Re: Why would an autistic person be 'offended'

January 28, 2009

Common sense.

> > >

> > > > From: † Angel <sola_blue_angel@ ...>

> > >

> > > > Subject: Why would an autistic person

> > >

> > > be 'offended'

> > >

> > > > To: AutisticSpectrumTre eHouse@yahoogrou ps.com

> > >

> > > > Date: Tuesday, January 27, 2009, 12:03 PM

> > >

> > > >

> > >

> > > >

> > >

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> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > > that some believe mercury is a harmful substance, and

> > >

> > > may contribute to

> > >

> > > >

> > >

> > > > autism? What in tarnation is offensive about that? I wonder

if all

> > >

> > > >

> > >

> > > > sorts of things caused my daughter to have Rett Syndrome. Pine

> > >

> > > smoke,

> > >

> > > >

> > >

> > > > pesticides, trazadone, anything that my mind could fathom. I

have

> > >

> > > the

> > >

> > > >

> > >

> > > > right to such 'thinking' and really what is wrong with

throwing

> > >

> > > ideas

> > >

> > > >

> > >

> > > > into the mix. I stopped getting my daughter immunized for as

long

> > >

> > > as I

> > >

> > > >

> > >

> > > > legally could because I didn't want to do additional P O T E

N T I

> > >

> > > A L

> > >

> > > >

> > >

> > > > damage. But she DID receive immunizations as a baby. Maybe my

not

> > >

> > > >

> > >

> > > > giving her anymore prevented her from losing the ability to

walk,

> > >

> > > like

> > >

> > > >

> > >

> > > > some Rett Syndrome girls.

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > > In addition, as for my experience.. ... When they gave *me*

the

> >MMR

> > >

> > > in

> > >

> > > >

> > >

> > > > the hospital after I gave birth to her, ALMOST BY

> > >

> > > >

> > >

> > > > FORCE!!!!!!! !!!!!!!!! !!!!! I was MAD!!!!!!!.. ...not only

did I

> > >

> > > have to

> > >

> > > >

> > >

> > > > recover from a c-section, but I got sick from the vaccine, to

the

> > >

> > > point

> > >

> > > >

> > >

> > > > I couldn't sit up, and had a severe arthritis attack. And to

think

> > >

> > > they

> > >

> > > >

> > >

> > > > pump babies full of that crap when they are teeny tiny

defenseless

> > >

> > > >

> > >

> > > > creatures.

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > > Sola

> > >

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January 28, 2009

There is no need to yell at me.

I was using the same " might " that you were.

-jypsy

At 10:21 AM 1/28/2009, † Angel wrote:

>I'm talking about real life, not woulda coulda shoulda. You just

>haven't made the effort to SEE the picture. Those da*% vaccines

>aren't as great as you think they are. Vaccines aren't the perfect

>solution......similarly it isn't perfect, the choice I had to make at

>the time.....THERE IS NO PERFECTION, THE WORLD OF DISEASE ISN'T MADE

>PERFECT JUST BECAUSE THERE ARE VACCINES. A magic bullet they ARE NOT!

>It isn't as black and white as some here would like to think....it

>actually is rather grey......how bout that book Sophie's Choice.

>Remember that. Well, sometimes life mandates a 'catch 22'

>scenerio....and YOU HAVE TO CHOOSE FROM TWO *FAULTY CHOICES (*KIND OF

>LIKE PRESIDENTIAL ELECTIONS) BASED ON YOU, NOT ON THE HERD MENTALITY.

>

> > > > > >

> > > > > > > From: † Angel <sola_blue_angel@ ...>

> > > > > >

> > > > > > > Subject: Why would an autistic person

> > > > > >

> > > > > > be 'offended'

> > > > > >

> > > > > > > To: AutisticSpectrumTre eHouse@yahoogrou ps.com

> > > > > >

> > > > > > > Date: Tuesday, January 27, 2009, 12:03 PM

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > that some believe mercury is a harmful substance, and

> > > > > >

> > > > > > may contribute to

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > autism? What in tarnation is offensive about that? I

>wonder if

> > > > >all

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > sorts of things caused my daughter to have Rett Syndrome.

>Pine

> > > > > >

> > > > > > smoke,

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > pesticides, trazadone, anything that my mind could

>fathom. I

> > >have

> > > > > >

> > > > > > the

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > right to such 'thinking' and really what is wrong with

> > >throwing

> > > > > >

> > > > > > ideas

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > into the mix. I stopped getting my daughter immunized for

>as

> > >long

> > > > > >

> > > > > > as I

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > legally could because I didn't want to do additional P O

>T E

> > >N T

> > > > >I

> > > > > >

> > > > > > A L

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > damage. But she DID receive immunizations as a baby.

