Re: Question

[Guest guest]

question

> Hi everyone,

> I'm sorry this is not going to be a very positive email. I am in so much

> pain tonight (and have been for close to a week) that the thoughts running

> through my head are scary, even to me. Anyhow, I have that awful discharge

> that basically burns me. I feel like a big blister and it makes working

two

> jobs where I sit a lot almost unbearable, but I have no choice. My husband

> (ex) left and I am now alone and have to work to support my two kids. When

I

> was married I didn't work and could tend to my pain a little better

because

> of the freedom of time. Besides being pretty red, I look okay. Just really

> red. I am wondering if anyone knows if it is better for women who have vv

to

> just be off the pill and look for other means of birth control and also

will

> taking guai and being off the pill maybe help me in discharge problem? I

> don't need the pill because, obviously, the prospect of any man in my life

> is nonexistent anyway, so I am willing to give that a try if it might

work.

> The pain Ora described from the guai has made me very weary. I'm still

> thinking of the Zithromax or doxyxycline, but don't know if that is a long

> term solution. I do try to stay positive and am sorry for the negative

> email, but sometimes this # & *#**@ illness gets the best of me. Thanks for

> all the advice and words of wisdom. I'll get positive again! Kimberlee

Kimberlee,

My heart goes out to you. I was in a simular situation not so very

long ago. I admire your courage for doing what you have to in order to take

care of your kids. I did what I had to so I know how hard this is. You will

get through it and do it well because thats what Mom's do.

Let me make some suggestions that you can perhaps try to relieve some

of your pain. For me BC pills stopped my cyclic vulva pain but for some

people it makes things worse. See what happens when you go off them for a

while. You can always start them again if your worse without them. As far as

being red and raw/raw feeling try calendula cream. I used a type from Whole

Foods Market with almond, advacado and one other oil. It was like a miracle

for me when it came to healing that rawness. Search around in your area and

find something with as few ingredients as possable and no less than 7%

calundula. If you can, use tampons to keep the discharge off your tissues.I

know it's bad to always have a tampon in but whats good about being burned

from your discharge??? Take the thing out when your at home and can douche

when you need to. If you can, douche several times a day to rinse the area.

See if it helps. Plain water works best. Just a short rinse, nothing

extended. I know some doctors say douching messes up the ph and makes things

worse but I'm living proff that some women have to douche often. I'm

improved now but if I don't douche twice a day, more if my discharge is bad,

I will be irritated.

I did the low oxilate treatment and improved from being totaly in bed

to 65-75% better. I went on guai in April of last year and am making

excelent improvement. It's something you are thinking of trying and should

consider further. Ora had an extreme reaction. (I'm so sorry you suffered so

much Ora) The vast amount of people do far better than her but like

everything else some people will not be able to use it. I can send you some

links to look over here on the computer if you like.

I know your having all kinds of thoughts and feel desperate but hang in

there! Things are bad now but there is an other side to this mess and you'll

get to it. I did and so can you. I also know you'll get many other

suggestions from others on this list. There are many wise ladies on this

list. Please let me know how you are.

Blessings,

Shirley.

[Guest guest]

,

I too thought the pain and discharge would never end and one more day of

pain and mucus and burning and red irritated skin would prove to be too much

for me to handle. But it did get better...I can tell you I was so

scared...scared that I had something terrible that would destroy my insides,

keep me out of relationships forever, and destroy any future I might have

and not be around to see my daughter grow up. I did get somewhat better on

two back to back rounds of doxicycline. It helped with the inflammation. I

was sure to take acidophilus with the antibiotics so I did not get yeasty

vaginally or in the digestive tract. What really helped me was when I quit

being so scared of this vulvadynia. I had a wonderful girlfriend to talk to

who listened to me day or night and understood when I would just break down

and cry...which seemed to be a continual thing. Getting help from the PT

also lessened my fears. I had every test in the book and all that came back

was a certain elevated white blood cell count which indicated that there was

alot of inflammation going on in my body. I believe my constant state of

anxiety kept revving up my system to keep it all inflammed. I also remember

that my discharge improved when I quite douching with everything the doctors

kept telling to use....let's see...there was a colloidal silver douche, a

yogurt douche, a hydrogen peroxide douche, a baking soda douche, I douched

all my normal flora down the tube...a vaginal culture revealed that my

lactobacillus count was too low to be recognized...I beleive I irritated

myself more by trying to " kill off " something that was not there.

