Re: Good news!

[Guest guest]

great news honey ,

i know that will be a major relief for you to not to have to deal with the every

day care but to insteda enjoy just being with her and holdiung her hands an

dtalking to her and not being hte bad guy,  goodl uck an dgood work hugs.

sharon

I am the daughter of Leonard whom was diagnosed in May 2004 and  he died of

complicatons *blood pressure started dropping and wouldn't recover* on Sept 25,

2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing

hallucinations and falling issues since prior to 1994. We moved in to take care

of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been

diagonosed with 99% probability of lbd. Hoping that a cure or treatment will be

found before it's too late for me.

Subject: Good news!

To: LBDcaregivers

Date: Monday, August 30, 2010, 11:36 AM

 

Hi Everyone,

I have been with this group since 2006 when my mom Ginny was diagnosed with Lewy

but I don't post very often. But right now I have some good news to share. In

May of 2009 I applied for the veterans benefit called Aide & Attendence. It took

me from May to Oct to complete and submit the paperwork. Last week I finally

received the notice that she has been granted the full benefit amount which is

1056.00. It has been a long road with mom, she has lived with us for the past 3

years. And it has been a long paperwork road with the VA. My plan is to place

her in a Board & Care home (I found a good match last summer)as I have come to

the end of my rope taking care of her. This VA benefit will go a long way in

helping to pay for her care.

If anyone is interested in applying for the benefit I might be able to answer

some questions for you. Here are the basics for now.

The benefit is for veterans or their spouse but the veteran must have served

during wartime. They cannot have more than 80,000.00 in the bank. They must be

currently paying for care. You will need things like discharge papers, death

certificates, marriage info, dates, asset/income info, medical records etc.

There is usually some kind of senior advocacy office in your local area that

helps get the paperwork started. They will open the claim and help you complete

paperwork and then you wait to hear. The benefit can be used to place your LO or

it can be used for in home care with a hired person or to pay yourself for their

care in your home or theirs. If you have any questions I will try to answer

them.

The past three years with mom here has been trying. My stress level is high and

my body is screaming at me. I was hoping to keep mom with us until she was much

worse but she is so difficult to deal with. She has a lovely set up at our house

but she hates us, there is never a positive or even civil word out of her. She

just doesn't get what the situation is. As in she doesn't know she is sick and

we are doing everything for her!!

Anyway, since most of our LO are in the same generation who did serve in WW II

this benefit is worth knowing about. It is a long road to get it but worth it if

your finances are straining or you feel that they need more care in private pay

facility. The quicker, more complete and accurate your papers are, the less time

it takes.

Thanks

& Mom Ginny dx 2006