think they were hallucinations. He

> believes it

> > > was a real instance but that it was a spirit (not an actual living

> person).

> > > He could describe the man in detail and said the man shook his leg (it

> was

> > > at night but he was awake...hadn't gone to sleep yet....he found out

> > > afterwards that the person he described sounded like the previous owner

> > > before my husband was even born). The other instance was when he saw a

> > > bottle cap fly off the counter and noone else was around. Those were

> the

> > > two he's told me about from yrs ago. In the last year he's told me

> about a

> > > few more that happened now where he can describe the people. He's also

> > > always seen things for many years since his 20's....like a feeling

> someone

> > > there, seeing a motion out if the corner of his eye etc. He swears

> someone

> > > us there at work...the lights go off and on, etc. He truly believes in

> > > ghosts, spirits and paranormal activit y. Anyway, in the last year he

> was

> > > sleeping and swears he woke up and saw an image of a little boy (mind u

> > > this was at my parents house where my father swears there's a boy ghost

> > > based on old articles). He also saw at our house a guy in a trench

> coat on

> > > the side if our house when mowing the lawn...again only happened once.

> He

> > > also saw a while ago a man in khakis and polo shirt hauling a** as my

> > > husband puts it through his bldg at work. He thought at first it was

> his

> > > dad (they own the business together) but realized it wasnt....I

> believe he

> > > may have initially tried to say something to him but not sure. When he

> > > realized it wasn't his dad he assumed it was another spirit. About a

> month

> > > or so ago he saw this person again (same exact thing) and then again

> just

> > > about a week or so ago. This was the first exp of an image recurring.

> A few

> > > months ago he saw a little boy at work (doesnt know if ssme boy from

> before

> > > as faces arent Always cleaTheseus says the boy (spirit to him) was

> mess ing

> > > with him like paranormal activity....things were moved and he was the

> only

> > > one there and knows he didn't move them. He said he thinks his

> grandfathers

> > > spirit is there cause the lights go off and when he says gramps turn

> the

> > > lights on they go back on....again hd believes paranormal activity.

> These

> > > episodes are sporadic and more often it's just a feeling of someone

> there

> > > or shadows or motions he sees out of the corner of his eye. I was

> getting

> > > concerned, especially of the one that rebutted 3 times and looked up

> > > hallucinations and found all info on LBD. He never hears voices and he

> said

> > > the " spirits " never try to contact/speak to him. I'm scared this is the

> > > start of the dementia. He does have some autonomic

> issues....constipation,

> > > irritable bowel syndrome, burning feet/legs that I think are

> misdiagnosed,

> > > sometimes his fingers/toes are cold and I don't know why (not all the

> > > time), his ears get really red after a shower, his feet would twitch

> when

> > > sleeping, his body shook really bad once and his hand another time last

> > > year while sleeping. He had a sleep study and all was fine but he had

> > > Lyrica in him at the time (and in his system for about a week) so that

> > > could have skewed it and his twitches/shaking weren't all the time. Dr

> said

> > > his brain MRI looked good last year and his EEG had very mild bursts of

> > > beta that he wasn't concerned about....they were testing him because

> of the

> > > burning and twitching at night. Does this sound like the very start of

> LBD,

> > > even at 35?

> > > > > >

> > > > > > Thank you in advance for your help.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

I appreciate the advice. I have tried speaking with him again but he doesn't

see a reason to go to the doctor. The hallucinations don't bother him, he said

they are gone with a blink of the eye, he knows the images while " real " to him

are not actual living people but spirits. Nothing I can do to convince him

otherwise. I can pray and hope that he's right and it isn't anything (he is on

the gabapentin that makes him tired...or at the least helps him with his bouts

of insomnia...and hasn't been sleeping much..getting up at 3:30am after going to

bed around 10pm to go to work...working 16 hour days...so maybe it's an issue

with not enough sleep especially with the medication and being stressed out

about work.) Guess we'll see. It does concern me that over the last year there

have been 3 completely different episodes that occurred months apart from each

other and again while he was still on the gabapentin (and actually I think one

or two of them took place while on Lyrica which he had a bad reaction to). The

first one was him forgetting the word " rug " ...he just said you know that thing

