to wendy-Re: Why so little foam inside the DOCBand

[Guest guest]

Hi - I do know how frustrating it can be. I thought that by

having Xavier banded early he would be in the band for 8 weeks and

then that would be that. OF course that is not the way it went. I was

devastated when I heard band #2 I thought that would never even be an

optopn for us. And they are so expensive! I am sorry that you have

had such a hard time with all of this and I know that you are doing

everything you can for . I really hope he grows for you and soon!

Please keep me posted!

Hugs,

Donna and Xavier

--- In Plagiocephaly , " B. " <wbilling@t...>

wrote:

> Hey Donna---thanks for replying about Xavier's treatment. He is

one of the

> babies on our list that I have kept up with and checked out the

pics since

> you guys began treatment. I guess I'm a little frustrated because

as I look

> down at 's flat brachy head and the amt. of foam that is left

on the

> right side, I realize this band isn't gonna do it. This is VERY

> frustrating. I can't help but think that it wouldn't kill CT to

put a bit

> more foam in those $3,000 bands, you know?

>

> Last night, I was reading my 2 year old a book and walked in

without

> his band---husband was cleaning it. Anyway---his hair was sticking

out some

> on the sides like Einstein and it just struck me how wide and flat

his head

> really is. Today we had his party and I kept his band off for

cake and

> pictures. He has very straight fine hair and it was obvious how

FLAT he is

> in the back. Everyone kept asking me when I was going to get his

hair cut

> and I just can't even imagine it! It is so hard to justify to my

family

> why has been in the band for 5 mos and he is still so flat. I

keep

> saying that we are trying to work out all those asymmetries but now

I'm

> getting a little worried that this is going to be it. I can only

guess it

> is because we started with the DOCBand when was 8 mos of age

that

> progress has been so slow. I really would like his head to change

shape and

> for the wideness to lessen, but don't know if that is possible

anymore.

>

> Ahhhh. Thanks for letting me vent. I'm glad to hear that Xavier

got a good

> amount of correction. You were so smart to get him banded

earlier. I

> remember doubting that at first---but it ended up being a great

decision. I

> wish things had worked out for us a lot earlier. We did try.

>

> B.

> Mom to B.

> STARBand drop out 8/03

> DOCBand #1 9/4/03

> DOCBand #2 12/18/03

> Miami