Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Hi Cory, It sounds like you got yourself a good ped neuro! Ultimately the decision to band or not is totally up to you. I'm not sure if repoing will take care of 's forehead. I think Christie might know. I have heard good things about Bill Barringer, you will be in good hands with him, if you chose that route. Also keep in mind, the younger a baby is banded, the better and faster the correction. It takes time to get a baby banded. The hold up is usually the ins company. Maybe you should contact them sooner then later. It would save you sometime in the end. Let us know what you decide. Good luck. --- In Plagiocephaly , " Cory Schwemley " <cory6@c...> wrote: > Well, we had our appt with Dr. Honeycutt at the OU Health Sciences Center in > OKC today. He's a really great guy, and younger than I expected. > > He said he normally does not *recommend* helmets for babies unless facial > asymmetry is involved, however if a parent wants one he will prescribe one. > He said he has only recommended a total of 5-6 helmets the whole time he's > been in practice. That being said he did recommend one for due to his > forehead bossing. > > was also diagnosed with mild torticollis and given a prescription for > physical therapy. How do I go about finding a good pt?? I have started > with asking people in my MOMS Club, and I'm going to ask my ped but I didn't > know if there are pt's that specialize in tort... > > The only thing I didn't like was he said plagio was totally cosmetic! He > said the eye guys across the street (referring to the Dean A. McGee Eye > Institute in OKC) think plagio causes vision problems but they can't prove > it. > > He said we could take a month or two to decide if we want to put him in a > helmet/band or not. I am leaning towards waiting to see if the physical > therapy will make a difference or not. My parents and dh are leaning more > towards getting one now. I just really want the repo to work and am not > sure what to do at this point. Does repo even correct the bossing of a > forehead?? Does anyone know? > > Part of me says to wait, maybe he won't need one at all. Another part says > get it now right at the start of winter so that maybe we can avoid the > stinkiness, and not have to wear it as long. ARG! I *HATE* decisions like > this... *sigh* > > He did say we would be working with Bill Barringer if we get one. The funny > thing was he didn't know what kind of helmets they were using. He told me > it was a passive helmet but I've heard from this list that they're using the > STARband now which is active... LOL He said he doesn't worry about that > part of it... > > I just feel so sad tonight for some reason. I don't think I was expecting > this at all and it's kind of thrown me for a loop, if ya know what I mean? > Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 I'm glad the Dr. was such a great guy! We didn't have to do pt with Jenna so i can't help you with that. I'm not sure that repo would help forehead bossing or not. We were so unsuccessful with our repositioning attempts. I don't think we were as aggressive as we should have been plus we weren't told about it until 6 months.- I believe you are correct about Bill using the STArband now. I know the decision is hard. Trust your mommy instincts. Please keep us updated. Jenna sends hugs 's way. Angie and Jenna(STAr grad 1/21/03) -- In Plagiocephaly , " Cory Schwemley " <cory6@c...> wrote: > Well, we had our appt with Dr. Honeycutt at the OU Health Sciences Center in > OKC today. He's a really great guy, and younger than I expected. > > He said he normally does not *recommend* helmets for babies unless facial > asymmetry is involved, however if a parent wants one he will prescribe one. > He said he has only recommended a total of 5-6 helmets the whole time he's > been in practice. That being said he did recommend one for due to his > forehead bossing. > > was also diagnosed with mild torticollis and given a prescription for > physical therapy. How do I go about finding a good pt?? I have started > with asking people in my MOMS Club, and I'm going to ask my ped but I didn't > know if there are pt's that specialize in tort... > > The only thing I didn't like was he said plagio was totally cosmetic! He > said the eye guys across the street (referring to the Dean A. McGee Eye > Institute in OKC) think plagio causes vision problems but they can't prove > it. > > He said we could take a month or two to decide if we want to put him in a > helmet/band or not. I am leaning towards waiting to see if the physical > therapy will make a difference or not. My parents and dh are leaning more > towards getting one now. I just really want the repo to work and am not > sure what