>Maybe my

> > >not

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > giving her anymore prevented her from losing the ability

>to

> > >walk,

> > > > > >

> > > > > > like

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > some Rett Syndrome girls.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > In addition, as for my experience.. ... When they gave

>*me*

> > >the

> > > > >MMR

> > > > > >

> > > > > > in

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > the hospital after I gave birth to her, ALMOST BY

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > FORCE!!!!!!! !!!!!!!!! !!!!! I was MAD!!!!!!!.. ...not

>only

> > >did I

> > > > > >

> > > > > > have to

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > recover from a c-section, but I got sick from the

>vaccine, to

> > >the

> > > > > >

> > > > > > point

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > I couldn't sit up, and had a severe arthritis attack. And

>to

> > > > >think

> > > > > >

> > > > > > they

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > pump babies full of that crap when they are teeny tiny

> > > > >defenseless

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > creatures.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > Sola

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

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> > > > > >

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> > > > > >

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> > > > > >

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> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

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> > > > > >

> > > > > > >

January 28, 2009

Although some of the comments here are exasperating,

literally,......I apologize if you were insulted by capitals....and

if you think I was yelling and took it that way.......really, I use

capitals as 'emphasis'...but again I wasn't yelling. I hope you

weren't being condescending to me. That's as bad as yelling.

Sincerely, Sola

> > > > > > >

> > > > > > > > From: † Angel <sola_blue_angel@ ...>

> > > > > > >

> > > > > > > > Subject: Why would an autistic

person

> > > > > > >

> > > > > > > be 'offended'

> > > > > > >

> > > > > > > > To: AutisticSpectrumTre eHouse@yahoogrou ps.com

> > > > > > >

> > > > > > > > Date: Tuesday, January 27, 2009, 12:03 PM

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > that some believe mercury is a harmful substance, and

> > > > > > >

> > > > > > > may contribute to

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > autism? What in tarnation is offensive about that? I

> >wonder if

> > > > > >all

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > sorts of things caused my daughter to have Rett

Syndrome.

> >Pine

> > > > > > >

> > > > > > > smoke,

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > pesticides, trazadone, anything that my mind could

> >fathom. I

> > > >have

> > > > > > >

> > > > > > > the

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > right to such 'thinking' and really what is wrong with

> > > >throwing

> > > > > > >

> > > > > > > ideas

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > into the mix. I stopped getting my daughter immunized

for

> >as

> > > >long

> > > > > > >

> > > > > > > as I

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > legally could because I didn't want to do additional

P O

> >T E

> > > >N T

> > > > > >I

> > > > > > >

> > > > > > > A L

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > damage. But she DID receive immunizations as a baby.

> >Maybe my

> > > >not

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > giving her anymore prevented her from losing the

ability

> >to

> > > >walk,

> > > > > > >

> > > > > > > like

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > some Rett Syndrome girls.

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > In addition, as for my experience.. ... When they gave

> >*me*

> > > >the

> > > > > >MMR

> > > > > > >

> > > > > > > in

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > the hospital after I gave birth to her, ALMOST BY

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > FORCE!!!!!!! !!!!!!!!! !!!!! I was MAD!!!!!!!.. ...not

> >only

> > > >did I

> > > > > > >

> > > > > > > have to

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > recover from a c-section, but I got sick from the

> >vaccine, to

> > > >the

> > > > > > >

> > > > > > > point

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > I couldn't sit up, and had a severe arthritis attack.

And

> >to

> > > > > >think

> > > > > > >

> > > > > > > they

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > pump babies full of that crap when they are teeny tiny

> > > > > >defenseless

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > creatures.

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > > Sola

> > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

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January 28, 2009

> I use capitals as 'emphasis'

Then you should stop, because:

> ...but again I wasn't yelling.

This isn't the way your use of capitals will be perceived. When you

type all in capitals in an Internet forum, you are considered to be

yelling at the person. If you don't understand why, MAYBE YOU SHOULD

DO SOME RESEARCH. (Or maybe that example will be enough.)

January 28, 2009

2009/1/28 † Angel :

> Although some of the comments here are exasperating,

> literally,......I apologize if you were insulted by capitals....and

> if you think I was yelling and took it that way.......really, I use

> capitals as 'emphasis'...

