Re: Hospice and stopping meds

[Guest guest]

Hi, Judy,

 

My mom was experiencing a lot of problems last year around this time, got left

hip fracture and stayed in hospital for about a week, I have asked opinions on

this bord on whether should do sugery on her. Decided no sugery, considering her

walk before the fracture already very unsteady and she can't follow any

directions which is needed for after sugery rehab. We bring mom to home from the

hospital, start home hospice,at the time, she barely eat any solid food, depend

alot on ensure, and the same dosage of comding she's on for about 10 years got

her internal bleeding. Stopped all her med (Aricept, Namanda, Serequal etc.),

the only medication remained the first a few month is Melotonia to help her

sleep and Tylono to control pain also help her sleep, also replaced comeding

with Asprin along with Digox for her AF. Gradually she's getting better in

terms, eating and sleep. She no can no longer walk or even stand up by

herself. But she's in better mood,

looks to me more like nature agining now than last year aroud this time when we

have tried all different med to help her sleep (she will up all night, yelling,

scared and very angry), and calm her down. No any ER or hospital visit since she

start hospice at home. Just last week, the hospice Dr. told us, since my mom is

doing so well  (or Stable at her current stage: can understand us, but we can't

understand what she's trying to tell us. Wake up time abour 8 hours, the rest of

time sleep or lie on bed talk to herself, can eat finger food with her left

hand, her right hand no longer works which I kind of think is from one med she

tried last year around this time), Hospice has to stop due to 6 month rule, she

has been put under palative care plan for now. Will see. My experience with mom

will be the less the med the better. my mom is 81, was first diagnosed AD in

2008 then LBD in 2009.

 

- Min

To: " LBDcaregivers " <LBDcaregivers >

Sent: Wednesday, August 24, 2011 4:25 PM

Subject: Hospice and stopping meds

 

Hello friends

My mother is on home hospice - totally despondent and starting to eat less but

can still swallow - the team, her doctor and our Family are discussing stopping

her meds- since we believe some of these might either be doing

More harm or keeping her in this state ( no quality of life ) longer!!

Can anyone shed some light on if at

The last stage of LBD it is kinder and more humane to wean your lo off all or

Most Meds?

Thanks for any help On this issue ??

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

[Guest guest]

Mim

Thanks for message - seems like your mom is

Far more active and still talking - mine is completely mute and doesn't know who

anyone is although she still reaches her hand out to everyone ! My mom can

barely walk and can't control urine and barely an get her to bathroom for

bowels - ends up in a

Big Mess -

What is similar is both our moms are on home hospice / although yours now still

on the program - I think of my mom doesn't get worse / her vital signs are all

good - same thing will happen with hospice after 6 months -

As for the Meds- I don't think any of

Them are doing anything for her - the parkinsons Meds never helped and I velieve

could be making her worse ! the excellon patch males her more zombi like in my

opinion

The blood pressure meda I'm not sure of they are helping - her pressure has been

good - she is on cymbalta for depression and I'm Afraid if they remove that

since I would hate to see her depressed - although it's hars to tell that -shows

no emotion at all!

She is bedridden - no quality of life - does not speak - understands nothing -

and relates to Noone or anything - stares at rhe tv most of

The day or sleeps -

Eating - She has to be fed soup bit will pick up a small cookie in

If put in front Of her - so far swallowing seems ok although after she eats

solids she takes. Napkin and spits pieces of food into it!

I think we will only be able to see about the impact of the Meds if we start to

cut then down - one at a time I suppose - will find out more tomorrow - what a

nasty disease - within the last 2 yrs stopped moving - speaking - recognizing

us- had to

Be put in diapers -

And the worst part is we have no idea how long this can go on for !

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> Hi, Judy,

>

> My mom was experiencing a lot of problems last year around this time, got left

hip fracture and stayed in hospital for about a week, I have asked opinions on

this bord on whether should do sugery on her. Decided no sugery, considering her

walk before the fracture already very unsteady and she can't follow any

directions which is needed for after sugery rehab. We bring mom to home from the

hospital, start home hospice,at the time, she barely eat any solid food, depend

alot on ensure, and the same dosage of comding she's on for about 10 years got

her internal bleeding. Stopped all her med (Aricept, Namanda, Serequal etc.),

the only medication remained the first a few month is Melotonia to help her

sleep and Tylono to control pain also help her sleep, also replaced comeding

with Asprin along with Digox for her AF. Gradually she's getting better in

terms, eating and sleep. She no can no longer walk or even stand up by herself.