to do at this point. Does repo even correct the bossing of a > forehead?? Does anyone know? > > Part of me says to wait, maybe he won't need one at all. Another part says > get it now right at the start of winter so that maybe we can avoid the > stinkiness, and not have to wear it as long. ARG! I *HATE* decisions like > this... *sigh* > > He did say we would be working with Bill Barringer if we get one. The funny > thing was he didn't know what kind of helmets they were using. He told me > it was a passive helmet but I've heard from this list that they're using the > STARband now which is active... LOL He said he doesn't worry about that > part of it... > > I just feel so sad tonight for some reason. I don't think I was expecting > this at all and it's kind of thrown me for a loop, if ya know what I mean? > Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Cory, I was hoping to see a post today about 's neuro appt. Please don't let your neuro's recommendation of a helmet or his diagnosis of mild tort overshadow the tremendous achievements you have made with repo! You are really doing a super, super job. The amount of improvement you have made with before he has even reached the minimum age to helmet or band is so encouraging for all of the parents out there repoing younger babies!! Asymmetries such as forehead bossing and ear asymmetry are tough to correct with helmets and bands, but they are enormously more difficult to even improve with repo. Have you been to the polls section? There is an ear asymmetry poll you might find helpful to read. I wish we had more information on forehead bossing correction while repoing. I think a lot of parents do go ahead and opt for helmets/bands when asymmetries such as these are present, so we just don't have information on repo correction of forehead bossing from the group on this situation. Plus, there may be a growing trend happening here of babies getting the word on plagio at such a young age, that you actually have time to give repo a try for a considerable duration before the baby's of banding age. That hasn't been the standard diagnosis scenario in the past. However, as you saw in previous responses, forehead bossing correction does happen with a degree of success with helmets/bands. When I was making up the helmet/band database, Marci responded that Bill Barringer had made his own local helmet in the past, but now she heard he is making the Starband, and highly recommended him as wonderfully skilled. Maybe that's why your Dr. was confused as to what helmet they made there? I don't know who else may have been to him, or had the Starband with him. I hope there are some in the group who can give you some personal experience information. And there are certainly many Starband parents here who can give you information on their treatment to help you evaluate this option, and whether or not to proceed with it now or later. Just know that repo has worked for you for a lot of correction, and that you may want to consider banding to finish the job and work on those stubborn asymmetries. It really can be a shock when a Dr. outright recommends the band (we are so used to hearing stories of Dr.'s saying banding isn't necessary, but will write a prescription to satisfy concerned parents.) I'm sorry you feel sad tonight! Whatever you decide, know that is a total cutie-pie and you have our support. Please keep us updated! Take care, Christie (Mom to Repo'd Remy) > Well, we had our appt with Dr. Honeycutt at the OU Health Sciences Center in > OKC today. He's a really great guy, and younger than I expected. > > He said he normally does not *recommend* helmets for babies unless facial > asymmetry is involved, however if a parent wants one he will prescribe one. > He said he has only recommended a total of 5-6 helmets the whole time he's > been in practice. That being said he did recommend one for due to his > forehead bossing. > > was also diagnosed with mild torticollis and given a prescription for > physical therapy. How do I go about finding a good pt?? I have started > with asking people in my MOMS Club, and I'm going to ask my ped but I didn't > know if there are pt's that specialize in tort... > > The only thing I didn't like was he said plagio was totally cosmetic! He > said the eye guys across the street (referring to the Dean A. McGee Eye > Institute in OKC) think plagio causes vision problems but they can't prove > it. > > He said we could take a month or two to decide if we want to put him in a > helmet/band or not. I am leaning towards waiting to see if the physical > therapy will make a difference or not. My parents and dh are leaning more > towards getting one now. I just really want the repo to work and am not > sure what to do at this point. Does