It's good to learn that if you use capitals like that on an e-mail

list everyone will think you are deliberately yelling. There are

other ways to emphasis. like putting * before (and maybe after too) a

word, or an underscore each side of the relevant words.

Ruth

January 28, 2009

No, I wasn't being condescending.

When I want to emphasize something I (and some

others) do *this*. That way it can't be

misinterpreted as yelling. I know there are other

ways (besides doing this or this that won't show

up if you're reading this as plain text) but I forget just now what they are.

I tend to stop reading when people start (what I

perceive to be) yelling. So.... to reply to what you actually said....

You said " those shots MIGHT make the symptoms

worse, or cause symptoms that might not otherwise

have appeared if the shot had not been administered "

I replied " but those same shots that " MIGHT make

the symptoms worse " might also save her life.

My statement was as valid as yours. (wasn't it?)

You replied: " I'm talking about real life, not woulda coulda shoulda. "

to which I said " I was using the same " might " that you were. "

You *were* talking woulda, coulda. You have no way of *knowing*. (Do you?)

Then you say " You just haven't made the effort to SEE the picture "

How do you know what kind of effort I've put into

this? Is *this* condescension?

I guess it was what you said as much as the all

caps that halted me in my tracks. Next sentence

you assume to know what I think....

-jypsy

At 10:41 AM 1/28/2009, † Angel wrote:

>Although some of the comments here are exasperating,

>literally,......I apologize if you were insulted by capitals....and

>if you think I was yelling and took it that way.......really, I use

>capitals as 'emphasis'...but again I wasn't yelling. I hope you

>weren't being condescending to me. That's as bad as yelling.

>

>Sincerely, Sola

>

> > > > > > > >

> > > > > > > > > From: † Angel <sola_blue_angel@ ...>

> > > > > > > >

> > > > > > > > > Subject: Why would an autistic

>person

> > > > > > > >

> > > > > > > > be 'offended'

> > > > > > > >

> > > > > > > > > To: AutisticSpectrumTre eHouse@yahoogrou ps.com

> > > > > > > >

> > > > > > > > > Date: Tuesday, January 27, 2009, 12:03 PM

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > that some believe mercury is a harmful substance, and

> > > > > > > >

> > > > > > > > may contribute to

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > autism? What in tarnation is offensive about that? I

> > >wonder if

> > > > > > >all

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > sorts of things caused my daughter to have Rett

>Syndrome.

> > >Pine

> > > > > > > >

> > > > > > > > smoke,

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > pesticides, trazadone, anything that my mind could

> > >fathom. I

> > > > >have

> > > > > > > >

> > > > > > > > the

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > right to such 'thinking' and really what is wrong with

> > > > >throwing

> > > > > > > >

> > > > > > > > ideas

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > into the mix. I stopped getting my daughter immunized

>for

> > >as

> > > > >long

> > > > > > > >

> > > > > > > > as I

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > legally could because I didn't want to do additional

>P O

> > >T E

> > > > >N T

> > > > > > >I

> > > > > > > >

> > > > > > > > A L

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > damage. But she DID receive immunizations as a baby.

> > >Maybe my

> > > > >not

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > giving her anymore prevented her from losing the

>ability

> > >to

> > > > >walk,

> > > > > > > >

> > > > > > > > like

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > some Rett Syndrome girls.

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > In addition, as for my experience.. ... When they gave

> > >*me*

> > > > >the

> > > > > > >MMR

> > > > > > > >

> > > > > > > > in

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > the hospital after I gave birth to her, ALMOST BY

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > FORCE!!!!!!! !!!!!!!!! !!!!! I was MAD!!!!!!!.. ...not

> > >only

> > > > >did I

> > > > > > > >

> > > > > > > > have to

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > recover from a c-section, but I got sick from the

> > >vaccine, to

> > > > >the

> > > > > > > >

> > > > > > > > point

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > I couldn't sit up, and had a severe arthritis attack.

>And

> > >to

> > > > > > >think

> > > > > > > >

> > > > > > > > they

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > pump babies full of that crap when they are teeny tiny

> > > > > > >defenseless

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > creatures.

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > > Sola

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

January 28, 2009

Angel,

Parrish is correct: I teach online, and when I was trained, it was part of the

required information on " netiquette " tat we had to learn " . There is a time for

yelliing: All caps will work great for that. We were told thatitalics would

work well for emphasis.

, who makes errors, too : c )

________________________________

To: AutisticSpectrumTreeHouse

Sent: Wednesday, January 28, 2009 10:00:36 AM

Subject: Re: Why would an autistic person be 'offended'

> I use capitals as 'emphasis'

Then you should stop, because:

> ...but again I wasn't yelling.

