Re: What about when the helmet comes off?

[Guest guest]

Jenn, I've only been on the plagio circuit for about a year but I

have not heard of regression post-band. I'm sure it could happen,

just haven't heard of it here. My daughter didn't regress.

Remember, Carson is more mobile now, he moves in his sleep, and his

tort sounds to be doing much better so he has a wonderful chance of

of post band rounding or the worst case scenerio staying as it is

when he is finished. I hope that helps you. He'll be ok, trust me!!

Dustie

--- In Plagiocephaly , " brad9596 " <brad9596@y...>

wrote:

> They said today that Carson may be out of his helmet at the end of

> January if he keeps growing like this (they want him down to 0.5

and

> he is at 0.7 now). Either way, the adjustment they made today and

> they told my husband that this helmet only has a small room for

> adjustment left so if he isn't done by end of January, we may have

to

> do another helmet...at least the second one only costs less than

1/4

> of the first!

> If it comes off, will the flatness come back when he starts

sleeping

> without it again? Or is his skull bones harder now to prevent the

> molding? I worry about going through all of this only to slip into

> this situation all over again. I never thought I would say I would

> be afraid to stop wearing the helmet

> He goes for follow up phys. therapy tomorrow. he is doing so much

> better with stretching now and has really improved his ROM but I am

> still noticing a little tilt-esp. when he is tired...is this normal?

>

> Jenn

> 8

> Madisson 7

> Carson 7 months tomorrow

[Guest guest]

Oh Jenn,

I know how you feel, but I wouldn't worry. I am sure he'll be fine.

Regression is very rare. Like you, I was so scared to take the helmet

off of Makenna. I thought for sure her head would go right back to

the way it was, especially since she still favored her right side,

but she has been out of it now for over 4 months and she hasn't had

any regression. How old is your son again? I can't remember.

--- In Plagiocephaly , " brad9596 " <brad9596@y...>

wrote:

> They said today that Carson may be out of his helmet at the end of

> January if he keeps growing like this (they want him down to 0.5

and

> he is at 0.7 now). Either way, the adjustment they made today and

> they told my husband that this helmet only has a small room for

> adjustment left so if he isn't done by end of January, we may have

to

> do another helmet...at least the second one only costs less than

1/4

> of the first!

> If it comes off, will the flatness come back when he starts

sleeping

> without it again? Or is his skull bones harder now to prevent the

> molding? I worry about going through all of this only to slip into

> this situation all over again. I never thought I would say I would

> be afraid to stop wearing the helmet

> He goes for follow up phys. therapy tomorrow. he is doing so much

> better with stretching now and has really improved his ROM but I am

> still noticing a little tilt-esp. when he is tired...is this normal?

>

> Jenn

> 8

> Madisson 7

> Carson 7 months tomorrow

[Guest guest]

Hi Jenn,

I worried about regression also, because my son Jake still had a

slight head tilt when he was finished with his band at 10months of

age. He is 18mo. now and we didn't have any problems. I did

sometimes adjust his sleeping position at first, if I noticed him

sleeping on the flat spot. But once he started sleeping on his

stomach - I obsessed a little less. Just keep doing the exercises,

tort can take a while to correct. It is normal to notice the tilt

more when they're tired. Ask your PT about strengthening exercises

for neck muscles on the opposite side of the tilt - that should

help. We also noticed the tilt more when Jake reached certain

milestones, like crawling and walking, this is also normal.

Good Luck and Have a Happy New Year!

mom to Jake(DOC band grad 2003)

and Tyler 4yrs.

--- In Plagiocephaly , " brad9596 " <brad9596@y...>

wrote:

> They said today that Carson may be out of his helmet at the end of

> January if he keeps growing like this (they want him down to 0.5

and

> he is at 0.7 now). Either way, the adjustment they made today and

> they told my husband that this helmet only has a small room for

> adjustment left so if he isn't done by end of January, we may have

to

> do another helmet...at least the second one only costs less than

1/4

> of the first!

> If it comes off, will the flatness come back when he starts

sleeping

> without it again? Or is his skull bones harder now to prevent the

> molding? I worry about going through all of this only to slip into

> this situation all over again. I never thought I would say I would

> be afraid to stop wearing the helmet

> He goes for follow up phys. therapy tomorrow. he is doing so much

> better with stretching now and has really improved his ROM but I am

> still noticing a little tilt-esp. when he is tired...is this normal?

>

> Jenn

> 8

> Madisson 7

> Carson 7 months tomorrow