repo even correct the bossing of a > forehead?? Does anyone know? > > Part of me says to wait, maybe he won't need one at all. Another part says > get it now right at the start of winter so that maybe we can avoid the > stinkiness, and not have to wear it as long. ARG! I *HATE* decisions like > this... *sigh* > > He did say we would be working with Bill Barringer if we get one. The funny > thing was he didn't know what kind of helmets they were using. He told me > it was a passive helmet but I've heard from this list that they're using the > STARband now which is active... LOL He said he doesn't worry about that > part of it... > > I just feel so sad tonight for some reason. I don't think I was expecting > this at all and it's kind of thrown me for a loop, if ya know what I mean? > Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Hi Cory - I know exaclty where you are coming from, I think we all do. I remember thinking that there could never be anything wrong with my perfect little baby and then I heard words like plagio and helmets and I was terrified and depressed. I actually cried all the way home from our peds office when she referred us to CT because I had no idea what was going to happen. For us deciding to band was also very hard! We tried repo-ing for 2.5 months w/o any success. My son did have the bossing forhead too and I really dont think that will correct itslef but I am not sure. We have been banded since Xavier was almost 4 months old and he is now 7 motnhs and on band #2. We are seeing terrific results and I am so glad that we have decided to take this road. As for your question to band or not to band- that is totally up to you and your family but knowing what I do now if I was in your position I would go for the band as soon as you can. The younger a baby is the shorter they have to wear it. I also think you have a point about the cooler months. Xavier's first band stunk so bad here in AZ in the 115 degree weather but now that it is cooling down his 2nd band doesnt stink at all ) But remember its totally up to you and your family and its ok to be a little sad but really once you get started its easier then you could ever imagine sitting where you are now. Hang in there and let us know what you decide to do. Donna and Xavier DOCband 7/25 and 10/8 --- In Plagiocephaly , " Cory Schwemley " <cory6@c...> wrote: > Well, we had our appt with Dr. Honeycutt at the OU Health Sciences Center in > OKC today. He's a really great guy, and younger than I expected. > > He said he normally does not *recommend* helmets for babies unless facial > asymmetry is involved, however if a parent wants one he will prescribe one. > He said he has only recommended a total of 5-6 helmets the whole time he's > been in practice. That being said he did recommend one for due to his > forehead bossing. > > was also diagnosed with mild torticollis and given a prescription for > physical therapy. How do I go about finding a good pt?? I have started > with asking people in my MOMS Club, and I'm going to ask my ped but I didn't > know if there are pt's that specialize in tort... > > The only thing I didn't like was he said plagio was totally cosmetic! He > said the eye guys across the street (referring to the Dean A. McGee Eye > Institute in OKC) think plagio causes vision problems but they can't prove > it. > > He said we could take a month or two to decide if we want to put him in a > helmet/band or not. I am leaning towards waiting to see if the physical > therapy will make a difference or not. My parents and dh are leaning more > towards getting one now. I just really want the repo to work and am not > sure what to do at this point. Does repo even correct the bossing of a > forehead?? Does anyone know? > > Part of me says to wait, maybe he won't need one at all. Another part says > get it now right at the start of winter so that maybe we can avoid the > stinkiness, and not have to wear it as long. ARG! I *HATE* decisions like > this... *sigh* > > He did say we would be working with Bill Barringer if we get one. The funny > thing was he didn't know what kind of helmets they were using. He told me > it was a passive helmet but I've heard from this list that they're using the > STARband now which is active... LOL He said he doesn't worry about that > part of it... > > I just feel so sad tonight for some reason. I don't think I was expecting > this at all and it's kind of thrown me for a loop, if ya know what I mean? > Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Cory, We also used Dr.Honeycutt and were thrilled. I would highly recommend Bill Barringer as an orthotist. He has treated over 600 babies with palgiocephaly, so he is defintitly experinced!!! I am also very familier with the docs at