Patients Like Me

[Guest guest]

Lewy Body Dementia is now a recognized condition on the website

patientslikeme.com... What is this site?

It's a website that you " Share your experience.

The more you share, the easier it will be to find patients like you. Start by

adding a condition, symptom or treatment. "

" Imagine knowing what treatments work for people just like you — and having the

ability to easily connect with those people. That's what makes PatientsLikeMe

different. By sharing your symptoms, treatments and more, you can gain insight

into what affects your condition while helping others learn from your

experiences. Together, we can achieve more. Begin making a difference today! "

This is what makes this site so interesting - you share the medicines and the

more people who share the information the more useful information there is to

pull.

LBD was recently introduced - so only 2 people so far...

if you Search patientslikeme on this board you'll notice that I brought this

site up before and how interested I was that LBD be part of it - at the time PD

was a condition that had a large following...

I wrote a couple of letters to Patients Like Me expressing that they have LBD

included... (the co. is based out of Cambridge, MA and I actually applied to

work there one time - how perfect of a job would that be for me - it'd be like

doing what I'm doing now but getting paid! )... anyway... I don't think it was

my letter that led to them opening it up to LBD - b/c the email noticed I

received entitled " PatientsLikeMe Now Open for Your Conditon " didn't list LBD

but read " PatientsLikeMe is now open for everyone, with any condition, to join! "

Again the title is 'patientslikeme' -- so they're assuming the loved one will be

using this site - maybe good for early stage (maybe done by the help of a

caregiver??)

Anyway - thought some of you would be interested in checking it out:

http://www.patientslikeme.com/conditions/598