Re: ROLL CALL!-Imogen

[Guest guest]

I too am very depressed today. A lot has happened to me, personally, in the

last month, and I just thought that I would take a moment to read the

posts...but as I read them, I cry.

I believe that the holidays bring about so many memories of our special loved

ones. I too can go through days just fine, but then something happens and I am

again flung into that 'huge void' that used to house my sweet, dear, loving Mom.

It is OK...your journey ended a lot more recently than mine. You need to allow

yourself to feel the emotions that come and go.

> > > >

> > > > Everybody - a suggestion was made that we each post a 'status update' on

where we are in our respective journies and I think that's a great idea.

> > > >

> > > > Start a new post or reply to this one - whichever is easier...

> > > >

> > > > I'll get us started ...

> > > >

> > > > As you know my mom is gone since 2006. But I think/breath/live Lewy on

daily basis by providing information for LBDCaregivers & the famous Links

section, facilitating a support group in my neck of the woods (had a meeting

last night) and managing the LBDA page on Facebook.

> > > >

> > > > We had a very successful LBD Awareness Week last month. In Mass. alone

we had 4 events, all different, from a lecture by Gomperts, MD of Mass.

General Hospital, to art therapy for caregivers, to a book signing by

Graboys, MD, to a race - which made history again by bringing in more donations

for one event to LBDA. Many people made the above possible - I'm proud to have

been one of many...

> > > >

> > > > Where are YOU in this journey?

> > > >

> > > > ; loving daughter of Maureen of Boston, MA; dx'd with LBD in

2/2006 (confirmed via brain biopsy;) fell victim to rapid decline from

Risperidone; Mom fell into the 50% category of those who could not handle

antipsychotics; Was successful on Celexa, Exelon, ALA & B1; Mom became my

Guardian Angel on Sept. 30th, 2006.

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