Dean McGee. They are very good and you will get great care. It has been my experince that most of the doctors at the OU Health Sciences Center are really great. I have used many and would not hesitate to recommend them. They are really one of the best medical communities. On looking for a PT. You may want to investigate Oklahoma's early intervention, I think it is called Sooner Starts. In many states, Missouri being one, babies birth to age 3 will qualify for EI with plagio and tort. Bill Barringer wrote a letter expressing what would happen if we did not treat the plagio and tort. We get all our OT, PT, and speech in the home paid for through EI. Each state has different factors to qualify but it is worth investigating. I would call your Dr.Honeycutts office to see if they could give you a number If there is any thing else I can do let me know. Feel free to email me. Good luck in whatever desicion you choose. in SW Missouri Caleb 3 and Lucas 21 months (starbanded 1st time 8/26/2 and banded 2nd time from 12/12/2 to 5/9/2003) Re: 's ped neuro appt Cory, I was hoping to see a post today about 's neuro appt. Please don't let your neuro's recommendation of a helmet or his diagnosis of mild tort overshadow the tremendous achievements you have made with repo! You are really doing a super, super job. The amount of improvement you have made with before he has even reached the minimum age to helmet or band is so encouraging for all of the parents out there repoing younger babies!! Asymmetries such as forehead bossing and ear asymmetry are tough to correct with helmets and bands, but they are enormously more difficult to even improve with repo. Have you been to the polls section? There is an ear asymmetry poll you might find helpful to read. I wish we had more information on forehead bossing correction while repoing. I think a lot of parents do go ahead and opt for helmets/bands when asymmetries such as these are present, so we just don't have information on repo correction of forehead bossing from the group on this situation. Plus, there may be a growing trend happening here of babies getting the word on plagio at such a young age, that you actually have time to give repo a try for a considerable duration before the baby's of banding age. That hasn't been the standard diagnosis scenario in the past. However, as you saw in previous responses, forehead bossing correction does happen with a degree of success with helmets/bands. When I was making up the helmet/band database, Marci responded that Bill Barringer had made his own local helmet in the past, but now she heard he is making the Starband, and highly recommended him as wonderfully skilled. Maybe that's why your Dr. was confused as to what helmet they made there? I don't know who else may have been to him, or had the Starband with him. I hope there are some in the group who can give you some personal experience information. And there are certainly many Starband parents here who can give you information on their treatment to help you evaluate this option, and whether or not to proceed with it now or later. Just know that repo has worked for you for a lot of correction, and that you may want to consider banding to finish the job and work on those stubborn asymmetries. It really can be a shock when a Dr. outright recommends the band (we are so used to hearing stories of Dr.'s saying banding isn't necessary, but will write a prescription to satisfy concerned parents.) I'm sorry you feel sad tonight! Whatever you decide, know that is a total cutie-pie and you have our support. Please keep us updated! Take care, Christie (Mom to Repo'd Remy) > Well, we had our appt with Dr. Honeycutt at the OU Health Sciences Center in > OKC today. He's a really great guy, and younger than I expected. > > He said he normally does not *recommend* helmets for babies unless facial > asymmetry is involved, however if a parent wants one he will prescribe one. > He said he has only recommended a total of 5-6 helmets the whole time he's > been in practice. That being said he did recommend one for due to his > forehead bossing. > > was also diagnosed with mild torticollis and given a prescription for > physical therapy. How do I go about finding a good pt?? I have started > with asking people in my MOMS Club, and I'm going to ask my ped but I didn't > know if there are pt's that specialize in tort... > > The only thing I didn't like was he said plagio was totally cosmetic! He > said the eye guys across the street (referring to the Dean A. McGee Eye > Institute in OKC) think plagio causes vision problems but they can't prove > it. > > He said we could take a month or two to decide if we want to put him in a > helmet/band or not. I am leaning towards waiting to see if the physical > therapy will make a difference or not. My parents and dh are leaning more > towards getting one now. I just really want the repo to work and am not > sure what to do at this point. Does repo even correct the bossing of a > forehead?? Does anyone know? > > Part of me says to wait, maybe he won't need one at all. Another part says > get it now right at the start of winter so that maybe we can avoid the > stinkiness, and not have to wear it as long. ARG! I *HATE* decisions like > this... *sigh* > > He did say we would be working with Bill Barringer if we get one. The funny > thing was he didn't know what kind of helmets they were using. He told me > it was a passive helmet but I've heard from this list that they're using the > STARband now which is active... LOL He said he doesn't worry about that > part of it... > > I just feel so sad tonight for some reason. I don't think I was expecting > this at all and it's kind of thrown me for a loop, if ya know what I mean? > Cory For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Cory, Bill B. is treating with STARBands now. All of this information can be overwhelming. Be careful of information overload. Take it in stide and you and will be fine. Keep us updated on what you decide to do and if your able to fine a PT for his tort. Dustie --- In Plagiocephaly , " Cory Schwemley " <cory6@c...> wrote: > Well, we had our appt with Dr. Honeycutt at the OU Health Sciences Center in > OKC today. He's a really great guy, and younger than I expected. > > He said he normally does not *recommend* helmets for babies unless facial > asymmetry is involved, however if a parent wants one he will prescribe one. > He said he has only recommended a total of 5-6 helmets the whole time he's > been in practice. That being said he did recommend one for due to his > forehead bossing. > > was also diagnosed with mild torticollis and given a prescription for > physical therapy. How do I go about finding a good pt?? I have started > with asking people in my MOMS Club, and I'm going to ask my ped but I didn't > know if there are pt's that specialize in tort... > > The only thing I didn't like was he said plagio was totally cosmetic! He > said the eye guys across the street (referring to the Dean A. McGee Eye > Institute in OKC) think plagio causes vision problems but they can't prove > it. > > He said we could take a month or two to decide if we want to put him in a > helmet/band or not. I am leaning towards waiting to see if the physical > therapy will make a difference or not. My parents and dh are leaning more > towards getting one now. I just really want the repo to work and am not > sure what to do at this point. Does repo even correct the bossing of a > forehead?? Does anyone know? > > Part of me says to wait, maybe he won't need one at all. Another part says > get it now right at the start of winter so that maybe we can avoid the > stinkiness, and not have to wear it as long. ARG! I *HATE* decisions like > this... *sigh* > > He did say we would be working with Bill Barringer if we get one. The funny > thing was he didn't know what kind of helmets they were using. He told me > it was a passive helmet but I've heard from this list that they're using the > STARband now which is active... LOL He said he doesn't worry about that > part of it... > > I just feel so sad tonight for some reason. I don't think I was expecting > this at all and it's kind of thrown me for a loop, if ya know what I mean? > Cory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 --- In Plagiocephaly , " redlocks2003 " <redlocks@d...> > Asymmetries such as forehead bossing and ear asymmetry are tough to > correct with helmets and bands<< Just wanted to clarify, forehead bossing is typically one of the first areas to see correction with the use of a band. I know that's where we first saw correction in Abby's head, almost right away with the bossing. Debbie Abby's mom DOCGrad MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Cory, Stop driving yourself crazy! You did a wonderful job with the repo. It's going to be much easier for the band to work - and a much shorter treatment time. 