Guest guest Posted February 24, 2011 Report Share Posted February 24, 2011 When I read your post, I was reading exactly what my father and family experienced. It's the bizarre fluctuations that can be so difficult. I experienced extreme feelings of despair, confusion, then hope (when he was " normal " ) then despair again. It's such a emotional rollercoaster ride. One week my dad would be walking, laughing, dancing and then the next he was rigid, slumped, restless, falling non-stop. LBD is just a weird disease. We did notice that the downsides seemed to coincide with infections or illnesses such as bladder, a sore throat or congested chest, not to mention the experimentation of drugs to calm him. My heart goes out to you. My father passed away Jan. 20, 2011. It's a very short (6 months) rough ride and I only wish I had found these group during that ride. Take good care, Kelli -- Kelli Cotner, CPCC True Nature Life & Leadership Coaching True Recovery Coaching www.TrueNatureLifeCoaching.com www.TrueRecoveryCoaching.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 Thank you for your response Kelli. Did your dad realize that he had a problem? Mine knows that he falls asleep too much but he is unaware of the falling, hallucinations, stiffness etc. He really feels that he is normal and that he can live alone. It sounds like your father's course was fairly short - six months. Did he have extended good periods like weeks or was it pretty much day to day? > > When I read your post, I was reading exactly what my father and family > experienced. It's the bizarre fluctuations that can be so difficult. I > experienced extreme feelings of despair, confusion, then hope (when he > was " normal " ) then despair again. It's such a emotional rollercoaster > ride. One week my dad would be walking, laughing, dancing and then the > next he was rigid, slumped, restless, falling non-stop. LBD is just a > weird disease. We did notice that the downsides seemed to coincide > with infections or illnesses such as bladder, a sore throat or > congested chest, not to mention the experimentation of drugs to calm > him. > > My heart goes out to you. My father passed away Jan. 20, 2011. It's a > very short (6 months) rough ride and I only wish I had found these > group during that ride. > > Take good care, > Kelli > > > -- > Kelli Cotner, CPCC > True Nature Life & Leadership Coaching > True Recovery Coaching > > www.TrueNatureLifeCoaching.com > www.TrueRecoveryCoaching.com > Quote Link to comment Share on other sites More sharing options...
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