Re: Pat, 'Aggressive episodes' help please

[Guest guest]

Hi Pat,

(See below) I think you meant , not Janet, It is her dad. I was just

responding to her message. My husband is deceased and no longer has LBD.

Hallalujah he is free of those LBD chains that held him hostage to that

dreadful disease! She will see the message anyway, but I think I confused you.

My husband had experience of not getting medication on time or at all in

emergency in the hospital. They would have him there so long for tests and not

give him his meds and he would get aggressive when not given meds., especially

Seroquel, and I was just making a point to that it could happen her dad

was aggressive for that reason, but there could be many reasons.

Subject: 'Aggressive episodes' help please

To: LBDcaregivers

Date: Tuesday, June 7, 2011, 9:34 AM

 

Hi-

My dad is in a memery care home in Flordia. He has been there for a week. He had

what they call an 'aggressive episode' this morning by riping a railing off and

hitting the wall. They have asked he go for a 24 hour pscy hold. The nuring home

does not have a night nurse so he has been unable to get his 2 am meds. Not sure

if this has anything to do with it. He has had aggessive hallucinations, that is

why he had to move to the home. It was unsafe for him and my step mom for him to

stay home. He has even tried to get out of the car while moving. I live in

London, will be there on Monday. Just looking for any other advice on what to

do. Don't know what to do if the home won't take him back, he could go home but

seems to get more aggresive with help in his home. I have a 2 yr old and a 3 yr

old so don't feel that moving back to help with the care would be much help.

Feeling helpless.

[Guest guest]

Thanks for the responses.  He was moved to a dementia care facility,  and I

guess we all assumed that they would be able to give meds when needed.  He was

only on a night dose while in hospital and then tapered off,  so I don't think

that this is the problem.  But really just don't know.  His decline has been so

fast,  I was there visisting him 7 weeks ago and we could have a conversation, 

he was mobile,  playing with the kids, etc.  You knew that he wasn't quite

right,  prob phase 2.  Now 7 weeks later,  he is in a home, very few lucid

moments, using a walker, prob phase 4 for mental and 3 for physical.  We keep

thinking that there must be something the doctors missed.  Has anyone else had

this fast of a decline?  Only4 more days and I will be there to see for my self

and talk with the staff and doctors.  He spent the night in the hospital,  will

update later if they found anything in the tests.  Hoping for a UTI.  Thanks

again,

[Guest guest]

Hi ,

I'm new here so I don't have any answers, but I've been going through the

same thing with my Mom. She was moved to a dementia care facility last

Wednesday also. The reason she was moved there was for her continual

" acting out " episodes as well. It's so hard because the ER doesn't know

what to do other than run tests for UTI's and other infections which can

cause severe changes both mentally and physically. This may be the problem

with your Dad. The first time my Mom went to the ER for the acting out

they wanted to call in hospice because she had declined so rapidly. We

didn't know that a UTI could cause such severe symptoms. Luckily the

anti-biotic turned things around. This last time at the ER it wasn't a

UTI and they are at a loss how to treat the behavior other than really

strong anti-psychotic drugs. The ER ran cultures which took 3 to 4 days and

they kept her on Haldol the whole time, Ativan doesn't work for her any

longer. I was so upset. She was diagnosed with LBD only after the last

episode a few weeks ago and we're starting zyprexa. I'm keeping track of

all the medications too that people are responding to your e-mail about so I

can discuss them when I talk to the neurologist.

It was good your Dad spent the night there. It seems, with my Mom anyway,

if it's an infection they come out of it in a day or two once they start the

anti-biotics.

Good luck. I'm praying for you and your Dad.

Marcie

_____

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of Rayner

Sent: Wednesday, June 08, 2011 6:24 AM

To: LBDcaregivers

Subject: Re: Pat, 'Aggressive episodes' help please

Thanks for the responses. He was moved to a dementia care facility, and I

guess we all assumed that they would be able to give meds when needed. He

was only on a night dose while in hospital and then tapered off, so I don't

think that this is the problem. But really just don't know. His decline

has been so fast, I was there visisting him 7 weeks ago and we could have a

conversation, he was mobile, playing with the kids, etc. You knew that he

wasn't quite right, prob phase 2. Now 7 weeks later, he is in a home,

very few lucid moments, using a walker, prob phase 4 for mental and 3 for

physical. We keep thinking that there must be something the doctors missed.

Has anyone else had this fast of a decline? Only4 more days and I will be

there to see for my self and talk with the staff and doctors. He spent the

night in the hospital, will update later if they found anything in the

tests. Hoping for a UTI. Thanks again,

[Guest guest]

I am going to ask the first question that I'm sure others have asked: was there

any change in medication at all? Were there any other changes in his

surroundings?