's tort seems to be very mild (especially considering your repo success). I doubt the bossing has come in the past 2 months while you have been aggressively repositioning. So stop beating yourself up. You have been working hard in 's best interest. <<HUGS>> na/DOC/4 days/SC/4.5 mos Re: Re: 's ped neuro appt Thanks for all the support you all have shown me. I was really sad/in shocklast night. You all helped tremendously!Christie, thanks for reminding me that my repo efforts do count forsomething! I had forgotten that. Thanks to everyone else who respondedthat they knew what I was going through. It is so helpful to hear that.Thanks for all the info about ECI, is that an income based program? If itis, I doubt we would qualify. Our insurance does cover the PT, so I'm nottoo worried about that. I did find a highly recommended lady (who also hasa 5 month old!) here in town that works exclusively with children and babiesand has done a lot of work w/tort. He has his first session on Monday,11/3.After talking with dh and my mom I did decide (dh left the decision up tome) that it would be in 's best interest to go ahead and get ahelmet/band now. So, I called and made an appt. He has an appt w/BillBarringer on Wed. Nov 12 at 10am to be casted. He will be exactly 5 monthsand one week.The really weird/spooky thing is that is exactly how old, to the day, thatmy now 4yo dd was when she had her seizures. They think her seizures werehereditary (she grew out of them and is completely fine now), and I am SOhoping that we don't have to go through that again with and that we'redealing with this instead!So, while I'm not completely happy with the situation, I have accepted itand am feeling much better about things today! I do sometimes wonder if Ihad accepted the referral to the neuro when it was first offered when was 13 weeks and if we had gotten the tort diagnosed then, if the outcomewould have been different. PT would've been started earlier, so maybe therepo would've worked better... but then the damage was already done to hisforehead so if repo doesn't correct that at all maybe it wouldn't have madea difference... Who knows?!? I do know I'm driving myself crazy wonderingand it's gotta stop!! LOLCory, 6/5/03, waiting to be cast on 11/12, Norman, OKFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Thanks for all the support you all have shown me. I was really sad/in shock last night. You all helped tremendously! Christie, thanks for reminding me that my repo efforts do count for something! I had forgotten that. Thanks to everyone else who responded that they knew what I was going through. It is so helpful to hear that. Thanks for all the info about ECI, is that an income based program? If it is, I doubt we would qualify. Our insurance does cover the PT, so I'm not too worried about that. I did find a highly recommended lady (who also has a 5 month old!) here in town that works exclusively with children and babies and has done a lot of work w/tort. He has his first session on Monday, 11/3. After talking with dh and my mom I did decide (dh left the decision up to me) that it would be in 's best interest to go ahead and get a helmet/band now. So, I called and made an appt. He has an appt w/Bill Barringer on Wed. Nov 12 at 10am to be casted. He will be exactly 5 months and one week. The really weird/spooky thing is that is exactly how old, to the day, that my now 4yo dd was when she had her seizures. They think her seizures were hereditary (she grew out of them and is completely fine now), and I am SO hoping that we don't have to go through that again with and that we're dealing with this instead! So, while I'm not completely happy with the situation, I have accepted it and am feeling much better about things today! I do sometimes wonder if I had accepted the referral to the neuro when it was first offered when was 13 weeks and if we had gotten the tort diagnosed then, if the outcome would have been different. PT would've been started earlier, so maybe the repo would've worked better... but then the damage was already done to his forehead so if repo doesn't correct that at all maybe it wouldn't have made a difference... Who knows?!? I do know I'm driving myself crazy wondering and it's gotta stop!! LOL Cory , 6/5/03, waiting to be cast on 11/12, Norman, OK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hi Cory! ECI is not an income based system, but it sounds like you have a great therapist all lined up. Our insurance would have covered an outside therapist as well, I just appreciated the convenience of doing it at home, not to mention that he was more comfortable in his familiar surroundings. The exercises are not fun and that helped him be a little more at ease. Let us know how it goes, she sounds great! I'm glad to hear that your decision is made and that you were able to get an appointment so quickly. It sounds like there have been lots of good experiences with your Orthotist so I'm sure you will be glad you went ahead with it. He is at a great age for banding, he will be done in no time! Jen- TXTrentyn- 17 mo. DocBand 06/12/03 & 09/17/03 Re: Re: 's ped neuro appt Thanks for all the support you all have shown me. I was really sad/in shocklast night. You all helped tremendously!Christie, thanks for reminding me that my repo efforts do count forsomething! I had forgotten that. Thanks to everyone