WACMA bolt test for a child with acm ?

[Guest guest]

Hello. My child and I just got back from neurosurgeon. Latest problems:

intracranial pressure headaches, eye pain and her left hand keeps " dropping " .

NSG wants her to be admitted Friday to complete a bolt test? She is going to

have a pressure device inserted into her head and it will provide a reading

of the pressure inside her head?

She also will have an MRI and a consult with a neuroopthalmologist.

Has anyone ever heard of this bolt test? I'm imagining her hooked up to a

machine with a huge bolt in her head.

She had a decompression in Aug 99 but pressure is back!!!

I'm afraid and have to be strong for her, she is 4 and1/2 and understands

that she is going to the hospital.

Any feedback would be appreciated.

Elvira - Mother of w/ ACM 1, and multihandicapped.

[Guest guest]

In a message dated 03/07/2000 5:30:49 PM Eastern Standard Time, Repond@...

writes:

<< She is going to have a pressure device inserted into her head and it will

provide a reading of the pressure inside her head? She also will have an MRI

and a consult with a neuroopthalmologist. Has anyone ever heard of this bolt

test? I'm imagining her hooked up to a machine with a huge bolt in her head.

>>

This procedure may be an ICP monitor. I've not heard of it called a bolt

test?? This is a procedure that has been discussed for and if her

recent shunt revision doesn't help her headaches, that is what we will be

doing next.

The monitor is inserted into the brain and monitoring is done for a period of

time. Could be 24 hours to a couple of days to several days and will

determine what kind of pressure the person is experiencing. In some cases of

those with shunts that can be regulated, adjusting of the shunts are done

depending on the intercranial pressure. In 's case, her shunt is not

adjustable, but the procedure will tell us how high her pressure is getting

over a matter of days and then we decide what we do from there.

Tory ('s mom)

17ys. old, craniofacial abnormalities, midline facial cleft, hydrocephalus,

growth hormone (weighs 56lbs.) and thyroid deficient, blind, severly delayed,

choanial atresia, optic nerve hypoplasia, artificial tear duct, 12-P

chromosome deletion, sensory integration disorder, latex allergy, ACM I, I

I/2 or II?? w/30mm herniation, basilar impression. June10, 98' suboccipital

craniectomy and lamenectomy of C1 & C2. Aug. 10, 98' dura graft. History of

37 surgeries. (and musically talented) SUCH A SPECIAL LITTLE GIRL!