on the floor but he was on the Lyrica and was hardly sleeping at all because it

gave him very bad nightmares so that could be from sleep deprivation. Hasn't

happened again since and that was about 9 months ago. Then a few months later

we were driving to my parents house and he stopped a few houses before their's

thinking it was their house....I had to point out to him that it wasn't their

house and he said he was just testing me and then when I pressed the issue he

said he just wasn't paying attention, thinking of something else and was able to

figure out the right house after that (was either on the Lyrica or the

gabapentin and I don't remember if this was during a stressful period at work or

not where he wasn't getting much sleep). Now, again months later, another

different episode....we found a pair of socks in the garbage can...just laying

there on top and he still has no recollection of doing that....could have been

an honest mistake of throwing something else away and the socks went with it but

it was laying right on top so I'm not sure about that.....again he's on the

gabapentin still and hasn't been sleeping much because he's working a lot and

stressed....but he's also seen more hallucinations too....again not sleeping

alot on the medicine and almost all of them happen at work only (aside from one

incident) and only one hallucination recurred. Now that he's gotten sleep he

hasn't had any...then again he doesn't usually get them at home.

I know some have said here that other issues have to show up with the

hallucinations to be dementia and I understand that (my grandmother has

dementia). But I also know it has to start somewhere and I'm not saying he has

enough symptoms to be classified as clinical dementia of any kind....just

wondering if this is the way it presented for anyone else or if I'm way off

track? I know he's really young, only 35, but his grandfather did pass away

from Alzheimer's (and his great aunt so it runs in the family). Since I can't

get him to a doctor's office I was looking for advice to see if any of these are

signs of the start of early dementia....I've read a lot but I'm not sure I

understand what I've read.

Thanks for all the help!!!!

> > > > > > >

> > > > > > > Hi,

> > > > > > >

> > > > > > > Honestly, this sounds more like a psychiatric disturbance to me.

> > I

> > > > would look into such things as schizophrenia, schizoid/schizotypal

> > > > personality disorders, bipolar disorder, psychotic depression...things

> > like

> > > > that. There are so many symptoms that are not present that I would

> > > > personally doubt it would be LBD, especially at his age, regardless of

> > > > familial history.

> > > > > > >

> > > > > > > You only mention that Lyrica has been tried, but did not mention

> > if

> > > > he was on other meds...if he is, I would also investigate possible side

> > > > effects of these.

> > > > > > >

> > > > > > > Best of luck...regardless of the final diagnosis, it's stressful

> > for

> > > > you!

> > > > > > >

> > > > > > > Lori , M.S.

> > > > > > >

> > > > > > > New and looking for answers

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > Hi,

> > > > > > >

> > > > > > > I'm new here and am looking for some guidance. My husband hasn't

> > > > been diagnosed or even seen regarding this matter as of yet. Here's

> > some

> > > > history...he's very young at least in terms of dementia, he's only 35.

> > His

> > > > grandfather had alzheimers. He is under a neurologist's care for what

> > they

> > > > term restless leg but I think is a small fiber neuropathy...he has

> > burning

> > > > in his feet/legs but no voluntary movements and moving them doesn't

> > relieve

> > > > any sensations. His toes used to move involuntarily and he used to

> > twitch

> > > > in his sleep but gabapentin is helping that. He was on Lyrica for a

> > short

> > > > time but he had horrible nightmares if killing himself so they switched

> > > > him. He's had constipation problems from childhood but coffee and

> > magnesium

> > > > seem to keep him regular. They've diagnosed him with Irritable Bowel

> > > > Syndrome....dairy seems to be a trigger.

> > > > > > >

> > > > > > > Here's my concern. When he was in his 20's he had two instances

> > of

> > > > hallucinations...he doesn't think they were hallucinations. He

> > believes it

> > > > was a real instance but that it was a spirit (not an actual living

> > person).