else who respondedthat they knew what I was going through. It is so helpful to hear that.Thanks for all the info about ECI, is that an income based program? If itis, I doubt we would qualify. Our insurance does cover the PT, so I'm nottoo worried about that. I did find a highly recommended lady (who also hasa 5 month old!) here in town that works exclusively with children and babiesand has done a lot of work w/tort. He has his first session on Monday,11/3.After talking with dh and my mom I did decide (dh left the decision up tome) that it would be in 's best interest to go ahead and get ahelmet/band now. So, I called and made an appt. He has an appt w/BillBarringer on Wed. Nov 12 at 10am to be casted. He will be exactly 5 monthsand one week.The really weird/spooky thing is that is exactly how old, to the day, thatmy now 4yo dd was when she had her seizures. They think her seizures werehereditary (she grew out of them and is completely fine now), and I am SOhoping that we don't have to go through that again with and that we'redealing with this instead!So, while I'm not completely happy with the situation, I have accepted itand am feeling much better about things today! I do sometimes wonder if Ihad accepted the referral to the neuro when it was first offered when was 13 weeks and if we had gotten the tort diagnosed then, if the outcomewould have been different. PT would've been started earlier, so maybe therepo would've worked better... but then the damage was already done to hisforehead so if repo doesn't correct that at all maybe it wouldn't have madea difference... Who knows?!? I do know I'm driving myself crazy wonderingand it's gotta stop!! LOLCory, 6/5/03, waiting to be cast on 11/12, Norman, OKFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Cory, I am glad you are feeling better! Your great repo results definitely helped ! His repo correction will definitely lessen the time he will be banded. Let us know how the casting goes. i am so glad your daughter no longer has seizures. That had to be very scarey. When my son was 1 they thought he was having small seizures. We had to have an eeg done on him. It came back fine. Try not to do the wonder ifs. I drove myself crazy with them. I wonder what if Jenna was banded at 6 months (took from 6 to 9 months to get into the specialist). What if i would have researched her headshape early. I drove mysel (and my husband nuts!) You know what she looks great now even with the what ifs. So i finally decided that i am done with the what ifs! You have done a wonderful job repositioning . You are a wonderful mom!!! Angie and Jenna(STAR band grad 1/21/03) Re: Re: 's ped neuro appt Thanks for all the support you all have shown me. I was really sad/in shocklast night. You all helped tremendously!Christie, thanks for reminding me that my repo efforts do count forsomething! I had forgotten that. Thanks to everyone else who respondedthat they knew what I was going through. It is so helpful to hear that.Thanks for all the info about ECI, is that an income based program? If itis, I doubt we would qualify. Our insurance does cover the PT, so I'm nottoo worried about that. I did find a highly recommended lady (who also hasa 5 month old!) here in town that works exclusively with children and babiesand has done a lot of work w/tort. He has his first session on Monday,11/3.After talking with dh and my mom I did decide (dh left the decision up tome) that it would be in 's best interest to go ahead and get ahelmet/band now. So, I called and made an appt. He has an appt w/BillBarringer on Wed. Nov 12 at 10am to be casted. He will be exactly 5 monthsand one week.The really weird/spooky thing is that is exactly how old, to the day, thatmy now 4yo dd was when she had her seizures. They think her seizures werehereditary (she grew out of them and is completely fine now), and I am SOhoping that we don't have to go through that again with and that we'redealing with this instead!So, while I'm not completely happy with the situation, I have accepted itand am feeling much better about things today! I do sometimes wonder if Ihad accepted the referral to the neuro when it was first offered when was 13 weeks and if we had gotten the tort diagnosed then, if the outcomewould have been different. PT would've been started earlier, so maybe therepo would've worked better... but then the damage was already done to hisforehead so if repo doesn't correct that at all maybe it wouldn't have madea difference... Who knows?!? I do know I'm driving myself crazy wonderingand it's gotta stop!! LOLCory, 6/5/03, waiting to be cast on 11/12, Norman, OKFor more plagio info Quote Link to comment Share on other sites More sharing options...
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