Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hello and welcome to the group! I'm not from AZ (though I wish right now I was!!) but wanted to say hello. You've come to a GREAT board that will give you tons of support and advice. My son is now just about 6 months old, was diagnosed with plagio at 4 months and has had a CranioCap since December 4th. His plagio is severe, but we are seeing some correction now with the helmet. Whew, thank goodness. You are doing a great thing for your son, and at a GREAT age! Be sure to post if you have questions, want to vent AND when you find out more!! Best wishes! Kim mom to Kaela (9 yrs) and Jaxson 6 months tort/plagio/CranioCap 12/4/03 > Hello to all.. I'm new to this group and reside in Glendale, AZ. My > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > January 31st because our pediatrician thinks he has positional > plagiocephaly. Just wondering if there's anyone out there who is > going through the same thing and living in the Phoenix metro area. If > so, what neurosurgeon did you see, what treatment did you use, did > you have to fight the insurance companies, etc. I don't know anyone > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi! I am in Phoenix, AZ (Ahwatukee) and we just gratduated from our DOCband. My sons ped noticed his plagio at about a month and we tried repo-ing for a couple months w/o any results so we were refered to Cranial Technolgies and my son was banded at 4 months, and he outgrew the first band so he got a second one at 6 months. He graduated on 12/22 at 8.5 months and looks great. His head is not perfect but it is much better than I ever expected. I look forward to getting to know you and if you have any questions I would be happy to talk to you, if you want my number you can send me your email adress. Good Luck! Donna momma to Jaxon 22 months and Xavier 9 months DOCgrad ). > Hello to all.. I'm new to this group and reside in Glendale, AZ. My > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > January 31st because our pediatrician thinks he has positional > plagiocephaly. Just wondering if there's anyone out there who is > going through the same thing and living in the Phoenix metro area. If > so, what neurosurgeon did you see, what treatment did you use, did > you have to fight the insurance companies, etc. I don't know anyone > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi, I live in Mesa, AZ. My dd is seeing a ped. neurosurgeon today at Desert Sam. Hospital (Dr. Manwaring from Phx Childrens Hospital). My daughter is 16 wks old today and has mild to mod (we will see what the doc says) flattening on the back right side of her head and I can see the result in her forehead. Unfortunately I feel like I am a pro at this because I have a now 6 1/2 yr old son that had the DOC band at 6 mo of age. He had mod-severe flattening. I also saw Dr. Manwaring and went to Cranial Technologies in Phx. They are the ones who do the DOC band and they are EXCELLENT! Good luck on your appt and feel free to email me if you want to talk since we are both in AZ. S. mom to Presley > Hello to all.. I'm new to this group and reside in Glendale, AZ. My > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > January 31st because our pediatrician thinks he has positional > plagiocephaly. Just wondering if there's anyone out there who is > going through the same thing and living in the Phoenix metro area. If > so, what neurosurgeon did you see, what treatment did you use, did > you have to fight the insurance companies, etc. I don't know anyone > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi and welcome to the group! I'm not in AZ, but did treat my daughter's Scaphy with a DOCBand by Cranial Technologies. They make all their bands in AZ. I'm sure whatever treatment you chose to use, will be a good one! Good Luck and let us know how the appt goes. Also, if you go to the photo section of the group there are before and after pictures of babies that have completed all different kinds of treatments and been successful! Dustie, mom to , DOCGrad'03 Texas > Hello to all.. I'm new to this group and reside in Glendale, AZ. My > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > January 31st because our pediatrician thinks he has positional > plagiocephaly. Just wondering if there's anyone out there who is > going through the same thing and living in the Phoenix metro area. If > so, what neurosurgeon did you see, what treatment did you use, did > you have to fight the insurance companies, etc. I don't know anyone > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi, I'm not in AZ, I'm sure someone who is will reply to you soon. I just wanted to welcome you to the group! Welcome!! > Hello to all.. I'm new to this group and reside in Glendale, AZ. My > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > January 31st because our pediatrician thinks he has positional > plagiocephaly. Just wondering if there's anyone out there who is > going through the same thing and living in the Phoenix metro area. If > so, what neurosurgeon did you see, what treatment did you use, did > you have to fight the insurance companies, etc. I don't know anyone > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Hi! Welcome to the group!! You are definitely not alone in this. We live in sdale and go to the Phoenix Cranial Technologies office. My son, Max, is nearing the end of his treatment in the DOCband and I cannot say enough about Cranial Technologies and our clinician Margie. Regarding the insurance...we have BC/BS and they paid 50% of the cost for the band. Some insurance companies will pay more some less. It really depends on your insurance company and the policy you have. Your son is at a great age for correction. I'm impressed that your pediatrician is so proactive and knowledgeable about Plagiocephaly. All the very best to you as you make this decision! Kathleen and Max sdale > Hello to all.. I'm new to this group and reside in Glendale, AZ. My > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > January 31st because our pediatrician thinks he has positional > plagiocephaly. Just wondering if there's anyone out there who is > going through the same thing and living in the Phoenix metro area. If > so, what neurosurgeon did you see, what treatment did you use, did > you have to fight the insurance companies, etc. I don't know anyone > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Thanks for the kind words, I'm hoping to get this corrected before it's too late. I loooove my pediatrician, she's a nurse practitioner and with all the problems we've had she's a godsend. We'll see how it goes on the 30th! > > Hello to all.. I'm new to this group and reside in Glendale, AZ. My > > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > > January 31st because our pediatrician thinks he has positional > > plagiocephaly. Just wondering if there's anyone out there who is > > going through the same thing and living in the Phoenix metro area. > If > > so, what neurosurgeon did you see, what treatment did you use, did > > you have to fight the insurance companies, etc. I don't know anyone > > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Hey, how did they appointment go? I am wondering how " severe " my son's is, it looks pretty bad to me. How do they determine that anyway? And what's with the 78 degree weather? > > Hello to all.. I'm new to this group and reside in Glendale, AZ. > My > > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > > January 31st because our pediatrician thinks he has positional > > plagiocephaly. Just wondering if there's anyone out there who is > > going through the same thing and living in the Phoenix metro area. > If > > so, what neurosurgeon did you see, what treatment did you use, did > > you have to fight the insurance companies, etc. I don't know > anyone > > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Thanks so much for the kind words! I agree, I looove my pediatrician, she's actually a nurse practitioner and she's fabulous. Our appointment is on the 30th so we'll see what they say, and it couldn't be sooner, my little guy decided to start rolling over so keeping him on his tummy to play and help out the plagio isn't as much of an option anymore! ;-) > > Hello to all.. I'm new to this group and reside in Glendale, AZ. My > > son, who is 3 1/2 months, is going to see a ped. neurosurgeon on > > January 31st because our pediatrician thinks he has positional > > plagiocephaly. Just wondering if there's anyone out there who is > > going through the same thing and living in the Phoenix metro area. > If > > so, what neurosurgeon did you see, what treatment did you use, did > > you have to fight the insurance companies, etc. I don't know anyone > > else whos child has had this so I need a ray of hope! Thanks! Quote Link to comment Share on other sites More sharing options...
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