But she's in better mood,

> looks to me more like nature agining now than last year aroud this time when

we have tried all different med to help her sleep (she will up all night,

yelling, scared and very angry), and calm her down. No any ER or hospital visit

since she start hospice at home. Just last week, the hospice Dr. told us, since

my mom is doing so well (or Stable at her current stage: can understand us, but

we can't understand what she's trying to tell us. Wake up time abour 8 hours,

the rest of time sleep or lie on bed talk to herself, can eat finger food with

her left hand, her right hand no longer works which I kind of think is from one

med she tried last year around this time), Hospice has to stop due to 6 month

rule, she has been put under palative care plan for now. Will see. My experience

with mom will be the less the med the better. my mom is 81, was first diagnosed

AD in 2008 then LBD in 2009.

>

> - Min

>

>

> To: " LBDcaregivers " <LBDcaregivers >

> Sent: Wednesday, August 24, 2011 4:25 PM

> Subject: Hospice and stopping meds

>

>

> Hello friends

>

> My mother is on home hospice - totally despondent and starting to eat less but

can still swallow - the team, her doctor and our Family are discussing stopping

her meds- since we believe some of these might either be doing

> More harm or keeping her in this state ( no quality of life ) longer!!

>

> Can anyone shed some light on if at

> The last stage of LBD it is kinder and more humane to wean your lo off all or

> Most Meds?

>

> Thanks for any help On this issue ??

>

> Judy

>

> Judy R. Strauss LMSW PhD

>

> Lead Faculty

> University of Phoenix

>

> Jersey City Campus

> 100 Town Square Place

> |Jersey City, NJ 07310

> Cell-

> Email- Jrstr@...

>

>

[Guest guest]

Dear Judy and Mim,

 

I have been reading your posts and I also have a father with LBD now about 3

years that we know about. I am a hospice nurse and the regulations are; if the

patient has shown any signs of decline, such as a change of medication,

decreased weight, loss of appetite, any choking episodes, anything that has been

charted is enough to keep them on hospice and be re-certified after the 6 month

period. We have some patients that have been on a slow decline for about 3 years

now, but it has to do with the nurses documentation of the declines. If they are

documenting everything is the same, you have no choice but to be discharged.

That is all Medicare will see. Taking the patient off her medications, is a

decline. If I were you, I would talk to your nurse, or their supervisor and ask

if the declines are being charted. Any falls, increase in incontinence, etc. are

examples of declines. There are probably many if you just sit and write them

down. Show them to your

nurse. If they aren't told, it will be charted as no declines. Hope this helps.

It is a terrible disease and no one should have to go through these things. My

Dad's primary caregiver is my mother, who seems to be showing signs of early

Alzheimer's, which is not good. She is very stubborn and so far, I have not been

able to get her to agree to see her doctor. But things are about to change as my

brother is coming this week end and there is power in numbers. Praying for all

who are going through this experience.

 

Blessings,

 

s, RN,BSN 

To: " LBDcaregivers " <LBDcaregivers >

Sent: Wednesday, August 24, 2011 11:18 PM

Subject: Re: Hospice and stopping meds

 

Mim

Thanks for message - seems like your mom is

Far more active and still talking - mine is completely mute and doesn't know who

anyone is although she still reaches her hand out to everyone ! My mom can

barely walk and can't control urine and barely an get her to bathroom for

bowels - ends up in a

Big Mess -

What is similar is both our moms are on home hospice / although yours now still

on the program - I think of my mom doesn't get worse / her vital signs are all

good - same thing will happen with hospice after 6 months -

As for the Meds- I don't think any of

Them are doing anything for her - the parkinsons Meds never helped and I velieve

could be making her worse ! the excellon patch males her more zombi like in my

opinion

The blood pressure meda I'm not sure of they are helping - her pressure has been

good - she is on cymbalta for depression and I'm Afraid if they remove that

since I would hate to see her depressed - although it's hars to tell that -shows

no emotion at all!

She is bedridden - no quality of life - does not speak - understands nothing -

and relates to Noone or anything - stares at rhe tv most of

The day or sleeps -

Eating - She has to be fed soup bit will pick up a small cookie in

If put in front Of her - so far swallowing seems ok although after she eats

solids she takes. Napkin and spits pieces of food into it!