> > > > He could describe the man in detail and said the man shook his leg (it

> > was

> > > > at night but he was awake...hadn't gone to sleep yet....he found out

> > > > afterwards that the person he described sounded like the previous owner

> > > > before my husband was even born). The other instance was when he saw a

> > > > bottle cap fly off the counter and noone else was around. Those were

> > the

> > > > two he's told me about from yrs ago. In the last year he's told me

> > about a

> > > > few more that happened now where he can describe the people. He's also

> > > > always seen things for many years since his 20's....like a feeling

> > someone

> > > > there, seeing a motion out if the corner of his eye etc. He swears

> > someone

> > > > us there at work...the lights go off and on, etc. He truly believes in

> > > > ghosts, spirits and paranormal activit y. Anyway, in the last year he

> > was

> > > > sleeping and swears he woke up and saw an image of a little boy (mind u

> > > > this was at my parents house where my father swears there's a boy ghost

> > > > based on old articles). He also saw at our house a guy in a trench

> > coat on

> > > > the side if our house when mowing the lawn...again only happened once.

> > He

> > > > also saw a while ago a man in khakis and polo shirt hauling a** as my

> > > > husband puts it through his bldg at work. He thought at first it was

> > his

> > > > dad (they own the business together) but realized it wasnt....I

> > believe he

> > > > may have initially tried to say something to him but not sure. When he

> > > > realized it wasn't his dad he assumed it was another spirit. About a

> > month

> > > > or so ago he saw this person again (same exact thing) and then again

> > just

> > > > about a week or so ago. This was the first exp of an image recurring.

> > A few

> > > > months ago he saw a little boy at work (doesnt know if ssme boy from

> > before

> > > > as faces arent Always cleaTheseus says the boy (spirit to him) was

> > mess ing

> > > > with him like paranormal activity....things were moved and he was the

> > only

> > > > one there and knows he didn't move them. He said he thinks his

> > grandfathers

> > > > spirit is there cause the lights go off and when he says gramps turn

> > the

> > > > lights on they go back on....again hd believes paranormal activity.

> > These

> > > > episodes are sporadic and more often it's just a feeling of someone

> > there

> > > > or shadows or motions he sees out of the corner of his eye. I was

> > getting

> > > > concerned, especially of the one that rebutted 3 times and looked up

> > > > hallucinations and found all info on LBD. He never hears voices and he

> > said

> > > > the " spirits " never try to contact/speak to him. I'm scared this is the

> > > > start of the dementia. He does have some autonomic

> > issues....constipation,

> > > > irritable bowel syndrome, burning feet/legs that I think are

> > misdiagnosed,

> > > > sometimes his fingers/toes are cold and I don't know why (not all the

> > > > time), his ears get really red after a shower, his feet would twitch

> > when

> > > > sleeping, his body shook really bad once and his hand another time last

> > > > year while sleeping. He had a sleep study and all was fine but he had

> > > > Lyrica in him at the time (and in his system for about a week) so that

> > > > could have skewed it and his twitches/shaking weren't all the time. Dr

> > said

> > > > his brain MRI looked good last year and his EEG had very mild bursts of

> > > > beta that he wasn't concerned about....they were testing him because

> > of the

> > > > burning and twitching at night. Does this sound like the very start of

> > LBD,

> > > > even at 35?

> > > > > > >

> > > > > > > Thank you in advance for your help.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

One of the things you might watch for is his ability with numbers.  I didn't

put together that Mom was having trouble with her check book.  And even more

with her money. 

 

One thing you might do is to remind him that it isn't about is he having a

problem, but you can keep it from getting worse.  The other thing to watch for

is his balance.  Falling is a big clue.  His sleep pattern is another reason

he needs to see a Doctor even if he doesn't have dementia. I am not convinced

you are on the wrong track.  Something is going on and if you can keep it from

getting worse it is better.

 

You will want to use the Internet with the Doctor so you can talk about what you

are worried about. The MD might be able to call him in for his yearly check.

Does he have sibs who could convince him to make an appointment or his

parents.? What about a yearly check.  I would set up an appointment and ask if

he forgot he asked you to make the appointment.  That is what we call  " loving

lies " to help us get done what needs to be done.  If something else is going

on in his mind, you can't wait until he decides to go in.  I had the same

problem with Mom and I just made the appointment .

 

Hugs,

 

Donna R  

[ LBDcaregivers ] New and looking for answers

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > Hi,

> > > > > > >

> > > > > > > I'm new here and am looking for some guidance. My husband hasn't

> > > > been diagnosed or even seen regarding this matter as of yet. Here's

> > some

> > > > history...he's very young at least in terms of dementia, he's only 35.