This isn't the way your use of capitals will be perceived. When you

type all in capitals in an Internet forum, you are considered to be

yelling at the person. If you don't understand why, MAYBE YOU SHOULD

DO SOME RESEARCH. (Or maybe that example will be enough.)

January 28, 2009

Very few people in the developed world die of the classic infectious diseases

now prevented by vaccines. (DPT, smallpox, etc.)

Many of the more recent vaccines, such as MMR, Chickenpox, and flu, address

diseases which are just an inconvenience to most of us, and hazardous mainly if

a pregnant woman or a person in a weakened state (elderly, immune compromised,

etc) gets them. The general public is protected as long as the majority of

people are vaccinated, and as long as ill people take reasonable precautions to

avoid exposing themselves to pregnant women and others in weakened states. It's

a trade off; none of us gets out of this life alive anyhow.

As for me, I get a flu shot every year, a tetanus shot every 10 years, and if I

ever travel I intend to get the recommended shots. But this is my personal

choice. I know other people avoid vaccines; this is their personal choice. The

majority of people do tend to get vaccinated, and, as long as this trend holds

up, the public is reasonably safe. Sooner or later something gets each of us,

in the end; in the meantime, we do the best we can.

On the other hand, I waited as long as possible before getting my daughter her

shots, and spread them out as much as possible. I figured that getting them in

rapid succession, several at a time, was too much strain on a baby's system, the

diseases in question are very rare anyhow, and there was no harm in spreading

them out over time. She's doing fine; however, she was blessed with good health

and a strong constitution anyway.

For a mother with a daughter with a serious condition like Retts, who is anyone

else to question her decision that getting her daughter shots may aggrivate her

condition in ways that cannot be forseen? " Based on what evidence? " Who is

anyone else to demand this evidence? Maybe only a gut feeling? Who is anyone

else to discount that?

" Gut feelings " are the result of subconscious processing of -huge- amounts of

information, and they are correct more often than not. Many people have the

experience of making a decision against their gut feeling that they later

regretted, and say something like, " I had a feeling that I shouldn't have done

that, I wish I had gone with that feeling! "

Rett syndrome is a very serious and painful condition, and the mother of a Rett

syndrome daughter is doing the best she can. We all do the best we can with

whatever we got.

..

Re: Why would an autistic person be 'offended'

Posted by: " jypsy [ janet norman-bain ] " jypsy@...

aspie_jypsy

Wed Jan 28, 2009 3:11 am (PST)

obviously.

but those same shots that " MIGHT make the

symptoms worse " might also save her life

-jypsy

At 01:05 AM 1/28/2009, â€ Angel wrote:

>She's not dead. She's not in a wheelchair.

PASS IT ON!

Visit http://www.thehungersite.com to give food to the hungry with just

aÂ click -- every day and at no cost to you.

HOW IT WORKS

When you click the " Give Free Food " button (once a day per person) atÂ

http://www.thehungersite.com, this simple action gives over a cup ofÂ

fortified food to a hungry person.

It costs you nothing. Funding is paid by site sponsors and food isÂ

distributed by two leading nonprofit hunger relief organizations: MercyÂ

Corps and America's Second Harvest. (A valid site -- I checked it out -- JP)Â As

Margaret Mead said, " Never doubt that a small group of thoughtful committed

citizens can change the world: Indeed it's the only thing that ever has. "

January 28, 2009

There's a lot of anecedotal evidence associating vaccines with autism,

particularly its co-morbidities. Many of these co-morbidities are very painful,

and it seems reasonable to try to avoid them if possible, particularly with a

child who is already ill because of a genetic problem. Anecedotal evidence is

juat that; it's not scientific, and could be coincidental.

Still, it's a human tendency to look at patterns and try to make sense of them.

Some people try to make sense of this association by suggesting that AC's may be

more sensitive to vaccines in an analogous way that we are more sensitive to

sounds, lights, and smells.

If the mother of a child who is already struggling with a very serious illness

chooses to take this association into account in making decisions about her

daughter's health, what is that to anyone else? - Joni

Posted by: " jypsy [ janet norman-bain ] " jypsy@... aspie_jypsy

Wed Jan 28, 2009 3:12 am (PST)

Your evidence that Retts kids may respond differently is........?

-jypsy

PASS IT ON!

Visit http://www.thehungersite.com to give food to the hungry with just

a click -- every day and at no cost to you.