, find pleasure in one thing tonight...I know it is difficult to do

that when the pain consumes your every thought. Do something that brings a

smile to your face, even if it only lasts for one second. Hug your kids,

they need you and they love you.

Here, this might make you laugh...When I got vulvadynia, it was worse on my

left side than my right side. When I urinated, the stream of urine no

longer exited my body in a straight stream. It always sprayed out to the

left and I got bathed in a stream of pee...disgusting huh? As if things

weren't bad enough! However, now that I look back on this, it was another

indication that my muscles were pulled too tight on the left and that made

the urine go cock-eyed. Now that the muscles have relaxed, I can now pee in

a straight line again!!!! This makes me appreciate the simple things of

life, i.e. peeing normally!

Breathe deeply, and let the fears go.

Sher

>From: " Kimberlee Moss " Reply-To: VulvarDisorders To:

>VulvarDisorders Subject: question Date: Thu, 01 Mar

>2001 06:59:04 -0000

>

>Hi everyone, I'm sorry this is not going to be a very positive email. I am

>in so much pain tonight (and have been for close to a week) that the

>thoughts running through my head are scary, even to me. Anyhow, I have that

>awful discharge that basically burns me. I feel like a big blister and it

>makes working two jobs where I sit a lot almost unbearable, but I have no

>choice. My husband (ex) left and I am now alone and have to work to support

>my two kids. When I was married I didn't work and could tend to my pain a

>little better because of the freedom of time. Besides being pretty red, I

>look okay. Just really red. I am wondering if anyone knows if it is better

>for women who have vv to just be off the pill and look for other means of

>birth control and also will taking guai and being off the pill maybe help

>me in discharge problem? I don't need the pill because, obviously, the

>prospect of any man in my life is nonexistent anyway, so I am willing to

>give that a try if it might work. The pain Ora described from the guai has

>made me very weary. I'm still thinking of the Zithromax or doxyxycline, but

>don't know if that is a long term solution. I do try to stay positive and

>am sorry for the negative email, but sometimes this # & *#**@ illness gets

>the best of me. Thanks for all the advice and words of wisdom. I'll get

>positive again! Kimberlee

>_________________________________________________________________ Get your

>FREE download of MSN Explorer at http://explorer.msn.com

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Muscle weighs more, so you can actually get smaller by losing fat and gaining

muscle and still weighing the same.

Kimya

252/239/125

In a message dated 7/21/2002 12:37:25 PM Eastern Daylight Time,

kelibel@... writes:

>

[Guest guest]

Not part of MY MS, unfortunately! Though the New

Year's Eve crash diet probably lost me a pound or

two...

Akiba

--- & nne Svihlik

wrote:

> Chuck has lost more weight. All total since this all

> happened about 10 pounds. I will admit we don't eat

> right and have sandwiches a lot but was wondering if

> this is or could be part of MS.

> Hugs

> nne

> Breast Cancer Patients Soul Mates for Life

>

http://www.geocities.com/chucky5741/breastcancerpatients.html

> BreastCancerStories.com

>

http://www.breastcancerstories.com/content/view/433/161/

> Angel Feather Loomer

> www.angelfeatherloomer.blogspot.com

> Check out my other ornaments at

> www.geocities.com/chucky5741/bcornament.html

> Lots of info and gifts at:

> www.cancerclub.com

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

& Eternal Optimist!

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

__________________________________________________

[Guest guest]

{{{nne}}}

It could be. Or it could be a number of things. MS affects everybody differently. If Chuck has become depressed, this could be one cause for the loss of weight. Has he cut down on his eating? Does the MS affect his arms or hands?

I know that I often lose weight when I have lost coordination or my hands become numb. If he is losing weight rapidly, and seems to be turned off by food...it wouldn't hurt to look into it.

