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,

My Mom's memory can be really sharp at times, yet she still sees men climbing in

the trees outside her apartment and children invading her room at night. What is

really sad for me is that she can verbalize that she has dementia and that what

you say right now she will not remember in five minutes. I cannot imagine how

hard it is to be very aware of what is happening to your mind and then talk

about it.

This is indeed a crazy disease.

Barbara

daughter of Betsy who in a dementia unit. Diagnosed 2008.

________________________________

To: lbdcaregivers

Sent: Thu, June 9, 2011 9:48:00 AM

Subject: Question

Just an update and a question.

My sister has somewhat leveled out, not a lot of ups and downs.  I've even begin

to wonder if she has been diagnosed, or maybe it is just the meds working.  She

is eating better and I think that has helped her overall condition.  She still

has the tremors and rigidity that goes along with Parkinsons, needs help

walking  and she still goes " on trips " as I call them.  She insist that there is

a man that comes in her room and does surgery on her without her permission. 

We've told her they have taken him to jail, but she said he has gotten out.  I

wonder if she may be dreaming this.  However, her memory is fairly good for the

most part. My brother-in-law has been seriously ill and she asks about him.  If

I go a couple of days and haven't seen her, she will say I've not been there in

two weeks.  Some of the sitters she will call by different names, but she still

knows all the family members.  She frequently calls out to members of the family

who are not there. 

Has anyone else had a relative that has been diagnosed with LBD, but their

memory is still fairly good?    Is this something that goes as the disease

progresses?  This is such a confusing disease!!!

Thanks

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Hi , My husband had a very good memory. Mine wasn't as good.

Sometimes he would get confused, and get mixed up, but he knew me, and what was

going on right to the end.

I told him I was going to take care of him and to give me his hand. He held up

his hand for me although he was just a few short hours from death.

Love a lot,

Imogene

>

>

> Just an update and a question.

>

> My sister has somewhat leveled out, not a lot of ups and downs. I've even

begin to wonder if she has been diagnosed, or maybe it is just the meds working.

She is eating better and I think that has helped her overall condition. She

still has the tremors and rigidity that goes along with Parkinsons, needs help

walking and she still goes " on trips " as I call them. She insist that there is

a man that comes in her room and does surgery on her without her permission.

We've told her they have taken him to jail, but she said he has gotten out. I

wonder if she may be dreaming this. However, her memory is fairly good for the

most part. My brother-in-law has been seriously ill and she asks about him. If

I go a couple of days and haven't seen her, she will say I've not been there in

two weeks. Some of the sitters she will call by different names, but she still

knows all the family members. She frequently calls out to members of the

family who are not there.

>

> Has anyone else had a relative that has been diagnosed with LBD, but their

memory is still fairly good? Is this something that goes as the disease

progresses? This is such a confusing disease!!!

>

> Thanks

>

>

>

>

>

>

>

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