> > His

> > > > grandfather had alzheimers . He is under a neurologist's care for what

> > they

> > > > term restless leg but I think is a small fiber neuropathy ...he has

> > burning

> > > > in his feet/legs but no voluntary movements and moving them doesn't

> > relieve

> > > > any sensations. His toes used to move involuntarily and he used to

> > twitch

> > > > in his sleep but gabapentin is helping that. He was on Lyrica for a

> > short

> > > > time but he had horrible nightmares if killing himself so they switched

> > > > him. He's had constipation problems from childhood but coffee and

> > magnesium

> > > > seem to keep him regular. They've diagnosed him with Irritable Bowel

> > > > Syndrome....dairy seems to be a trigger.

> > > > > > >

> > > > > > > Here's my concern. When he was in his 20's he had two instances

> > of

> > > > hallucinations...he doesn't think they were hallucinations. He

> > believes it

> > > > was a real instance but that it was a spirit (not an actual living

> > person).

> > > > He could describe the man in detail and said the man shook his leg (it

> > was

> > > > at night but he was awake...hadn't gone to sleep yet....he found out

> > > > afterwards that the person he described sounded like the previous owner

> > > > before my husband was even born). The other instance was when he saw a

> > > > bottle cap fly off the counter and noone else was around. Those were

> > the

> > > > two he's told me about from yrs ago. In the last year he's told me

> > about a

> > > > few more that happened now where he can describe the people. He's also

> > > > always seen things for many years since his 20's....like a feeling

> > someone

> > > > there, seeing a motion out if the corner of his eye etc. He swears

> > someone

> > > > us there at work...the lights go off and on, etc. He truly believes in

> > > > ghosts, spirits and paranormal activit y. Anyway, in the last year he

> > was

> > > > sleeping and swears he woke up and saw an image of a little boy (mind u

> > > > this was at my parents house where my father swears there's a boy ghost

> > > > based on old articles). He also saw at our house a guy in a trench

> > coat on

> > > > the side if our house when mowing the lawn...again only happened once.

> > He

> > > > also saw a while ago a man in khakis and polo shirt hauling a** as my

> > > > husband puts it through his bldg at work. He thought at first it was

> > his

> > > > dad (they own the business together) but realized it wasnt ....I

> > believe he

> > > > may have initially tried to say something to him but not sure. When he

> > > > realized it wasn't his dad he assumed it was another spirit. About a

> > month

> > > > or so ago he saw this person again (same exact thing) and then again

> > just

> > > > about a week or so ago. This was the first exp of an image recurring.

> > A few

> > > > months ago he saw a little boy at work ( doesnt know if ssme boy from

> > before

> > > > as faces arent Always cleaTheseus says the boy (spirit to him) was

> > mess ing

> > > > with him like paranormal activity....things were moved and he was the

> > only

> > > > one there and knows he didn't move them. He said he thinks his

> > grandfathers

> > > > spirit is there cause the lights go off and when he says gramps turn

> > the

> > > > lights on they go back on....again hd believes paranormal activity.

> > These

> > > > episodes are sporadic and more often it's just a feeling of someone

> > there

> > > > or shadows or motions he sees out of the corner of his eye. I was

> > getting

> > > > concerned, especially of the one that rebutted 3 times and looked up

> > > > hallucinations and found all info on LBD . He never hears voices and he

> > said

> > > > the " spirits " never try to contact/speak to him. I'm scared this is the

> > > > start of the dementia. He does have some autonomic

> > issues....constipation,

> > > > irritable bowel syndrome, burning feet/legs that I think are

> > misdiagnosed,

> > > > sometimes his fingers/toes are cold and I don't know why (not all the

> > > > time), his ears get really red after a shower, his feet would twitch

> > when

> > > > sleeping, his body shook really bad once and his hand another time last

> > > > year while sleeping. He had a sleep study and all was fine but he had

> > > > Lyrica in him at the time (and in his system for about a week) so that

> > > > could have skewed it and his twitches/shaking weren't all the time. Dr

> > said

> > > > his brain MRI looked good last year and his EEG had very mild bursts of

> > > > beta that he wasn't concerned about....they were testing him because

> > of the

> > > > burning and twitching at night. Does this sound like the very start of

> > LBD ,

> > > > even at 35?

