Guest guest Posted February 25, 2000 Report Share Posted February 25, 2000 In today's Ledger it says tonight's 20/20 is about the jail system. jeannemarie<tyler's aunt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2000 Report Share Posted February 25, 2000 Hi, I do believe this is the Segment that everybody has been talking about here. So now it looks like we have nothing to worry about and it is going to Air. Take Care, Brande mymocha@... > > I looked at 20/20's lineup for 2/25/00, and it said that they were > going to talk about chronic fatigue syndrome and fibromyalgia. > > Does anyone know if ACM is in this segment as well. > __________________________________________ NetZero - Defenders of the Free World Get your FREE Internet Access and Email at http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 I watched the 20/20 show tonite and the chronic fatigue show was also the chiari show. It showed how many people have probably been missdiagnosed with Fibromyalgia and chronic fatigue syndromes and how tow of the people found relief by having the chiari brain surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 Hey all: I think it was a great piece on decompression surgery and it's benefits rather than CFS vs. Fibromyalgia vs Chiari vs. Syringomyelia. I am glad they did not do the same thing NBC did in giving equal time to doctors who feel the surgery is a false hope. For those who have been well informed, you all know what the results may or may not be. It's different for everyone and as long as your nsg is one to be trusted and is honest in saying this is NOT a cure, then I feel that the option to have or not have surgery is an personal one each must make with their family. I see , my partner, and how she is improving from surgery 4 weeks ago. The pain in her back has decreased, the headaches are subsiding and the is feeling better in general. For us, it was the only option. Thanks to 20/20, there is now more of a focus on how real this is for many people. Hope everyone is doing well. Tisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 I watched it also and was disappointed . I think they mentioned ACM once or twice. What a bummer. thanks peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 << But I was wondering if anyone noticed, they called it Chiari syndrome and not Chiari malformation. Is there a difference. Just wondering. >> the malformation can cause a complex ( more than one , often many ) of symptoms , these added together are known as chiari syndrome . The symtpoms are not the same in all folks with chiari , therefore they syndrome can also vary in what symtpoms are expressed . hope that makes sense ....take a look at the chiari symptoms study on the web pages ...not all folks have every symptom .....but most of us do have a combo of these symtpoms if the chiari is symptomatic .....i do think its worth remembering , some folks have severe malformations , and little difficulties .....others pretty mild malformations but severe symtpoms ....this part is still a puzzle to the experts ...they are working on understanding it all better now .....my sugestion to all reading this ......consider suporting the research efforts underway through the american syringomyelia alliance project and duke university if your able too . sarah in paradise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 That is the Chiari Show...........you watched the right Show. Brande mymocha@... > i am watching 20/20 and they are showing chronic fatique syndrome. Are they > going to show the chairi show? i told all my friends to watch it and all my > family. i am going to feel terrible if they dont' show it. __________________________________________ NetZero - Defenders of the Free World Get your FREE Internet Access and Email at http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Robin I want to know that too!!!!! and plan on asking that question. btw I am checking the wig place out for you OK? It's been a long time since I was there I use to get my clown wigs there... Jes http://ld.net/?jesstuff http://affiliate.lifeminders.com/signup.asp?vid=38560 http://www.alladvantage.com/go.asp?refid=BNB-826 http://i.winfire.com/s/isapiEng.dll/wf.exe?cmd=dl & 22463,37556,452 & .exe http://www.cashomatic.net/members/Jsza.html http://www.radiofreecash.com/home.asp?ref=Jszaaa http://www.bepaid.com/users.rhtml?REFID=10245389 http://www.epilot.com/epilot/default.asp?r=56005 http://www.vstore.com/vstoregifts/jesshop Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2000 Report Share Posted March 12, 2000 Nancee: They did not tell you all about the show. I am the one that they kept showing-the fuzzy pictures...and Dr. Rosner examined me-this was right before my surgery........my surgery was taped and also I was interviewed prior to-I think they will do a followup as if you do not blink...you will see me in bed...walking with the cane, etc. So write ABC 20/20 to let them know they did a good job. AJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2000 Report Share Posted March 12, 2000 Hello Friends, I have been here awhile too.....probably 2-21/2 years..... There is no way, in 20 minutes that they could possibly tell everything that is needed to know on any show. All I take this show along with the others for is to get the word out there....which it has not been, in a positive way, so that most newbees would not be scared to death to pursue the avenues open to them for a diagnosis. It is totally up to the individual and their doctor to stress the value and 'scariness' of the possible surgeries based upon each and every case. I am, for one, very excited that since I first came here, there is such a dramatic move forward in the acceptance of our 'imaginary' ilness............that comes from knowledge. These 20 minute shows are only the tip of the iceburg....hopefully the newbees that have joined us each time after a show....can learn more by speaking to us....and reading, reading, reading. Knowledge is power my fellow friends. Hugs, Nancee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2000 Report Share Posted March 12, 2000 Hi, Yes, I noticed. I thought it was misleading, but I do not believe there is any difference in if they call it a Syndrome or Malformation. Brande mymocha@... But I was wondering if anyone noticed, they called it Chiari syndrome and not Chiari malformation. Is there a difference. Just wondering. Quote Link to comment Share on other sites More sharing options...
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