I think we will only be able to see about the impact of the Meds if we start to

cut then down - one at a time I suppose - will find out more tomorrow - what a

nasty disease - within the last 2 yrs stopped moving - speaking - recognizing

us- had to

Be put in diapers -

And the worst part is we have no idea how long this can go on for !

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> Hi, Judy,

>

> My mom was experiencing a lot of problems last year around this time, got left

hip fracture and stayed in hospital for about a week, I have asked opinions on

this bord on whether should do sugery on her. Decided no sugery, considering her

walk before the fracture already very unsteady and she can't follow any

directions which is needed for after sugery rehab. We bring mom to home from the

hospital, start home hospice,at the time, she barely eat any solid food, depend

alot on ensure, and the same dosage of comding she's on for about 10 years got

her internal bleeding. Stopped all her med (Aricept, Namanda, Serequal etc.),

the only medication remained the first a few month is Melotonia to help her

sleep and Tylono to control pain also help her sleep, also replaced comeding

with Asprin along with Digox for her AF. Gradually she's getting better in

terms, eating and sleep. She no can no longer walk or even stand up by herself.

But she's in better mood,

> looks to me more like nature agining now than last year aroud this time when

we have tried all different med to help her sleep (she will up all night,

yelling, scared and very angry), and calm her down. No any ER or hospital visit

since she start hospice at home. Just last week, the hospice Dr. told us, since

my mom is doing so well (or Stable at her current stage: can understand us, but

we can't understand what she's trying to tell us. Wake up time abour 8 hours,

the rest of time sleep or lie on bed talk to herself, can eat finger food with

her left hand, her right hand no longer works which I kind of think is from one

med she tried last year around this time), Hospice has to stop due to 6 month

rule, she has been put under palative care plan for now. Will see. My experience

with mom will be the less the med the better. my mom is 81, was first diagnosed

AD in 2008 then LBD in 2009.

>

> - Min

>

>

> To: " LBDcaregivers " <LBDcaregivers >

> Sent: Wednesday, August 24, 2011 4:25 PM

> Subject: Hospice and stopping meds

>

>

> Hello friends

>

> My mother is on home hospice - totally despondent and starting to eat less but

can still swallow - the team, her doctor and our Family are discussing stopping

her meds- since we believe some of these might either be doing

> More harm or keeping her in this state ( no quality of life ) longer!!

>

> Can anyone shed some light on if at

> The last stage of LBD it is kinder and more humane to wean your lo off all or

> Most Meds?

>

> Thanks for any help On this issue ??

>

> Judy

>

> Judy R. Strauss LMSW PhD

>

> Lead Faculty

> University of Phoenix

>

> Jersey City Campus

> 100 Town Square Place

> |Jersey City, NJ 07310

> Cell-

> Email- Jrstr@...

>

>

[Guest guest]

Hi, ,

 

Sorry to hear about your mom, hope you and your brother can convince her to see

Dr and find out what's going on, hope it's only stress related not AD.

Thank you for the info. At mom's first 6 month evaluation, the Dr. said she can

stay in the program, because she's loosing weight. Laterly her eating is

improving, and more alert when she's awake,alway smile when nurse or dr visit

her at home.  But she do have increase in incontinence compared with before.

used to be every 2 or 3 hours, Dad and home aid will take her to bathroom, most

time she will release there, so no diapers during day time, but laterly, she has

more and more accident especially BM. I mentioned it to the nurse and Dr. I

guess they probably don't think it's decline, and said she has ro be discharged,

told us call them again when there is any decline, Dr from hospice put her under

their paliative care plan, saying a lot of their hospice patient is going back

and forth between this two programms. I'm trying to figure out what should be

the best care I can find for mom now. In my opinon, for this disease, medical

intervention seemed

can't do much (hope this will change someday). what the patient's family really

need is the home aid service and nurse or Dr. visit when it's needed.

 

- Min

 

 

 

To: " LBDcaregivers " <LBDcaregivers >

Sent: Thursday, August 25, 2011 8:33 AM

Subject: Re: Hospice and stopping meds

 

Dear Judy and Mim,

 

I have been reading your posts and I also have a father with LBD now about 3

years that we know about. I am a hospice nurse and the regulations are; if the

patient has shown any signs of decline, such as a change of medication,

decreased weight, loss of appetite, any choking episodes, anything that has been

charted is enough to keep them on hospice and be re-certified after the 6 month

period. We have some patients that have been on a slow decline for about 3 years

now, but it has to do with the nurses documentation of the declines. If they are

documenting everything is the same, you have no choice but to be discharged.

