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HELP!!! Can radiologist be wrong????

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Yes, this does happen. Fallon had an MRI reported by radiologist as

" good csf flow " but reported by 2 (two) neurosurgeons as NOT good....go

figure! I think they need to have the surgeons interpret....

Billie Jo

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Alice,

In response to your question...I too just today recieved word from the radiologist that my mri's were normal; however I feel I can see (comparing with other mri's) the tonsils so I too was very frustrated; but just remember that Dr. Rosner and Weingart both have said that the radiologists would probably read them as normal....I was a little upset; but not for very long....a kind lady on this list has really helped me through the confusion....

Would others please post how many times their MRI's were read as normal...just to make us all feel better????

Thanks so much,

dx.cfids

appt. w/rosner july3rd (AMEN)

>>>>>Does this really happen that the radiologist can read it as normal andit's not? If this isn't already frustrating enough!! I feel like I'mback to square one all over again. Alice------------------------------------------------------------------------WACMA Site: http://www.pressenter.com/~wacmaYour Personal support group member page: http://www.eGroups.com/group/chiari/**Avoid List Congestion:Unsubscribe from this list: mailto:chiari-unsubscribeegroupsContact list mgmt: mailto:chiari-owneregroups------------------------------------------------------------------------eGroups.com Home: /group/chiari/ - Simplifying group communications

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Hi all and Alice,

It happened to me too. The first radiologist said everything was normal.

Then the second MRI radiologist said I had cervical stenosis but csf flow

was normal. Dr. Milhorat said both MRIs were not normal. Another

radiologist did a second cine and said it was NOT normal.

I just had a 3rd and 4th cine, (my Fifth mri). It is obvious to me that it

is not normal, and Dr. Milhorat's office said it is not normal. I have not

seen the radiologist's report.

Remember how new cine mri technology is. The first and third cine I had

were not even done right. And they were done at the University of Miami.

The tech there said they have been doing cines for a long time. But she

said they just had the software to do the kind of cine that I needed---a

quantitative flow study---for about a month.

Alice, do not believe what the first one said. And remind your insurance

company how new the technology is and that even regular MRIs are often not

done right or read properly.

Maybe you could have your neuro order a new MRI and have it done somewhere

else. Have him say it was not a clear mri. It's not uncommon for this to

happen. All of my MRIs were authorized.

Or maybe your neuro could talk to the radiologist and tell him/her that it

is not normal and please look again.

Or you could request to speak to the radiologist and tell him/her what Dr.

Milhorat said.

Good Luck! I'm saying my prayers that it all works out.

Love,

Maureen

HELP!!! Can radiologist be wrong????

Thanks to everyone for their replies re: my question of possible

thoracic syrinx. My latest set back now is this:

I had my CINE-MRI at Vanderbilt last week, the films were sent to Dr.

Milhorat. His office called and told me it is 100% positive, not even

the slightest doubt. I finally felt vindicated for all my painful,

weird symptoms, and anxiously awaiting my appointment on April 6.

I just got back from my neurologist appointment, and the written

radiologist report from Vanderbilt is NORMAL CSF FLOW. Now What???? I

am so confused.

I called Dr. M's office, they relooked at the films and told me is

absolutely decreased flow behind the cerebellum. (He actually said, I

can't believe they could send out a normal report. They wouldn't even

need glasses to see this) My insurance (HMO) is requesting the

radiologist report, and they have already told my neurologist office

that if it is normal they will not pay for my visit to Milhorat (they

had already approved it initially). Dr. M's office says they can not

send out a written report, since they are not radiologist. What they

suggested was for my neurologist to call them, they would give a verbal

report of what they see on the films, then he can write a note on my

chart, etc,. etc, and then send that to the HMO.

Does this really happen that the radiologist can read it as normal and

it's not? If this isn't already frustrating enough!! I feel like I'm

back to square one all over again.

Alice

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et al,

Rick's MRI's were read fairly well the first two times, then on the

third one the report sited the syrinx at a completely DIFFERENT

location, and then said " no significant change from prior MRI " .

Hmmmmm, seems like that would be significant. Of course, the syrinx

hadn't moved, but maybe the radiologist was standing on his head.

On Rick's last MRI....the Lumbar Scan, the report said " normal " " no

unusal findings " but the nsg said there was stenosis.

All four times it was the same radiologist!!!

