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Hi,

Our son, was born 4th Aug 2003.

After about 5 weeks we noticed that he always preferred sleeping on

his left side I discussed this with the health visitor & she

suggested encouraging him to look right with interesting toys etc. &

to bring it up with the doctor at his 8 wk check.

We did this, only to be told not to worry & that there was nothing

wrong with his neck. (the health visitor did mention torticollis -

but I had never heard of this before). I knew that something was

wrong & after a number of visits to the local doctors we managed to

get a referral to the pediatrician - they diagnosed torticollis,

recommended PT & said don't worry about the 'flat head' this would

correct itself as grows.

We could not wait for our NHS PT appointment, was 16 weeks old

by then & we were really getting frustrated that everything seemed to

take so long & his condition was not seen as a priority. We have been

stretching & re-positioning him ever since. However although his ROM

has improved he still prefers to sleep on his left & his flat spot

has not really improved.

We recently noticed his facial assymetry & went back to the Peds,

again we were told that this condition was not a disease & that it

would just correct as he grows.

Luckily we found some info on the web & we have an appointment with

Dr Blecher on the 12th Jan.

We have found the whole process frustrating and that no-one is

actively on 'our side'. The progress we have made seems to e 'in

spite' of the advice we have received rather than beacause of it, as

far as the health professionals are concerned.

Our concerns have tended to be dismissed as over anxiousness due

first time parenthood. However we know there is a problem and are

determined to pursue effective treatment

The internet has proved a goldmine

Alan & Josie ( & )

Bedfordshire, UK