Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Dear folks -- I'm on the vulvodynia list as well, and Dr. Glazer (the biofeedback innovator) posted the following to the list, from a colleague of his in Australia. Dr. Reid offers both a detailed theory of vulvodynia (his idea is that it's the sympathetic, or " unconscious " nerves and not the conscious nerves that are misfiring) and posits that the 20% of people not cured by biofeedback (don't know where he got that number) will be cured by a special surgery that's less radical than a vestibulectomy, wherein the Bartholin's glands are simply removed. I wasn't sure what I thought of this last idea, but his particular nerve theory makes sense to me, and I think the other type of surgery is worth us all hearing about, just knowing it's out there... best, katherine ********** Dear groupmembers: A colleague of mine, Dr. Reid, a vulvar pain specialist from Sydney Australia has requested that I post the following message. Glazer Ph.D. Re: vulvar vestibulitis Posted by Dr Reid, on November 14, 2000 at 16:36:59: In Reply to: Re: vulvar vestibulitis posted by Jill on August 16, 1999 at 17:02:57: ---------------------------------------------------------------------------- ---- Vulvodynia has puzzled medicine for some time. One of the main sources of confusion has been the (quite reasonable) search for a specific “disease” within the chronically inflamed and painful tissues. In fact, these areas of painful vulvar skin do not harbor any concrete “disease” process (such as infection, etc). Rather, modern research now sees vulvodynia as a chronic pain loop, rather than a structural alteration of tissue architecture (such as could be seen through a microscope). Although vulvodynia is now sometimes referred to as pudendal neuralgia (pain resulting from malfunction of the normal “conscious” nerves to the pelvis), there is no hard evidence to support such belief. Rather, the weight of evidence favors the view that this abnormal pain reflex is maintained through a malfunction of pelvic sympathetic nerves. The term “sympathetic” refers to the “unconscious” part of our nervous system that control various “visceral” functions (like blood flow, breathing, bowel function, etc). Under normal circumstances, sympathetic fibres do indeed transmit pain messages from the viscera (especially from the intestines), but not from “somatic” structures (like skin, muscle, bone, etc). Unfortunately, sympathetic nerves can become involved in transmitting somatic rather than visceral pain. When this happens, the end result is an unremitting, burning, difficult-to-localize pain with very little capacity for spontaneous regression. The vulvar vestibule and Bartholin’s glands are particularly susceptible to sympathetic pain loops, because these structures are formed embryologically from the “cloaca” (the boundary zone between rectum and perineal skin, in a fetus). This information is explained in greater detail in a two-volume set of Obstetrics & Gynecology Clinics of North America, dealing with Human Papillomavirus (HPV) infection. Of course, HPV has nothing to do with vulvodynia! However, my co-editor and I included the topic to help safeguard general OB/GYNs against the error of performing CO2 laser surgery on vulvodynia patients. [Reid, . " The Management of Genital Condylomas, Intraepithelial Neoplasia, and Vulvodynia, " Obstetrics & Gynecology Clinics of North America Vol 23, No. 4 (December) 1996: 917-991.] Traditional medical remedies (topical estrogen, Elavil, nerve blocks, interferon) are generally ineffective (at least for the dyspareunic element of vulvodynia). Conversely, biofeedback is a highly efficacious, non-invasive therapy that will cure about 80% of all patients. The remaining 20% are also generally curable… no matter how severe the pain or how long- standing the symptoms. However, in this 20% subset, cure generally requires surgery. When surgery is being considered, most OB/GYNs offer vestibulectomy (an operation that cuts off a critical portion of vulvar skin, at the vaginal entrance). Unfortunately, vestibulectomy is deforming, unreliable and ideally should become obsolete. Much better cure rates (95% vs 60%) can be obtained with a more intricate and non-deforming operation, called microsurgical removal of Bartholin’s glands (lubrication glands situated about 1 inch deep to the tender spots on either side of vaginal entrance). Major drawback of microsurgical removal of Bartholin’s glands is that it requires very sophisticated surgical skills, and Surgeons trained to do this operation are not readily available. I saw your post while preparing my new Website (“Vulvodynia is curable”). This site will take a little more time yet. However, feel free to E-mail me back if you want more information. Reid, MD Quote Link to comment Share on other sites More sharing options...
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