That is all Medicare will see. Taking the patient off her medications, is a

decline. If I were you, I would talk to your nurse, or their supervisor and ask

if the declines are being charted. Any falls, increase in incontinence, etc. are

examples of declines. There are probably many if you just sit and write them

down. Show them to your

nurse. If they aren't told, it will be charted as no declines. Hope this helps.

It is a terrible disease and no one should have to go through these things. My

Dad's primary caregiver is my mother, who seems to be showing signs of early

Alzheimer's, which is not good. She is very stubborn and so far, I have not been

able to get her to agree to see her doctor. But things are about to change as my

brother is coming this week end and there is power in numbers. Praying for all

who are going through this experience.

 

Blessings,

 

s, RN,BSN 

To: " LBDcaregivers " <LBDcaregivers >

Sent: Wednesday, August 24, 2011 11:18 PM

Subject: Re: Hospice and stopping meds

 

Mim

Thanks for message - seems like your mom is

Far more active and still talking - mine is completely mute and doesn't know who

anyone is although she still reaches her hand out to everyone ! My mom can

barely walk and can't control urine and barely an get her to bathroom for bowels

- ends up in a

Big Mess -

What is similar is both our moms are on home hospice / although yours now still

on the program - I think of my mom doesn't get worse / her vital signs are all

good - same thing will happen with hospice after 6 months -

As for the Meds- I don't think any of

Them are doing anything for her - the parkinsons Meds never helped and I velieve

could be making her worse ! the excellon patch males her more zombi like in my

opinion

The blood pressure meda I'm not sure of they are helping - her pressure has been

good - she is on cymbalta for depression and I'm Afraid if they remove that

since I would hate to see her depressed - although it's hars to tell that -shows

no emotion at all!

She is bedridden - no quality of life - does not speak - understands nothing -

and relates to Noone or anything - stares at rhe tv most of

The day or sleeps -

Eating - She has to be fed soup bit will pick up a small cookie in

If put in front Of her - so far swallowing seems ok although after she eats

solids she takes. Napkin and spits pieces of food into it!

I think we will only be able to see about the impact of the Meds if we start to

cut then down - one at a time I suppose - will find out more tomorrow - what a

nasty disease - within the last 2 yrs stopped moving - speaking - recognizing

us- had to

Be put in diapers -

And the worst part is we have no idea how long this can go on for !

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> Hi, Judy,

>

> My mom was experiencing a lot of problems last year around this time, got left

hip fracture and stayed in hospital for about a week, I have asked opinions on

this bord on whether should do sugery on her. Decided no sugery, considering her

walk before the fracture already very unsteady and she can't follow any

directions which is needed for after sugery rehab. We bring mom to home from the

hospital, start home hospice,at the time, she barely eat any solid food, depend

alot on ensure, and the same dosage of comding she's on for about 10 years got

her internal bleeding. Stopped all her med (Aricept, Namanda, Serequal etc.),

the only medication remained the first a few month is Melotonia to help her

sleep and Tylono to control pain also help her sleep, also replaced comeding

with Asprin along with Digox for her AF. Gradually she's getting better in

terms, eating and sleep. She no can no longer walk or even stand up by herself.

But she's in better mood,

> looks to me more like nature agining now than last year aroud this time when

we have tried all different med to help her sleep (she will up all night,

yelling, scared and very angry), and calm her down. No any ER or hospital visit

since she start hospice at home. Just last week, the hospice Dr. told us, since

my mom is doing so well (or Stable at her current stage: can understand us, but

we can't understand what she's trying to tell us. Wake up time abour 8 hours,

the rest of time sleep or lie on bed talk to herself, can eat finger food with

her left hand, her right hand no longer works which I kind of think is from one

med she tried last year around this time), Hospice has to stop due to 6 month

rule, she has been put under palative care plan for now. Will see. My experience

with mom will be the less the med the better. my mom is 81, was first diagnosed

AD in 2008 then LBD in 2009.