Hope you have a great day!! Blessings....

http://360.yahoo.com/vallee45

-- question

Chuck has lost more weight. All total since this all happened about 10 pounds. I will admit we don't eat right and have sandwiches a lot but was wondering if this is or could be part of MS.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

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[Guest guest]

I WISH! lol If Chuck is on a MS therapy drug then it could be a side effect of that. Maybe there is something else going on that is responsible for his weight loss. hugs)Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford question

Chuck has lost more weight. All total since this all happened about 10 pounds. I will admit we don't eat right and have sandwiches a lot but was wondering if this is or could be part of MS.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocitie s.com/chucky5741 /breastcancerpat ients.htmlBreastCancerStories .comhttp://www.breastca ncerstories. com/content/ view/433/ 161/Angel Feather Loomerwww.angelfeatherloo mer.blogspot. comCheck out my other ornaments atwww.geocities. com/chucky5741/ bcornament. htmlLots of info and gifts at:www.cancerclub. com

__________________________________________________

[Guest guest]

Hi nne and Chuck~How about weight lifting--as in some 5 or 8 lb hand weights to build some muscle? I was just wondering if his weight loss could be contributed to losing some muscle? Keep us posted--and I'd ask his neuro for advice and input. hugs to you both, kate question> > > > > > > > > > > > > > > > > > Chuck has lost more weight. All total since this > all happened about 10 pounds. I will admit we don't eat right > and have > sandwiches a lot but was wondering if this is or could be part > of > MS.> > Hugs> > nne> > Breast Cancer Patients Soul Mates for Life> http://www.geocitie s.com/chucky5741 /breastcancerpat ients.html> BreastCancerStories .com> http://www.breastca ncerstories. com/content/ view/433/ 161/> Angel > Feather Loomer> www.angelfeatherloo mer.blogspot. com> Check > out my other ornaments at> www.geocities. com/chucky5741/ bcornament. html> Lots > of info and gifts at:> www.cancerclub. com> > > > > > > > > > > > > > > > > > > > __________________________________________________>

[Guest guest]

Losing weight rapidly can be a sign of depression or diabetes and I am sure other things. Barb & nne Svihlik wrote: Chuck has lost more weight. All total since this all happened about 10 pounds. I will admit we don't eat right and have sandwiches a lot but was wondering if this is or could be part of MS. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com __________________________________________________

[Guest guest]

The only thing Chuck is on are his steroid treatments once a month.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel'>http://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

question

Chuck has lost more weight. All total since this all happened about 10 pounds. I will admit we don't eat right and have sandwiches a lot but was wondering if this is or could be part of MS.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocitie s.com/chucky5741 /breastcancerpat ients.htmlBreastCancerStories .comhttp://www.breastca ncerstories. com/content/ view/433/ 161/Angel Feather Loomerwww.angelfeatherloo mer.blogspot. comCheck out my other ornaments atwww.geocities. com/chucky5741/ bcornament. htmlLots of info and gifts at:www.cancerclub. com__________________________________________________

[Guest guest]

Hi Val,

Yes he has been a bit depressed. Our two sons are really having problems and even though they are married it worries us to no end.

We don't eat like we should because of Chuck only being on SS and a very small pension check.I told him if he looses much more we are going to go to the family dr.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

question

Chuck has lost more weight. All total since this all happened about 10 pounds. I will admit we don't eat right and have sandwiches a lot but was wondering if this is or could be part of MS.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

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[Guest guest]

Thanks Barb, I kind of wondered about diabetes as he is alway thirsty. But then he is on a bladder pill and he says his mouth is always dry. I wish I could loose weight due to depression. I eat and eat and well you get the idea :-(

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Re: question

Losing weight rapidly can be a sign of depression or diabetes and I am sure other things.

Barb & nne Svihlik <moochie1aeroinc (DOT) net> wrote:

Chuck has lost more weight. All total since this all happened about 10 pounds. I will admit we don't eat right and have sandwiches a lot but was wondering if this is or could be part of MS.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

__________________________________________________

[Guest guest]

Hmmm never thought of that Kate. Thanks for posting this.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

question> > > > > > > > > > > > > > > > > > Chuck has lost more weight. All total since this > all happened about 10 pounds. I will admit we don't eat right > and have > sandwiches a lot but was wondering if this is or could be part > of > MS.> > Hugs> > nne> > Breast Cancer Patients Soul Mates for Life> http://www.geocitie s.com/chucky5741 /breastcancerpat ients.html> BreastCancerStories .com> http://www.breastca ncerstories. com/content/ view/433/ 161/> Angel > Feather Loomer> www.angelfeatherloo mer.blogspot. com> Check > out my other ornaments at> www.geocities. com/chucky5741/ bcornamen.html> Lots > of info and gifts at:> www.cancerclub. com> > > > > > > > > > > > > > > > > > > > __________________________________________________>

[Guest guest]

{{{nne}}}

Well... All that worrying and lack of funds could make anyone depressed. In my case though, it usually has the opposite effect. I actually put on more weight. Mostly because it seems that the affordable foods seem to be loaded with starch and sugar! Smells like a conspiracy to me.. I would definitely take him to a family doctor if it appears that he's losing way too much weight for his height and bone structure. Also, I'd have his thyroid checked as well. A complete physical usually includes that.

