Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 I have always experienced pain going down my leg, not back like sciatica, but side of leg, and pain and throbbing,sort of nerve pain in ankle, and even reaches my toes and feet, very often. This occurs is much more common on left side where pelvic muscles are in most spasm..I feel this often..and for last three years.. I know this is somehow related to my levator ani spasming, have worked with three pelvic pain specialists and several other PT's, chiros etc...when i mention the pain, shooting pain....stabbing...down to my foot they all look at me with a blank stare and say they can't figure it out...when I ask could this be caused by a nerve in spasm from my back which is tight and also connected to the levator ani, they usually say, no... I remember the first Pelvic pain therapist worked on my back the first day of therapy very hard, myofasical, deep digging type of therapy, it produced a spasm in my ankle(left side)sort of a tremor, which lasted for weeks...took much accupuncture to calm down...knew there was a connection to my back and vulvodynia at that point. Just curious what your thoughts are..Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Tom, what a fabulous response!!! I really do think it's time for you to move to southern California! As a matter of fact, my opteratur internus and exturnus are a mess, trigger point work calms down, but please, they are like steel, only so much pushing and pressing you can do to a very tight muscle.. I talked to some women who became symptom free from vulvodynia and IC with ART work, active release technique...which involves a chiro specialized in breaking down scar tissue...many times they concentrate on the soaz muscle...I found this treatment to cause intense pelvic floor muscle spasming. Seems that soaz muscles is tough to get to...much of it lies beneath the abdominal muscles. This is SO complicated....I have spent thousands and thousands of dollars and not one pt has been able to help me to get my back in alignment...time to find a PT who can help me get in balance. Thanks again for your scholarly response to the nerve pain issue...Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Hi SUZY, OK, I recieved your $1.98 so you can ask more questions now...heheheh I will try to scan a few photos onto a disk at work and bring them home to send to you tonight. The pudendal nerve and vessels re-enter the pelvis through the lesser sciatic notch. It is here that the compression is most likely occuring. If you are wondering weather the PT you choose will use the techniques we have discussed, call first and ask if they are expert in MET or Countestrain. Tailbone manipulation is done through the anus however, you can accomplish the same thing by using MET and C/strain. Actually, a friend and patient jsut bought a condo in Phoenix, he is a pilot for US AIR. I said I would come out and help him find and load his furniture but that doesn't really help you because I am not licensed to practice in your state. I'll meet you for drinks and jokes if I ever get out there. TKOPT Suzy wrote: Tom,I have had my nose in my anatomy books all day looking at nerves......My eyes are buggy.Ok, I am going to see a PT next week.(out of town)I have several clients here (in town) that are PT's, but I think she is the better choice. (Less personal is better in this case I think)!I will be asking her to help with this.Release the compression if (I have one)How will she know?Will she be doing this with strain/counterstrain?MET?Oh shoot, can you fly to Phoenix.....(kidding)Now this is what I know about her: She does tailbone manipulation and has had success with women experiencing this problem. Comments????? Suzy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 HI SUZY, Sitting is usually the worst position. It tends to further distort the pelvic floor by putting preasure in the tailbone and sacrum. Purchase a wedge pillow from brookstone. It leans you slightly forward onto the ischial tuberosities and off of the sacrum /tailbone. $29.95 Youe not confussed, it''s all that sunshine your getting in AZ . It makes your brain happy and it works overtime. TKOPT Suzy wrote: Tom,Did I mention I only have vulvar pain when I am sitting?Goes away when I stand up!Go figure, huh? So, what does this mean? More compression while sitting?Confused again..Suzy - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 I have not been able to read Tom's download. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 Donna, Scroll way down. It's also attached at the very end of his letter after all the other letters. Shirley. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 Go to: http://beta.groups.yahoo.com/group/VulvarDisorders/message/19635 Then scroll all he way down past the rest of the message and you will see the image. Ora On Thu, 22 Mar 2001 20:49:17 -0500 (EST), White4Art@... wrote: >I have not been able to read Tom's download. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Hello everyone! Just a note to say I'm back from the ski trip ( in one piece) and if you have any questions...shoot! TKOPT Quote Link to comment Share on other sites More sharing options...
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