> > > > > > >

> > > > > > > Thank you in advance for your help.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

He's very good with numbers and can calculate figures in his head...I haven't

seen a problem with this but will keep an eye out. He also hasn't had any

balance issues or falling that I've seen.

His sleeping is of his own doing. He used to have bouts of insomnia but that

was always when he was worrying about work. Now with the gabapentin even if

he's worrying he still falls asleep. As for getting little sleep right now

that's because he sets his alarm to get up at those hours so he can go into work

very early...he owns his own business and works crazy hours to get everything

done. He'll go into work at 3:30 in the morning and not get home from work

until 6pm or later and does this several times a week!!!! It's not like he's

waking up in the middle of the night because he can't sleep.

See, he doesn't see it as keeping it from getting worse because he doesn't think

there's anything there to keep from getting worse!! He thinks I'm crazy and

just worrying for nothing...that I need to stay off the internet because you can

diagnose yourself with so many diseases from it! I can't just make an appt for

him and tell him he forgot he asked me...his memory isn't bad. Other than those

few isolated instances, he's very aware. He's a normal 35 year old!! It would

be like him trying to fool me....I'd definitely know. His family doesn't know

and he's not going to tell them...nor I am because if nothing is wrong we will

have a huge problem in our marriage if I went around him to speak with them.

Plus, they'll think I'm nuts for thinking it to because they haven't seen any of

this. Again, he's a completely normal 35 year old man aside from the few

instances I spoke of. He did have a sleep study done last Feb and it came back

fine!! I'm hoping its the medicine along with lack of sleep and stress but I'm

beginning to think it's not because of all that I read on the internet....even

though it' been only a very few instances along with a few hallucinations over

the course of the last year I can't find anything else on the internet that it

could be. Nothing else comes up in my searches. And like you said, you aren't

convinced I'm on the wrong track and you've experienced seeing this disease. I

just keep thinking of his age and hoping I'm wrong!! I'll just have to keep

looking out for more problems...keep an eye out for the numbers and

falling/balance issues. If it progresses, I'll try to use that and say it's no

longer nothing to get him into the dr. Regardless, if it is lewy body dementia

there's nothing they can do for him...even the medicine won't really by him much

more time. From what I've read, Lewy Body seems to be pretty aggressive.

> > > > > > > >

> > > > > > > > Hi,

> > > > > > > >

> > > > > > > > Honestly, this sounds more like a psychiatric disturbance to me.

> > > I

> > > > > would look into such things as schizophrenia, schizoid/ schizotypal

> > > > > personality disorders, bipolar disorder, psychotic depression...things

> > > like

> > > > > that. There are so many symptoms that are not present that I would

> > > > > personally doubt it would be LBD , especially at his age, regardless

of

> > > > > familial history.

> > > > > > > >

> > > > > > > > You only mention that Lyrica has been tried, but did not mention

> > > if

> > > > > he was on other meds ...if he is, I would also investigate possible

side

> > > > > effects of these.

> > > > > > > >

> > > > > > > > Best of luck...regardless of the final diagnosis, it's stressful

> > > for

> > > > > you!

> > > > > > > >

> > > > > > > > Lori , M.S.

> > > > > > > >

> > > > > > > > [ LBDcaregivers ] New and looking for answers

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Hi,

> > > > > > > >

> > > > > > > > I'm new here and am looking for some guidance. My husband hasn't

> > > > > been diagnosed or even seen regarding this matter as of yet. Here's

> > > some

> > > > > history...he's very young at least in terms of dementia, he's only 35.

> > > His

> > > > > grandfather had alzheimers . He is under a neurologist's care for what

> > > they

> > > > > term restless leg but I think is a small fiber neuropathy ...he has

> > > burning

> > > > > in his feet/legs but no voluntary movements and moving them doesn't

> > > relieve

> > > > > any sensations. His toes used to move involuntarily and he used to

> > > twitch

> > > > > in his sleep but gabapentin is helping that. He was on Lyrica for a

> > > short

> > > > > time but he had horrible nightmares if killing himself so they

switched

> > > > > him. He's had constipation problems from childhood but coffee and

> > > magnesium

> > > > > seem to keep him regular. They've diagnosed him with Irritable Bowel

> > > > > Syndrome....dairy seems to be a trigger.