>

> - Min

>

>

> To: " LBDcaregivers " <LBDcaregivers >

> Sent: Wednesday, August 24, 2011 4:25 PM

> Subject: Hospice and stopping meds

>

>

> Hello friends

>

> My mother is on home hospice - totally despondent and starting to eat less but

can still swallow - the team, her doctor and our Family are discussing stopping

her meds- since we believe some of these might either be doing

> More harm or keeping her in this state ( no quality of life ) longer!!

>

> Can anyone shed some light on if at

> The last stage of LBD it is kinder and more humane to wean your lo off all or

> Most Meds?

>

> Thanks for any help On this issue ??

>

> Judy

>

> Judy R. Strauss LMSW PhD

>

> Lead Faculty

> University of Phoenix

>

> Jersey City Campus

> 100 Town Square Place

> |Jersey City, NJ 07310

> Cell-

> Email- Jrstr@...

>

>

[Guest guest]

Min,

 

I'm so sorry you aren't getting the assistance you need. In our hospice, the

nurses are the go- between the doctor and the patient. If we see objective signs

of pain; such as moaning,groaning,grimacing, increased heart rate, blood

pressure, or increased restlessness, we call the doctor and he will increase his

/her pain medication. The same goes for symptoms of anxiety. In my Dad, he is

not recognizing my mother at times and asks many questions off and on about

their marriage, the house, his children. It bothers him that he cannot remember

these things. I told him it is okay if he doesn't remember because he is with

family who will care for him and we will always be there for him. Anxiety plays

a large part in this disease as it would for any of us that might be going

through this. Because I am an insulin dependent diabetic, Type 1, now for 36

years, without any complications (Praise the Lord!), I compare these anxious

moments to those of having an

insulin reaction, which I have had many. I might not remember how I got to

where I am, and don't know what is happening to me. This is very scary! I have

told other people in the past to just tell me the truth. " You are having an

insulin reaction and need to drink this........It's when no one will tell me

what is going on that I get really upset. I think there are simple ways to

explain to our loved ones that their memory is getting worse and it is okay,

because they don't need to remember everything, they will be taken care of even

if they don't remember. Love seems to help and maybe an antidepressant or a

little Xanax. Just my opinion. Praying you will have a good day.

 

Blessings,

 

To: " LBDcaregivers " <LBDcaregivers >

Sent: Thursday, August 25, 2011 9:48 PM

Subject: Re: Hospice and stopping meds

 

Hi, ,

 

Sorry to hear about your mom, hope you and your brother can convince her to see

Dr and find out what's going on, hope it's only stress related not AD.

Thank you for the info. At mom's first 6 month evaluation, the Dr. said she can

stay in the program, because she's loosing weight. Laterly her eating is

improving, and more alert when she's awake,alway smile when nurse or dr visit

her at home.  But she do have increase in incontinence compared with before.

used to be every 2 or 3 hours, Dad and home aid will take her to bathroom, most

time she will release there, so no diapers during day time, but laterly, she has

more and more accident especially BM. I mentioned it to the nurse and Dr. I

guess they probably don't think it's decline, and said she has ro be discharged,

told us call them again when there is any decline, Dr from hospice put her under

their paliative care plan, saying a lot of their hospice patient is going back

and forth between this two programms. I'm trying to figure out what should be

the best care I can find for mom now. In my opinon, for this disease, medical

intervention seemed

can't do much (hope this will change someday). what the patient's family really

need is the home aid service and nurse or Dr. visit when it's needed.

 

- Min

 

 

 

To: " LBDcaregivers " <LBDcaregivers >

Sent: Thursday, August 25, 2011 8:33 AM

Subject: Re: Hospice and stopping meds

 

Dear Judy and Mim,

 

I have been reading your posts and I also have a father with LBD now about 3

years that we know about. I am a hospice nurse and the regulations are; if the

patient has shown any signs of decline, such as a change of medication,

decreased weight, loss of appetite, any choking episodes, anything that has been

charted is enough to keep them on hospice and be re-certified after the 6 month

period. We have some patients that have been on a slow decline for about 3 years

now, but it has to do with the nurses documentation of the declines. If they are

documenting everything is the same, you have no choice but to be discharged.

That is all Medicare will see. Taking the patient off her medications, is a

decline. If I were you, I would talk to your nurse, or their supervisor and ask

if the declines are being charted. Any falls, increase in incontinence, etc. are

examples of declines. There are probably many if you just sit and write them

down. Show them to your

nurse. If they aren't told, it will be charted as no declines. Hope this helps.

