Good Things

[Guest guest]

Hi all,

Thought a post regarding good things would cheer the hearts of all

struggling with decisions, surgery and good old Arnold.

Roxanne, who will be three in a week, who wasn't really expected

even to be still here, is in fact very much here and doing very

well.

I am not suggesting that we have a cure, we still have tough

moments, she still has lots of symptoms but overall things are

going pretty darn good.

Good thing - Rox has got the toilet thing together, always

was an unknown but again she proved us wrong.

Good thing - she has been well enough to go to play group, she

didn't vomit once and she loves it so much.

Good thing -we haven't been to a doctor for nearly two months.

Good thing - her shunt her shunt hasn't blocked for nearly six

months. Her syrinx seems stable and Arnold seems to be also

stable.

We seem to have balanced all her bits and pieces and we are

loving having her soooo well and happy. She has had a

horrible time and deserves all the wellness she can have,

and those odd moments of Arnold misbehaving are manageable.

Take heart it took three decompressions, lots of shunt revisions,

and many other bits and pieces over the last three years for us

to just enjoy the simple things like toilet training, playing with

other kids and especially no medical intervention.

Small steps can mean the most, acknowledge every win however small

and never say never!

Have a great day

Kym