HOW IT WORKS

When you click the " Give Free Food " button (once a day per person) at

http://www.thehungersite.com, this simple action gives over a cup of

fortified food to a hungry person.

It costs you nothing. Funding is paid by site sponsors and food is

distributed by two leading nonprofit hunger relief organizations: Mercy

Corps and America's Second Harvest. (A valid site -- I checked it out -- JP) As

Margaret Mead said, " Never doubt that a small group of thoughtful committed

citizens can change the world: Indeed it's the only thing that ever has. "

January 28, 2009

At 01:40 PM 1/28/2009, joni pinkney wrote:

Who is anyone else to demand this evidence?

" demand " ?

I assure you I wasn't/don't " demand " .

Why do you demand to know?

-jypsy

________________________________

January 28, 2009

My apologies, its just that the repeated requests for evidence of vaccination /

harm link and the repeated requests for justificatoin of one's personal

decisions regarding the care of one's children struck me as a bit demanding.

This list is getting ugly. I've seen other lists get ugly and I guess this list

is no different. I got better things to do than watch this. I'm outta here for

a while. Goodbye, all. - joni

Re:

At 01:40 PM 1/28/2009, joni pinkney wrote:

Who is anyone else to demand this evidence?

" demand " ?

I assure you I wasn't/don't " demand " .

Why do you demand to know?

-jypsy

PASS IT ON!

Visit http://www.thehungersite.com to give food to the hungry with just

a click -- every day and at no cost to you.

HOW IT WORKS

When you click the " Give Free Food " button (once a day per person) at

http://www.thehungersite.com, this simple action gives over a cup of

fortified food to a hungry person.

It costs you nothing. Funding is paid by site sponsors and food is

distributed by two leading nonprofit hunger relief organizations: Mercy

Corps and America's Second Harvest. (A valid site -- I checked it out -- JP) As

Margaret Mead said, " Never doubt that a small group of thoughtful committed

citizens can change the world: Indeed it's the only thing that ever has. "

January 29, 2009

Sola wrote: As far as having a level of 'self knowledge' and 'reflection'

......which Kassi exibits..... .none of that conceptualization ability applies to

most Rett girls.

--------

Gently... please see this as a gentle thing...

Lack of communication of knowledge or skill, doesn't mean that it isn't there.

That is why doctors encourage people to talk to coma patients, play favorite

music, etc.

That is why, as a special ed teacher, I respond to our " lowest " kids as if they

understand everything. It makes some people shake their heads and smile, but I

also get grins and hugs from kids who won't come within a mile of other people,

or give them the slightest acknowledgement. Not that I'm all that into hugs,

myself. But it is a measure of responsiveness in the kids. One of our " low "

autistics burst out laughing the first time I said to a duty teacher who was

complaining they couldn't direct him because he didn't understand anything, that

just because he didn't respond didn't mean he didn't understand. She turned,

looked in the direction he was looking, and said, very puzzled... " What is

making him laugh? There's nothing over there. " That was three years ago. He says

" Hi " to me every time he sees me in the halls, now (he's in a different class

than mine).

You may *never* get a direct response from your young lady. But she may have a

very good sense of self, of what you are saying, etc. Or not. You don't know.

Find comfort in the possibility.

S.

" I won't do all the neurotypicals want, but you have to go halfway... You can't

degeekify the geeks, but you

can be a polite geek. " -- Temple Grandin

" Cherish forever what makes you unique, because you're really a yawn if it

goes. " -- Bette Midler

January 29, 2009

I used the word EXHIBIT, and I think you should take note of that. i

CHOOSE MY WORDS CAREFULLY, probably because I'm asperger's and depend

on words!!!!!!!!!!!!!! SPEAKING OF KNOWING WHAT ISN'T SAID.....THERE

IS AN AWFUL LOT OF IMPLICIT ASSUMPTION GOING ON IN WHAT PEOPLE ARE

SAYING TO ME HERE ABOUT WHAT I KNOW AND WHAT I DON'T KNOW, HOW I

THINK AND HOW I DON'T THING. AND SO THERE IS HYPOCRISY. THESE PEOPLE

KNOW NOTHING ABOUT HOW I VIEW MY DAUGHTER'S DIGNITY AS A HUMAN BEING.

N O T H I N

G!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

As far as having a level of 'self knowledge'

and 'reflection' .....which Kassi exibits..... .none of that

conceptualization ability applies to most Rett girls.

>

> --------

>

> Gently... please see this as a gentle thing...

>

> Lack of communication of knowledge or skill, doesn't mean that it

isn't there.

