Fw: Re:Jaycees Big Five Event, A bit long!!!

[Guest guest]

Hello All!!

I wanted to tell you all about our exciting weekend! and I were in

land this weekend as we attended the Greater Waldorf Jaycees Big Five

Event!! We attend this function with the Appell family, ,

and Jillian Foley, and Bonnie on, the grandmother of

Broich. The hall was beautiful!! Walking in made us feel so special.

The room was decked out in black, white and gold balloons. There was

play money everywhere!! The flowers on the tables were beautiful!! Then

I stopped to think about why every one was there. They were there to

help raise money for all of us! To benefit our wonderful kids!! Money

wasn't the only reason. They were there to raise awareness of CHARGE

Syndrome!! They really want to know about our children!! Very few of

those people knew us and yet, they opened their hearts to us and gave

money willingly to support the foundation. As the night wore on, we

enjoyed great food,speakers and dancing but greater still were the

people. and Jillian are both using walkers and all around people

stopped to look, take pictures and love them. Jillian was the social

butterfly of the group! What a sweetheart she is!! She also surprised

her mom by taking a walk right out of her walker!! She's going to be

keeping her mom busy!! Abby was there dressed beautifully enjoying the

comfort of her mom and dad but also her Aunt and Uncle!! When she saw

me, she was hoping I was going to be her teacher!! Abby was showing

how to do some matching!! She is going to keep Bruce and on

their toes!! was 's(Abby's big sister) shadow and she was a

tremendous help to me!! also outlasted all of us!! What a

trooper!!

Many of the guests took time out to talk with me and with and

really made us feel welcome and special. I cannot begin to tell you

about the speakers. Their whole reason for being there was CHARGE!!

They presented the CHARGE foundation with a check for $10,000.00!!! Then

they thanked us for allowing them to help in this way!!! They are the

ones we need to be thanking yet, when I tried to thank them, they grew

humble. It is as if they were given special blessings from being able to

support us therefore they felt we were the ones to be thanked!! I

rambled some there but I wanted you all to get the feel for how truly

wonderful it felt to be amongst these people!! Tommy and Robin Adkins,

as well as the rest of the Greater Waldorf Jaycees really are a special

group of people!! They went above and beyond to make us feel blessed.

I just took a look at the booklet again and was reminded of all the

sponsors that were involved!! You should see the list of all those who

have given time, money, and other donations. Once again, I am over

whelmed!!

This is a bit long winded but I was excited when I got home. It takes me

a while to collect me thoughts so they are readable!! Thanks for letting

me tell you about this!!

Colleen

wife to Phil, mom to , 2.5 yrs, ChARGE

Ardsley, PA

pc1feather@...

colleen@...

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[Guest guest]

I just want to add to Colleen's comments of the Big Five Event in land

this weekend. I don't think that words could possibly make all of you

understand what the Jaycees did ALL for OUR kids. When I went, I guess I

didn't expect the attention we got. I guess I expected a little speech,

present the check, and dance the night away. Well, boy was I wrong. There

were 400 people there to support ALL or our kids. Our little CHARGE

represenatives were Abby, , and Jillian and they really gave them a

good picture of what CHARGE kids are all about. Everyone thought that

Jillian and were so cute running around with their matching walkers.

had a basket on the back of hers with a baby doll in it and Jillian

kept trying to steal her baby doll. ( So now, I guess I'll be heading to

Toys R Us for a basket to hook onto Jillians' walker)

Anyway, as Colleen said, they were thanking us for allowing them to be able

to be involved in supporting our children and I was just taken aback when

they kept thanking me!! I have never been thanked like that before when they

were the ones we should be thanking. It puzzled me how incredible they were

and again as Collen said, how humble they were. It kept tears welling up in

my eyes.

