Re: New member - a bit about my dad and a query about a swallowing problem

[Guest guest]

Hi Lucy,

We don't have that problem yet with Dad, but are you aware that it is pretty

common and expected with Lewy Body? I just wanted to make sure you got some

kind of response as I see it has been awhile since you posted. I suspect you'll

get some helpful feedback from group members that have had to deal with the

swallowing issue. Good luck with that stuff!

Lori

New member - a bit about my dad and a query about a

swallowing problem

Hello

My father is 85 and has mixed dementia with some vascular dementia and

Dementia Lewy Bodies. He also has aortic stenosis, an inoperable hernia and some

glaucoma.

He has had brain scans to confirm the diagnosis and has Aricept and various

other drugs to manage his other conditions. the Aricept has transformed his life

in comparison to this time last year. He is more talkative, laughs again, enjoys

company and is able to explain things better, whereas before the ARicept he was

very locked in.

He remains living independently and can manage to dress himself very well, he

has patches of real confusion about times and dates, but these pass. He has had

" people to tea " who clearly are visions, and he knows this and is happy with

them but wishes they would eat their biscuits!They are not a regular feature.

One of the reasons I have joined this group is that dad has a real problem -

but it is sporadic - of having his throat fill with a sort of slimy saliva when

he eats and he has to spit it all out. He is not bringing up food, so is not

vomiting, but he really does have this ghastly time.

he had gastroscopy done which showed no ulcers but that he had a bit of an

issue over his aspirin so he has omeprazole for that, and also that he had a

motility problem with his throat so was given motillium.

However the sporadic slime problem remains. There seems no rhyme or reason -

Does anyone have any experience of this same problem. Dad has a lovely GP who

is really supportive and if anyone has anything to suggest I would love to hear

from you.

We are being referred for speech therapy but the waiting list is long so if

anyone has any ideas of excercises or who can point me towards any useful sites

i would be very grateful.

Thank you very much

Lucy

[Guest guest]

Hi Lucy,

One of the reasons I have joined this group is that dad has a real problem -

> but it is sporadic - of having his throat fill with a sort of slimy saliva

> when he eats and he has to spit it all out. He is not bringing up food, so

> is not vomiting, but he really does have this ghastly time.

>

My Dad had the same symptoms - on occasion expelling huge quantities

of slimy mucus from his mouth. His doctor called it an esophageal spasm.

The spasms were so severe that Dad couldn't swallow the normal secretions

of saliva glands and sinuses. The problem was much reduced when he went

on a soft food diet - the last time I remembers seeing an episode was at a

party where he ate roast beef. A quick web surf show that there are

treatments,

but that episodes normally pass in a few minutes and don't need treatment.

Given Dad's sensitivity to medications, we didn't pursue treatment.

Avoiding

foods that need chewing helped, and his increasing dementia has kept him out

of social situations - I think he was nervous about eating with a lot of

people

around.

Good luck,

Ann

[Guest guest]

Hi Lucy,

This is one of the Parkinson's symptoms that is

also associated with Lewys as my DH also has the

mucous. My husband was initially diagnosed with Parkinson's.

My father had Parkinson's and possibly Lewy's but

it was unknown at that time. His mucous was very

problematic. That was a long time ago as he has

been deceased for 30 +/- years now. (my mother

is now 92.5) He was diagnosed with Parkinson's in

his late 40's. He had a very rough time with the

disease, which is making it difficult for me, as

I keep envisioning the future with my DH.

The doctor has suggested a soft diet, but DH so

far is coping well with normal food. I do tend

to make a lot of homemade soups as I love them.

He is probably benefiting from this.

Bonnie

At 08:03 AM 2/24/2011, you wrote:

>

>

>Hi Lucy,

>

>One of the reasons I have joined this group is that dad has a real problem -

> > but it is sporadic - of having his throat fill with a sort of slimy saliva

> > when he eats and he has to spit it all out. He is not bringing up food, so

> > is not vomiting, but he really does have this ghastly time.

> >

>

>My Dad had the same symptoms - on occasion expelling huge quantities

>of slimy mucus from his mouth. His doctor called it an esophageal spasm.

>The spasms were so severe that Dad couldn't swallow the normal secretions

>of saliva glands and sinuses. The problem was much reduced when he went

>on a soft food diet - the last time I remembers seeing an episode was at a

>party where he ate roast beef. A quick web surf show that there are

>treatments,

>but that episodes normally pass in a few minutes and don't need treatment.

