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Re: New TV series about LBD!

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Hi Kathy

Thanks for sharing - I guess this gives me ample warning and time to have plenty

of ice cream and

Judy R. Strauss LMSW PhD parfaits !

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> I agree, Robin. No one should identify themselves or a family member as

> having LBD based on this, or any other, show. Besides, the show seems to be

> more about corrupt politics, with the mayor having LBD simply complicating

> those politics. I am glad, though, that LBD is a major part of the plot and

> will, presumably, be mentioned often on a show that is on a major (premium)

> network with major stars in the primary roles. I do agree that this

> exposure could be very helpful, provided they do their homework and try to

> be accurate.

>

> Judy, as far as familial issues, when my mother was diagnosed with LBD,

> complicated with Parkinsonian aspects and Alzheimer's, we discussed her

> family history. Both of her parents had dementia. Only her father was

> given a specific diagnosis and that was Alzheimer's. That diagnosis was in

> 1965. Mom's neuropsych strongly suspects, from what we have told him of my

> grandfather's symptoms and behavior, plus his reaction to medications, that

> it was really LBD. I am now exhibiting some of Mom's earlier symptoms

> (which were, of course, misdiagnosed), most prominently tremors, but also

> memory loss, hearing sounds that aren't there, etc. I am going through my

> own battery of tests to find out what is going on. Mom's brother has been

> in denial about his own symptoms for years. So I absolutely believe there

> is a familial aspect to LBD in at least some cases.

>

> Kathy

>

> On Fri, Oct 21, 2011 at 11:27 AM, helen_medsger wrote:

>

> > **

> >

> >

> > Judy:

> >

> > Currently the medical and research communities can't definitely say that it

> > runs in families, however, there are genetic anomalies that they are looking

> > at. My sister (61) has a DX of LBD, my father died with LBD, my youngest

> > brother (52) has a PD DX with mild cognitive impairment and our first cousin

> > has PD (78).

> >

> > Our entire generation is in research, so we continue to hope that they will

> > find something that will help answer the genetics question.

> >

> >

> > > > >

> > > > ...

> > > > > first reaction - When the episode starts the doctor explains what the

> > mayor can expect - it made me more sure than ever that mom indeed has LBD !

> > One of the issues that my mom didn't experience is hallucinations - she had

> > delusions - that we have no question about - but never saw " hallucinations

> > " and the doctor in fact mentions delusions and does not highlight

> > hallucinations -

> > > > >

> > > > ...

> > > > > QUESTION -

> > > > >

> > > > > Did I miss something or HOW DID THEY GIVE YHE DIAGNOSIS OF LBD TO THE

> > MAIN CHARACTER???? what tests or examination was done that lead to the

> > diagnosis ?? Symptoms ??r

> > > > >

> > > >

> > > >

> > >

> > >

> > >

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