Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 It's me again with another question. This past week the nurses at the assisted living thought my sister was having mini seizures. When they would stand her up, she would stiffen, lock her jaws, look with a blank stare and when she would speak it would be all mumbled. We took her to the ER and the Doctor said he thought it was a drop in blood pressure rather than seizures. Because when they laid her down she would be better. She was a little dehydrated and her potassium was a little low. They stopped the Zocar med. for a while, decreased her Laxis and increased her potassium. . She is in constant pain and has now become a little aggressive with us. This is totally out of character for her. I don't know if it is the pain; a stage in the disease or a combination. Has anyone else experienced this? In the ER the doctor gave her a low dose of Loretab for pain and I was concerned what it may do to her, but it didn't phase her!! My Sister My sister, 74 years of age, was diagnosed w/parkinson's severals ago and put on meds for parkinson. A couple of years ago she started seeing people in her house, seeing black lace around things especially curtains. She was never afraid of these people but couldn't understand why they were in her house. In November early one morning she left her home barefooted and walked down the road about 1/2 mile before someone got to her. She was in the hospital for approximately three weeks and was diagnosed with LBD. They have taken her off all parkinson's meds because of the possibility of increasing the hallucinations. She is now living in a very nice assisted living facility. They have tried Seroquil, Risperdal, Ativan,Paxil and everything works against her. They are now going to try Abilify. I see her going down every day. She was a very independent woman who lived by herself for close to 20 years. Now she is terrified to be alone, very parnoid. She thinks they ! are making movies about her, bugging her room, monitoring her phone calls, etc. She was able to get up and down from the chair and coach by herself, but these last few days she has to have assistance. Her feet seem to " freeze " when she tries to walk. We ask her to move her feet, but she says she can't. It is so troubling to see her go through this and not know what to do and knowing the doctors know little as to what to do. The doctors thinks she is probably mid-sage. I go see her most days twice a day and we have sitters during the night. Every day there is something new going on. Today she was complaining of legs and neck pain. She has just about quit eating. We have to sit and encourage her to eat what she does. She has lost 18 pounds in about three months. Can anyone help us know where were are with this awlful disease or any medication that seems to work. I know everyone is different. We want to keep her out of the nursing home as long as possible, but I'm not sure how long she will be able to stay at the assisted living. Any help would be greatly appreciated. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Just an update on my sister. She seems to be doing much better the last few weeks. She is eating great. They have her on an appetite stimulate. I have read a lot about the roller coasters of LBD, so I keep wondering if this is temporary good time and what may follow. She still complains of constant pain, gets irritated on occasion, and the hallucinations are also occasionally, nothing like they were. So we're enjoying the better days right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2011 Report Share Posted September 21, 2011 , You and your sister are in my prayers. If you feel helpless (I did), remember how much it must mean to your sister to have you there. Best, **Primary caregiver to my mom, who passed at age 86 on 2/17/11.** hibbittsjenn@... wrote: > >Update on my sister. She is now getting choked a lot and aspirating. She now has pneumonia. The Hospice nurse said aspiration and pneumonia would be a constant battle, leading to the end. She is so weak. When she tries to cough up the congestion, she gets so choked and tired. She complains of someone " sitting or pushing on her chest " . > >Thanks > > >. > > > > > > > Quote Link to comment Share on other sites More sharing options...
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