Listen to me....I'm the one who's scared to death of doctors--giving you advise. If I started practicing what I preach, maybe my health would be better also. It all goes back to, lack of funds. In my case $0.00 dollars. I'm very fortunate to have a fiance who has been supporting me to the best of his ability these past six years.

Blessed be...

http://360.yahoo.com/vallee45

-- Re: question

Hi Val,

Yes he has been a bit depressed. Our two sons are really having problems and even though they are married it worries us to no end.

We don't eat like we should because of Chuck only being on SS and a very small pension check.I told him if he looses much more we are going to go to the family dr.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

question

Chuck has lost more weight. All total since this all happened about 10 pounds. I will admit we don't eat right and have sandwiches a lot but was wondering if this is or could be part of MS.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

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[Guest guest]

>

> The only thing Chuck is on are his steroid treatments once a month.

> Hugs

> nne

> Breast Cancer Patients Soul Mates for Life

> http://www.geocities.com/chucky5741/breastcancerpatients.html

> BreastCancerStories.com

> http://www.breastcancerstories.com/content/view/433/161/

> Angel Feather Loomer

> www.angelfeatherloomer.blogspot.com

> Check out my other ornaments at

> www.geocities.com/chucky5741/bcornament.html

> Lots of info and gifts at:

> www.cancerclub.com

> question

>

>

>

> Chuck has lost more weight. All total since this all happened

about 10 pounds. I will admit we don't eat right and have sandwiches

a lot but was wondering if this is or could be part of MS.

> Hugs

> nne

> Breast Cancer Patients Soul Mates for Life

> http://www.geocitie s.com/chucky5741 /breastcancerpat ients.html

> BreastCancerStories .com

> http://www.breastca ncerstories. com/content/ view/433/ 161/

> Angel Feather Loomer

> www.angelfeatherloo mer.blogspot. com

> Check out my other ornaments at

> www.geocities. com/chucky5741/ bcornament. html

> Lots of info and gifts at:

> www.cancerclub. com

>

>

>

> __________________________________________________

>

[Guest guest]

No he is not being checked for liver enzymes. Will have to mention it to the neuro. Thanks for letting us know.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

question> > > > Chuck has lost more weight. All total since this all happened about 10 pounds. I will admit we don't eat right and have sandwiches a lot but was wondering if this is or could be part of MS.> Hugs> nne> Breast Cancer Patients Soul Mates for Life> http://www.geocitie s.com/chucky5741 /breastcancerpat ients.html> BreastCancerStories .com> http://www.breastca ncerstories. com/content/ view/433/ 161/> Angel Feather Loomer> www.angelfeatherloo mer.blogspot. com> Check out my other ornaments at> www.geocities. com/chucky5741/ bcornament. html> Lots of info and gifts at:> www.cancerclub. com> > > > __________________________________________________>

[Guest guest]

hey lyn,have you called the doctor?this has never happened to me,I hope

someone here has some input for you,but you should call the doc. Especially

since that area is sore.keep us posted please..hugs,cassy

[happybutterflies@...] wrote:

Can anyone relate? Or do you have any ideas what caused this. Or advice

Early Thursday morning say about two a m I was trying to go to sleep and was

relaxing. Then I heard what sounded like two gun shots one right after the

other. My head jerked so bad that I even checked if I was bleeding -- I was not

but about two inches behind my right ear was sore and slightly swollen. Tippy

Tue did not move so I know the " shots " were not real. About a half hour later my

head jerked again, but not as bad, there was no sound this time just a place

that hurt. It was about three inches above the first one.

These spots are still sore and I have a head ache on the right side. Also when

I was waking up Thursday morning about nine I was numb all over. I mean number

than " normal "

May you always find

HAPPINESS and BUTTERFLIES

Lynn

[Guest guest]

Lynn I would have no idea but I would think you should go to the doctor about this. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Question

Can anyone relate? Or do you have any ideas what caused this. Or advice

Early Thursday morning say about two a m I was trying to go to sleep and was relaxing. Then I heard what sounded like two gun shots one right after the other. My head jerked so bad that I even checked if I was bleeding -- I was not but about two inches behind my right ear was sore and slightly swollen. Tippy Tue did not move so I know the "shots" were not real. About a half hour later my head jerked again, but not as bad, there was no sound this time just a place that hurt. It was about three inches above the first one.