> > > > > > > >

> > > > > > > > Here's my concern. When he was in his 20's he had two instances

> > > of

> > > > > hallucinations...he doesn't think they were hallucinations. He

> > > believes it

> > > > > was a real instance but that it was a spirit (not an actual living

> > > person).

> > > > > He could describe the man in detail and said the man shook his leg (it

> > > was

> > > > > at night but he was awake...hadn't gone to sleep yet....he found out

> > > > > afterwards that the person he described sounded like the previous

owner

> > > > > before my husband was even born). The other instance was when he saw a

> > > > > bottle cap fly off the counter and noone else was around. Those were

> > > the

> > > > > two he's told me about from yrs ago. In the last year he's told me

> > > about a

> > > > > few more that happened now where he can describe the people. He's also

> > > > > always seen things for many years since his 20's....like a feeling

> > > someone

> > > > > there, seeing a motion out if the corner of his eye etc. He swears

> > > someone

> > > > > us there at work...the lights go off and on, etc. He truly believes in

> > > > > ghosts, spirits and paranormal activit y. Anyway, in the last year he

> > > was

> > > > > sleeping and swears he woke up and saw an image of a little boy (mind

u

> > > > > this was at my parents house where my father swears there's a boy

ghost

> > > > > based on old articles). He also saw at our house a guy in a trench

> > > coat on

> > > > > the side if our house when mowing the lawn...again only happened once.

> > > He

> > > > > also saw a while ago a man in khakis and polo shirt hauling a** as my

> > > > > husband puts it through his bldg at work. He thought at first it was

> > > his

> > > > > dad (they own the business together) but realized it wasnt ....I

> > > believe he

> > > > > may have initially tried to say something to him but not sure. When he

> > > > > realized it wasn't his dad he assumed it was another spirit. About a

> > > month

> > > > > or so ago he saw this person again (same exact thing) and then again

> > > just

> > > > > about a week or so ago. This was the first exp of an image recurring.

> > > A few

> > > > > months ago he saw a little boy at work ( doesnt know if ssme boy from

> > > before

> > > > > as faces arent Always cleaTheseus says the boy (spirit to him) was

> > > mess ing

> > > > > with him like paranormal activity....things were moved and he was the

> > > only

> > > > > one there and knows he didn't move them. He said he thinks his

> > > grandfathers

> > > > > spirit is there cause the lights go off and when he says gramps turn

> > > the

> > > > > lights on they go back on....again hd believes paranormal activity.

> > > These

> > > > > episodes are sporadic and more often it's just a feeling of someone

> > > there

> > > > > or shadows or motions he sees out of the corner of his eye. I was

> > > getting

> > > > > concerned, especially of the one that rebutted 3 times and looked up

> > > > > hallucinations and found all info on LBD . He never hears voices and

he

> > > said

> > > > > the " spirits " never try to contact/speak to him. I'm scared this is

the

> > > > > start of the dementia. He does have some autonomic

> > > issues....constipation,

> > > > > irritable bowel syndrome, burning feet/legs that I think are

> > > misdiagnosed,

> > > > > sometimes his fingers/toes are cold and I don't know why (not all the

> > > > > time), his ears get really red after a shower, his feet would twitch

> > > when

> > > > > sleeping, his body shook really bad once and his hand another time

last

> > > > > year while sleeping. He had a sleep study and all was fine but he had

> > > > > Lyrica in him at the time (and in his system for about a week) so that

> > > > > could have skewed it and his twitches/shaking weren't all the time. Dr

> > > said

> > > > > his brain MRI looked good last year and his EEG had very mild bursts

of

> > > > > beta that he wasn't concerned about....they were testing him because

> > > of the

> > > > > burning and twitching at night. Does this sound like the very start of

> > > LBD ,

> > > > > even at 35?

> > > > > > > >

> > > > > > > > Thank you in advance for your help.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

[Guest guest]

I'm not a doctor - but my Dad does have Lewy Body Dementia. Dad sees

things...when it started it was mostly children and animals. Dad is now in a

nursing home and he now when he looks out the window - there's a wall about 50

feet away with a fence on top - he will see things like guys hunting or a lot of

trees - sometimes people will " appear " in the room with him. He doesn't believe

in ghosts so he's decided that there are a series of tunnels in the nursing home

and these people will pop up and then disappear. The people never talk to him

and he can't describe them in detail. Sometimes he sees my Mom and my sister

there (and I think it's something called capgras) - He has stiffness - and only

slight tremors - there's a lot of pain standing up and walking.