Jillian did a great job of thanking the table of the biggest sponsers of

the event. We al watched her from across the room and I was laughing and

practically crying at the same time for what she was doing. She was

socializing, running from table to table with her walker and she happened t

stop at the VIP table and crawled into a womans lap and hugged her neck and

put her head on her shoulder for a minute or so, gave her a kiss, then held

her arms out to the next man at the table. Now this man, she hugged and lay

on his chest for about 5-6 minutes, then gave him a kiss and held her arms

out to the next lady. This went on until she hugged and kissed everyone at

the table. (She really picked the right table). That was as if she was

thanking them for all of you. She melted their hearts and let them know how

great our kids are.

I wish you all could have been there. You would have been so proud to have

Abby, , and Jillian represent all of our kids. Abby was beautiful in

her pretty new dress. impressed us all with her intelligence writing

her name and identifying pictures and Jillian was the PR person.

I could go on, but Jillian is in my lap wanting a bottle. She just woke up.

Foley

Fw: Re:Jaycees Big Five Event, A bit long!!!

>

> Hello All!!

>

> I wanted to tell you all about our exciting weekend! and I were in

> land this weekend as we attended the Greater Waldorf Jaycees Big Five

> Event!! We attend this function with the Appell family, ,

> and Jillian Foley, and Bonnie on, the grandmother of

> Broich. The hall was beautiful!! Walking in made us feel so special.

> The room was decked out in black, white and gold balloons. There was

> play money everywhere!! The flowers on the tables were beautiful!! Then

> I stopped to think about why every one was there. They were there to

> help raise money for all of us! To benefit our wonderful kids!! Money

> wasn't the only reason. They were there to raise awareness of CHARGE

> Syndrome!! They really want to know about our children!! Very few of

> those people knew us and yet, they opened their hearts to us and gave

> money willingly to support the foundation. As the night wore on, we

> enjoyed great food,speakers and dancing but greater still were the

> people. and Jillian are both using walkers and all around people

> stopped to look, take pictures and love them. Jillian was the social

> butterfly of the group! What a sweetheart she is!! She also surprised

> her mom by taking a walk right out of her walker!! She's going to be

> keeping her mom busy!! Abby was there dressed beautifully enjoying the

> comfort of her mom and dad but also her Aunt and Uncle!! When she saw

> me, she was hoping I was going to be her teacher!! Abby was showing

> how to do some matching!! She is going to keep Bruce and on

> their toes!! was 's(Abby's big sister) shadow and she was a

> tremendous help to me!! also outlasted all of us!! What a

> trooper!!

>

> Many of the guests took time out to talk with me and with and

> really made us feel welcome and special. I cannot begin to tell you

> about the speakers. Their whole reason for being there was CHARGE!!

> They presented the CHARGE foundation with a check for $10,000.00!!! Then

> they thanked us for allowing them to help in this way!!! They are the

> ones we need to be thanking yet, when I tried to thank them, they grew

> humble. It is as if they were given special blessings from being able to

> support us therefore they felt we were the ones to be thanked!! I

> rambled some there but I wanted you all to get the feel for how truly

> wonderful it felt to be amongst these people!! Tommy and Robin Adkins,

> as well as the rest of the Greater Waldorf Jaycees really are a special

> group of people!! They went above and beyond to make us feel blessed.

>

> I just took a look at the booklet again and was reminded of all the

> sponsors that were involved!! You should see the list of all those who

> have given time, money, and other donations. Once again, I am over

> whelmed!!

>

> This is a bit long winded but I was excited when I got home. It takes me

> a while to collect me thoughts so they are readable!! Thanks for letting

> me tell you about this!!

>

> Colleen

> wife to Phil, mom to , 2.5 yrs, ChARGE

> Ardsley, PA

> pc1feather@...

> colleen@...

>

>

>

> ________________________________________________________________

> YOU'RE PAYING TOO MUCH FOR THE INTERNET!

> Juno now offers FREE Internet Access!

> Try it today - there's no risk! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

>

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> For information about the CHARGE Syndrome

> Foundation or to become a member please

> contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>