Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 , Just give me her email address and I will sign her up. That might be easier! Mom to Kennedy 2yr old CHARGEr, 10, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476 (unknown) Hi everyone!I have a lady who is interested in becoming a member of this group. She also has a son with CHARGE. I am not computer smart at all and cannot tell her how to sign up. I don't even remember how I did it!Someone, please email me and tell me how to explain it to her.Thanks!________________________________________________________________________Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.comFor information about the CHARGE Syndrome Foundation or to become a member please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Hope gets better soon Way to go with the pointing to where it hurts Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Raena, I hope the ear infection get better quickly. BTW, we take down our decorations on Xmas day after everyone leaves. I am so sick of Xmas by then and just want my house back that I can't wait any longer. Tamara ----Original Message Follows---- Reply-To: parenting_autism To: parenting_autism Subject: (unknown) Date: Fri, 28 Dec 2001 22:37:08 -0000 Hello all, Just checking in...' Christmas cold has turned into a rather nasty ear infection, so we are doing the all-nighters, lying around on top of Mom, cough meds, and antibiotics routine...so much fun. Only cool thing about it is that my husband asked him yesterday morning if his ear hurt (I guess something made him suspicious), and said, " Yuh " and touched his ear. A trip to the doctor (unreal...) confirmed that he indeed has one of the worst ear infections he's had in a while. One thing I have decided...the more sick is, the worse he will fight at the doctor's office---I guess the thought of having a sore ear invaded by that otoscope is more than he can deal with. We had quite a wrestling match getting the exam done. :-( Just when I had started to think he was not minding the doc so much...oh well. Raena (taking down the Christmas stuff this afternoon...ready to be " all done " ) _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Ear infections are nasty. If you have had one as an adult you know why kids are so hard to deal with when they have one. Hope feels better soon (unknown) Date: Fri, 28 Dec 2001 22:37:08 -0000 Hello all, Just checking in...' Christmas cold has turned into a rather nasty ear infection, so we are doing the all-nighters, lying around on top of Mom, cough meds, and antibiotics routine...so much fun. Only cool thing about it is that my husband asked him yesterday morning if his ear hurt (I guess something made him suspicious), and said, " Yuh " and touched his ear. A trip to the doctor (unreal...) confirmed that he indeed has one of the worst ear infections he's had in a while. One thing I have decided...the more sick is, the worse he will fight at the doctor's office---I guess the thought of having a sore ear invaded by that otoscope is more than he can deal with. We had quite a wrestling match getting the exam done. :-( Just when I had started to think he was not minding the doc so much...oh well. Raena (taking down the Christmas stuff this afternoon...ready to be " all done " ) _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Raena, I'm sorry isn't feeling well, and I hope he gets better soon! With Gabe's recent ear infection I had great success with some homeopathic earache tablets. They're very safe & there are no drug interactions. Just something to maybe try next time; maybe you can avoid another dr visit like that...if you think he has an ear infection, give them a shot; if they help you were right. I know about those dr visits but Mikey's just 2...amazing how strong he is. Does have that super-human-strength? Man. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 >> With Gabe's recent ear infection I had great success with some homeopathic earache tablets. They're very safe & there are no drug interactions. Just something to maybe try next time; maybe you can avoid another dr visit like that...if you think he has an ear infection, give them a shot; if they help you were right. :>> What are these called? I would love to avoid another round of antibiotics...HATE using those too much...but at a certain point, it's all you can do. :-( >>I know about those dr visits but Mikey's just > 2...amazing how strong he is. Does have that super-human- strength?>> Yup, and he weighs 80 lbs now. I have to schedule the appointments when my husband can meet us there to help out. Unreal...if that stops working the next step will be a sedative (and we all know how well THAT will work...). Fun, eh? Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 > What are these called? I would love to avoid another round of > antibiotics...HATE using those too much...but at a certain point, > it's all you can do. :-( I know, we're the same way. There are lots of brands but the box or vial will say " homeopathic earache remedy. " Hyland's is a good brand & their pamphlet says they are monitored by the FDA. You'll find Hyland's sometimes at WalMart etc, often around the teething products. Otherwise hit natural/health food stores. Wild Oats and Trader Joe's are national chains that would have them. The homeopathic stuff we've tried for Mikey has not worked well. For Gabe it's been pretty much all we've needed. Biochemistry...But it's worth a shot anyway. They are fairly inexpensive, $5-15. > Yup, and he weighs 80 lbs now. I have to schedule the appointments > when my husband can meet us there to help out. Unreal...if that > stops working the next step will be a sedative (and we all know how > well THAT will work...). Ugh. Unreal is the word... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 OK but what kind of shampoo is it???? Huggles you lots Sophia -- (unknown) Hey I was losing my hair to but I have stopped my hair loss, I bought some inexpensive hair products to help me. you wouldn't believe how this shampoo makes your hair feel even after the first try. I am 28 years old and I am the only one in my family to lose my hair and I know its because of the fms. But I thank my lucky stars that i've stopped it in its stracks.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 Terri, Welcome to the group, I hope you feel at home here and get the information and friendship you need. I am sorry you have FMS but am glad you found us... can't wait to get to know you better hugs Huggles you lots Sophia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Hi Casey Thanks for your response. I am using Praire Naturals 369 as my Omega 3, 6, 9'.s supplements, and have only been doing it for a short while, so will give it a couple of months to see if I feel any better....anywhere...LOL Yes, I definately plan to stop the smoking, I have only a few left in my pack, and I am holding on to them like they were my life saver instead of my demise. I live out in the country, and have told my husband to not bring me home anymore. He doesn't smoke, so ok there. So I expect by tomorrow morning I will be out of cigarettes and on the patch. Thats my plan in any event. Twenty five years is a long time to be on the medications, and yes I realize things won't improve for me overnight. I have come so far, when I think about where I was one year ago. I truly wanted to die I was so sick in withdrawal. I never thought I would improve and get through it but I did. Now I am left with the fatigue from not sleeping, and the brainfog. I forgot to mention that I have Celiac Disease and have to be so careful what I ingest. Celiac Disease is an allergy to all grains, so no wheat, rye, barly, oats, bran, etc. for me. I am also in the throws of menopause and just recently put on .625 Premarin, I have been on about a month now, and have experienced considerable relief from the hot flashes and night sweats. But this sleep issue is getting the best of me. Thanks Casey, Love to you Deborah > Deborah, > > Let me second a few things Kim said. First, as for the fish oil I > tried a bunch and finally found Carlson's when I landed here and > have never changed. You WILL notice the difference. Get the liquid > kind. It tastes like lemons. > > Also, patience will have to rule the day. ALthough my experience > didn't last 25 years, I was jerked off benzos cold turkey, put on a > host of others, then finally put back on benzos. All I have left now > is the Ativan and I am going slowly. My point is that during that > time, especially before I found this Godsend and immediately after I > was always in a hurry. I was always trying to just get the stuff out > of my system. Patience and understanding it will take time to undo > some of the damage will help you. You will be well served and will > prevent further damage by being patient and that includes smoking. > Your body needs time to heal and adjust so if you quit then surely > go the patch or gum way. I learned that lesson just recently the > hard way. > > Lastly, juicing and exercise has helped me immeasurably. God bless, > > Casey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 > I can't go on with this - its been five months now and the last two have > been torchorous in the head. Waking up screaming in the night and unsteady > on feet in the day. Like being punch drunk. Under alot of pressure to go > back on the meds but the 3 year tapering was never as bad as this. I just > want to go back on them. >> ** That's not the answer. It's been too long. Your brqain will not adjust to them. Tell what you're doing to help yourself. -- Regards, Quote Link to comment Share on other sites More sharing options...
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