One of the big indicators for me was that my Dad couldn't sequence anymore (he

couldn't put his pills in his pill box - and he was really really struggling

with math) these two things were completely out of charater for my father. And

they were the trigger for me to really look into things....he didn't tell us

about the halucinations right away because he thought he was loosing it. He

wasn't - Lewy Body Dementia is all about plaque...LBD and parkinsons walk

together and it's also my understanding that if altizheimers gets involved there

are tangles in the brain as well. In other words none of these things are

mutually exclusive. It is inherited and it is predomient in men - at least that

is my understanding of it. I also believe my Grandfather had it but it went

undiagnosed.

I know your husband is only 35 but a lot of what is being described at least

from you wrote sounds like Lewy Body - they can have auditory halucinations and

well as ones that effect the sense of smell. Your husband maybe using the only

explaination he has to justify what he's seeing.

I'm also in a support group that has at least two people that are under the age

of 50 who's husbands have it - one of them is a young woman with two children.

I would definetly go to see a neurologist or a neuropscychologist and tell them

that you think this is Lewy Body Dementia - tell them that with authority and

then let the doctors do their job. They will figure it out...Always look for a

phsical explaination for what's going on. Escpeically if there was any kind of

dementia that ran in his family ..... In my experience usually there's usually a

physical explaination for whatever is happening. Look for physical proof first

and do extensive research. I think your off to a good start by looking into LBD

first.

I also got an e-mail from another member of your support group with the

following information: DLBD was added to the list of compassionate benefits

disorders by Social Security meaning no more 2 year wait time for medical

benefits. In addition other Parkinsonisms (PSP, MSA and CBGD) were also

approved.

It's so scary when you realize there is something wrong. It's scarier still

going to the doctor. I remember saying to my Dad. Dad I want you to go see

this doctor because I think something is wrong...He said, " Girl you better be

right! " I said Dad if I'm wrong you can kick my ass around the room and I will

never never mention it again and I apologize in advance for everything if I'm

wrong - I want to be wrong. He did go and he was relieved as we all were to

find out what it was. Once you know what it is THEN you can go about figureing

out what to do and how to cope.

Find a good neurologist or a neuropsychologist in your area - preferably one

that specializes in LBD and then go. In my opnion it's more painful not knowing

what's going on than finding out what it really is.

> > > > > > > >

> > > > > > > > Hi,

> > > > > > > >

> > > > > > > > Honestly, this sounds more like a psychiatric disturbance to me.

> > > I

> > > > > would look into such things as schizophrenia, schizoid/ schizotypal

> > > > > personality disorders, bipolar disorder, psychotic depression...things

> > > like

> > > > > that. There are so many symptoms that are not present that I would

> > > > > personally doubt it would be LBD , especially at his age, regardless

of

> > > > > familial history.

> > > > > > > >

> > > > > > > > You only mention that Lyrica has been tried, but did not mention

> > > if

> > > > > he was on other meds ...if he is, I would also investigate possible

side

> > > > > effects of these.

> > > > > > > >

> > > > > > > > Best of luck...regardless of the final diagnosis, it's stressful

> > > for

> > > > > you!

> > > > > > > >

> > > > > > > > Lori , M.S.

> > > > > > > >

> > > > > > > > [ LBDcaregivers ] New and looking for answers

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Hi,

> > > > > > > >

> > > > > > > > I'm new here and am looking for some guidance. My husband hasn't

> > > > > been diagnosed or even seen regarding this matter as of yet. Here's

> > > some

> > > > > history...he's very young at least in terms of dementia, he's only 35.