>

> That is why doctors encourage people to talk to coma patients, play

favorite music, etc.

>

> That is why, as a special ed teacher, I respond to our " lowest "

kids as if they understand everything. It makes some people shake

their heads and smile, but I also get grins and hugs from kids who

won't come within a mile of other people, or give them the slightest

acknowledgement. Not that I'm all that into hugs, myself. But it is a

measure of responsiveness in the kids. One of our " low " autistics

burst out laughing the first time I said to a duty teacher who was

complaining they couldn't direct him because he didn't understand

anything, that just because he didn't respond didn't mean he didn't

understand. She turned, looked in the direction he was looking, and

said, very puzzled... " What is making him laugh? There's nothing over

there. " That was three years ago. He says " Hi " to me every time he

sees me in the halls, now (he's in a different class than mine).

>

> You may *never* get a direct response from your young lady. But she

may have a very good sense of self, of what you are saying, etc. Or

not. You don't know.

>

> Find comfort in the possibility.

>

> S.

>

> " I won't do all the neurotypicals want, but you have to go

halfway... You can't degeekify the geeks, but you

> can be a polite geek. " -- Temple Grandin

>

> " Cherish forever what makes you unique, because you're really a

yawn if it goes. " -- Bette Midler

>

January 29, 2009

When I said it was time for a breather, I was thinking most particularly of

you, and this post is a pretty clear demonstration of why I called a " time

out " .

Please take a few moments (or longer) to gather yourself and settle down,

make yourself a cup of tea or whatever it is you do when you're overworked

and need to settle down, then come back and maybe we'll be able to discuss

things civilly again.

> I used the word EXHIBIT, and I think you should take note of that. i

> CHOOSE MY WORDS CAREFULLY, probably because I'm asperger's and depend

> on words!!!!!!!!!!!!!! SPEAKING OF KNOWING WHAT ISN'T SAID.....THERE

> IS AN AWFUL LOT OF IMPLICIT ASSUMPTION GOING ON IN WHAT PEOPLE ARE

> SAYING TO ME HERE ABOUT WHAT I KNOW AND WHAT I DON'T KNOW, HOW I

> THINK AND HOW I DON'T THING. AND SO THERE IS HYPOCRISY. THESE PEOPLE

> KNOW NOTHING ABOUT HOW I VIEW MY DAUGHTER'S DIGNITY AS A HUMAN BEING.

> N O T H I N

> G!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

January 29, 2009

Angel - sarcasm and confrontation when someone offers a peaceful and apologetic

response does not build a positive pathway to effective communication or in any

way create an open mind in others toward any sort of point you wish to make. Try

calming down a smidge if you truly want people open and sympathetic to your

point of view.

S.

" I won't do all the neurotypicals want, but you have to go halfway... You can't

degeekify the geeks, but you

can be a polite geek. " -- Temple Grandin

" Cherish forever what makes you unique, because you're really a yawn if it

goes. " -- Bette Midler

February 6, 2009

UH, hmm, let me think . . . could it be hard to understand becuz of my ASD?

HMM, I wonder!

I do know that for me comprehension of things is a big problem.

-- Why would an autistic person

be 'offended'

> To: AutisticSpectrumTre eHouse@yahoogrou ps.com

> Date: Tuesday, January 27, 2009, 12:03 PM

>

> that some believe mercury is a harmful substance, and

may contribute to

>

> autism? What in tarnation is offensive about that? I wonder if all

>

> sorts of things caused my daughter to have Rett Syndrome. Pine

smoke,

>

> pesticides, trazadone, anything that my mind could fathom. I have

the

>

> right to such 'thinking' and really what is wrong with throwing

ideas

>

> into the mix. I stopped getting my daughter immunized for as long

as I

>

> legally could because I didn't want to do additional P O T E N T I

A L

>

> damage. But she DID receive immunizations as a baby. Maybe my not

>

> giving her anymore prevented her from losing the ability to walk,

like

>

> some Rett Syndrome girls.

>

> In addition, as for my experience.. ... When they gave *me* the MMR

in

>

> the hospital after I gave birth to her, ALMOST BY

>

> FORCE!!!!!!! !!!!!!!!! !!!!! I was MAD!!!!!!!.. ...not only did I

have to

>

> recover from a c-section, but I got sick from the vaccine, to the

point

>

> I couldn't sit up, and had a severe arthritis attack. And to think

they

>

> pump babies full of that crap when they are teeny tiny defenseless

>

> creatures.

>

> Sola

>

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