>

>Given Dad's sensitivity to medications, we didn't pursue treatment.

>Avoiding

>foods that need chewing helped, and his increasing dementia has kept him out

>

>of social situations - I think he was nervous about eating with a lot of

>people

>around.

>

>Good luck,

>

>Ann

>

>

[Guest guest]

Welcome Lucy, My husband is 68 and in the late stage of demenris Lewy Bodies

with Parkinsonian symptoms.  He has had this problem when he eats for a long

time. Right after a meal when he falls tosleep in his recliner the same mucas

runs out of his mouth and nose.  I feel it is just part of the LBD.

Kathy, from MN

________________________________

To: LBDcaregivers

Sent: Wed, February 23, 2011 11:23:29 PM

Subject: Re: New member - a bit about my dad and a query about a

swallowing problem

 

Hi Lucy,

We don't have that problem yet with Dad, but are you aware that it is pretty

common and expected with Lewy Body? I just wanted to make sure you got some kind

of response as I see it has been awhile since you posted. I suspect you'll get

some helpful feedback from group members that have had to deal with the

swallowing issue. Good luck with that stuff!

Lori

New member - a bit about my dad and a query about a

swallowing problem

Hello

My father is 85 and has mixed dementia with some vascular dementia and Dementia

Lewy Bodies. He also has aortic stenosis, an inoperable hernia and some

glaucoma.

He has had brain scans to confirm the diagnosis and has Aricept and various

other drugs to manage his other conditions. the Aricept has transformed his life

in comparison to this time last year. He is more talkative, laughs again, enjoys

company and is able to explain things better, whereas before the ARicept he was

very locked in.

He remains living independently and can manage to dress himself very well, he

has patches of real confusion about times and dates, but these pass. He has had

" people to tea " who clearly are visions, and he knows this and is happy with

them but wishes they would eat their biscuits!They are not a regular feature.

One of the reasons I have joined this group is that dad has a real problem - but

it is sporadic - of having his throat fill with a sort of slimy saliva when he

eats and he has to spit it all out. He is not bringing up food, so is not

vomiting, but he really does have this ghastly time.

he had gastroscopy done which showed no ulcers but that he had a bit of an issue

over his aspirin so he has omeprazole for that, and also that he had a motility

problem with his throat so was given motillium.

However the sporadic slime problem remains. There seems no rhyme or reason -

Does anyone have any experience of this same problem. Dad has a lovely GP who is

really supportive and if anyone has anything to suggest I would love to hear

from you.

We are being referred for speech therapy but the waiting list is long so if

anyone has any ideas of excercises or who can point me towards any useful sites

i would be very grateful.

Thank you very much

Lucy

[Guest guest]

My mom had extra saliva in her mouth most of the time...she would take a kleenex

and wipe off the saliva from her tongue. I think this, along with the nasal

discharge, is a symptom of the LBD.

>

> Hello

>

> My father is 85 and has mixed dementia with some vascular dementia and

Dementia Lewy Bodies. He also has aortic stenosis, an inoperable hernia and some

glaucoma.

>

> He has had brain scans to confirm the diagnosis and has Aricept and various

other drugs to manage his other conditions. the Aricept has transformed his life

in comparison to this time last year. He is more talkative, laughs again, enjoys

company and is able to explain things better, whereas before the ARicept he was

very locked in.

>

> He remains living independently and can manage to dress himself very well, he

has patches of real confusion about times and dates, but these pass. He has had

" people to tea " who clearly are visions, and he knows this and is happy with

them but wishes they would eat their biscuits!They are not a regular feature.

>

> One of the reasons I have joined this group is that dad has a real problem -

but it is sporadic - of having his throat fill with a sort of slimy saliva when

he eats and he has to spit it all out. He is not bringing up food, so is not

vomiting, but he really does have this ghastly time.

>

> he had gastroscopy done which showed no ulcers but that he had a bit of an

issue over his aspirin so he has omeprazole for that, and also that he had a

motility problem with his throat so was given motillium.

>

> However the sporadic slime problem remains. There seems no rhyme or reason -

>

> Does anyone have any experience of this same problem. Dad has a lovely GP who

is really supportive and if anyone has anything to suggest I would love to hear

from you.

>

> We are being referred for speech therapy but the waiting list is long so if

anyone has any ideas of excercises or who can point me towards any useful sites

i would be very grateful.

>

> Thank you very much

>

> Lucy

>