Re: sorry... confused today Anne!

[Guest guest]

Anne,

One thing Dr. Neville explained to me was that 's Disease

usually comes on very differently than Adrenal Fatigue. With adrenal

issues you usually have years of stress and a build up which results

in going through some or all of the stages of adrenal fatigue

culminating at stage 7. 's usually doesn't manifest itself

like that. There is a good 's group on Yahoo that you can go

to and read what people write when they are newly diagnosed. They are

usually very ill, vomiting, loosing weight like crazy, etc. Sometimes

it takes a long time for them to get a diagnosis but usually it is

just a few months. With adrenal folks it is more like years.

I have all of the same symptoms that you have except the

hyperpigmentation as well. I have the horribly low blood pressure,

headaches from hell, shakes, etc. I thought I had 's too but,

thankfully, I have realized all I am experiencing is late stage

adrenal fatigue. It has a lot of the same symptoms of 's

Disease. I also have to take Florinef and live in the bathroom.

Honestly, everythink I drink goes right through me within 30 minutes.

I drink a lot because it keeps the headaches at bay. I go to the

bathroom a lot. It sucks but that is my life. I am use to it. I

have been doing this for about 5 years so may that be a lesson to any

of you who are just starting to do this. Take heed. You need to heal

and rest before you get to the place Anne and I are in.

One important question...did you do your ASI saliva test through the

doctor or Canary Club? The reason I ask is that the Canry Club test

is a " short version " and the doctor's get the " expanded version " .

Doesn't seem fair. In the " expanded version " you get an enzyme layout

where it shows if there is any problems in the adrenal cascade. I did

not get this with my Canary Club test and Dr. Neville is going to see

if I can get a urine test that will show if I have an interuption in

my adrenal cascade of all the enzymes and transformations of this into

that. I hope that makes sense because it is the best I can do. All

very complicated. I have high progesterone so he thinks that I am not

producing or converting properly in that adrenal cascade. Your test

may show that if you had the " expanded version " . There are several

places where the cascade can get messed up and make healing harder.

Try not to stress out about all of this as it makes you sicker. Worst

case is that you do have 's but you will live. I don't think

you do. I will be very curios to see if your headaches are due to

diabetes. I doubt it. You are one of the few people I have met here

(so to speak) that has the exact same thing going on as I do. I have

horrible headache. Dr. Neville took me off of Biotin (high doses) in

hopes to do this urine test. Biotin fixes one of the problems in the

adrenal cascade. I have been off 6 days and my headaches are back as

well as the heart palpitations. This tells me he is really on to

something.

I do think Val is right, you need more HC. Drink, drink, drink and

take more HC. I take 30mg and some days I take 5mg more. You sound

like you need more. Try not to be dehydrated even if it means running

to the bathroom every 30 minutes. Know I am in there with you! You

are not alone in your bathroom runs.

Know you will be OK. Take tons of salt and rest. Don't stress so

hard on this stuff, it is making you worse. Think about the licorice

root powder because it has helped my blood pressure. One other thing,

I take 1/2 tsp of sea salt right before I go to bed. I think it soaks

up in my body better because I don't run to the bathroom for several

hours after.

a in North Idaho

>

> Natural Thyroid Hormone ADRENALSEveryone,

> I'm sorry to bother you all again. It's just that I've probably

spent too

> much time online today looking things up, so now I'm confused. Here

are

> some things that are confusing me:

>

> (1) Is adrenal insuffiency the same thing as 's? If I have

all the

> symptoms of 's EXCEPT hyperpigmentation, including low

aldosterone,

> how can this be 's? (I'm stage 5 of adrenal fatigue,

according to

> this group's definition.)

>

> (2) I took synthroid (112 mcg) for one month, then switched to

Naturethroid

> (1 grain). I think I've been having several adrenal crises since

then. I'm

> on 25 mg of hydrocortisone daily, and it's helping, but not totally.

For

> instance, my blood pressure after standing up this morning fell over 20

> points (systolic and diastolic) to a new low of 75 over 52, and my

pulse

> jumped from 62 bpm to 118. I'm pretty dehydrated today, and I have

that

> same ol' headache. I've repeatedly felt hypoglycemic, but my glucose

> remains between 79 and 98. Looks good, but I have shakes, sweaty

palms and

> feet, headache (!), nightmares, hunger, etc. Makes no sense to me. My

> insulin levels on the ASI test were low but not nonexistant. Seems

like I

> should have high blood sugar if my insulin levels are low. (I'm

thin, no

> signs of insulin resistance.) I'm living in the bathroom, craving

salt,

> etc. So frustrating! But I've improved a LOT from how I felt when

I took

> the thyroid meds without any cortisol replacement. Now they're

checking me

> for diabetes, but WHY? It makes no sense.