> > > His

> > > > > grandfather had alzheimers . He is under a neurologist's care for what

> > > they

> > > > > term restless leg but I think is a small fiber neuropathy ...he has

> > > burning

> > > > > in his feet/legs but no voluntary movements and moving them doesn't

> > > relieve

> > > > > any sensations. His toes used to move involuntarily and he used to

> > > twitch

> > > > > in his sleep but gabapentin is helping that. He was on Lyrica for a

> > > short

> > > > > time but he had horrible nightmares if killing himself so they

switched

> > > > > him. He's had constipation problems from childhood but coffee and

> > > magnesium

> > > > > seem to keep him regular. They've diagnosed him with Irritable Bowel

> > > > > Syndrome....dairy seems to be a trigger.

> > > > > > > >

> > > > > > > > Here's my concern. When he was in his 20's he had two instances

> > > of

> > > > > hallucinations...he doesn't think they were hallucinations. He

> > > believes it

> > > > > was a real instance but that it was a spirit (not an actual living

> > > person).

> > > > > He could describe the man in detail and said the man shook his leg (it

> > > was

> > > > > at night but he was awake...hadn't gone to sleep yet....he found out

> > > > > afterwards that the person he described sounded like the previous

owner

> > > > > before my husband was even born). The other instance was when he saw a

> > > > > bottle cap fly off the counter and noone else was around. Those were

> > > the

> > > > > two he's told me about from yrs ago. In the last year he's told me

> > > about a

> > > > > few more that happened now where he can describe the people. He's also

> > > > > always seen things for many years since his 20's....like a feeling

> > > someone

> > > > > there, seeing a motion out if the corner of his eye etc. He swears

> > > someone

> > > > > us there at work...the lights go off and on, etc. He truly believes in

> > > > > ghosts, spirits and paranormal activit y. Anyway, in the last year he

> > > was

> > > > > sleeping and swears he woke up and saw an image of a little boy (mind

u

> > > > > this was at my parents house where my father swears there's a boy

ghost

> > > > > based on old articles). He also saw at our house a guy in a trench

> > > coat on

> > > > > the side if our house when mowing the lawn...again only happened once.

> > > He

> > > > > also saw a while ago a man in khakis and polo shirt hauling a** as my

> > > > > husband puts it through his bldg at work. He thought at first it was

> > > his

> > > > > dad (they own the business together) but realized it wasnt ....I

> > > believe he

> > > > > may have initially tried to say something to him but not sure. When he

> > > > > realized it wasn't his dad he assumed it was another spirit. About a

> > > month

> > > > > or so ago he saw this person again (same exact thing) and then again

> > > just

> > > > > about a week or so ago. This was the first exp of an image recurring.

> > > A few

> > > > > months ago he saw a little boy at work ( doesnt know if ssme boy from

> > > before

> > > > > as faces arent Always cleaTheseus says the boy (spirit to him) was

> > > mess ing

> > > > > with him like paranormal activity....things were moved and he was the

> > > only

> > > > > one there and knows he didn't move them. He said he thinks his

> > > grandfathers

> > > > > spirit is there cause the lights go off and when he says gramps turn

> > > the

> > > > > lights on they go back on....again hd believes paranormal activity.

> > > These

> > > > > episodes are sporadic and more often it's just a feeling of someone

> > > there

> > > > > or shadows or motions he sees out of the corner of his eye. I was

> > > getting

> > > > > concerned, especially of the one that rebutted 3 times and looked up

> > > > > hallucinations and found all info on LBD . He never hears voices and

he

> > > said

> > > > > the " spirits " never try to contact/speak to him. I'm scared this is

the

> > > > > start of the dementia. He does have some autonomic

> > > issues....constipation,

> > > > > irritable bowel syndrome, burning feet/legs that I think are

> > > misdiagnosed,

> > > > > sometimes his fingers/toes are cold and I don't know why (not all the

> > > > > time), his ears get really red after a shower, his feet would twitch

> > > when

> > > > > sleeping, his body shook really bad once and his hand another time

last

> > > > > year while sleeping. He had a sleep study and all was fine but he had

> > > > > Lyrica in him at the time (and in his system for about a week) so that

> > > > > could have skewed it and his twitches/shaking weren't all the time. Dr

> > > said

> > > > > his brain MRI looked good last year and his EEG had very mild bursts

of

> > > > > beta that he wasn't concerned about....they were testing him because

> > > of the

> > > > > burning and twitching at night. Does this sound like the very start of

> > > LBD ,

> > > > > even at 35?

> > > > > > > >

> > > > > > > > Thank you in advance for your help.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >