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RE: Dr. and DIV / steroids

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, Thanks for your input! The suppositories are Anucort-HC, 25 mg, generic name : Hydrocortisone. I am only supposed to use 1/2 of one every other night. I think it is pretty much the same as Anusol.

Warm regards, Donna

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Hi ,

Welcome to our group. I was diagnosed last month with Vestibulitis and I am on

Elavil and calcium citrate right now. I think that the elavil is helping some,

but I need to go up to a stronger dose I think. I am also putting estrace cram

around the opening, but have only done this twice becasue I am nervous.

I think that all of us will get better and it is just a matter of finding the

right treatment. I tright the Diflucan, yeast and sugar free diet for 5 months,

and now believe that somehow my nerve endings are out of whack and that they

need to be calmed down. Is the Elavil working for you at all? I would love to

hear back from you.

a

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I had cataract surgery two weeks ago and have been using 1% hydrocortozone drops

four times daily. I was worried about that and discussed it with my doctor. He

said it is very low potency and absolutely necessary to prevent infection while

the eye is healing. I am having my other eye done in a couple of weeks.

I was also using Ocuflox eyedrops but stopped because I was allergic to them.

Every time I put a drop in my eye I wonder but I still do it.

Ora

On Tue, 13 Mar 2001 18:06:53 -0800, Knox

wrote:

>I presume that the suppositories are anusol hydrocortisone suppositories -

>hydrocortisone is a very low potency steroid, so personally I wouldn't get

>worried.

>

>Good luck Donna!

>

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Below I have pasted the relevant DIV info from Dr ' website. I have

been interested in this method of treating DIV for a while because it seems

he has found a more effective method that using clindamycin which I believe

has a pretty high relapse rate (unless you believe the original paper on it

by Sobel which I am dubious about). For a while I thoght I might have DIV,

but now I know better.

I presume that the suppositories are anusol hydrocortisone suppositories -

hydrocortisone is a very low potency steroid, so personally I wouldn't get

worried.

Good luck Donna!

xxx

---

It should be mentioned that at least two clinical variations of DIV exist.

Both groups present a clinical picture of severe atrophic vaginitis in a

non estrogen deficient patient. The lesion associated with lichen planus is

much more aggressive of the two. The group of patients that do not have

lichen planus may respond to antibiotics or topical steroids with dramatic

clinical improvement and stabilization of their disease.

*(He would have said if your DIV was associated with lichen planus, so if

he didn't you can assume you have the other type of DIV - )*

Interestingly the group of patients that do not have lichen planus may

respond to antibiotics or topical steroids with dramatic clinical

improvement and stabilization of their disease (Sobel). Culture specific

therapy is ideal but not often possible in which case Clindamycin (2% cream

or 150 mg tid), cephalahexin (500 mg bid to qid) and or metronidazole (1-3

gm daily) may induce remission in such patients. Antibiotic therapy may be

topical or oral. Vaginal applications of antibiotics may cause significant

burning and this makes the oral route preferred. Antibiotic therapy should

not be continued for more than three weeks if a trial appears warranted.

***(emphasis by )****My experience with treating this group of DIV

patients with antibiotics is not encouraging but all have responded to low

dose cortisone (12,5 mg daily to q 3rd day). This therapy clears the

obvious abnormal flora from the vagina quickly with or without concomitant

antibiotics. *******

Interestingly such patients appear not to benefit from additional estrogen

but the clinician should demonstrate that an estrogen deficiency does not

exist since recovery will not occur in the face of estrogen lack. Periodic

oral antifungal therapy is prudent during the acute treatment phase with

antibiotics and steroids since yeast frequently overgrow and mixed symptoms

make management more complicated. A suggested regimen is to use fluconazole

150 mg weekly for the first six weeks of therapy and at times of suspected

fungal infection during treatment.

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,

Like you, I believe that my VV was caused by a reaction to a medicine I was on.

I was on Accutane and I am too wishing that I never used it becasue I had no

idea somehting this terrible would happen. Either I have had a chemical burn

or it dried my mucous membranes causing inflammation. Either way, here I am now

6 months later hoping for a break and that this crazy side effect will go away.

I am in a relationship and our sex life has completely changed. Sex used to be

fun and exciting and now painful and difficult. I am able to have intercourse

maybe once a week. My boyfriend is so understanding and does not seem to be

upset by our minimal lovemaking, but for me I feel like I am not as feminine as

others he has dated because of this problem. But, this is definetely a true

test. , I can't imagine having this for years and years like other women

and hope that I will have the strength to deal with this if in fact I do have

it. With the Elavil, I didn't begin to see an improvement until at least 30mg.

Be patient with it because for me it has alleviated some of the discomfort. My

VV specialist told me thatusing Lidocaine can thin the tissue and I would be

cautious using it. Hope that we all start feeling better soon and stay strong!

a

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