These spots are still sore and I have a head ache on the right side. Also when I was waking up Thursday morning about nine I was numb all over. I mean number than "normal"

May you always find HAPPINESS and BUTTERFLIES Lynn

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.410 / Virus Database: 268.16.9/623 - Release Date: 1/11/2007

[Guest guest]

See neurologist now! Please! Love, n

Question

Can anyone relate? Or do you have any ideas what caused this. Or advice

Early Thursday morning say about two a m I was trying to go to sleep and was relaxing. Then I heard what sounded like two gun shots one right after the other. My head jerked so bad that I even checked if I was bleeding -- I was not but about two inches behind my right ear was sore and slightly swollen. Tippy Tue did not move so I know the "shots" were not real. About a half hour later my head jerked again, but not as bad, there was no sound this time just a place that hurt. It was about three inches above the first one.

These spots are still sore and I have a head ache on the right side. Also when I was waking up Thursday morning about nine I was numb all over. I mean number than "normal"

May you always find HAPPINESS and BUTTERFLIES Lynn

[Guest guest]

Lynn-

I can't say that I can relate to that experience, but something like that would have scared me enough to make some phone calls, if not send me straight to a doctor.

I would definitely have that checked out. It may not be serious, but it sounds serious to me.

GBU....

http://360.yahoo.com/vallee45

-- Question

Can anyone relate? Or do you have any ideas what caused this. Or advice

Early Thursday morning say about two a m I was trying to go to sleep and was relaxing. Then I heard what sounded like two gun shots one right after the other. My head jerked so bad that I even checked if I was bleeding -- I was not but about two inches behind my right ear was sore and slightly swollen. Tippy Tue did not move so I know the "shots" were not real. About a half hour later my head jerked again, but not as bad, there was no sound this time just a place that hurt. It was about three inches above the first one.

These spots are still sore and I have a head ache on the right side. Also when I was waking up Thursday morning about nine I was numb all over. I mean number than "normal"

May you always find HAPPINESS and BUTTERFLIES Lynn

[Guest guest]

Lynn,

I agree with everyone else that tells you to call the doctor... It may

be nothing, but I think it's better to err on the side of precaution. I

do get strange ringing in my ears from time to time.. but have never

hear shots fired... and though my head has a tendency to bob and weave..

I don't remember it every suddenly jerking.. Legs are a different story...

I'd call the doc as soon as possible if it were me..

Take Care

|)onna

happybutterflies@... wrote:

>

> Can anyone relate? Or do you have any ideas what caused this. Or advice

>

> Early Thursday morning say about two a m I was trying to go to sleep and

> was relaxing. Then I heard what sounded like two gun shots one right

> after the other. My head jerked so bad that I even checked if I was

> bleeding -- I was not but about two inches behind my right ear

> was sore and slightly swollen. Tippy Tue did not move so I know the

> " shots " were not real. About a half hour later my head jerked again, but

> not as bad, there was no sound this time just a place that hurt. It was

> about three inches above the first one.

> These spots are still sore and I have a head ache on the right side.

> Also when I was waking up Thursday morning about nine I was numb all

> over. I mean number than " normal "

>

>

>

> May you always find

> HAPPINESS and BUTTERFLIES

[Guest guest]

Hi Lynn that does not sound normal I would probably contact my doctor to find out more. Let us know if it happens again.

Bill

Question

Can anyone relate? Or do you have any ideas what caused this. Or advice

Early Thursday morning say about two a m I was trying to go to sleep and was relaxing. Then I heard what sounded like two gun shots one right after the other. My head jerked so bad that I even checked if I was bleeding -- I was not but about two inches behind my right ear was sore and slightly swollen. Tippy Tue did not move so I know the "shots" were not real. About a half hour later my head jerked again, but not as bad, there was no sound this time just a place that hurt. It was about three inches above the first one.

These spots are still sore and I have a head ache on the right side. Also when I was waking up Thursday morning about nine I was numb all over. I mean number than "normal"

May you always find HAPPINESS and BUTTERFLIES Lynn

[Guest guest]

Hi Corinne

All the casein is taken out of the " Classic " only. My son is very

allergic to dairy and has seizures from it. He safely takes 9 of the

classics a day. I sell it now so I can get it cheaper. There is more

info on my website. It was one of the first things that made me go

wow when I gave it to my son. www.buttercuppuppies.com I am a

holistic dog breeder and sell it to my customers for their pets too!

jo

> Hi, does anyone know if transfer factor from 4 life, has casein in

it. I am

> enquiring for a friend overseas. thanks so much.

