Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Ibuprofen suspension (sub for motrin) 100 mg/5ml 2 and 1/2 teaspoon Every six hours or as needed. Judy in Texas Mother of nine yr old w/ chiari 1 Pseudotumor cerebri VP shunt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 HEADACHE MEDICATIONS: Prior to surgery- received the best relief from tylenol with codeine. Motrin was given for break through pain. Katlyn was also taking diamoxx that seemed to help. Diamoxx was discontinued on the day of her third decompression/odontoidectomy. Post surgery - (Once released from the hospital) she took valium/tylenol with codeine. At six months post op it was realized that she needed to continue on some sort of pain relief so the choice was made to change her to vioxx and midrin. These two medications have made such a difference for her -- even in regards to her concentration for school work. Faith What Do You take for your Headaches? Could you post to all what med you take for Head aches. ------------------------------------------------------------------------ WACMA Site: http://www.pressenter.com/~wacma Your Personal support group member page: http://www.eGroups.com/group/chiari/ **Avoid List Congestion: Unsubscribe from this list: mailto:chiari-unsubscribeegroups Contact list mgmt: mailto:chiari-owneregroups ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 If you are in chronic pain (24/7/365 days), See about trying Duragesic (Fentanyl) Patches. They last 72 hrs at a time and have few side effects. It is a narcotic, but is not as addictive as most. I have been using it and it has been a life saver! The other nice thing about it is it is just meant to bring you back to a somewhat " normal " level. You can still use another pain reliever with it occasionally for brak-thru pain if necessary. Cool huh? It comes in 5 different strengths. And the best part - no lapses in relief! Here is a website to check it out: http://www.intelihealth.com/IH/ihtIH/WSAOL002/8124/11453/213926.html Another good site to check out all drugs is: http://www.intelihealth.com/IH/ihtIH?t=8124 & r=WSAOL002 Hope this helps some. Take care & God Bless, Donna M. andria, VA Hypoglycemic, Pseudotumor 12/93, 4 LP shunts & revisions 3/94, 7/94 x 2, 8/94, removed 12/94 ACM I decompression 8/29/94 (all surgeries done by Dr Heffez) More problems, going thru all the rigamarow again :-) Dr Heffez said no surgical problems, may still be Chiari related, possibly high pressure (pseudotumor) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 A great combo is Darvocet and flexiril What Do You take for your Headaches? Could you post to all what med you take for Head aches. ------------------------------------------------------------------------ WACMA Site: http://www.pressenter.com/~wacma Your Personal support group member page: http://www.eGroups.com/group/chiari/ **Avoid List Congestion: Unsubscribe from this list: mailto:chiari-unsubscribeegroups Contact list mgmt: mailto:chiari-owneregroups ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 My husband uses Duragesic for his cancer pain, it does work small miracles without affecting your general senses. No fuzzy brain syndrom from pain meds. Helen Re: What Do You take for your Headaches? If you are in chronic pain (24/7/365 days), See about trying Duragesic (Fentanyl) Patches. They last 72 hrs at a time and have few side effects. It is a narcotic, but is not as addictive as most. I have been using it and it has been a life saver! The other nice thing about it is it is just meant to bring you back to a somewhat "normal" level. You can still use another pain reliever with it occasionally for brak-thru pain if necessary. Cool huh? It comes in 5 different strengths. And the best part - no lapses in relief! Here is a website to check it out:http://www.intelihealth.com/IH/ihtIH/WSAOL002/8124/11453/213926.htmlAnother good site to check out all drugs is:http://www.intelihealth.com/IH/ihtIH?t=8124 & r=WSAOL002Hope this helps some.Take care & God Bless,Donna M.andria, VAHypoglycemic,Pseudotumor 12/93, 4 LP shunts & revisions 3/94, 7/94 x 2, 8/94, removed 12/94ACM I decompression 8/29/94(all surgeries done by Dr Heffez)More problems, going thru all the rigamarow again :-)Dr Heffez said no surgical problems, may still be Chiari related, possibly high pressure (pseudotumor) WACMA Site: http://www.pressenter.com/~wacma Your Personal support group member page: http://www.eGroups.com/group/chiari/ **Avoid List Congestion: Unsubscribe from this list: mailto:chiari-unsubscribeegroups Contact list mgmt: mailto:chiari-owneregroups eGroups.com Home: /group/chiariwww. - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 I have suffered from migraine type headaches since my youth. They are not true migraines because they don't pound, just constantly hurt. Neither am I ultra sensitive to light and sound like true migraine suffers. However, if I don't medicate them, I will end up throwing up repeatedly and they do completely incapacitate me. OTC analgesics such as aspirin and Ibuprofen only help a tad. I have tried all the normal prescription migraine stuff and found it of little help. (I haven't tried the real new stuff.) The only effective non-morphine med that I have found for mine is high doses of caffeine. However, I found for it to be the most effective, that I cannot use it at all unless it is for headaches. (no cola, coffee or tea) I also have critical insomnia and caffeine even in low doses of 25 mg can do a number on it. At times I have used 1500 mg during an attack, but commonly I try to keep it down to the minimum, usually around 50-100. Mine are also helped by the fact that I also use Inderal, (propranalol, generic) as a high blood pressure med and a heart rate controller, which also reduces the severity of chronic migraines. It will not stop an attack, but just reduces the severity and number of attacks. None of the herbal meds I have tried do anything to help. What Do You take for your Headaches? >Could you post to all what med you take for Head aches. > >------------------------------------------------------------------------ >WACMA Site: http://www.pressenter.com/~wacma >Your Personal support group member page: http://www.eGroups.com/group/chiari/ >**Avoid List Congestion: >Unsubscribe from this list: mailto:chiari-unsubscribeegroups >Contact list mgmt: mailto:chiari-owneregroups > >------------------------------------------------------------------------ > >eGroups.com home: /group/chiari > - Simplifying group communications > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 I have suffered since my teens I have tried everything.It seems to me that fiorcet is the only headache remedy except for Toradol,Ask your Doc.Hope you can find some relief with one of these medications. KK IN OKLA [CHIARIAN] --- Bunker wrote: > > I have suffered from migraine type headaches since > my youth. They are not > true migraines because they don't pound, just > constantly hurt. Neither am I > ultra sensitive to light and sound like true > migraine suffers. However, if > I don't medicate them, I will end up throwing up > repeatedly and they do > completely incapacitate me. > > OTC analgesics such as aspirin and Ibuprofen only > help a tad. I have tried > all the normal prescription migraine stuff and found > it of little help. (I > haven't tried the real new stuff.) The only > effective non-morphine med that > I have found for mine is high doses of caffeine. > However, I found for it to > be the most effective, that I cannot use it at all > unless it is for > headaches. (no cola, coffee or tea) > > I also have critical insomnia and caffeine even in > low doses of 25 mg can do > a number on it. At times I have used 1500 mg during > an attack, but commonly > I try to keep it down to the minimum, usually around > 50-100. Mine are also > helped by the fact that I also use Inderal, > (propranalol, generic) as a high > blood pressure med and a heart rate controller, > which also reduces the > severity of chronic migraines. It will not stop an > attack, but just reduces > the severity and number of attacks. > > None of the herbal meds I have tried do anything to > help. > > > > > What Do You take for your > Headaches? > > > >Could you post to all what med you take for Head > aches. > > > >------------------------------------------------------------------------ > >WACMA Site: http://www.pressenter.com/~wacma > >Your Personal support group member page: > http://www.eGroups.com/group/chiari/ > >**Avoid List Congestion: > >Unsubscribe from this list: > mailto:chiari-unsubscribeegroups > >Contact list mgmt: mailto:chiari-owneregroups > > > >------------------------------------------------------------------------ > > > >eGroups.com home: > /group/chiari > > - Simplifying group > communications > > > > > > > > > ------------------------------------------------------------------------ > WACMA Site: http://www.pressenter.com/~wacma > Your Personal support group member page: > http://www.eGroups.com/group/chiari/ > **Avoid List Congestion: > Unsubscribe from this list: > mailto:chiari-unsubscribeegroups > Contact list mgmt: mailto:chiari-owneregroups > > ------------------------------------------------------------------------ > -- Check out your group's private Chat room > -- > /ChatPage?listName=chiari & m=1 > > ===== IN LOVING MEMORY[DADDY-4-25-99] CANCER CURE 2000 KAREN __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 if they are REALLY REALLY bad, I have an on going script from my GP :-) to go to ER and get injections of Nubane with either compazine or vistoral. I don't need to call him and neither does the hospital. It's in my records.....ordered by him.. And if I go to different er all they do is call him. And then it's in their records too. What I take for chronic right now that kinda works......it at least dulls it is Zydone. If you are like me with many many meds under your belt, there are very few things beside triple scripts that will take away all pain. Though let me tell you, it would be nice to be pain free if just for a few hours...lol. So far since surgery I've only given in 3 times and gone to er. I can't wait till it is available by prescription......i don't care if it is a needle or not!!!! Another really good med is Stadol NS. It's a morphine der. BUT it is available WITHOUT triple script. Good Luck finding what's right for you!!! Hope I have been of some help. Vickialmost 8 wks post op Chiari 2Ready to SCREAM!!tattoodlady@... Re: What Do You take for your Headaches? If you are in chronic pain (24/7/365 days), See about trying Duragesic (Fentanyl) Patches. They last 72 hrs at a time and have few side effects. It is a narcotic, but is not as addictive as most. I have been using it and it has been a life saver! The other nice thing about it is it is just meant to bring you back to a somewhat "normal" level. You can still use another pain reliever with it occasionally for brak-thru pain if necessary. Cool huh? It comes in 5 different strengths. And the best part - no lapses in relief! Here is a website to check it out:http://www.intelihealth.com/IH/ihtIH/WSAOL002/8124/11453/213926.htmlAnother good site to check out all drugs is:http://www.intelihealth.com/IH/ihtIH?t=8124 & r=WSAOL002Hope this helps some.Take care & God Bless,Donna M.andria, VAHypoglycemic,Pseudotumor 12/93, 4 LP shunts & revisions 3/94, 7/94 x 2, 8/94, removed 12/94ACM I decompression 8/29/94(all surgeries done by Dr Heffez)More problems, going thru all the rigamarow again :-)Dr Heffez said no surgical problems, may still be Chiari related, possibly high pressure (pseudotumor) WACMA Site: http://www.pressenter.com/~wacma Your Personal support group member page: http://www.eGroups.com/group/chiari/ **Avoid List Congestion: Unsubscribe from this list: mailto:chiari-unsubscribeegroups Contact list mgmt: mailto:chiari-owneregroups eGroups.com Home: /group/chiariwww. - Simplifying group communications WACMA Site: http://www.pressenter.com/~wacma Your Personal support group member page: http://www.eGroups.com/group/chiari/ **Avoid List Congestion: Unsubscribe from this list: mailto:chiari-unsubscribeegroups Contact list mgmt: mailto:chiari-owneregroups eGroups.com Home: /group/chiariwww. - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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