It is a terrible disease and no one should have to go through these things. My

Dad's primary caregiver is my mother, who seems to be showing signs of early

Alzheimer's, which is not good. She is very stubborn and so far, I have not been

able to get her to agree to see her doctor. But things are about to change as my

brother is coming this week end and there is power in numbers. Praying for all

who are going through this experience.

 

Blessings,

 

s, RN,BSN 

To: " LBDcaregivers " <LBDcaregivers >

Sent: Wednesday, August 24, 2011 11:18 PM

Subject: Re: Hospice and stopping meds

 

Mim

Thanks for message - seems like your mom is

Far more active and still talking - mine is completely mute and doesn't know who

anyone is although she still reaches her hand out to everyone ! My mom can

barely walk and can't control urine and barely an get her to bathroom for bowels

- ends up in a

Big Mess -

What is similar is both our moms are on home hospice / although yours now still

on the program - I think of my mom doesn't get worse / her vital signs are all

good - same thing will happen with hospice after 6 months -

As for the Meds- I don't think any of

Them are doing anything for her - the parkinsons Meds never helped and I velieve

could be making her worse ! the excellon patch males her more zombi like in my

opinion

The blood pressure meda I'm not sure of they are helping - her pressure has been

good - she is on cymbalta for depression and I'm Afraid if they remove that

since I would hate to see her depressed - although it's hars to tell that -shows

no emotion at all!

She is bedridden - no quality of life - does not speak - understands nothing -

and relates to Noone or anything - stares at rhe tv most of

The day or sleeps -

Eating - She has to be fed soup bit will pick up a small cookie in

If put in front Of her - so far swallowing seems ok although after she eats

solids she takes. Napkin and spits pieces of food into it!

I think we will only be able to see about the impact of the Meds if we start to

cut then down - one at a time I suppose - will find out more tomorrow - what a

nasty disease - within the last 2 yrs stopped moving - speaking - recognizing

us- had to

Be put in diapers -

And the worst part is we have no idea how long this can go on for !

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> Hi, Judy,

>

> My mom was experiencing a lot of problems last year around this time, got left

hip fracture and stayed in hospital for about a week, I have asked opinions on

this bord on whether should do sugery on her. Decided no sugery, considering her

walk before the fracture already very unsteady and she can't follow any

directions which is needed for after sugery rehab. We bring mom to home from the

hospital, start home hospice,at the time, she barely eat any solid food, depend

alot on ensure, and the same dosage of comding she's on for about 10 years got

her internal bleeding. Stopped all her med (Aricept, Namanda, Serequal etc.),

the only medication remained the first a few month is Melotonia to help her

sleep and Tylono to control pain also help her sleep, also replaced comeding

with Asprin along with Digox for her AF. Gradually she's getting better in

terms, eating and sleep. She no can no longer walk or even stand up by herself.

But she's in better mood,

> looks to me more like nature agining now than last year aroud this time when

we have tried all different med to help her sleep (she will up all night,

yelling, scared and very angry), and calm her down. No any ER or hospital visit

since she start hospice at home. Just last week, the hospice Dr. told us, since

my mom is doing so well (or Stable at her current stage: can understand us, but

we can't understand what she's trying to tell us. Wake up time abour 8 hours,

the rest of time sleep or lie on bed talk to herself, can eat finger food with

her left hand, her right hand no longer works which I kind of think is from one

med she tried last year around this time), Hospice has to stop due to 6 month

rule, she has been put under palative care plan for now. Will see. My experience

with mom will be the less the med the better. my mom is 81, was first diagnosed

AD in 2008 then LBD in 2009.

>

> - Min

>

>

> To: " LBDcaregivers " <LBDcaregivers >

> Sent: Wednesday, August 24, 2011 4:25 PM

> Subject: Hospice and stopping meds

>

>

> Hello friends

>

> My mother is on home hospice - totally despondent and starting to eat less but

can still swallow - the team, her doctor and our Family are discussing stopping

her meds- since we believe some of these might either be doing

> More harm or keeping her in this state ( no quality of life ) longer!!

>

> Can anyone shed some light on if at

> The last stage of LBD it is kinder and more humane to wean your lo off all or

> Most Meds?

>

> Thanks for any help On this issue ??