>

> I'm really not sure what to do. Is this a new " normal " for my life?

Will I

> always feel like I'm on the edge of a crisis? Any ideas?

>

> So sorry to bother you all again. I really appreciate this group!

I've

> learned so much!

>

[Guest guest]

Hi a,

What problem in the adrenal cascade does Biotin fix? I

started taking it for my hair which was starting to

get thin due to hypothyroid.

Also, I used to be Stage 7, and it took almost 2 years

of TOTAL bedrest to get back to Stage 6 which I am in

now. I know a lot of people can't always do total

bedrest, but just in case anyone here can, for me it

was really the way to go (and really I had no choice,

I couldn't even brush my own hair at that point).

But it does get better so don't give up! Life does

return, it just takes time and patience. Try not to

get depressed or negative also because this prolongs

it, try to read or watch tv with positive happy

things. Keep things like evening news far away if it

causes any stress at all. Anyone in your life who is a

stressor - they have to change or go away. Just have

to do these things as much as possible, or getting

back from Stage 7 is a prolonged more difficult thing

to do.

Thanks

--- sophieboris wrote:

Dr. Neville took me off of Biotin (high doses) in

> hopes to do this urine test. Biotin fixes one of

> the problems in the adrenal cascade. I have been

off 6 days and my headaches are back as well as the

heart palpitations. This tells me he is really on to

> something.

>

> a in North Idaho

__________________________________________________

[Guest guest]

a,

Thanks for your reply. It really is strangely comforting to know we're not

the only ones, LOL! BTW, my aunt lives in Nez Perce, Idaho, and another

aunt lives in Couer d'Alene (hope I spelled that right).

I got my ASI test through Dr. Lowe. (Which, by the way, someone else asked

if I liked her, and yes! She's been great. She's much more focused on

thyroid, though, than adrenals, but over all she's been very helpful. To

whoever asked, she charges $3/minute. My insurance didn't cover her, but

she's been cheaper than other doctors because she listens so well so she

saves me visits. http://www.drlowe.com )

That's interesting about the enzymes. I don't think my test showed anything

like this. It did say that I'm not making enough salivary IgA, which Dr.

Lowe said is digestive enzymes. I've added two enzymes to my diet... just

yesterday they arrived, so I'm not sure if they're helping much yet

(although I've had MUCH better days than the last time I wrote), but last

week, I almost passed out after supper one night because I got nauseated. I

have a book called Enzyme Nutrition by a Dr. Howell, and his research on

enzymes and cortisol/blood sugar seemed to fit me, so that's when I ordered

the enzymes. I ordered Daily Essential Enzymes and Pancreatin 8X Digestive

Enzymes, by Source Naturals, from iherb.com.

Out of curiosity, have you seen the chart on this website?

http://www.cushings-help.com/911.htm Scroll down to the very bottom and

double-click on the graphic of the chart. Here's a direct link:

http://www.cushings-help.com/images/fundra2.jpg

It's for those with 's Disease, but the flowchart shows four ways

that someone could have an adrenal crisis resulting in coma or death.

Basically, understanding the physiology involved has saved my life these

last few weeks, I'm sure! Notice that it says that lack of enzymes is from

too low of cortisol. That's the other reason I decided to order some.

Funny you have high progesterone, a. I did, too! Wonder how that plays

into it.

Can I ask what brand of licorice root powder you use? How much and when do

you take it? Sometimes it's nice to know. There are SO many options out

there!

I'm going to increase to 30 mg as you recommend. May I ask how you dose

that out? I currently take 10 at 8 a.m., 5 at noon, 5 at 4 p.m. and 5

before bed. I'll also be sure to try the salt before bed. It's crazy how

delicious sea salt tastes right now. My husband thinks I'm crazy for eating

it out of my hand. :-)

Thanks so much for the help! I so much appreciate it,

~Anne

[Guest guest]

>

> Out of curiosity, have you seen the chart on this website?

> http://www.cushings-help.com/911.htm Scroll down to the very bottom

and

> double-click on the graphic of the chart. Here's a direct link:

> http://www.cushings-help.com/images/fundra2.jpg

> It's for those with 's Disease, but the flowchart shows four

ways

> that someone could have an adrenal crisis resulting in coma or death.

> Basically, understanding the physiology involved has saved my life

these

> last few weeks, I'm sure!

That's an amazing chart. Thanks for the link!

Decreased liver function - wonder if that's what is causing the

gallbladder problems that so many have - mine has been flaring up too.

And, I had one day when I had pain beneath my ribs on the right side

- liver?

Low blood pressure/shock - funny, because that's exactly how I

described to my husband what I was feeling with the low BP - like I

was going into shock.

>

> Funny you have high progesterone, a. I did, too! Wonder how

that plays

> into it.

>

Not definitive, because it depends on your case, but a possibility is

a conversion problem from progesterone to cortisol. So you could be

making P & not converting, so it piles up a bit.

[Guest guest]

Who was making the medic alert bracelets here? Are they still for sale?

-- Re: sorry... confused today Anne!

>

> Out of curiosity, have you seen the chart on this website?

> http://www.cushings-help.com/911.htm Scroll down to the very bottom

and

> double-click on the graphic of the chart. Here's a direct link:

> http://www.cushings-help.com/images/fundra2.jpg

> It's for those with 's Disease, but the flowchart shows four

ways

> that someone could have an adrenal crisis resulting in coma or death.

> Basically, understanding the physiology involved has saved my life

these

> last few weeks, I'm sure!

That's an amazing chart. Thanks for the link!

Decreased liver function - wonder if that's what is causing the

gallbladder problems that so many have - mine has been flaring up too.

And, I had one day when I had pain beneath my ribs on the right side

- liver?

Low blood pressure/shock - funny, because that's exactly how I

described to my husband what I was feeling with the low BP - like I

was going into shock.

>

> Funny you have high progesterone, a. I did, too! Wonder how

that plays

> into it.

>

Not definitive, because it depends on your case, but a possibility is

a conversion problem from progesterone to cortisol. So you could be

making P & not converting, so it piles up a bit.

[Guest guest]

I make them, the link ot my jewelry is in my signature line.

--

Artistic Grooming- Hurricane WV

My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

Thanks, I will go to the link and order.

-- Re: Re: sorry... confused today Anne!

I make them, the link ot my jewelry is in my signature line.

--

Artistic Grooming- Hurricane WV

My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

wrote:

> Funny you have high progesterone, a. I did, too! Wonder how

that plays

> into it.

>

Not definitive, because it depends on your case, but a possibility is

a conversion problem from progesterone to cortisol. So you could be

making P & not converting, so it piles up a bit.

, any idea how this conversion problem could be fixed? I would love

to FIX these problems so that I can heal. :-)

~Anne

[Guest guest]

> > Funny you have high progesterone, a. I did, too! Wonder how

> that plays

> > into it.

> >

> Not definitive, because it depends on your case, but a possibility is

> a conversion problem from progesterone to cortisol. So you could be

> making P & not converting, so it piles up a bit.

>

> , any idea how this conversion problem could be fixed? I

would love

> to FIX these problems so that I can heal. :-)

> ~Anne

>

No clue, but I bet that you can learn more about that on this forum:

http://health.groups.yahoo.com/group/WmnsHormones/

[Guest guest]

You've picked a great resource in Howell's Enzyme Nutrition.

Linn

> a,

> Thanks for your reply. It really is strangely comforting to know

> we're not

> the only ones, LOL! BTW, my aunt lives in Nez Perce, Idaho, and

> another

> aunt lives in Couer d'Alene (hope I spelled that right).

>

> I got my ASI test through Dr. Lowe. (Which, by the way, someone

> else asked

> if I liked her, and yes! She's been great. She's much more

> focused on

> thyroid, though, than adrenals, but over all she's been very

> helpful. To

> whoever asked, she charges $3/minute. My insurance didn't cover

> her, but

> she's been cheaper than other doctors because she listens so well

> so she

> saves me visits. http://www.drlowe.com )

>

> That's interesting about the enzymes. I don't think my test showed

> anything

> like this. It did say that I'm not making enough salivary IgA,

> which Dr.

> Lowe said is digestive enzymes. I've added two enzymes to my

> diet... just

> yesterday they arrived, so I'm not sure if they're helping much yet

> (although I've had MUCH better days than the last time I wrote),

> but last

> week, I almost passed out after supper one night because I got

> nauseated. I

> have a book called Enzyme Nutrition by a Dr. Howell, and his

> research on

> enzymes and cortisol/blood sugar seemed to fit me, so that's when I

> ordered

> the enzymes. I ordered Daily Essential Enzymes and Pancreatin 8X

> Digestive

> Enzymes, by Source Naturals, from iherb.com.

[Guest guest]

Anne,

The high progesterone piles up due to that adrenal cascade issue I was

talking about in earlier posts. The high doses of Biotin are suppose

to fix this. You can find out if this is going on with an advanced

saliva test or a urine test. It is the conversion problem that

is talking about. All very complicated and good doctor (HA! good

luck) or an ND can help figure it out.

Hope that helps,

a in North Idaho

> > Funny you have high progesterone, a. I did, too! Wonder how

> that plays

> > into it.

> >

> Not definitive, because it depends on your case, but a possibility is

> a conversion problem from progesterone to cortisol. So you could be

> making P & not converting, so it piles up a bit.

>

> , any idea how this conversion problem could be fixed? I

would love

> to FIX these problems so that I can heal. :-)

> ~Anne

>

>

>

>