Wendi

New Mexico

" karen " wrote:

original article:/group/chiari/?start=32552

> Alice,

> In response to your question...I too just today recieved word from

the radiologist that my mri's were normal; however I feel I can see

(comparing with other mri's) the tonsils so I too was very frustrated;

but just remember that Dr. Rosner and Weingart both have said that the

radiologists would probably read them as normal....I was a little

upset; but not for very long....a kind lady on this list has really

helped me through the confusion....

>

> Would others please post how many times their MRI's were read as

normal...just to make us all feel better????

>

> Thanks so much,

>

>

> dx.cfids

> appt. w/rosner july3rd (AMEN)

>

>

>

>

> >>>>>Does this really happen that the radiologist can read it as

normal and

> it's not? If this isn't already frustrating enough!! I feel like I'm

> back to square one all over again.

>

> Alice

>

>

> ---------------------------------------------------------------------

---

> WACMA Site: http://www.pressenter.com/~wacma

> Your Personal support group member page: http://www.eGroups.com/group

/chiari/

> **Avoid List Congestion:

> Unsubscribe from this list: mailto:chiari-unsubscribeegroups

> Contact list mgmt: mailto:chiari-owneregroups

>

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> Essentially unremarkable MRI. "

Don't you just hate that term.... " unremarkable? " It's right up there

with " unimpressive " as my most hated medical terms. Seems like doctors

use them all the time to describe symptoms, etc......Rick said he'd

like to hit one of those docs in the back of the head with a 2x4 and

see how " impressive " he thought that was!

LOL

Wendi

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I had an MRI 12 years ago... came back normal. I had one a few months ago

and showed ACM 1. Then I had a full head MRI and that radiologist read it

as normal! Dr. Batzdorf (UCLA) said he was very concerned that a

radiologist in 1999 would miss something so obvious. Praise God the 1st one

was read accurately! (actually the second 12 years later!)

Connie :)

HELP!!! Can radiologist be wrong????

Thanks to everyone for their replies re: my question of possible

thoracic syrinx. My latest set back now is this:

I had my CINE-MRI at Vanderbilt last week, the films were sent to Dr.

Milhorat. His office called and told me it is 100% positive, not even

the slightest doubt. I finally felt vindicated for all my painful,

weird symptoms, and anxiously awaiting my appointment on April 6.

I just got back from my neurologist appointment, and the written

radiologist report from Vanderbilt is NORMAL CSF FLOW. Now What???? I

am so confused.

I called Dr. M's office, they relooked at the films and told me is

absolutely decreased flow behind the cerebellum. (He actually said, I

can't believe they could send out a normal report. They wouldn't even

need glasses to see this) My insurance (HMO) is requesting the

radiologist report, and they have already told my neurologist office

that if it is normal they will not pay for my visit to Milhorat (they

had already approved it initially). Dr. M's office says they can not

send out a written report, since they are not radiologist. What they

suggested was for my neurologist to call them, they would give a verbal

report of what they see on the films, then he can write a note on my

chart, etc,. etc, and then send that to the HMO.

Does this really happen that the radiologist can read it as normal and

it's not? If this isn't already frustrating enough!! I feel like I'm

back to square one all over again.

Alice

------------------------------------------------------------------------

WACMA Site: http://www.pressenter.com/~wacma

Your Personal support group member page:

http://www.eGroups.com/group/chiari/

**Avoid List Congestion:

Unsubscribe from this list: mailto:chiari-unsubscribeegroups

Contact list mgmt: mailto:chiari-owneregroups

------------------------------------------------------------------------

eGroups.com Home: /group/chiari/

- Simplifying group communications

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My MRI was read as normal by the radiologist too. Dr. Rosner first

diagnosed me and Dr. Milhorat did my surgery - maybe insurance didn't ask

for initial radiology report in my case.

Beverly

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kathleen grigg wrote:

original article:/group/chiari/?start=32561

> > Would others please post how many times their MRI's were read as

> > normal...just to make us all feel better????

>

Hi all - I started having classic ACM head pains in 1985. Had an MRI

done in 1987 - it was read as normal. Continued dealing with symptoms

and went to a different neurologist in 1993. Took copies of my 1987

MRI's with me. He looked at them for about 30 seconds and said " here's

your problem right here " and pointed out the ACM. We did a new MRI

that showed the same ACM malformation. SO - - - - yes, you can have

MRI's misread as normal when there is actually a malformation. I would

always request a second opinion, even on the reading of an MRI.

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