>

> Judy

>

> Judy R. Strauss LMSW PhD

>

> Lead Faculty

> University of Phoenix

>

> Jersey City Campus

> 100 Town Square Place

> |Jersey City, NJ 07310

> Cell-

> Email- Jrstr@...

>

>

[Guest guest]

My Mom passed away 8/11 after being home with Hospice for about 3 weeks. Her GP

doc took her off all her meds about 3 months ago after a Dr. prescribed Abilify

& she almost died from it.  Mom actually did better being off all of the meds,

no more haullucinations or agitation etc. The last 2 days she stopped eating and

she died in her sleep, a very peaceful and humane passing.   My thoughts and

prayers are with you and your family Judy.

Sue

________________________________

To: " LBDcaregivers " <LBDcaregivers >

Sent: Wednesday, August 24, 2011 4:25 PM

Subject: Hospice and stopping meds

 

Hello friends

My mother is on home hospice - totally despondent and starting to eat less but

can still swallow - the team, her doctor and our Family are discussing stopping

her meds- since we believe some of these might either be doing

More harm or keeping her in this state ( no quality of life ) longer!!

Can anyone shed some light on if at

The last stage of LBD it is kinder and more humane to wean your lo off all or

Most Meds?

Thanks for any help On this issue ??

Judy

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

[Guest guest]

Hi sue

God bless you for sharing your experience about your mom with me -I only can

pray my mom will go peacefully!!

Judy R. Strauss LMSW PhD

Lead Faculty

University of Phoenix

Jersey City Campus

100 Town Square Place

|Jersey City, NJ 07310

Cell-

Email- Jrstr@...

> My Mom passed away 8/11 after being home with Hospice for about 3 weeks. Her

GP doc took her off all her meds about 3 months ago after a Dr. prescribed

Abilify & she almost died from it. Mom actually did better being off all of the

meds, no more haullucinations or agitation etc. The last 2 days she stopped

eating and she died in her sleep, a very peaceful and humane passing. My

thoughts and prayers are with you and your family Judy.

>

> Sue

>

> ________________________________

>

> To: " LBDcaregivers " <LBDcaregivers >

> Sent: Wednesday, August 24, 2011 4:25 PM

> Subject: Hospice and stopping meds

>

>

> Hello friends

>

> My mother is on home hospice - totally despondent and starting to eat less but

can still swallow - the team, her doctor and our Family are discussing stopping

her meds- since we believe some of these might either be doing

> More harm or keeping her in this state ( no quality of life ) longer!!

>

> Can anyone shed some light on if at

> The last stage of LBD it is kinder and more humane to wean your lo off all or

> Most Meds?

>

> Thanks for any help On this issue ??

>

> Judy

>

> Judy R. Strauss LMSW PhD

>

> Lead Faculty

> University of Phoenix

>

> Jersey City Campus

> 100 Town Square Place

> |Jersey City, NJ 07310

> Cell-

> Email- Jrstr@...

>

>

[Guest guest]

Condolences Sue on the passing of your mom. It's always a relief to hear of a

peaceful passing after the ravages of LBD/PDD. Heal well.

>

> My Mom passed away 8/11 after being home with Hospice for about 3 weeks. Her

GP doc took her off all her meds about 3 months ago after a Dr. prescribed

Abilify & she almost died from it.  Mom actually did better being off all of

the meds, no more haullucinations or agitation etc. The last 2 days she stopped

eating and she died in her sleep, a very peaceful and humane passing.   My

thoughts and prayers are with you and your family Judy.

>

> Sue

>

>

>

> ________________________________

>

> To: " LBDcaregivers " <LBDcaregivers >

> Sent: Wednesday, August 24, 2011 4:25 PM

> Subject: Hospice and stopping meds

>

>

>  

> Hello friends

>

> My mother is on home hospice - totally despondent and starting to eat less

but can still swallow - the team, her doctor and our Family are discussing

stopping her meds- since we believe some of these might either be doing

> More harm or keeping her in this state ( no quality of life ) longer!!

>

> Can anyone shed some light on if at

> The last stage of LBD it is kinder and more humane to wean your lo off all or

> Most Meds?

>

> Thanks for any help On this issue ??

>

> Judy

>

> Judy R. Strauss LMSW PhD

>

> Lead Faculty

> University of Phoenix

>

> Jersey City Campus

> 100 Town Square Place

> |Jersey City, NJ 07310

> Cell-

> Email- Jrstr@...

>

>

>

>