>

>

>

> Corinne

>

>

>

>

[Guest guest]

HI GORAN, HERE IS YOUR ANSWER TO THE TRANSFER FACTOR, THERE IS NO CASEIN IN

IT. PLEASE CONTINUE TO GIVE IT TO HIM.. HE NEEDS HELP..

CORINNE

_____

From: csb-autism-rx [mailto:csb-autism-rx ]

On Behalf Of jo

Sent: Friday, April 25, 2008 7:42 AM

To: csb-autism-rx

Subject: Re: QUESTION

Hi Corinne

All the casein is taken out of the " Classic " only. My son is very

allergic to dairy and has seizures from it. He safely takes 9 of the

classics a day. I sell it now so I can get it cheaper. There is more

info on my website. It was one of the first things that made me go

wow when I gave it to my son. www.buttercuppuppies.com I am a

holistic dog breeder and sell it to my customers for their pets too!

jo

> Hi, does anyone know if transfer factor from 4 life, has casein in

it. I am

> enquiring for a friend overseas. thanks so much.

>

>

>

> Corinne

>

>

>

>

[Guest guest]

This is how it's been with my mom also, until fairly recently. It made

no sense to me what she remembered and what she didn't but I found her

memory fairly remarkable at times. Of course as the disease has

progressed this has changed, but what you are describing is what we

experienced with my mom as well.

His,

Sherry

daughter/guardian of , dx 4/08 with LBD, living in a nearby NH

> Just an update and a question.

>

> My sister has somewhat leveled out, not a lot of ups and downs. I've even

begin to wonder if she has been diagnosed, or maybe it is just the meds working.

She is eating better and I think that has helped her overall condition. She

still has the tremors and rigidity that goes along with Parkinsons, needs help

walking and she still goes " on trips " as I call them. She insist that there is

a man that comes in her room and does surgery on her without her permission.

We've told her they have taken him to jail, but she said he has gotten out. I

wonder if she may be dreaming this. However, her memory is fairly good for the

most part. My brother-in-law has been seriously ill and she asks about him. If

I go a couple of days and haven't seen her, she will say I've not been there in

two weeks. Some of the sitters she will call by different names, but she still

knows all the family members. She frequently calls out to members of the

family who are not there.

>

> Has anyone else had a relative that has been diagnosed with LBD, but their

memory is still fairly good? Is this something that goes as the disease

progresses? This is such a confusing disease!!!

>

> Thanks

>

[Guest guest]

Hi ,

I absolutely have a relative with LBD but his memory is still quite intact at

times; my father. Part of this disease it that it is fairly common to have

moments of great lucidity followed by moments of absolute confusion, or

hallucinations, etc. My Dad has improved dramatically on his medications,

especially after an addition in January of Namenda. He is more lucid at most

times than he was a year ago by far. The good news is, your sister's meds are

working. The harder news is that you get a lot of confusion and mixed messages

regarding how she is cognitively.

I'm quite confident it is still LBD, just correctly diagnosed and treated...and

you are experiencing better times than you can expect down the road, and better

times than you experienced before. You're right, it can be a very confusing

disease!

Lori

Question

Just an update and a question.

My sister has somewhat leveled out, not a lot of ups and downs. I've even

begin to wonder if she has been diagnosed, or maybe it is just the meds working.

She is eating better and I think that has helped her overall condition. She

still has the tremors and rigidity that goes along with Parkinsons, needs help

walking and she still goes " on trips " as I call them. She insist that there is a

man that comes in her room and does surgery on her without her permission. We've

told her they have taken him to jail, but she said he has gotten out. I wonder

if she may be dreaming this. However, her memory is fairly good for the most

part. My brother-in-law has been seriously ill and she asks about him. If I go a

couple of days and haven't seen her, she will say I've not been there in two

weeks. Some of the sitters she will call by different names, but she still knows

all the family members. She frequently calls out to members of the family who

are not there.

Has anyone else had a relative that has been diagnosed with LBD, but their

memory is still fairly good? Is this something that goes as the disease

progresses? This is such a confusing disease!!!

Thanks